Kaua e Whakarērea te Tūmanako: Ngā Kōrero Pono mō te Noho me te Matepukupuku Roro

Ahakoa ka rongo tātou i te kupu "matepukupuku", he tokomaha o tātou e mataku ana. Ā, ina rongo tātou i te kupu "matepukupuku roro", ka nui haere tonu taua mataku. Engari kua rongo kē koe i ētahi tāngata e haere ana ki tua atu i ngā tatauranga me ngā mōhiohio hauora mō tēnei mate, ā, e anga atu ana ki tēnei mate me te maia me te tumanako, me te noho tahi me tēnei mate? Ko tēnei tuhinga e pā ana ki ngā kōrero o ngā tāngata tūturu e toa ana i ngā oranga pēnei. He nui ngā mea e akohia ana e ēnei kōrero mō te ora me te tumanako.

E ora ana i tua atu i ngā tatauranga: Kia rongo tātou i ēnei kōrero

Ina rongo tātou mō te mate pukupuku roro, inā koa ngā momo kino pēnei i te "Malignant Glioma," he maha ngā wā ka rongo tātou i ngā kōrero kino. Engari ko ēnei tāngata ka kōrerohia e tātou ināianei ko rātou te hunga kua whakahē i aua kōrero whakapouri katoa. Ko ētahi kua neke atu i te tekau tau e whawhai ana ki tēnei mate, e ora ana i te oranga tino pai.

Te kōrero a Jim: "Kāore e taea e te mate pukupuku te whakahaere i tōku ao"

Whakaarohia, he tangata e aroha ana ki ngā hākinakina a Jim, ā, he kaikōkiri tinana tonu. I whakangungu ia mō ngā marathon. I tētahi rā i te tau 1998, i a ia e whakangungu ana, ka pāngia ia e te mate haurangi , he āhua rite ki te mate pāwera. I tino ngoikore tetahi taha o tōna tinana. "Kāore au i te mōhio he aha te mea e tupu ana i taua wā," te kī a Jim.

Ahakoa te kīnga mai a ōna hoa, "Kāo, kāo, kāore he aha," ka haria ia e rātou ki te hōhipera. Whai muri i ngā whakamātautau maha, i te aonga ake ka tukuna mai e ngā tākuta te rongo kino ki a ia. "He tino kino te āhua. He pukupuku roro tōu."

I te tīmatanga i kitea ko `(Oligodendroglioma)`, i muri mai ka whakapumautia he momo mate pukupuku kino e kiia nei ko `(Malignant Glioma). Kāore i taea te tango katoa i te pukupuku mā te pokanga nā te mea i takai ki te `(motor strip)`, he wāhanga matua o te roro e whakahaere ana i te nekehanga.

Engari kāore a Jim i tuku. I tīmata ia ki te whakamahi i te irahiko me te chemotherapy . I taua wā tonu, i moe ia, ā, i whānau he tama. I haere tonu ia ki te tākaro hākinakina i a ia e whawhai ana ki te mate pukupuku. "I ia wā ka hoki mai te mate pukupuku, e rua, e toru rānei ngā rā i pau i ahau kia tū pakari anō. Engari i whakatau ahau, kāore au e tuku i tēnei mate pukupuku kia whakahaere i tōku ao. Ka tangohia e au tōku ao. "

Kei te ora tonu a Jim i tēnei rā, e whawhai ana ki te mate pukupuku, e āwhina ana hoki i ētahi atu. Nui atu tōna harikoa i muri i tana pūrongo MRI hou. Nā te mea kua tīmata anō te mimiti o te pukupuku. Ka mea atu a Jim ki te katoa, "Kia mau te tumanako. Ka kite koutou i te maha o ngā tatauranga. Kaua e pātai mō te mea kino rawa atu. Tirohia ngā kōwhiringa katoa. Ko te mea nui ko te mau tonu te tumanako. "

Te kōrero a Maria: "I mōhio ahau kāore ahau e mate"

I kitea anō hoki a Maria kei te pāngia e tēnei mate i muri i te pāngia ohorere e te "haurangi". I kī ngā tākuta he momo mate pukupuku kino tōna e kiia nei ko te "Glioblastoma". Whai muri i te pokanga, i tukuna anō hoki ki a ia te irahiko me te rongoā matū.

"I mea ahau ki a au anō, ahakoa ora ahau, ahakoa mate ahau. Engari i mōhio ahau kāore ahau e mate. He nui tōku māia. He tino kaha ahau. I mea ahau, 'Kāore ahau e tuku i tēnei kia hinga i ahau.'"

E whakapono ana ia i riro mai i a ia tēnei kaha i ōna mātua. I haere mai rātou ki Amerika hei rerenga tōrangapū mai i Cuba, i whakarērea ngā mea katoa ki muri, ā, i haere mai me te maia nui. "Koinei te akoranga tuatahi i akohia e mātou mō te maia," te kī a Maria.

Kāore i kitea he rerekētanga i roto i ana pūrongo MRI mō ngā tau e rima neke atu. Ko te tikanga kei te whakahaere te mate pukupuku. He mārama te karere a Maria. "Kaua e mutu. Kaua e whakarongo ki ngā tatauranga. Nā te mea he maha ngā mea ka taea te tupu. Ki taku whakaaro he merekara taku whakaoranga."

Te kōrero a Sarah: "He rangimārie nui tōku i roto"

I mahi a Sarah i tētahi toa taputapu tari. Ko tana mahi he whakaako i ngā kaihoko ki te whakamahi i ngā mīhini. Kātahi anō ka tīmata ia ki te kite i tētahi rerekētanga. "Ina whakamārama ana ahau i tētahi pūreretā ki tētahi kaihoko, ka ngaro i ahau te ara e puta ana i roto i tōku mahunga i waenganui o te kōrero. Kāore e taea e au te whakaoti."

I taua wā anō, ka tīmata ia te pāngia e te mamae o te upoko i ia rā, he mea rerekē tēnei mōna. I tangohia e ia he wiki okiokinga, ā, i tirotirohia katoatia e ia te tinana. He "karapa CT", he "MRI", ā, i muri i ēnei mea katoa, ka puta te rongo kino ki a ia. He pukupuku roro anō hoki tōna e kiia nei ko "Glioblastoma".

I muri i te pokanga, ka pāngia hoki ia e te mate pāwera. I reira ka mōhio ia kua pāngia ia e te mate pāwera pēnei i mua, ahakoa i a ia e mahi ana i runga i te rorohiko.

He pouaru a Sarah, ā, e waru āna tamariki. Engari kei roto ia i te wairua tino harikoa. "Kāore au e hinga. Kāore au e tuku i a au anō kia hinga. He rangimārie nui tōku i roto. Mā taku whakapono ahau e āwhina kia noho marino."

He aha tā tātou e ako ai i ēnei kōrero?

Ka taea e tātou te whakanui i ētahi kaupapa matua o ēnei kōrero e toru.

1. Kaua e warewarehia ngā tohu rerekē: Mena kei a koe ngā tohu hou, rerekē, pērā i te haurangi ohorere, te ānini nui, te wareware ohorere rānei, kaua e whakakorea he "noa." Tirohia tonutia tō tākuta mō ētahi tohutohu. He mea nui te tautuhi wawe mō te maimoatanga.

2. Te Tumanako me te Pai: Ko te kaupapa matua o ngā kōrero e toru ko te tumanako. E whakaatu ana ēnei i te hiranga o te whakaaro pai ki te ao, me te kore e mutu te whawhai, ahakoa te kino o te mate.

3. He pūnaha tautoko kaha: He puna nui te whānau, ngā hoa, me ngā whakapono whakapono hei whakakaha i ngā wā uaua pēnei. Mā te whakaaro kāore koe i te mokemoke ka nui te whakamarie hinengaro.

He wero te mate pukupuku roro. He pono tēnā. Engari ehara i te mutunga o te ora. Mā te tiaki hauora tika, te hinengaro pakari, me te tautoko a te hunga e arohaina ana, ka taea te wikitoria i tēnei wero. Ko Jim, ko Maria, ko Sarah ngā tauira pai o tēnā.