He aha ngā mea e hiahia ana koe ki te mōhio mō te glossectomy

'Te tango i te arero i te kanohi'… Ko te tikanga, ahakoa ka rongo koe mō te pokanga tango i te arero, ka ahua ngoikore tō tinana, kāore? Inaa, ina kōrero koe mō tētahi pokanga nui pēnei, ina tūtaki koe ki a ia, he mea noa te puta ake o te wehi, te manukanuka, me ngā pātai nui maha ki roto i tō hinengaro. "Kāore rānei au e taea te kōrero anō?", "Kāore rānei au e taea te kai?", "He aha te āhua o tōku ao ā muri ake nei?" Tērā pea ka puta ake ēnei mea i roto i tō hinengaro. Engari ki te mōhio tātou ki ngā kōrero tika me te mārama mō tēnei, ka taea te whakaiti i te wehi me te koretake o roto i tō hinengaro. Nō reira, me kōrero tātou mō tēnei pokanga tango i te arero i tēnei rā, me te mea kei te kōrero koe ki tō hoa, ki tō whānau rānei.

He aha te 'Glossectomy'?

He pokanga te tango i te arero i roto i te kiri (glossectomy). Heoi, kāore e tangohia katoatia te arero. Kei te āhua me te whānuitanga o te mate. Ka taea te wehewehe ki ētahi momo matua.

Nā, he aha koe i hiahia ai ki tēnei momo pokanga?

I te nuinga o te wā, ka mahia he tango i te kiri hei rongoā mō te mate pukupuku o te arero. Tērā pea ka hiahiatia tēnei hei tango i ngā pūtau mate pukupuku, hei aukati hoki i te horapa atu ki ētahi atu wāhanga o te tinana.

Engari ehara i te mate pukupuku te take i ngā wā katoa. He wā anō me mahi tēnei pokanga mō ētahi atu take.

• Te Ārai i te Moe: Tērā pea ka pāngia ētahi tāngata e te mate e hoki whakamuri ai ō rātou arero i te wā e moe ana, ka ārai i ō rātou ara manawa. Mena he kino rawa tēnei, ā, kāore i angitu ētahi atu maimoatanga, ka tūtohutia pea he pokanga hei tango i tētahi wāhanga o te arero, hei pupuri hoki i te ara manawa kia tuwhera.
• Macroglossia (arero nui): Mena he nui rawa te arero, nā te whānautanga mai, nā tētahi atu mate rānei, ka uaua pea te kōrero, te kai, te manawa rānei. I ēnei āhuatanga, ka mahia tēnei pokanga hei whakaiti i te rahi o te arero.

He aha ngā mea ka tupu i mua i te pokanga?

Ina whakatau koe ki te mahi i tēnei momo pokanga, kāore ngā tākuta e akiaki noa i a koe ki te pokanga. He maha ngā whakamātautau me ngā whakaritenga me mahi i mua i tērā.

1. Whakamātautau hauora: Tuatahi, ka tirotirohia koe e te tākuta. Ka āta tirotirohia e ia tō waha, tō arero, me tō kaki.

2. Ngā Whakamātautau Whakaahua: Muri iho, ka tonoa koe kia mahi i tētahi whakamātautau pēnei i te matawai CT , MRI rānei hei tirotiro i te whānui me te hohonu o te horapa o te raruraru i roto i tō arero.

3. Kohikohi pūtau: He taahiraa tino nui tēnei. I tēnei, ka tangohia he wahi kiko iti rawa mai i te wāhi whakapae o te arero, ka tukuna ki te taiwhanga hei whakamātautau. Mā tēnei ka whakaū tika mēnā he mate pukupuku, ā, mēnā he pērā, he aha te momo.

I muri i ēnei mea katoa, ka hoatu e te tākuta he raupapa tohutohu mō ngā mea me mahi e koe i mua i te pokanga. Hei tauira, me mutu te kai me te inu i te pō i mua i te pokanga, me te tuku tohutohu ki a koe mō ētahi atu rongoā me tango e koe. He mea tino nui kia tino whai i ēnei tohutohu.

He aha ngā mea ka tupu i te wā o te pokanga?

Ina tomo koe ki te rūma pokanga, ka tukuna tuatahitia he rongoā whakamoe whānui kia kore ai koe e pāngia e te mamae, e te kore whakamarie rānei. Ko te tikanga ka moe rawa koe tae noa ki te mutunga o te pokanga.

Kātahi ka whakahaerehia e te taote pokanga te pokanga e tika ana i runga i tō āhua.

• I roto i te tangohanga ā-wāhanga o te arero: Ka tangohia marietia e te tākuta te wāhanga mate anake o te arero, ā, ka tuitui i te toenga ki ngā tuitui. I ētahi wā, ka whakamahia pea he wahi kiko iti (he tākai kiko) i tangohia mai i tētahi atu wāhanga o te tinana hei whakakī i te āputa i mahue i te tangohanga.
• I roto i te hemiglossectomy: Ina tangohia te haurua o te arero, ka nui ake te tūponotanga o te uaua ki te manawa nā te pupuhi o te arero i muri i te pokanga. Nō reira, i ētahi wā ka mahia he tracheostomy i te wā kotahi e mahi ana i tēnei pokanga. Kaua e manukanuka, ko te tikanga he hanga i tētahi kōhao iti rangitahi ki mua o te kaki hei whakangāwari i te manawa. Ka kōrerohia tēnei e tō tākuta ki a koe i mua i te pokanga.
• I roto i te Total Glossectomy: Ina tangohia te arero katoa, ka hangaia he hanganga hou rite ki te arero hei whakakī i te āputa. Mō tēnei, ka tangohia e ngā taote pokanga te kiri me te kiko mai i tētahi atu wāhanga o tō tinana, pērā i tō ringa, tō uma, tō huha rānei . Ka honoa te kiko hou ki ngā uaua toto i roto i tō kaki hei whakarato i te rere o te toto. He pokanga tino uaua, he pokanga matatau hoki ēnei.

He aha ngā mea ka tupu i muri i te pokanga?

I muri i te pokanga, me noho koe ki te hōhipera mō ētahi rā, tae atu ki te wiki. I tēnei wā, ka tirotirohia tō āhua e ngā tākuta me ngā nēhi.

I ētahi wā, inā koa mēnā i mahia te pokanga mō tētahi mate pukupuku, ka tūtohu pea tō tākuta i te rongoā irahiko hei whakangaro i ngā pūtau pukupuku e toe ana, hei whakaiti hoki i te tūponotanga o te hokinga mai o te mate pukupuku.

He aha ngā painga me ngā mōrearea o tēnei pokanga?

Pērā i ngā maimoatanga hauora katoa, he painga, he mōrearea hoki ō tēnei pokanga.

Ko te painga matua

Ko te painga nui rawa atu, ko te mea nui rawa atu hoki o tēnei pokanga , he maimoatanga angitu rawa atu mō te mate pukupuku o te arero. Ko tēnei pokanga te maimoatanga matua mō te mate pukupuku, inā koa i te wāhanga nekeneke o te arero. He tino teitei te tūponotanga ka ora te tangata.

Ngā tūponotanga pea

Pērā i ngā mahi pokanga katoa, tera pea ētahi mōrearea me ngā raruraru, ā, he mea nui kia mōhio koe ki ēnei i mua i te pokanga.

Kia pēhea te roa o te wā e ora ai? Te oranga i muri i te pokanga...

Koinei te pātai nui rawa atu a te tini tāngata: "Kia pēhea te roa ka hoki ahau ki te noho noa?"

Ko te roa o te wā e ora ai, e whakawhirinaki ana ki te nui o tō arero i tangohia.

• Te tango i te kiriuhi waha (mēnā ka tangohia tetahi wāhanga o te arero): Ka taea e koe te kai me te inu i roto i ngā wiki e rua.
• Te tango katoa i te whakapūkara (mēnā ka tangohia te whakapūkara katoa): Tērā pea ka ngaro katoa te kaha ki te horomi. I roto i ēnei āhuatanga, me hoatu pea he kai wai mā roto i te ngongo nasogastric (ngongo NG) i te ngongo rānei e hono ana ki te puku (ngongo PEG).

Ahakoa pēhea, he mea nui kia haere tonu te mahi tahi me tō kaiwhakaora reo me te reo.

He aha te mea ka pā ki te kaha ki te kōrero?

Ka whakawhirinaki anō hoki tēnei ki te nui o te arero ka tangohia.

• Ngā tāngata kua tangohia tetahi wāhanga o ō rātou arero:Tērā pea ka mau tonu te kaha ki te whakapuaki i ngā oro me ngā kupu maha. Ka taea te whakapai ake i tēnei kaha mā te whakaora kōrero.
• Ngā tāngata kua tangohia katoatia ō rātou arero: Tērā pea ka ngaro i a rātou te kaha ki te kōrero, engari ehara i te mea ka ngaro tā rātou hononga ki te ao. Ka taea e rātou te kōrero ki ētahi atu mā te whakamahi i ngā hangarau, pērā i te pene me te pepa, te papahikohiko, te rorohiko rānei .

Ka aha te pānga ki te reka?

E mārama ana tēnei raruraru, nā te mea kei te arero te awe o te reka. Kua whakaatuhia e ngā rangahau he pai te awe o te reka o te hunga e mau tonu ana te haurua o te turanga o ō rātou arero. Heoi, ki te neke atu i te haurua o te arero ka tangohia, ka uaua pea te wehewehe me te tautuhi i ētahi reka (dysgeusia) .

Engari he mea miharo, tae noa ki ētahi tūroro kua tangohia katoatia ō rātou arero (total glossectomy) kua pūrongohia he reka anō ō rātou, ā, he kaha anō hoki ki te pārekareka ki te kai.

Ki te pā mai ēnei tohu ki a koe, me toro atu ki te tākuta tonu!

Kia hoki koe ki te kāinga i muri i te pokanga, he mea nui kia aro nui koe ki ngā huringa o tō tinana. Mēnā ka pāngia koe e tētahi o ngā tohu e whai ake nei, waea atu ki tō tākuta tonu atu, haere rānei ki te Tari Ohotata (ETU) o te hōhipera tata ki a koe.

He pokanga tino whakarerekē te tango i te kiriuhi o te puku. He whakatau whaiaro, he whakatau uaua hoki tēnei. Nō reira, kōrero ki tō tākuta me te āta mārama ki ngā kōwhiringa maimoatanga katoa. Pātai atu ki a koe ngā pātai katoa mō ngā painga me ngā huakore o tēnei pokanga me ngā mea hei tumanakohia i muri i te pokanga. He uaua pea te tukanga whakaora, engari kia mahara, kei a koe tētahi rōpū tākuta, nēhi, me ngā kaiwhakaora kōrero hei āwhina i a koe. Mā tā rātou āwhina, ka taea e koe te ako ki te kōrero, ki te horomi, me te whakapai ake i te kounga o tō oranga.