Leiomyosarcoma - Ngā mea e hiahia ana koe kia mōhio mō tēnei matepukupuku onge

Kua rongo kē koe i ngā 'uaua maeneene'? Kāore ēnei i rite ki ngā uaua o ō tātou ringa me ō tātou waewae e whakahaeretia ana e tātou me te mōhio. He momo uaua motuhake ēnei e mahi aunoa ana i roto i ngā whekau o roto i ō tātou tinana, pērā i ō tātou whekau, ngā uaua toto, me te kōpū. Whakaarohia, ka taea e tētahi mate pukupuku onge, ā, he tere te horapa te whanake i roto i tētahi wāhi pēnei. Ko te ingoa o taua mate pukupuku ko Leiomyosarcoma, ko LMS rānei. Ahakoa he ahua uaua tēnei ingoa, he mea tino nui te mārama ki a ia mōu me ō whanaunga.

He aha tonu te leiomyosarcoma (LMS)?

He whakarāpopototanga noa iho, he momo mate pukupuku onge, he pukuriri te leiomyosarcoma (LMS) e tīmata ana i roto i ngā uaua maeneene o roto i ō tātou tinana. Ka kitea ēnei uaua maeneene i ngā wāhi maha o roto i ō tātou tinana. Hei tauira:

• tōngāmimi
• Ngā uaua toto
• Te whekau nui me te whekau iti
• Puku
• kōpū

Ko tēnei mate pukupuku, e kiia nei ko te LMS, nō tētahi rōpū nui o ngā mate pukupuku e kiia nei ko ngā sarcomas kiko ngohengohe . Ko tētahi o ngā mea morearea mō tēnei mate pukupuku ko te tere o te tipu o ēnei pūtau mate pukupuku. I ētahi wā, ka taea e te pukupuku te piki rua te rahi i roto i te marama kotahi noa iho. Waihoki, ka taea e ēnei pūtau mate pukupuku te haere mā roto i te toto ka horapa ki ngā kiko ngohengohe katoa o te tinana.

Kāore ētahi tāngata e kite i ngā tohu i ngā wāhanga tōmua. I te wā e puta mai ai ngā tohu, tera pea kua tino kino te mate. Nō reira, ka taea te whakararu i te ora. Heoi, ki te kitea wawetia, ā, ka rongoatia tika , he nui te tūponotanga ka ora katoa.

He mea noa te pōuri me te ohorere ina kitea he mate pukupuku tōu. Kia maumahara ehara i te mea ko koe anake. Kei reira tō tīma hauora hei tautoko i a koe. Ka taea e rātou te whakarato i ngā mōhiotanga katoa e hiahiatia ana e koe.

He aha ngā momo matua o te matepukupuku LMS?

E toru ngā momo matua o te mate pukupuku LMS, i runga i te wāhi e whanake ai.

He aha ngā tohu o tēnei mate pukupuku?

He rerekē ngā tohu o te matepukupuku LMS i runga i te rahi o te puku me tōna wāhi. Tērā pea kāore ētahi tāngata e kite i tētahi tohu i te tīmatanga. Heoi, i te tipu haere o te puku, ka tīmata pea ētahi tohu te puta.

He aha te take i whakatūria ai te LMS?

Kāore anō kia kitea e ngā tākuta te tino take o tēnei. Heoi, e whakaponohia ana e rua ngā take matua ka whai wāhi pea. Ko tētahi ko ngā huringa ira tuku iho. Ko tētahi atu ko te mea i roto i te oranga, ka puta he tipu korekore o ngā pūtau noa, ka huri hei pūtau matepukupuku i roto i ngā huringa matapōkere o te tangata .

Kua kitea e ngā kairangahau he hononga i waenga i te mate pukupuku LMS me ētahi āhuatanga ira. Ko ētahi o ēnei āhuatanga ko:

• Te mate Gardner
• Te mate Gorlin
• Retinoblastoma tuku iho
• Te mate Li-Fraumeni
• Neurofibromatosis momo 1 (NF1)
• Te mate pukupuku ngongo

Me pēhea te tautuhi i tēnei mate?

Ki te puta he tohumate ki a koe, ka tirohia tō tinana e tō tākuta, ka pātai atu mō ō tohumate. Kātahi ka whakaritea he whakamātautau whakaahua motuhake hei whakatau i te rahi me te wāhi tika o te matepukupuku.

• Angiography - hei tirotiro i ngā oko toto
• Matawai CT (Tomography rorohiko - Matawai CT)
• Matawai MRI (Whakaahua aukume - MRI)
• Matawai PET

Ko te koiora he tango i tētahi wahi kiko iti rawa mai i te pukupuku matepukupuku ka tukuna ki tētahi taiwhanga hei tirotiro i raro i te karuārai. Ka tirotirohia e te tākuta mate te kiko hei whakatau mēnā he matepukupuku LMS, kāore rānei.

He aha ngā maimoatanga mō te LMS?

Ko te maimoatanga e whakawhirinaki ana ki te rahi, te momo, te wāhi o te mate pukupuku, me te horapa rānei. He maha ngā kōwhiringa maimoatanga matua.

• Pokanga: I ngā wā katoa e taea ai, ko te maimoatanga matua mō te LMS ko te pokanga hei tango katoa i te pukupuku. Ko te whāinga he ārai i te hokinga mai o te mate pukupuku.
• Te rongoā matū: Mena he nui te pukupuku, kua horapa rānei ngā pūtau matepukupuku ki ētahi atu wāhanga o te tinana, ka tūtohu pea te tākuta i te rongoā matū.
• Whakaora irahiko: I ētahi wā ka hoatu te rongoā irahiko i mua i te pokanga hei whakaiti i te pukupuku (whakaora neoadjuvant). Ka whakamahia hoki i muri i te pokanga hei patu i ngā pūtau matepukupuku e toe ana (whakaora adjuvant).
• Whakaora arotahi: He tikanga maimoatanga hou tēnei. Ka whakamahia ngā rongoā e arotahi ana, e kino ana hoki ki ngā pūtau matepukupuku anake. Ka taea te hoatu i tēnei maimoatanga ko ia anake, ka taea rānei te whakamahi tahi me ētahi atu maimoatanga.

He aha te tirohanga mō tēnei mate?

He rerekē te āhua o te LMS i ia tangata, i ia tangata. Ko te nuinga o te wā ka pāngia e te wāhanga, te rahi, me te wāhi o te mate pukupuku. Ko te mea nui, ki te kitea wawe te mate, ā, ka rongoatia, ka taea te whakaora katoa.

Heoi, ki te tōmuri te tautuhi i te mate, arā, i te wā kua tino matatau pērā i te Wāhanga 4, he uaua ake te maimoatanga. I roto i tēnei āhuatanga, ahakoa kāore e taea te whakaora katoa i te mate, ka taea e te maimoatanga te whakahaere me te whakaroa i te oranga o te tūroro.

He tatauranga noa iho ngā reiti ora i runga i ngā raraunga mai i te hunga kua pāngia e tēnei mate i mua. Nō reira, kaua e whakatau mō tō heke mai, kaua hoki e manukanuka ki aua tau. Ko te tangata pai rawa atu e mōhio ana ki tō āhua ko te tākuta e rongoā ana i a koe. Kōrerohia tēnei ki a ia me te tuwhera.

Ngā pātai nui hei pātai atu ki tō tākuta

Ina kitea e koe he mate pukupuku LMS tōu, he mea noa te maha o ngā pātai kei roto i tō hinengaro. He mea nui kia pātai atu koe ki tō tākuta i ēnei pātai, kia mārama ai koe ki tō āhua.

• Kei hea te wāhi o taku mate pukupuku i roto i tōku tinana?
• Kua horapa te mate pukupuku ki ētahi atu wāhi?
• Kei tehea wāhanga o taku mate pukupuku?
• He aha ngā kōwhiringa maimoatanga kei a au?
• He aha ngā mōrearea me ngā pānga taha o aua maimoatanga?
• He aha te tūponotanga ka hoki mai anō te mate pukupuku i muri i te maimoatanga?
• He aha tāu e taea te kōrero mai ki ahau mō te heke mai o tōku mate?

He mea noa te noho mokemoke ina pāngia koe e tētahi mate onge pēnei. Ki te taea, uru atu ki tētahi rōpū tautoko mō te hunga whai mate pēnei. He puna nui tēnei mō te kaha hinengaro. Kia maumahara, kei reira tonu tō tīma hauora hei āwhina i a koe.