I fa hian lupus a vei em? Nu leh pa anga i hriat tur chu

I fa chu a hrisel lo reng em? An ruh a na em? An hmaiah hian a chang chuan hnim hring, hnim hring ang maia hring a awm em? Heng symptoms zinga pakhat emaw pahnih emaw chauh ni lovin, a zawna engemaw zat i neih chuan i lungngai hle mai thei. Vawiin hian heng symptom tam tak hi a lo lang dun thei a, a buaithlak deuh a, mahse uluk taka enkawl theih a ni Chu chu naupangte zingah lupus a ni.

A awlsam zawngin, heng naupangte zingah hian lupus hi eng nge ni?

Lupus hi autoimmune disease a ni a, kum eng pawhah a nghawng thei a ni. A awlsam zawngin sawi ila, kan taksa chakna (immune system) hna ber chu hnam dang rawn lut, natna thlentu hrik leh virus te laka min humhim hi a ni. Mahse lupus vei chuan natna vanduaithlak tak a nei a. He immune system hi a kal sual thin. Amah ngeiin a cell leh tissue hrisel te chu "hmêlma" angin a hmu tan ta a ni. Chumi hnuah chuan chu cell hrisel tak takte chu a bei tan ta a ni. Kan sipai ngeiin hnam dang rawn bei ai chuan mahni mite bei ang mai a ni.

Kum 18 an tlin hmaa natna hi hriatchhuah a nih chuan "juvenile lupus" kan ti thin. Naupangte lupus hi puitlingah chuan lupus aiin a na deuh thei. Chumi awmzia chu:

• Natna active zawk: Inflammation leh a kaihhnawih symptoms te chu a langsar zawk thei.
• Internal organs tihchhiat theihna a sang: Vital organs, a bik takin kidney, heart, lung leh thluak te hi a nghawng thei a ni.
• Enkawlna chak zawk mamawh: Damdawi dose tihpun a ngai mai thei.
• Damdawi hun rei tak hman avanga nghawng tha lo: Damdawi, a bik takin steroid (corticosteroid) rei tak ei hian nghawng tha lo a neih theih dan tur i hre reng tur a ni.

Naupangte zingah lupus chi khat awm tam ber chu Systemic Lupus Erythematosus (SLE) a ni. Miin "lupus" a tih hian he SLE chi hi an sawina a ni tlangpui. `Childhood-onset SLE` emaw `Juvenile-onset SLE` emaw an ti bawk. Kum 12 vel atanga a lan chhuah tan tlangpui a, mahse a hma emaw, a hnu emaw pawhin a intan thei. Naupang kum 5 hnuai lam tan lupus vei hi a tlem hle.

Naupangin lupus a vei tih hriat theihna tur symptoms engte nge ni?

Lupus chungchanga thil danglam tak pakhat chu naupang zawng zawng hian symptom set inang an nei vek lo tih hi a ni. Mi thenkhat chuan symptom set khat an nei a, thenkhat erawh chuan a danglam vek thung. Chuvangin doctor-te chuan hei hi "lupus fingerprint" an ti a - chu chu mi tin hian symptoms pattern danglam bik an nei tihna a ni.

Heng symptoms te hi hmun hnih ah then ila.

I fain a hriat leh i hmuh thin symptoms te

Hengte hi i fate nitin nunah i hmuh leh tawn thinte chu a ni.

Heng symptoms te hi hun kal zelah a lo lang zauh zauh thei a, vawi khatah a lang vek thei bawk. I fa hian heng symptoms zinga pakhat a neih vang mai mai hian lupus a vei tih ring suh. Entîr nân, khawsik chhan dang sâng tam tak a awm thei a ni. Doctor chuan heng symptom engemawzat a lo lan dun chuan lupus a ringhlel ang .

Damdawi lam test atanga chhinchhiahna lang chhuak

Hengte hi doctor-in test a tih hmanga hmuh theih a ni a, a bik takin thisen leh zun test hmanga hmuh theih a ni.

• Thisen cell zat tlahniam: 1.1.
• Thisen sen (red blood cells) tlahniam (anemia) .
• Platelet count tlahniam (thrombocytopenia) 1.1.
• Thisen var tlahniam (leukopenia) .
• Antinuclear Antibodies (ANA): Hetiang antibody chi `ANA` an tih hi lupus vei naupang thisenah hmuh tur a awm fo. Mahse, `positive` ANA test hian lupus i vei tihna a ni hauh lo. Mi hrisel pawh a chang chuan `positive` an ni thei bawk. Chuvangin i doctor chuan report awmzia a hrilhfiah ang che.

Lupus natna avanga harsatna awm thei te chu engte nge ni?

Enkawlna dik tak chuan heng harsatnate hi nasa takin a tihziaawm thei a, mahse naupang thenkhat chuan heng natna hi an la nei thei tho a ni.

• Kidney damage (Lupus Nephritis): Hei hi naupangte tana harsatna lian ber a ni. Immune system hian kal a bei a, chu chuan kal a tichhe thei a ni. Naupang hian a zun chhunga protein awm vangin a ke a hring leh a zun (foamy urine) ang chi natna lanchhuahna a nei thei a ni.
• Lung leh heart effects: Lung chhunga lining inflammation (pleurisy) emaw heart vel sac inflammation (pericarditis) emaw a awm thei. Heng pahnih hian rilru natna nasa tak a thlen thei a ni .
• Central nervous system effects: Thluak leh ruhro a nghawng chuan lu na nasa tak, nungchang inthlak danglamna, leh seizure ang chi dinhmun a awm thei.
• Thisen zam: Thisen zam hi thisen kalna kawng chhungah a lo awm thei a, a bik takin keah hian thisen zam a lo awm thei a ni. A lan chhuah dan chu a ke natna, a hring leh a sen te a ni.

Engvangin nge naupangte hian lupus an vei?

Hei hi a chhan pakhat, chiang tak a la awm lo a, mahse zirchiangtute chuan thil hrang hrang inzawmkhawm avanga lo awm niin an ngai.

1. Genetics: Chhungkaw zinga mi tu emaw chuan lupus emaw autoimmune natna dang emaw a neih chuan naupang pawhin natna vei duhna tlem a nei thei bawk. Mahse, chutiang genes neih chuan lupus an nei dawn tihna a ni hauh lo.

2. Environmental Triggers: Naupang genetic predisposition nei chuan pawn lam thil avanga natna hi a vei thei a ni. Chutiang trigger-te chu:

• Viral infection a ni
• Ni êng chak tak (UVA/UVB rays) hnuaia awm .
• Hormone inthlak danglamna (a bik takin puitlin lai) .

A awlsam zawngin sawi ila, genes hi silai mu, silai mu khat ang mai a ni. Mahse trigger (trigger) hrualtu tur awm lo se chuan bullet chu a puak lo ang. Lupus chu chutiang chu a ni.

He natna hi engtin nge doctor hian a hriat theih ang?

Lupus hriatchhuah hi thil buaithlak tak a ni a, a chhan chu a bik taka test pakhat chauh a awm loh vang a ni. Doctor chuan thil engemaw zat a thlunzawm ang a, chu chuan diagnosis a thlen ang.

• Nangmah leh i fate nena inbiakna: I fate chu an natna lan chhuah dan chipchiar takin zawt la, engtikah nge an lo intan tih leh eng chen nge an awm tawh tih te hi zawt rawh.
• Taksa enfiahna kimchang neih: Vun natna, ruh natna leh hmui natna te enfiah.
• Thisen leh zun test: A hmaa kan sawi tawh ang khan heng test te hian thil tam tak a check thin a, chu chu `ANA` test, thisen cell count, leh kidney function te hi a ni.
• Chhungkaw chanchin: Chhungkaw zingah lupus emaw, chutiang chi natna emaw nei an awm em tih zawt rawh.

Heng zawng zawng hi a ngaihtuah hnuah doctor chuan lupus i vei leh neih loh a rel thin.

Lupus enkawlna tur engte nge ni?

Tunah hian lupus hi damdawi a la awm lo. Mahse, lungngai suh. Natna thunun thei tur leh i fate nun pangngaia nunpui thei tur enkawlna tha tak tak a awm nual. Enkawlna tum berte chu:

• Naupang natna lanchhuahna tihtlem.
• Immune system-in taksa peng hrang hrang a tihchhiat lohna tura tihtawp.
• Naupang taksa leh rilru hriselna zawng zawng level tha taka vawn.

Specialist team te chu an inkhawm a, naupangte tana siam tur treatment plan an siam thin. He team-ah hian pediatric rheumatologist , nurse, physical therapist, leh rilru lam hriselna lama mithiamte an tel thei a ni.

Damdawi hman chi hrang hrang a awm a, chungte chu:

• Corticosteroids: Entirnan, damdawi pakhat `Prednisone` an tih. Hengte hian taksaa inflammation awm chu a control nghal vat thin.
• Hydroxychloroquine hmanga siam a ni:Hei hi malaria damdawi ni mahse, lupus flares control-na kawngah a \angkai hle.
• Immunosuppressants: Heng damdawi te hian overactive immune system a ti hniam a, hna a thawk a ni. Hemi zingah hian damdawi `Azathioprine`, `Mycophenolate mofetil`, `Methotrexate` te hi an tel a ni.
• Painkillers: Damdawi `Ibuprofen` emaw `Naproxen` ang chi hi ruh natna atan pek theih a ni.
• Calcium leh vitamin D: Hengte hi ruh natna (osteoporosis) venna atana pek a ni a, steroid rei tak ei hian ruh a ti na thei a ni.

Enkawlna avanga side effects te pawh i hrechiang ang u.

Damdawi zawng zawng ang bawkin lupus damdawi hian side effect a nei thei a ni. Chu chu Doctor chuan a hre reng a, enkawl lai hian a tul ang ang test a ti thin.

• Prednisone (steroid): Hun rei tak hman chuan taksa rihna a tipung thei a, stretch mark a tipung thei a, thisen sang a tisang thei a, ruh a ti sei thei bawk a, lungngaihna a thlen thei a, zunthlum a thlen thei a, mitdelna a thlen thei bawk.
• Hydroxychloroquine: A tlem hle a, mit retina a tichhia thei. Chuvangin, naupang he damdawi ei zawng zawngte hi mit lam doctor hnenah mit enfiah reng tur a ni.
• Immunosuppressants: Heng damdawi te hian thisen var cell count a tihniam thei a, liver inflammation a thlen thei bawk. Tin, immunity an tihhniam bawk a, natna kai theihna a tipung bawk. Chuvangin hengte hi enfiah turin thisen test mumal tak neih thin a ni.

Engtin nge kei hian nu leh pa angin ka fate hi ka puih theih ang?

He zinkawngah hian i thawhhlawkzia hi a hlu hle. Fate enkawlna tha ber pek theih nan thil tam tak a awm a.

1. Ni laka inven: Ni eng hi lupus thlentu lian tak a ni. Chuvangin, nitin i fa vunah SPF 30 aia sang sunscreen hnawih thin ang che. Hei hi chhum niah pawh tih tur a ni. Pawn chhuah dawnin lukhum leh thawmhnaw kawr sei ha la. Zing dar 10:00 a.m. leh tlai dar 4:00 p.m inkarah ni êng chak tak laka invenna tlem ber tur.

2. Mut thatna pe: Chauhna hi lupus natna lan chhuahna lian tak a ni. Chuvangin i fate mut that theihna tur boruak siam rawh.

3. Infection laka invenna: Naupangin immune system titawp thei damdawi a ei avangin natna a kai tam zawk. Sahbawn leh tui hmanga kut sil fo turin zirtir rawh. Damlote lakah hla takah dah rawh.

4. Nunphung hrisel: 1.1.Ei leh in inthlau tak neih a pawimawh a, kum nena inmil exercise neih a pawimawh bawk. Exercise hian taksa ruh a tichak a. Mahse, i fa chu a chau a nih chuan chawlh tir rawh.

5. I fa chu natna chungchang zirtir rawh: I fate chu an kum leh an hriatthiam dan nena inmil tur awlsam takin natna chungchang hrilhfiah rawh. Hei hian anmahni taksa chunga mawhphurhna la turin a pui dawn a ni.

6. Emotional support pe rawh: Natna khirh tak nena nun hi naupang tan chuan emotional lamah a harsa thei hle. An rilru put hmang sawi turin phal la, an lungngaihna chu chhuah tir la, an thinrimna chu chhuah tir rawh. A tul chuan counselor tanpuina zawng rawh.

7. Sikul hriattir: Naupang sikul zirtirtu leh administration te hnenah hetiang dinhmun hi hriattir a, a tul anga hmanraw siamsak.