He Ankylosing Spondylitis tōu? Mena koinā, tera pea ka āwangawanga koe, ka hiahia hoki ki te pokanga. Tērā pea kei te whakaaro koe, "Me pokanga ahau?" Engari he onge te hiahia o te pokanga mō tēnei mate. Ka ora ake te nuinga o te tangata mā te rongoā me te whakaora tinana. Engari i ētahi wā kino, ki te kore e taea e ētahi atu maimoatanga te whakahaere i te mamae me ngā tohu, ka tūtohu pea tō tākuta kia pokanga. Me kōrero mārama, me te ngāwari hoki tēnei.
He aha koe me pokanga ai?
Kia maumahara, ehara i te mea ko te katoa e pāngia ana e te ankylosing spondylitis (AS) e hiahia ana ki te pokanga. Heoi, he maha ngā take matua e whakaarohia ai e te tākuta te pokanga.
- Mena kei te pāngia koe e te mamae e kore e taea te whakamanawanui: Mena kei te pāngia koe e te mamae nui e kore e taea te whakahaere ahakoa ngā rongoā whakamamae, ā, he tino kino rawa atu kāore e taea e koe te mahi i ngā mahi o ia rā.
- Ki te kore e taea e koe te hikoi tika: Ki te uaua te hikoi nā te mea he hapa te tuaiwi me ngā hononga, he ngoikore ngā uaua, he mamae rānei.
- Mena ka pēhia ngā io e te whati tuaiwi: I ētahi wā, ina whati ngā wheua o te tuaiwi (ngā whati), ka pēhia e ngā wahi whati te taurakira, ngā io rānei e puta mai ana i reira. He mea morearea tēnei, ā, me pokanga.
Ko te mea nui ko te whakatau mā tō tākuta tēnei, ko ia te mea e mōhio pai ana ki tō āhua. Māna e tirotiro pai tō āhua, ā, ka whakatau mēnā he mea tika te pokanga, kāore rānei.
He aha ngā momo pokanga e mahia ana?
He maha ngā momo pokanga mō te AS. Ko te momo pokanga ka whiriwhiria e koe ka whakawhirinaki ki te āhua o tō raruraru. Me titiro tātou ki ngā momo pokanga matua. Ko te nuinga o ēnei pokanga ka mahia i raro i te mate whakamoe whānui, arā, kei te moe rawa koe, ā, kāore koe e mōhio ki tetahi mea.
| Ingoa o te pokanga | He aha te mea ka tupu ki tēnei? | He whakaahuatanga poto |
|---|---|---|
| Te tango i te rongoā | Koinei te pokanga tino noa mō te AS, nā te mea ka whakaiti i te pēhanga ki runga i ngā io o te tuaiwi me te whakamamae i te mamae. | Ka tangohia he wāhanga wheua o te tuaiwi e kiia nei ko te lamina hei hanga wāhi mō ngā io. Tērā pea ka whakamahia ētahi atu hononga wheua, ētahi atu rākau whakarewa rānei hei whakau i te tuaiwi. E 1-2 hāora te roa, ā, tērā pea ka taea e koe te hoki ki te kāinga i taua rā anō. |
| Te tango wheua | He pokanga hei whakatika i te tuaiwi me te whakatika i te tū a te tangata e pāngia ana e te kyphosis. He tino onge te mahi i tēnei. | Ka tangohia he wheua mai i te tuaiwi, ā, ka whakatikatikaina te tuaiwi. Mā tēnei ka māmā ake te hikoi, ka whakaitihia hoki te mamae. Me noho pea koe ki te hōhipera mō te 5-7 rā pea. |
| Te Hononga Tuaiwi | He pokanga hei whakau i te tuaiwi. He maha ngā wā ka mahia ngātahitia ngā pokanga e rua kua whakahuatia ake nei. | Mā te whakamahi i ngā tokotoko me ngā waea whakarewa, ka honoa, ka whakau hoki ngā tuaiwi o te tuaiwi. Ka tere ake te whakaora. E 2-7 hāora te roa, ā, e 2-4 rā te noho hōhipera. |
| Whakakapinga hope | Ka mahia tēnei mā te hunga kua tino pakaru te hononga hope nā te AS, ā, he nui rawa te mamae kāore e taea te hikoi. | Ka tangohia te hononga hope kua pakaru, ka whakakapia ki tētahi hononga horihori he mea hanga ki te konganuku, ki te uku, ki te kirihou rānei. Me noho pea koe ki te hōhipera mō te 1-2 rā. |
He aha ngā mōrearea o te pokanga?
He angitu te pokanga mō te AS i te nuinga o te wā. Heoi, e mōhio ana tātou, he tūponotanga kei roto i tētahi pokanga. He mea nui kia mōhio ki ēnei tūponotanga.
Ngā mōrearea o te pokanga tuaiwi
- Ngā raruraru ka puta i te wā e rongoātia ana (hei tauira, te ngaronga o te mahara, ngā uauatanga o te manawa, ngā āhuatanga kino pēnei i te mate ngakau, te whiu rānei)
- Ngā toto totoka
- Ngā raruraru pūkahukahu, hei tauira, te niumōnia
- Mate pāwera
- Ngā whakaurunga whakarewa kua wetekina, kua tangohia rānei
- Te kino ki ngā io i roto i te taurakira
- Te mamae e mau tonu ana, e kino haere ana rānei i muri i te pokanga
- Te pēhanga nui atu ki ētahi atu wāhanga o te tuaiwi, ka tere ake te pakaru
Ngā mōrearea o te pokanga whakakapinga hope
He tino teitei te angitu o tēnei pokanga, engari he tino onge te puta o ngā mea e whai ake nei:
- Ngā toto totoka
- Ngā mate urutā
- Te nekenga o te hononga i whakatōkia
Me pēhea te whakarite mō te pokanga?
Ko te huarahi pai ki te ora wawe i te pokanga ko te whakarite pai mōna. Anei ētahi mea ka taea e koe te mahi.
- Waihangahia he rārangi pātai: Tuhia ō pātai katoa ki runga i tētahi pepa, mai i te iti ki te nui, ka haere ki te tākuta. Pātai mārama mō ngā mea ka tumanakohia mai i te pokanga, te roa o te wā whakaora, me ngā mōrearea.
- Kōrerotia ki tō tākuta ngā rongoā katoa e tangohia ana e koe (tae atu ki ngā huaora me ngā rongoā otaota).
- Ki te kaipaipa koe, kati inaianei: Ka whakaroa te nikotīni i te whakaora o te patunga. He mea nui kia mutu te kaipaipa i mua i te pokanga.
- Whāia ngā tohutohu mō te kai, te inu, me te rongoā: Pātai atu ki tō tākuta kia hia ngā hāora i mua i te pokanga me mutu te kai me te inu, me te mea me mutu te tango i ētahi rongoā, ā, me whai i aua tohutohu.
- Whakaritea tētahi hei āwhina i te whare: Ki te noho ko koe anake, whakaritea tētahi hei āwhina i a koe ki te hokohoko, ki te tunu kai, me te mahi i ētahi atu mea i muri i te pokanga.
- Whakaritea te taiao o tō kāinga: Puritia ngā mea e hiahiatia ana e koe i ngā wā katoa (waea, mamao pouaka whakaata, pounamu wai) kia tata ki te taea atu. Nekehia ngā mea kia māmā ake ai te hikoi haere i roto i te whare. Tangohia ngā mea pēnei i ngā urunga me ngā taura ka tūtuki i a koe.
Te wā whakaora i muri i te pokanga
Kia maumahara he roa te wā e hiahiatia ana hei whakaora. Kia manawanui. Ahakoa he kore whakamarie, he mea nui kia neke me te hikoi i ngā wā katoa e taea ana e ai ki ngā tohutohu a te rata.
Mā tō tākuta koe e tohutohu ki te whakaora tinana, ki te hoatu rānei i ngā mahi whakakori tinana hei mahi māu i te kāinga. Kia mahara ki te mahi i aua mea. Mā tō taote pokanga koe e tohutohu mārama mō ngā mea ka taea e koe te mahi, me ngā mea kāore e taea e koe te mahi i muri i te pokanga (pēnei i te hiki taumaha, te piko).
He mea nui: Mena kei te kitea ngā tohu o te mate pāwera i te patunga (hei tauira, te whero, te pupuhi, te pupuhi, te kirika), mehemea rānei kei te kino haere tō mamae, waea atu ki tō tākuta tonu. Mena he nui rawa ngā mate, haere ki te Tari Ohotata (ETU) o te hōhipera tata.
Karere Tangohia ki te Kāinga
- Kāore e hiahiatia he pokanga mō te ankylosing spondylitis (AS). Kāore te nuinga o te tangata e hiahia ana ki tēnei.
- Ka tūtohutia te pokanga i ngā wā tino kino anake, pērā i te mamae e kore e taea te tohe, te uaua ki te hikoi, te pēhanga io rānei, ā, ina kore e angitu ētahi atu maimoatanga.
- He maha ngā momo pokanga (pēnei i te Laminectomy, te Osteotomy) e tika ana mō tō raruraru. Mā tō tākuta ēnei e whakamārama ki a koe.
- Mā te whakarite i mua i te pokanga (te pātai, te whakamutu i te momi hikareti, te whakarite i te whare) ka tere ake te ora.
- Kia manawanui i a koe e ora ana, kia ata whai i ngā tohutohu a tō tākuta me ngā tohutohu whakaora tinana, ā, me whakamōhio tonu atu ki tō tākuta mēnā ka pā mai he raruraru ki a koe.
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