Ki te kī atu te tākuta he rerekē te āhua o tō pēpi i te taha o raro o tōna tinana, arā, i te tuara o raro, i ngā waewae, i ngā pūnaha paru me te mimi rānei, ka tino ohorere te whaea, te pāpā rānei e rongo ana. Kua rongo pea koe i te ingoa 'Caudal Regression Syndrome'? He mate hauora onge tēnei, engari he mea nui kia mōhio koe. I tēnei rā, ka kōrerohia e tātou tēnei mea i roto i te huarahi māmā e mārama ai koe.
He aha te Mate Whakamuri Caudal?
He kupu ngāwari tēnei, he āhuatanga onge tēnei e kitea ana i te whānautanga (he hapa whānau). I roto i tō tātou tinana, ko te tikanga o te kupu 'caudal' ko te hiku, arā, ko te wāhanga o raro rawa o te tinana. Ko te tikanga o te kupu 'regression' ko te whakaroa i te tipu, te hoki whakamuri rānei. Nō reira, ko te mea ka tupu i roto i tēnei āhuatanga, ko te wāhanga o raro o te tinana kāore e whanake tika i te wā e tipu ana te pēpi i roto i te kōpū.
Ka pā pea tēnei ki ngā pūnaha okana maha, tae atu ki te tuara o raro, te taurakira, ngā waewae, te ara nakunaku o raro (ngā whekau, te pūkahukahu), me te ara mimi (ngā whatukuhu, te pūhā). I ētahi wā ka kiia tēnei āhuatanga ko te 'sacral syndrome'.
He aha ngā take o tēnei āhuatanga?
Kāore anō kia kitea e ngā tākuta tētahi tino take mō tēnei mate. Heoi, e whakaponohia ana i tēnei wā ko te huinga o ngā āhuatanga taiao me ngā āhuatanga ira te take pea o tēnei mate. Me titiro tātou ki ngā tino take e whakapaetia ana.
| Te mea whai mana | He whakamārama māmā |
|---|---|
| Te āhua hauora o te whaea | Ina koa mēnā kāore i te pai te whakahaere i te mate huka o te whaea i te wā e hapu ana, ka pāngia te whanaketanga o te pēpi i roto i te kōpū e te nui o te huka toto. Heoi, kāore tēnei āhuatanga e puta i ngā pēpi katoa a ngā whaea he mate huka. Ka taea hoki te puta i ngā pēpi a ngā whaea kāore he mate huka. Kei te haere tonu ngā rangahau mō tēnei whanaungatanga. |
| Ngā Take Ira | Tērā tētahi ariā e kī ana ko ngā awe ira te take o tēnei. Arā, ko ētahi rerekētanga o ngā ira i tukuna iho i roto i ngā whakatipuranga te take pea. |
| Ngā raruraru i ngā wāhanga tuatahi o te kukune | I te marama tuatahi o te hapūtanga, ka tīmata te hanganga o ngā pūnaha tinana o te pēpi. Mēnā he pānga, he raruraru rānei kei roto i te kōpū i tēnei wā, ka pā kino pea ki te whanaketanga o ngā wheua, te pūnaha nakunaku, me te pūnaha mimi o te pēpi. |
| Ngā mate o te tuku toto | Ko tētahi atu ariā e kī ana ko te hekenga o te rere o te toto ki te tinana o raro o te pēpi e tipu ana i roto i te kōpū te take o tēnei mate. Ka pā te hekenga o te hāora me ngā matūkai mai i te toto ki te tipu. |
| Ngā raruraru ki te kiko o te fetal | I ngā wiki tuatahi o te whanaketanga o te pēpi, e toru ngā paparanga matua o te kiko. Ko te paparanga o waenganui o te kiko, e kiia nei ko te mesoderm, ka puta ai te nuinga o ngā wheua, ngā uaua, me ngā whatukuhu i te tinana o raro. Nō reira, e whakaaro ana ngā kaipūtaiao mēnā he raruraru ki te whanaketanga o tēnei mesoderm, ka puta pea tēnei āhuatanga. |
He aha ngā āhuatanga matua ka kitea?
Kāore e rite ngā tohu o ngā tamariki katoa e pāngia ana e tēnei mate. Tērā pea he ngawari noa iho ngā tohu o ētahi tamariki, engari he nui ngā raruraru o ētahi atu. Me titiro tātou ki ētahi o ngā tohu e tino kitea ana.
| Wāhanga tinana e pāngia ana | Ngā āhuatanga e kitea ana |
|---|---|
| Tuaiwi | Ko te scoliosis he mate e ngaro ai, e hē rānei te tūnga o ngā tuaiwi o te tuara o raro. Ka pā pea tēnei ki te hanganga o te uma, ā, ka uaua ai te manawa. |
| Tinana o raro | He iti ngā wheua hope, he papatahi te papatahi o te papa. He rerekē te whanaketanga o ngā wheua waewae. He rerekē te hurihanga o ngā turi ki tētahi taha, he rerekē rānei ngā waewae ki roto, ki waho rānei. Kua ngaro te rongo o ngā waewae. |
| Ngā whatukuhu me te pūnaha mimi | Kua ngaro tetahi, ngā whatukuhu e rua rānei, kua honoa rānei ngā whatukuhu e rua. Ka arahi pea tēnei ki ngā mate urutā mimi, ki te ngoikore rānei o te whatukuhu. He uaua ki te whakahaere i te mimi nā te kino o ngā io i roto i te pūkahukahu. |
| Ngā ira tangata | Mō ngā tama, kei raro iho i te ure te ure, kāore rānei ngā ure e puta mai i te tinana. Mō ngā kōtiro, he hononga rerekē kei waenganui i te tara me te nono. Mō ētahi tamariki, kāore anō kia tino whanake ngā ira tangata. |
| Pūnaha nakunaku | Ngā raruraru pērā i te piko o te puku, te nono pupū, me te mate pāwera. |
Me pēhea te rongoā?
Kāore he maimoatanga kotahi e tika ana mō tēnei. Nā te mea he rerekē te āhua o ia tamaiti, ka whakatauhia te maimoatanga i runga i ngā raruraru motuhake a te tamaiti. Mō tēnei, me mahi tahi tētahi rōpū tohunga i ngā momo mara.
He mea tino nui te tautuhi me te tīmata i te maimoatanga i te wā e taea ai mō te tamaiti e pāngia ana e tēnei mate. Ka taea e tēnei te whakapai ake i te kounga o te oranga o te tamaiti.
Ko te tikanga, ka uru pea ki te tīma maimoatanga ngā tohunga pēnei i:
- Ngā Tākuta Tamariki
- Ngā taote pokanga roro
- Ngā tohunga roro
- Ngā tākuta Urologist (ngā taote pokanga e tohunga ana ki te pūnaha mimi)
- Ngā taote pokanga wheua
- Ngā tohunga ngakau
- Ngā tohunga nephrology
Te pokanga i te wā taitamariki hei whakatika i ngā raruraru o te pūnaha mimi, te tuaiwi, te ngākau, te pūkahukahu, ngā peka rānei o te tamaitiHe maha ngā mea me mahi. Waihoki, ka taea te hoatu rongoā motuhake mō ngā raruraru o te ara mimi, ā, me whai ratonga whakaora tinana mō te wā katoa, tautoko hinengaro, me ētahi atu ratonga tautoko.
Mena kei tō tamaiti tēnei āhuatanga, kei te ruarua rānei koe mōna, ko te mea pai ko te kaua e mataku, engari me kōrero ki tō tākuta me te tuku i a ia ki ngā tohunga e tika ana.
Karere Tangohia ki te Kāinga
- He mate whānau onge te Caudal Regression Syndrome e pā ana ki te whanaketanga o te wāhanga o raro o te tinana o te tamaiti.
- Ahakoa kāore anō kia kitea te tino take o tēnei, tera pea ko te hauora o te whaea i te wā e hapu ana (ina koa ko te mate huka kāore i te whakahaeretia) me ngā āhuatanga ira te mea nui.
- He rerekē ngā tohu i ia tamaiti, i ia tamaiti. Ka pāngia pea te tuaiwi, ngā waewae, ngā whatukuhu, te pūkahukahu, me ngā whekau.
- Me whai rōpū tohunga rerekē hei rongoā, ā, ka whakaritea te rongoā kia rite ki ngā matea o te tamaiti.
- He mea nui te tautuhi wawe i te mate me te tīmata i tētahi mahere maimoatanga whānui kia pai ai te oranga o tāu tamaiti. Kōrerohia ō āwangawanga ki tō tākuta.
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