Kua rongo koe i te āhua kōwhai haere o te mā o ō kanohi me tō kiri? He āhua whakamataku te kite i tēnā, kāore? Tērā pea ka whakaaro koe he momo mate ate. Ko tētahi take pea o tēnei ko te mate e kiia nei ko te mate Gilbert. Engari kaua e mataku ina rongo koe i te ingoa, ehara i te mea mōrearea pērā i tō whakaaro. Inaa, he mate ira kē atu i te mate.
He aha te mate a Gilbert?
He mate tino noa te mate Gilbert e horapa ana i roto i ō tātou whānau, arā, he mate tuku iho. He nui rawa te para o te bilirubin i roto i te toto o te tangata e pangia ana e tēnei mate.
Inaianei kei te whakaaro pea koe he aha te bilirubin. He tino māmā noa iho. He roanga ora anō hoki tō ngā toto whero i roto i tō tātou tinana. Ina mutu taua roanga ora, ka pakaru. Ko te bilirubin he tae kōwhai, he para rānei, ka puta mai i te wā e pakaru ai ngā toto whero. I te nuinga o te wā, ka tangohia e tō tātou ate tēnei bilirubin, ka tukatukahia, ka tangohia mai i te tinana mā te au.
Engari mō te hunga e pāngia ana e te mate Gilbert, kāore e nui te whākōkī motuhake e whakaputaina ana e te ate hei mahi i tēnei mahi. Nō reira, kāore e taea te whakakore katoa i te bilirubin, ā, ka noho tonu ētahi o aua whākōkī ki roto i te toto. Ina piki ake te taumata o te bilirubin i roto i te toto, i ētahi wā ka kōwhai ngā kanohi me te kiri. Ka kiia hoki tēnei he jaundice .
Ko te mea nui, ehara te mate a Gilbert i te mate morearea. Kāore e hiahiatia he maimoatanga. E kore e pā kino ki tō oranga mō te wā roa.
He aha te take o tēnei āhuatanga?
Nā te rerekētanga iti o ō tātou ira tēnei. Pērā i te tukunga iho o ngā mea pēnei i te tae kiri me te kakano o te makawe i ō tātou mātua, he pono anō hoki tēnei.
Kei roto i tō tātou tinana tētahi ira e kiia nei ko UGT1A1 . Mā tēnei ira tātou e tohutohu kia hanga te whākōkī ate i kōrerotia e au i mua ake nei hei horoi i te bilirubin. Ko te mate Gilbert ka puta mai i tētahi whakarerekētanga iti i roto i tēnei ira.
Kia pāngia ai koe e tēnei mate, me rua ngā tārua o te ira kua whakarerekētia. Ko te tikanga me riro mai i a koe te ira mai i tō whaea me tō pāpā . Heoi, ahakoa kei a koe ngā ira e rua, kāore e kitea e te katoa ngā tohu o te mate a Gilbert. Waihoki, he nui ake te kitea o tēnei mate i roto i ngā tāne i ngā wāhine.
He aha ngā tohu o te mate Gilbert?
Ko te nuinga o te hunga whai mate Gilbert kāore he tohu . He nui ā rātou whākōkī ate hei whakahaere i ngā taumata bilirubin i roto i ō rātou tinana.
Ko te tohu matua, ā, i ētahi wā ko te kōwhai o ngā mā o ngā kanohi me te kiri, e mōhiotia ana ko te jaundice. Mēnā ka kōwhai koe i ngā kanohi, he mea nui kia toro atu koe ki te tākuta mō tētahi tirotiro hauora , nā te mea tera pea ētahi atu take.
Tērā pea ka pāngia ētahi tāngata e ēnei tohu me te kōwhai o ngā kanohi:
- Te ruaki me te mamae o te puku
- Te mamae o te puku
- Te tino ngenge (te ngenge nui)
- Mimi pouri
He aha i ētahi wā anake ka kōwhai ai ōku kanohi, kāore i ngā wā katoa?
He pātai pai tēnei. Tērā ētahi mea ka piki ake ai ngā taumata o te bilirubin. Koinei te wā e kitea ai te kōwhai o ngā kanohi.
| Ngā wā ka piki ake ngā taumata bilirubin me te puta pea o te jaundice | |
|---|---|
| ahotea | Nā ngā whakamātautau, ngā raruraru i te mahi, me ērā atu mea. |
| Te maroketanga | Kāore e nui te wai e inuhia ana e te tinana. |
| Te peke i ngā kai | Kāore e kai parakuihi, e kai tina rānei. |
| Te nui rawa o te whakakori tinana | Ki te mahi i ngā mahi whakakori tinana tino uaua, pērā i te tūpeke. |
| Ngā āhuatanga pangia | Ina pāngia koe e te mate pēnei i te kirika, i te makariri rānei. |
| Te inu waipiro | Ka tāpirihia e te waipiro he taumahatanga ki te ate. |
| Ētahi rongoā | Te tango i ētahi rongoā e pā ana ki te ate. |
| Te paheketanga mō ngā wāhine | I ngā rā o te huringa paheketanga o ia marama. |
Me pēhea te mohio ki tēnei āhuatanga?
Ahakoa he mate whānau mai te mate a Gilbert, he maha tonu te wā ka kitea ai i roto i te hunga kei roto i ō rātou tau 20, 30 rānei. Ka tūpono anō hoki tēnā.
Whakaarohia kei te whakamātautau toto koe mō tētahi atu take. Kātahi ka kite tō tākuta he paku teitei ake te taumata bilirubin i roto i tō toto i te mea noa. Kātahi ka whakapae pea ia kei a koe te mate a Gilbert.
Kātahi, kia kore ai he mate ate kino kē atu, ka whakahaerehia pea e te tākuta ētahi whakamātautau, pēnei i:
- Ngā Whakamātautau Mahi Ate (LFT): He whakamātautau toto noa tēnei.
- Whakamātautau Ira-ā-tinana: Hei tirotiro i ētahi atu raruraru ate.
- Ngā Whakamātautau Ira: Whakaūtia mēnā kei a koe te whakarerekētanga ira UGT1A1.
- Kohikohi i te Ate: He tino onge te mahi i tēnei.
Te maimoatanga me ngā mea ka taea e tātou te mahi
Ko te rongo pai, ko te nuinga o te hunga e pāngia ana e te mate a Gilbert kāore e hiahia ana ki tētahi maimoatanga , ā, kāore te kōwhai o ō kanohi e pā mai ki a koe i tētahi raruraru mō te wā roa.
Nō reira, ko tā tātou mahi he noho tawhiti rawa atu i ngā mea i kōrerotia e au i mua ake nei e piki ai ngā taumata bilirubin.
- Kaua e peke i ngā kai, ina koa i te wā nohopuku.
- Inumia he nui te wai me ngā wai. Kaua e tukua tō tinana kia maroke.
- Whakahaerehia te ahotea. Mahia tetahi mea hei whakangāwari i a koe, pērā i te whakaaroaro, te whakarongo ki te puoro, te whai wāhi atu rānei ki tētahi mahi whakangahau e pai ana ki a koe.
- Moe pai. Kia 7-8 hāora te moe i te rā.
- Whakaitihia, kati rawatia rānei te inu waipiro .
- Kaua e whakakorikori tinana kaha. He pai te whakakorikori tinana ngāwari, engari kaua e akiaki i a koe ki tua atu i ō rohe.
Ngā mea e tika ana kia mōhio koe ina tango rongoā ana koe!
He mea tino nui tēnei. Mēnā kei a koe te mate Gilbert, me mōhio koe ki tēnei i mua i te tango i tētahi rongoā hou.
Ko te whākōkī kotahi e horoi ana i te bilirubin i roto i tō tātou ate ka āwhina hoki ki te wawahi me te tango i ētahi rongoā mai i te tinana. Nō reira, nā te mea kei a koe te mate Gilbert, ka paku heke te mahi a taua whākōkī. Nō reira, ki te tango koe i aua rongoā, ka nui rawa te kohikohi i roto i te tinana.He nui te mōrearea o ngā pānga taha.
Hei tauira, tirohia ēnei rongoā:
- Acetaminophen - (Kei roto ko Panadol, Paracetamol)
- Irinotecan - he rongoā e whakamahia ana hei rongoā i te mate pukupuku
- Ko ētahi rongoā mō te HIV me te hepatitis C (ngā aukati protease)
Nō reira, ahakoa he aha te rongoā hou e tangohia ana e koe, kia tino mōhio koe ki te kōrero ki tō tākuta kei a koe te mate Gilbert. Ka taea e ia te tohu i tētahi rongoā haumaru e tika ana māu. Kaua rawa e tango i tētahi rongoā kāore i tohua e te tākuta, kaua hoki e tango i tētahi horopeta neke atu i te horopeta kua tohua.
Karere Tangohia ki te Kāinga
- He mate tuku iho noa te mate a Gilbert, ehara i te mea whakamataku. Ehara i te mate hei wehi.
- Ka kōwhai ngā kanohi me te kiri (jaundice) nā te nui haere o te bilirubin i roto i te toto. Ko te nuinga o te wā ka puta mai tēnei i te ahotea, i te mate rānei.
- Kāore he maimoatanga motuhake e hiahiatia ana mō tēnei. Ko te mea pai ko te karo i ngā mea e piki ake ai ngā taumata bilirubin.
- Ko te mea nui: Mena kei a koe te mate a Gilbert, me kōrero ki tō tākuta i mua i te tango i tētahi rongoā hou.
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