ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯒꯤ ꯋꯥꯏꯇꯦꯄꯀꯤ ꯃꯇꯥꯡꯗꯥ ꯅꯍꯥꯛꯅꯥ ꯋꯥꯈꯜ ꯋꯥꯕꯥ ꯂꯩꯕ꯭ꯔꯥ? ꯅꯠꯠꯔꯒꯥ ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯅꯥ ꯆꯥꯡ ꯅꯥꯏꯅꯥ ꯐꯤꯠ ꯑꯣꯏꯅꯥ ꯂꯩꯔꯀꯄꯒꯤ ꯃꯇꯥꯡꯗꯥ ꯋꯥꯈꯜ ꯋꯥꯕꯥ ꯂꯩꯕ꯭ꯔꯥ? ꯂꯥꯏꯑꯣꯡꯁꯤꯡ ꯑꯁꯤꯒꯤ ꯃꯔꯝ ꯑꯁꯤ ꯌꯥꯝꯅꯥ ꯊꯨꯅꯥ ꯊꯣꯀꯄꯥ ꯀꯟꯗꯤꯁꯟ ꯑꯃꯥ ꯑꯣꯏꯕꯥ ꯌꯥꯏ꯫ ꯉꯁꯤ ꯑꯩꯈꯣꯌꯅꯥ ꯑꯁꯤꯒꯨꯝꯕꯥ ꯌꯥꯝꯅꯥ ꯊꯨꯅꯥ ꯊꯣꯀꯄꯥ ꯑꯗꯨꯕꯨ ꯃꯦꯅꯦꯖ ꯇꯧꯕꯥ ꯌꯥꯕꯥ ꯀꯟꯗꯤꯁꯟ ꯑꯃꯒꯤ ꯃꯇꯥꯡꯗꯥ ꯋꯥꯔꯤ ꯁꯥꯅꯔꯤ꯫ ꯍꯥꯌꯕꯗꯤ ꯇꯤꯎꯕꯔꯁ ꯁ꯭ꯛꯂꯦꯔꯣꯁꯤꯁꯅꯤ꯫
ꯌꯥꯝꯅꯥ ꯂꯥꯏꯅꯥ ꯍꯥꯌꯔꯕꯗꯥ, ꯇꯤꯎꯕꯔ ꯁ꯭ꯛꯂꯦꯔꯣꯁꯤꯁ ꯍꯥꯌꯕꯁꯤ ꯀꯔꯤꯅꯣ?
ꯇꯤꯎꯕꯔꯁ ꯁ꯭ꯛꯂꯦꯔꯣꯁꯤꯁ ꯀꯃꯞꯂꯦꯛꯁ (TSC) ꯍꯥꯌꯕꯁꯤ ꯍꯀꯆꯥꯡꯒꯤ ꯇꯣꯉꯥꯟ-ꯇꯣꯉꯥꯅꯕꯥ ꯃꯐꯃꯁꯤꯡꯗꯥ, ꯃꯔꯨꯑꯣꯏꯅꯥ ꯕ꯭ꯔꯦꯟ, ꯈꯣꯡ, ꯀꯤꯗꯅꯤ, ꯍꯥꯔꯠ, ꯑꯃꯁꯨꯡ ꯂꯪꯁꯒꯨꯝꯕꯥ ꯑꯣꯔꯒꯥꯅꯁꯤꯡꯗꯥ ꯅꯟ-ꯀꯦꯟꯁꯔ ꯇꯤꯎꯃꯔꯁꯤꯡ ꯊꯣꯀꯍꯜꯂꯤꯕꯥ ꯌꯥꯝꯅꯥ ꯊꯨꯅꯥ ꯊꯣꯀꯄꯥ ꯖꯦꯅꯦꯇꯤꯛ ꯀꯟꯗꯤꯁꯟ ꯑꯃꯅꯤ꯫ ꯃꯁꯤ ꯀꯦꯟꯁꯔ ꯅꯠꯇꯦ ꯍꯥꯌꯕꯥ ꯅꯤꯡꯁꯤꯡꯕꯥ ꯌꯥꯝꯅꯥ ꯃꯔꯨ ꯑꯣꯏ .
ꯂꯥꯌꯅꯥ ꯑꯁꯤꯅꯥ ꯃꯤꯑꯣꯏ ꯈꯨꯗꯤꯡꯃꯛꯇꯥ ꯁꯣꯀꯍꯅꯕꯒꯤ ꯃꯑꯣꯡ ꯑꯁꯤ ꯌꯥꯝꯅꯥ ꯇꯣꯉꯥꯜꯂꯤ꯫ ꯃꯤꯑꯣꯏ ꯈꯔꯗꯤ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ ꯑꯁꯤ ꯌꯥꯝꯅꯥ ꯅꯦꯝꯃꯤ ꯑꯃꯁꯨꯡ ꯅꯣꯔꯃꯦꯜ ꯑꯣꯏꯕꯥ ꯄꯨꯟꯁꯤ ꯑꯃꯥ ꯍꯤꯡꯏ꯫ ꯑꯗꯨꯕꯨ ꯃꯤꯑꯣꯏ ꯈꯔꯒꯤ ꯑꯣꯏꯅꯗꯤ, ꯀꯟꯗꯤꯁꯟ ꯑꯁꯤ ꯍꯦꯟꯅꯥ ꯁꯥꯊꯤꯕꯥ ꯑꯣꯏꯕꯥ ꯌꯥꯏ꯫ ꯃꯔꯝ ꯑꯗꯨꯅꯥ ꯁꯥꯊꯤꯕꯥ ꯀꯃꯞꯂꯤꯀꯦꯁꯅꯁꯤꯡ ꯊꯣꯀꯄꯥ ꯌꯥꯏ꯫
ꯃꯁꯤꯒꯤ ꯂꯥꯌꯅꯥ ꯑꯁꯤ ꯃꯇꯃꯒꯤ ꯃꯇꯨꯡꯏꯟꯅꯥ ꯇꯞꯅꯥ ꯇꯞꯅꯥ ꯍꯦꯅꯒꯠꯂꯀꯏ꯫ ꯂꯥꯏꯑꯣꯡ ꯈꯔꯗꯤ ꯄꯨꯟꯁꯤꯗꯥ ꯇꯣꯏꯅꯥ ꯎꯕꯥ ꯐꯪꯂꯕꯁꯨ, ꯑꯇꯩꯗꯤ ꯂꯥꯀꯁꯤꯅꯕꯗꯥ ꯆꯍꯤ ꯀꯌꯥ ꯆꯪꯂꯝꯕꯥ ꯌꯥꯏ꯫ ꯃꯔꯝ ꯑꯗꯨꯅꯥ ꯀꯟꯗꯤꯁꯟ ꯑꯁꯤ ꯂꯩꯕꯥ ꯃꯤꯑꯣꯏ ꯑꯃꯅꯥ ꯄꯨꯟꯁꯤ ꯆꯨꯞꯄꯥ ꯗꯣꯛꯇꯔ ꯑꯃꯒꯤ ꯌꯦꯡꯁꯤꯅꯕꯒꯤ ꯃꯈꯥꯗꯥ ꯂꯩꯕꯥ ꯑꯁꯤ ꯌꯥꯝꯅꯥ ꯃꯔꯨꯑꯣꯏ꯫
ꯂꯥꯌꯅꯥ ꯑꯁꯤꯅꯥ ꯈ꯭ꯕꯥꯏꯗꯒꯤ ꯍꯦꯟꯅꯥ ꯁꯣꯀꯍꯜꯂꯤꯕꯥ ꯀꯅꯥꯅꯣ?
ꯃꯁꯤ ꯀꯣꯟꯖꯤꯅꯤꯑꯦꯜ ꯀꯟꯗꯤꯁꯟ ꯑꯃꯅꯤ꯫ ꯑꯌꯥꯝꯕꯥ ꯃꯇꯃꯗꯥ, ꯑꯉꯥꯡ ꯑꯃꯅꯥ ꯆꯥꯎꯔꯥꯛꯅꯥ ꯊꯥ 7 ꯁꯨꯔꯀꯄꯥ ꯃꯇꯃꯗꯥ ꯂꯥꯌꯅꯥ ꯑꯁꯤꯅꯥ ꯅꯥꯕꯥ ꯈꯪꯗꯣꯀꯏ꯫ ꯑꯗꯨꯝ ꯑꯣꯏꯅꯃꯛ, ꯂꯥꯏꯑꯣꯡ ꯈꯔꯥ ꯂꯩꯕꯥ ꯃꯤꯑꯣꯏꯁꯤꯡꯗꯥ ꯂꯥꯌꯅꯥ ꯑꯁꯤ ꯂꯥꯀꯁꯤꯅꯕꯗꯥ ꯆꯍꯤ ꯀꯌꯥ ꯆꯪꯂꯝꯕꯥ ꯌꯥꯏ꯫ ꯅꯨꯄꯥ-ꯅꯨꯄꯤ, ꯖꯥꯇꯤ, ꯙꯔꯝꯃ ꯌꯦꯡꯗꯅꯥ ꯀꯅꯥꯒꯨꯝꯕꯥ ꯑꯃꯠꯇꯅꯥ ꯂꯥꯌꯅꯥ ꯑꯁꯤ ꯂꯥꯀꯄꯥ ꯌꯥꯏ꯫ ꯃꯥꯂꯦꯝ ꯁꯤꯅꯕꯥ ꯊꯨꯡꯅꯥ ꯆꯥꯎꯔꯥꯛꯅꯥ ꯃꯤꯑꯣꯏ ꯃꯤꯂꯤꯌꯟ ꯑꯃꯥ ꯂꯥꯌꯅꯥ ꯑꯁꯤ ꯅꯥꯔꯤ ꯍꯥꯌꯅꯥ ꯄꯥꯅꯔꯤ꯫
ꯇꯤꯎꯕꯔ ꯁ꯭ꯛꯂꯦꯔꯣꯁꯤꯁꯀꯤ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ ꯑꯗꯨ ꯀꯔꯤꯅꯣ?
ꯂꯥꯏꯑꯣꯡꯁꯤꯡ ꯑꯁꯤ ꯑꯌꯥꯝꯕꯗꯤ ꯂꯝ ꯑꯗꯨ ꯂꯩꯔꯤꯕꯥ ꯑꯣꯔꯒꯥꯟ ꯑꯗꯨꯒꯤ ꯃꯈꯥ ꯄꯣꯜꯂꯤ꯫ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ ꯑꯁꯤ ꯃꯔꯨꯑꯣꯏꯕꯥ ꯀꯦꯇꯦꯒꯣꯔꯤ ꯑꯍꯨꯃꯗꯥ ꯈꯥꯌꯗꯣꯀꯁꯤ꯫
ꯕ꯭ꯔꯦꯅꯒꯥ ꯃꯔꯤ ꯂꯩꯅꯕꯥ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ 1. 1. ꯕ꯭ꯔꯦꯅꯒꯥ ꯃꯔꯤ ꯂꯩꯅꯕꯥ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ꯫
2. ꯈꯣꯡꯒꯥ ꯃꯔꯤ ꯂꯩꯅꯕꯥ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ꯫
ꯍꯀꯆꯥꯡꯒꯤ ꯑꯇꯩ ꯑꯣꯔꯒꯥꯅꯁꯤꯡꯒꯥ ꯃꯔꯤ ꯂꯩꯅꯕꯥ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ 3.꯫
ꯕ꯭ꯔꯦꯅꯒꯥ ꯃꯔꯤ ꯂꯩꯅꯕꯥ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ 1. 1. ꯕ꯭ꯔꯦꯅꯒꯥ ꯃꯔꯤ ꯂꯩꯅꯕꯥ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ꯫
ꯂꯥꯌꯅꯥ ꯑꯁꯤꯒꯤ ꯈ꯭ꯕꯥꯏꯗꯒꯤ ꯀꯃꯟ ꯑꯣꯏꯕꯥ ꯇꯤꯎꯃꯔꯁꯤꯡꯗꯤ ꯕ꯭ꯔꯦꯅꯗꯥ ꯂꯩ꯫ ꯍꯥꯌꯔꯤꯕꯁꯤꯡ ꯑꯁꯤ ꯀꯦꯟꯁꯔ ꯑꯣꯏꯗ꯭ꯔꯕꯁꯨ, ꯃꯈꯣꯌꯅꯥ ꯕ꯭ꯔꯦꯅꯒꯤ ꯊꯕꯛꯇꯥ ꯑꯀꯥꯌꯕꯥ ꯄꯤꯕꯥ ꯌꯥꯏ꯫
- ꯂꯥꯏꯑꯣꯡꯁꯤꯡ (seizures): ꯃꯁꯤ ꯈ꯭ꯕꯥꯏꯗꯒꯤ ꯀꯃꯟ ꯑꯣꯏꯕꯥ ꯑꯃꯁꯨꯡ ꯈꯨꯗꯣꯡꯊꯤꯅꯤꯉꯥꯏ ꯑꯣꯏꯕꯥ ꯂꯥꯏꯑꯣꯡꯅꯤ꯫ ꯊꯣꯀꯄꯥ ꯌꯥꯕꯥ ꯇꯣꯉꯥꯟ-ꯇꯣꯉꯥꯅꯕꯥ ꯃꯈꯂꯒꯤ ꯁꯤꯖ꯭ꯌꯨꯔꯤꯁꯤꯡ ꯂꯩ꯫
- ꯕ꯭ꯔꯦꯟ ꯇꯤꯎꯃꯔꯁꯤꯡ: ꯇꯤꯎꯃꯔꯁꯤꯡ (Subependymal giant cell astrocytoma - SEGA) ꯑꯁꯤ ꯕ꯭ꯔꯦꯅꯒꯤ ꯚꯦꯟꯇꯤꯂꯦꯁꯅꯁꯤꯡꯗꯥ ꯊꯣꯀꯄꯥ ꯌꯥꯏ꯫ ꯀꯔꯤꯒꯨꯝꯕꯥ ꯍꯥꯌꯔꯤꯕꯁꯤꯡ ꯑꯁꯤ ꯑꯆꯧꯕꯥ ꯑꯣꯏꯔꯕꯗꯤ, ꯕ꯭ꯔꯦꯅꯗꯥ ꯐ꯭ꯂꯨꯏꯗ ꯊꯨꯃꯖꯤꯅꯕꯥ ꯌꯥꯏ, ꯃꯗꯨꯅꯥ ꯍꯥꯏꯗ꯭ꯔꯣꯁꯦꯐꯥꯂꯁ ꯀꯧꯕꯥ ꯀꯟꯗꯤꯁꯟ ꯑꯃꯥ ꯊꯣꯀꯍꯜꯂꯀꯄꯥ ꯌꯥꯏ꯫
- ꯗꯤꯚꯦꯂꯄꯃꯦꯟꯇꯗꯥ ꯊꯦꯡꯊꯕꯥ ꯑꯃꯁꯨꯡ ꯋꯥꯈꯂꯒꯤ ꯑꯁꯣꯛ-ꯑꯄꯟ (intellectual disability) : ꯃꯤꯄꯨꯝ ꯈꯨꯗꯤꯡꯃꯛꯇꯥ ꯃꯁꯤ ꯂꯩꯇꯕꯅꯤ, ꯑꯗꯨꯕꯨ ꯑꯉꯥꯡ ꯈꯔꯗꯤ ꯇꯝꯕꯗꯥ ꯊꯦꯡꯊꯕꯥ ꯑꯃꯁꯨꯡ ꯋꯥ ꯉꯥꯡꯕꯗꯥ ꯊꯦꯡꯊꯕꯥ ꯊꯦꯡꯅꯩ꯫
- ꯂꯃꯆꯠ-ꯁꯥꯖꯠꯀꯤ ꯁꯃꯁ꯭ꯌꯥꯁꯤꯡ: ꯱.ꯑꯣꯇꯤꯁꯝ ꯁ꯭ꯄꯦꯛꯠꯔꯦꯝ ꯗꯤꯁꯑꯣꯔꯗꯔ ꯅꯠꯠꯔꯒꯥ ꯑꯦꯇꯦꯟꯁꯟ ꯗꯦꯐꯤꯁꯤꯠ ꯍꯥꯏꯄꯔꯑꯦꯛꯇꯤꯚꯤꯇꯤ ꯗꯤꯁꯑꯣꯔꯗꯔ (ADHD)ꯒꯨꯝꯕꯥ ꯀꯟꯗꯤꯁꯅꯁꯤꯡ ꯑꯁꯤ ꯂꯥꯌꯅꯥ ꯑꯁꯤꯒꯥ ꯂꯣꯌꯅꯅꯥ ꯀꯣ-ꯑꯣꯀꯄꯥ ꯌꯥꯏ꯫
2. ꯈꯣꯡꯒꯥ ꯃꯔꯤ ꯂꯩꯅꯕꯥ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ꯫
ꯂꯥꯌꯅꯥ ꯑꯁꯤ ꯑꯌꯥꯝꯕꯗꯤ ꯑꯍꯥꯅꯕꯗꯥ ꯈꯣꯡꯒꯤ ꯂꯥꯏꯑꯣꯡꯁꯤꯡꯒꯤ ꯈꯨꯠꯊꯥꯡꯗꯥ ꯈꯪꯗꯣꯀꯏ꯫ ꯂꯥꯌꯅꯥ ꯑꯁꯤꯅꯥ ꯅꯥꯕꯥ ꯃꯤꯑꯣꯏꯁꯤꯡꯒꯤ ꯆꯥꯎꯔꯥꯛꯅꯥ 90%ꯗꯤ ꯃꯈꯥꯗꯥ ꯄꯤꯔꯤꯕꯥ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ ꯑꯁꯤꯒꯤ ꯃꯅꯨꯡꯗꯥ ꯑꯃꯥ ꯅꯠꯠꯔꯒꯥ ꯑꯃꯗꯒꯤ ꯍꯦꯅꯕꯥ ꯊꯦꯡꯅꯒꯅꯤ:
| ꯁ꯭ꯀꯤꯟ ꯐꯤꯆꯔ꯫ | ꯋꯥꯔꯣꯜ |
|---|---|
| ꯑꯦꯁ ꯂꯤꯐ ꯁ꯭ꯄꯣꯠꯁꯤꯡ꯫ | ꯃꯦꯂꯥꯅꯤꯟ ꯋꯥꯠꯄꯅꯥ ꯃꯔꯝ ꯑꯣꯏꯗꯨꯅꯥ ꯈꯣꯡꯗꯥ ꯑꯉꯧꯕꯥ ꯃꯆꯨꯒꯤ ꯃꯐꯃꯁꯤꯡ ꯂꯩꯕꯥ꯫ ꯍꯥꯌꯔꯤꯕꯁꯤꯡ ꯑꯁꯤ ꯀꯔꯤꯒꯨꯝꯕꯥ ꯃꯇꯃꯗꯥ ꯁꯦꯡꯂꯕꯥ ꯈꯣꯡꯎꯞ ꯂꯩꯕꯥ ꯃꯤꯑꯣꯏꯁꯤꯡꯗꯥ ꯃꯌꯦꯛ ꯁꯦꯡꯅꯥ ꯎꯕꯥ ꯐꯪꯗꯦ꯫ ꯃꯈꯣꯌ ꯑꯁꯤ ꯑꯈꯟꯅꯕꯥ ꯑꯂꯠꯔꯥꯚꯥꯏꯑꯣꯂꯦꯠ (UV) ꯃꯉꯥꯂꯒꯤ ꯃꯈꯥꯗꯥ ꯉꯥꯅꯊꯣꯀꯏ꯫ |
| ꯐꯦꯁꯤꯑꯦꯜ ꯐꯥꯏꯕ꯭ꯔꯣꯃꯥꯁꯤꯡ꯫ | ꯃꯥꯌꯗꯥ, ꯃꯔꯨꯑꯣꯏꯅꯥ ꯅꯥꯀꯣꯡ ꯑꯃꯁꯨꯡ ꯅꯥꯀꯣꯡꯒꯤ ꯃꯅꯥꯛꯇꯥ ꯊꯣꯀꯄꯥ ꯑꯄꯤꯀꯄꯥ ꯂꯥꯂꯍꯧꯕꯥ ꯈꯣꯡꯎꯄꯁꯤꯡ꯫ ꯍꯥꯌꯔꯤꯕꯁꯤꯡ ꯑꯁꯤ ꯄꯨꯟꯅꯥ ꯍꯦꯅꯒꯠꯂꯀꯄꯥ ꯌꯥꯏ ꯑꯃꯁꯨꯡ ꯑꯆꯧꯕꯥ ꯔꯦꯁꯝ ꯑꯃꯒꯨꯝꯅꯥ ꯎꯕꯥ ꯐꯪꯏ꯫ |
| ꯁꯦꯒ꯭ꯔꯤꯟ ꯄꯦꯆꯁꯤꯡ꯫ | ꯍꯥꯌꯔꯤꯕꯁꯤꯡ ꯑꯁꯤ ꯐꯤꯕꯔꯒꯤ ꯇꯤꯁꯨꯁꯤꯡ ꯑꯁꯤ ꯈꯣꯡꯒꯤ ꯃꯈꯥꯗꯥ ꯊꯨꯄꯆꯤꯅꯕꯥ ꯃꯇꯃꯗꯥ ꯊꯣꯀꯄꯥ ꯃꯐꯃꯁꯤꯡꯅꯤ, ꯑꯃꯁꯨꯡ ꯈꯣꯡꯗꯒꯤ ꯍꯦꯟꯅꯥ ꯂꯨꯝꯕꯥ ꯑꯃꯁꯨꯡ ꯑꯣꯔꯦꯟꯖ ꯄꯤꯂꯒꯨꯝꯅꯥ ꯎꯕꯥ ꯐꯪꯏ꯫ ꯃꯈꯣꯌ ꯑꯁꯤ ꯈ꯭ꯕꯥꯏꯗꯒꯤ ꯀꯃꯟ ꯑꯣꯏꯅꯥ ꯂꯣꯌꯔꯕꯥ ꯃꯇꯨꯡꯗꯥ ꯎꯕꯥ ꯐꯪꯏ꯫ |
| ꯐꯤꯉ꯭ꯒꯔꯅꯦꯜ ꯑꯃꯁꯨꯡ ꯇꯣꯏꯅꯦꯜ ꯐꯥꯏꯕ꯭ꯔꯣꯃꯥ꯫ | ꯈꯨꯠ ꯑꯃꯁꯨꯡ ꯈꯣꯡꯗꯥ ꯅꯥꯀꯣꯡꯒꯤ ꯑꯀꯣꯌꯕꯗꯥ ꯅꯠꯠꯔꯒꯥ ꯃꯈꯥꯗꯥ ꯂꯩꯕꯥ ꯑꯄꯤꯀꯄꯥ ꯈꯣꯡꯄꯥꯀꯁꯤꯡ꯫ ꯃꯍꯧꯁꯥꯅꯥ ꯍꯥꯌꯔꯤꯕꯁꯤꯡ ꯑꯁꯤ ꯃꯤꯔꯣꯜꯂꯤꯉꯩ ꯃꯇꯃꯗꯥ ꯊꯣꯀꯄꯥ ꯍꯧꯏ꯫ |
| ꯀꯅꯐꯦꯇꯤ ꯃꯥꯔꯀꯁꯤꯡ꯫ | ꯌꯥꯝꯅꯥ ꯑꯄꯤꯀꯄꯥ, ꯗꯣꯇꯒꯨꯝꯕꯥ ꯑꯉꯧꯕꯥ ꯃꯆꯨꯒꯤ ꯃꯐꯃꯁꯤꯡ꯫ ꯃꯈꯣꯌꯅꯥ ꯃꯈꯣꯌꯒꯤ ꯃꯃꯤꯡ ꯑꯁꯤ ꯀꯅꯐꯦꯇꯤꯒꯨꯝꯅꯥ ꯎꯕꯗꯒꯤ ꯐꯪꯏ꯫ |
ꯍꯀꯆꯥꯡꯒꯤ ꯑꯇꯣꯞꯄꯥ ꯑꯣꯔꯒꯥꯅꯁꯤꯡꯒꯥ ꯃꯔꯤ ꯂꯩꯅꯕꯥ ꯃꯒꯨꯅꯁꯤꯡ ꯳
- ꯀꯤꯗꯅꯤꯒꯤ ꯁꯃꯁ꯭ꯌꯥꯁꯤꯡ: ꯱.ꯀꯤꯗꯅꯤꯗꯥ ꯁ꯭ꯇꯣꯟ ꯅꯠꯠꯔꯒꯥ ꯁꯤꯁ꯭ꯇꯦꯃꯁꯤꯡ (cysts) ꯁꯦꯝꯕꯥ ꯌꯥꯏ꯫ ꯃꯁꯤꯅꯥ ꯀꯤꯗꯅꯤ ꯐꯦꯜ ꯑꯣꯏꯕꯥ, ꯕꯦꯛ ꯅꯠꯠꯔꯒꯥ ꯄꯦꯂꯚꯤꯛ ꯄꯦꯏꯟ, ꯑꯃꯁꯨꯡ ꯌꯨꯔꯤꯅꯗꯥ ꯏ ꯊꯣꯀꯍꯅꯕꯥ ꯌꯥꯏ꯫ ꯌꯥꯝꯅꯥ ꯊꯨꯅꯥ, ꯀꯤꯗꯅꯤ ꯐꯦꯜ ꯑꯣꯏꯕꯥ ꯅꯠꯠꯔꯒꯥ ꯀꯤꯗꯅꯤ ꯀꯦꯟꯁꯔ (ꯔꯦꯅꯥꯜ ꯁꯦꯜ ꯀꯥꯔꯁꯤꯅꯣꯃꯥ) ꯊꯣꯀꯄꯥ ꯌꯥꯏ꯫
- ꯀꯥꯔꯗꯤꯌꯦꯛ ꯔꯌꯥꯕꯗꯣꯃꯥꯌꯣꯃꯥꯁ (cardiac rabdomyomas): ꯃꯈꯣꯌ ꯑꯁꯤ ꯈ꯭ꯕꯥꯏꯗꯒꯤ ꯀꯃꯟ ꯑꯣꯏꯅꯥ ꯅꯍꯥ ꯑꯣꯏꯔꯤꯕꯥ ꯑꯉꯥꯡꯁꯤꯡꯗꯥ ꯎꯕꯥ ꯐꯪꯏ꯫ ꯃꯍꯧꯁꯥꯅꯥ ꯃꯈꯣꯌ ꯑꯁꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯅꯥ ꯆꯥꯎꯈꯠꯂꯀꯄꯒꯥ ꯂꯣꯌꯅꯅꯥ ꯁꯣꯟꯊꯔꯀꯏ꯫ ꯑꯗꯨꯝ ꯑꯣꯏꯅꯃꯛ, ꯑꯆꯧꯕꯥ ꯇꯤꯎꯃꯔ ꯈꯔꯅꯥ ꯍꯥꯔꯇꯇꯥ ꯏ ꯆꯦꯅꯕꯥ ꯊꯤꯡꯕꯥ ꯉꯝꯃꯤ꯫
- ꯃꯤꯠꯀꯤ ꯄ꯭ꯔꯣꯕ꯭ꯂꯦꯃꯁꯤꯡ: ꯃꯤꯠꯀꯤ ꯔꯦꯇꯤꯅꯥꯗꯥ ꯇꯤꯎꯃꯔꯁꯤꯡ ꯁꯦꯝꯕꯥ ꯌꯥꯏ ꯑꯗꯨꯕꯨ ꯃꯤꯠ ꯎꯗꯕꯒꯤ ꯄ꯭ꯔꯣꯕ꯭ꯂꯦꯃꯁꯤꯡꯗꯤ ꯌꯥꯝꯅꯥ ꯇꯣꯏꯅꯥ ꯊꯣꯀꯏ꯫
- ꯃꯤꯠꯇꯥ ꯑꯍꯣꯡꯕꯥ ꯂꯥꯀꯄꯥ: ꯅꯍꯥꯛꯅꯥ ꯈꯣꯡꯗꯥ ꯑꯄꯤꯀꯄꯥ ꯄꯣꯠꯁꯀꯁꯤꯡ ꯅꯠꯠꯔꯒꯥ ꯈꯣꯡꯗꯥ ꯏꯅꯥꯛ ꯈꯨꯅꯕꯥ (enamel pitting) ꯑꯁꯤꯅꯆꯤꯡꯕꯥ ꯄꯣꯠꯁꯀꯁꯤꯡ ꯎꯕꯥ ꯐꯪꯒꯅꯤ꯫
ꯇꯤꯎꯕꯔꯁ ꯁ꯭ꯛꯂꯦꯔꯣꯁꯤꯁ ꯑꯁꯤ ꯀꯔꯤꯅꯥ ꯊꯣꯀꯍꯅꯕꯒꯦ?
ꯌꯥꯝꯅꯥ ꯂꯥꯏꯅꯥ ꯍꯥꯌꯔꯕꯗꯥ, ꯃꯁꯤ ꯖꯤꯅꯁꯤꯡꯗꯥ ꯑꯍꯣꯡꯕꯥ (ꯃ꯭ꯌꯨꯇꯦꯁꯟ) ꯑꯃꯅꯥ ꯊꯣꯀꯍꯅꯕꯅꯤ꯫ ꯑꯩꯈꯣꯌꯒꯤ ꯍꯀꯆꯥꯡꯗꯥ ꯁꯦꯂꯁꯤꯡꯒꯤ ꯒ꯭ꯔꯣꯊ ꯑꯃꯁꯨꯡ ꯗꯤꯚꯤꯖꯟ ꯀꯟꯠꯔꯣꯜ ꯇꯧꯕꯥ ꯄ꯭ꯔꯣꯇꯤꯅꯁꯤꯡ ꯂꯩ꯫ ꯂꯥꯌꯅꯥ ꯑꯁꯤꯗꯥ, ꯃꯈꯣꯌꯗꯥ ꯄ꯭ꯔꯣꯇꯤꯅꯁꯤꯡ (TSC1 ꯅꯠꯠꯔꯒꯥ TSC2 ꯖꯤꯅꯁꯤꯡ ꯍꯥꯌꯅꯥ ꯀꯧꯕꯥ) ꯑꯁꯤ ꯄꯨꯊꯣꯛꯅꯕꯥ ꯏꯅꯁ꯭ꯠꯔꯛꯁꯟ ꯄꯤꯔꯤꯕꯥ ꯖꯤꯅꯁꯤꯡꯗꯥ ꯑꯁꯣꯌꯕꯥ ꯑꯃꯥ ꯂꯩ꯫ ꯑꯗꯨꯗꯒꯤ ꯁꯦꯂꯁꯤꯡ ꯑꯗꯨ ꯀꯟꯠꯔꯣꯜ ꯇꯧꯗꯅꯥ ꯍꯦꯅꯒꯠꯂꯀꯏ ꯑꯃꯁꯨꯡ ꯂꯪꯁꯁꯤꯡ ꯁꯦꯝꯃꯤ꯫
ꯃꯁꯤꯒꯤ ꯖꯦꯅꯦꯇꯤꯛ ꯗꯤꯐꯦꯛꯇ ꯑꯁꯤ ꯊꯣꯀꯄꯥ ꯌꯥꯕꯒꯤ ꯃꯑꯣꯡ ꯑꯅꯤ ꯂꯩ:
1. ꯁ꯭ꯄꯣꯔꯦꯗꯤꯛ: ꯑꯌꯥꯝꯕꯥ ꯃꯇꯃꯗꯥ (ꯆꯥꯎꯔꯥꯛꯅꯥ ꯁꯔꯨꯛ ꯑꯍꯨꯝ ꯊꯣꯀꯄꯒꯤ ꯑꯅꯤ), ꯃꯁꯤꯒꯤ ꯖꯦꯅꯦꯇꯤꯛ ꯗꯤꯐꯦꯛꯇ ꯑꯁꯤ ꯑꯅꯧꯕꯥ ꯊꯧꯗꯣꯛ ꯑꯃꯅꯤ꯫ ꯍꯥꯌꯕꯗꯤ ꯃꯃꯥ ꯅꯠꯔꯒꯥ ꯃꯄꯥꯗꯥ ꯂꯥꯌꯅꯥ ꯑꯁꯤ ꯂꯩꯇꯦ꯫ ꯃꯁꯤꯒꯤ ꯖꯦꯅꯦꯇꯤꯛ ꯗꯤꯐꯦꯛꯇ ꯑꯁꯤ ꯑꯉꯥꯡ ꯑꯗꯨ ꯃꯤꯔꯣꯜꯂꯕꯥ ꯃꯇꯨꯡꯗꯥ ꯁꯣꯌꯗꯅꯥ ꯊꯣꯀꯏ꯫
2. ꯏꯅꯍꯦꯔꯤꯇꯦꯗ: ꯆꯥꯎꯔꯥꯛꯅꯥ ꯀꯦꯁ ꯇꯪꯈꯥꯌ ꯑꯃꯗꯥ ꯑꯉꯥꯡ ꯑꯃꯅꯥ ꯂꯥꯌꯅꯥ ꯑꯁꯤ ꯂꯩꯕꯥ ꯃꯃꯥ-ꯃꯄꯥ ꯑꯃꯗꯒꯤ ꯂꯥꯌꯅꯥ ꯑꯁꯤ ꯏꯅꯍꯦꯔꯤ ꯇꯧꯏ꯫
ꯂꯥꯌꯅꯥ ꯑꯁꯤ ꯀꯔꯝꯅꯥ ꯈꯪꯗꯣꯛꯀꯅꯤ?
ꯗꯣꯛꯇꯔ ꯑꯃꯅꯥ ꯂꯥꯌꯅꯥ ꯑꯁꯤꯒꯤ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ ꯌꯦꯡꯁꯤꯟꯗꯨꯅꯥ ꯈꯪꯗꯣꯀꯏ꯫ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ ꯑꯁꯤ ꯀꯦꯇꯦꯒꯣꯔꯤ ꯑꯅꯤꯗꯥ ꯈꯥꯌꯗꯣꯀꯏ: "ꯃꯦꯖꯔ ꯐꯤꯆꯔꯁꯤꯡ" ꯑꯃꯁꯨꯡ "ꯃꯥꯏꯅꯣꯔ ꯐꯤꯆꯔꯁꯤꯡ"꯫
ꯂꯥꯌꯅꯥ ꯑꯁꯤ ꯁꯣꯌꯗꯅꯥ ꯀꯅꯐꯥꯔꯝ ꯇꯧꯅꯕꯒꯤꯗꯃꯛ, ꯑꯆꯧꯕꯥ ꯂꯥꯏꯑꯣꯡ ꯑꯅꯤ ꯅꯠꯠꯔꯒꯥ ꯃꯁꯤꯗꯒꯤ ꯍꯦꯅꯕꯥ ꯂꯩꯒꯗꯕꯅꯤ , ꯅꯠꯠꯔꯒꯥ ꯑꯆꯧꯕꯥ ꯂꯥꯏꯑꯣꯡ ꯑꯃꯥ ꯑꯃꯁꯨꯡ ꯑꯄꯤꯀꯄꯥ ꯂꯥꯏꯑꯣꯡ ꯑꯅꯤ ꯅꯠꯠꯔꯒꯥ ꯑꯃꯗꯒꯤ ꯍꯦꯅꯕꯥ ꯂꯩꯒꯗꯕꯅꯤ꯫
ꯀꯔꯤꯒꯨꯝꯕꯥ ꯃꯇꯃꯗꯥ, ꯃꯇꯃꯒꯤ ꯃꯇꯨꯡꯏꯟꯅꯥ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ ꯂꯥꯀꯄꯅꯥ ꯃꯔꯝ ꯑꯣꯏꯗꯨꯅꯥ, ꯂꯥꯌꯅꯥ ꯑꯁꯤ ꯑꯍꯥꯅꯕꯗꯥ "ꯄꯣꯁꯤꯕꯜ ꯇꯤ.ꯑꯦꯁ.ꯁꯤ." ꯍꯥꯌꯅꯥ ꯀ꯭ꯂꯥꯁꯤꯐꯥꯏ ꯇꯧꯕꯥ ꯌꯥꯏ꯫
ꯂꯥꯌꯅꯥ ꯑꯁꯤ ꯈꯪꯗꯣꯛꯅꯕꯥ ꯁꯤꯖꯤꯟꯅꯔꯤꯕꯥ ꯇꯦꯁ꯭ꯠ ꯈꯔꯗꯤ ꯃꯈꯥꯗꯥ ꯄꯤꯔꯤꯕꯁꯤꯡꯁꯤꯅꯤ:
- ꯕ꯭ꯔꯦꯅꯒꯤ ꯑꯣꯏꯅꯗꯤ: ꯕ꯭ꯔꯦꯅꯒꯤ ꯑꯦꯝ.ꯑꯥꯔ.ꯑꯥꯏ ꯅꯠꯠꯔꯒꯥ ꯁꯤ.ꯇꯤ.ꯁ꯭ꯀꯦꯟ, ꯏ.ꯏ.ꯖꯤ.
- ꯈꯣꯡꯒꯤ ꯑꯣꯏꯅꯥ: ꯈꯣꯡꯒꯤ ꯑꯦꯀꯖꯥꯃꯤꯅꯦꯁꯟ, ꯃꯔꯨꯑꯣꯏꯅꯥ ꯎꯗꯁ ꯂꯦꯝꯄ ꯑꯦꯀꯖꯥꯃꯤꯅꯦꯁꯟ ꯇꯧꯗꯨꯅꯥ ꯑꯉꯧꯕꯥ ꯃꯐꯃꯁꯤꯡ ꯃꯌꯦꯛ ꯁꯦꯡꯅꯥ ꯈꯪꯗꯣꯀꯄꯥ꯫
- ꯀꯤꯗꯅꯤꯒꯤ ꯑꯣꯏꯅꯗꯤ: ꯑꯦꯕꯗꯣꯃꯤꯅꯦꯜ ꯑꯂꯠꯔꯥꯁꯥꯎꯟꯗ ꯅꯠꯠꯔꯒꯥ ꯑꯦꯝ.ꯑꯥꯔ.ꯑꯥꯏ.
- ꯍꯥꯔꯇꯀꯤ ꯑꯣꯏꯅꯗꯤ: ꯏꯀꯣꯀꯥꯔꯗꯤꯑꯣꯒ꯭ꯔꯥꯐ꯫
- ꯖꯦꯅꯦꯇꯤꯛ ꯇꯦꯁ꯭ꯠ ꯇꯧꯕꯥ: ꯏꯒꯤ ꯁꯦꯝꯄꯜ ꯑꯃꯅꯥ ꯇꯤ.ꯑꯦꯁ.ꯁꯤ.꯱ ꯅꯠꯠꯔꯒꯥ ꯇꯤ.ꯑꯦꯁ.ꯁꯤ.꯲ ꯖꯤꯅꯁꯤꯡꯗꯥ ꯑꯁꯣꯏꯕꯥ ꯑꯃꯥ ꯂꯩꯕ꯭ꯔꯥ ꯍꯥꯌꯕꯗꯨ ꯀꯅꯐꯥꯔꯝ ꯇꯧꯕꯥ ꯉꯃꯒꯅꯤ꯫
ꯅꯍꯥꯛꯀꯤ ꯗꯣꯛꯇꯔꯅꯥ ꯅꯍꯥꯛꯀꯤ ꯂꯥꯏꯑꯣꯡꯁꯤꯡꯗꯥ ꯌꯨꯝꯐꯝ ꯑꯣꯏꯗꯨꯅꯥ ꯀꯔꯤ ꯇꯦꯁ꯭ꯇꯁꯤꯡ ꯃꯊꯧ ꯇꯥꯕꯒꯦ ꯍꯥꯌꯕꯗꯨ ꯂꯦꯄꯀꯅꯤ꯫
ꯃꯁꯤꯒꯤ ꯂꯥꯏꯌꯦꯡꯁꯤꯡ ꯑꯁꯤ ꯀꯔꯤꯅꯣ?
ꯇꯤꯎꯕꯔꯁ ꯁ꯭ꯛꯂꯦꯔꯣꯁꯤꯁ ꯑꯁꯤ ꯃꯄꯨꯡꯐꯥꯅꯥ ꯐꯍꯅꯕꯥ ꯉꯃꯗꯦ꯫ ꯑꯗꯨꯝ ꯑꯣꯏꯅꯃꯛ, ꯂꯥꯏꯑꯣꯡꯁꯤꯡ ꯑꯁꯤ ꯀꯟꯠꯔꯣꯜ ꯇꯧꯅꯕꯥ ꯑꯃꯁꯨꯡ ꯃꯦꯅꯦꯖ ꯇꯧꯅꯕꯥ ꯏꯐꯦꯛꯇꯤꯚ ꯑꯣꯏꯕꯥ ꯂꯥꯏꯌꯦꯡꯁꯤꯡ ꯂꯩ꯫ ꯂꯥꯏꯌꯦꯡ ꯑꯁꯤ ꯂꯥꯏꯑꯣꯡꯁꯤꯡꯒꯤ ꯃꯑꯣꯡ-ꯃꯇꯧ ꯑꯗꯨꯒꯤ ꯃꯈꯥ ꯄꯣꯜꯂꯤ꯫
- ꯍꯤꯗꯥꯛ-ꯂꯥꯡꯊꯀꯁꯤꯡ: ꯱.
- ꯁꯤꯖ꯭ꯌꯨꯔꯁꯤꯡ ꯀꯟꯠꯔꯣꯜ ꯇꯧꯅꯕꯥ: ꯁꯤꯖ꯭ꯌꯨꯔꯒꯤꯗꯃꯛꯇꯥ ꯇꯣꯉꯥꯟ-ꯇꯣꯉꯥꯅꯕꯥ ꯃꯈꯂꯒꯤ ꯍꯤꯗꯥꯛ-ꯂꯥꯡꯊꯀꯁꯤꯡ ꯂꯩ꯫
- ꯇꯤꯎꯃꯔꯁꯤꯡ ꯍꯟꯊꯍꯟꯅꯕꯥ: mTOR ꯏꯅꯍꯤꯕꯤꯇꯔ ꯀꯧꯕꯥ ꯗ꯭ꯔꯒꯁꯤꯡꯒꯤ ꯀ꯭ꯂꯥꯁ ꯑꯃꯅꯥ ꯕ꯭ꯔꯦꯟ, ꯀꯤꯗꯅꯤ ꯑꯃꯁꯨꯡ ꯑꯇꯩ ꯃꯐꯃꯁꯤꯡꯗꯥ ꯇꯤꯎꯃꯔꯁꯤꯡ ꯍꯦꯅꯒꯠꯂꯀꯄꯥ ꯀꯟꯠꯔꯣꯜ ꯇꯧꯕꯥ ꯉꯝꯃꯤ ꯑꯃꯁꯨꯡ ꯃꯈꯣꯌꯕꯨ ꯍꯟꯊꯍꯅꯕꯥ ꯉꯝꯃꯤ꯫
- ꯁꯔꯖꯔꯤ: ꯀꯔꯤꯒꯨꯝꯕꯥ ꯃꯇꯃꯗꯥ, ꯑꯣꯔꯒꯥꯅꯁꯤꯡꯗꯥ ꯑꯃꯥꯡ-ꯑꯇꯥ ꯊꯣꯀꯍꯅꯕꯥ ꯑꯆꯧꯕꯥ ꯇꯤꯎꯃꯔꯁꯤꯡ ꯑꯗꯨ ꯁꯔꯖꯤꯀꯦꯜ ꯑꯣꯏꯅꯥ ꯂꯧꯊꯣꯀꯄꯥ ꯃꯊꯧ ꯇꯥꯕꯥ ꯌꯥꯏ꯫ ꯕ꯭ꯔꯦꯅꯗꯥ ꯐ꯭ꯂꯨꯏꯗꯀꯤ ꯈꯣꯡꯖꯦꯜ ꯊꯤꯡꯖꯤꯜꯂꯤꯕꯥ ꯇꯤꯎꯃꯔꯁꯤꯡ ꯂꯧꯊꯣꯀꯄꯥ ꯍꯥꯌꯕꯁꯤ ꯃꯔꯨꯑꯣꯏꯅꯥ ꯌꯥꯝꯅꯥ ꯃꯔꯨꯑꯣꯏ꯫
- ꯗꯥꯔꯃꯦꯇꯣꯂꯣꯖꯤꯒꯤ ꯂꯥꯏꯌꯦꯡꯁꯤꯡ: ꯃꯤꯑꯣꯏ ꯈꯔꯗꯤ ꯐꯦꯁꯤꯑꯦꯜ ꯑꯃꯁꯨꯡ ꯁ꯭ꯀꯤꯟ ꯕꯝꯄꯁ (facial and skin bumps) ꯎꯕꯗꯥ ꯏꯀꯥꯏꯕꯥ ꯄꯣꯀꯄꯥ ꯌꯥꯏ꯫ ꯂꯦꯖꯔ ꯁ꯭ꯀꯤꯟ ꯔꯤꯁꯔꯐꯦꯁꯤꯡ ꯑꯃꯁꯨꯡ ꯗꯥꯔꯃꯥꯕ꯭ꯔꯦꯁꯅꯒꯨꯝꯕꯥ ꯂꯥꯏꯌꯦꯡꯁꯤꯡꯅꯥ ꯃꯈꯣꯌꯒꯤ ꯃꯑꯣꯡ-ꯃꯇꯧ ꯍꯟꯊꯍꯅꯕꯥ ꯉꯝꯃꯤ꯫
- ꯑꯇꯣꯞꯄꯥ ꯂꯥꯏꯌꯦꯡꯁꯤꯡ: ꯁ꯭ꯄꯤꯆ ꯊꯦꯔꯥꯄꯤ ꯑꯃꯁꯨꯡ ꯑꯣꯛꯌꯨꯄꯦꯁꯅꯦꯜ ꯊꯦꯔꯥꯄꯤꯒꯨꯝꯕꯥ ꯂꯥꯏꯌꯦꯡꯁꯤꯡ ꯑꯁꯤꯁꯨ ꯗꯤꯚꯦꯂꯄꯃꯦꯟꯇꯗꯥ ꯊꯦꯡꯊꯕꯥ ꯂꯩꯕꯥ ꯑꯉꯥꯡꯁꯤꯡꯒꯤꯗꯃꯛꯇꯁꯨ ꯌꯥꯝꯅꯥ ꯃꯇꯦꯡ ꯄꯥꯡꯏ꯫
ꯂꯥꯌꯅꯥ ꯑꯁꯤꯒꯥ ꯂꯣꯌꯅꯅꯥ ꯍꯤꯡꯂꯤꯉꯩꯗꯥ ꯅꯍꯥꯛꯅꯥ ꯀꯔꯤ ꯑꯥꯁꯥ ꯇꯧꯕꯥ ꯌꯥꯕꯒꯦ?
ꯂꯥꯌꯅꯥ ꯑꯁꯤꯅꯥ ꯅꯥꯕꯥ ꯃꯤꯑꯣꯏ ꯀꯌꯥꯅꯥ ꯇꯤꯎꯃꯔꯁꯤꯡꯒꯤ ꯒ꯭ꯔꯣꯊ ꯑꯗꯨ ꯌꯦꯡꯁꯤꯟꯅꯕꯥ ꯌꯥꯃꯗ꯭ꯔꯕꯗꯥ ꯆꯍꯤ 1-2 ꯈꯨꯗꯤꯡꯒꯤ ꯌꯥꯃꯗ꯭ꯔꯕꯗꯥ ꯑꯃꯨꯛꯇꯪ ꯑꯦꯝ.ꯑꯥꯔ.ꯑꯥꯏ.ꯒꯨꯝꯕꯥ ꯁ꯭ꯀꯦꯅꯁꯤꯡ ꯇꯧꯕꯥ ꯃꯊꯧ ꯇꯥꯏ, ꯃꯔꯨꯑꯣꯏꯅꯥ ꯑꯉꯥꯡ ꯑꯣꯏꯔꯤꯉꯩꯗꯥ꯫
ꯂꯥꯌꯅꯥ ꯑꯁꯤꯒꯤ ꯏꯝꯄꯦꯛꯇ ꯑꯁꯤ ꯃꯤꯑꯣꯏ ꯑꯃꯗꯒꯤ ꯃꯤꯑꯣꯏ ꯑꯃꯗꯥ ꯌꯥꯝꯅꯥ ꯈꯦꯠꯅꯩ꯫
- ꯃꯌꯥꯏ ꯑꯣꯏꯕꯥ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ ꯂꯩꯕꯥ ꯃꯤꯑꯣꯏꯁꯤꯡ: ꯂꯥꯏꯑꯣꯡꯁꯤꯡ ꯑꯁꯤ ꯌꯥꯝꯅꯥ ꯂꯥꯏꯅꯥ ꯊꯣꯀꯏ꯫ ꯃꯈꯣꯌꯅꯥ ꯍꯤꯗꯥꯛ-ꯂꯥꯡꯊꯛ ꯈꯔꯥ ꯂꯧꯕꯥ ꯃꯊꯧ ꯇꯥꯕꯥ ꯌꯥꯏ꯫ ꯑꯗꯨꯕꯨ ꯃꯈꯣꯌꯅꯥ ꯃꯈꯣꯌꯒꯤ ꯄꯨꯟꯁꯤꯗꯥ ꯑꯆꯧꯕꯥ ꯑꯁꯣꯛ-ꯑꯄꯟ ꯊꯣꯀꯍꯟꯗꯅꯥ ꯅꯣꯔꯃꯦꯜ ꯑꯣꯏꯕꯥ ꯄꯨꯟꯁꯤ ꯑꯃꯥ ꯍꯤꯡꯕꯥ ꯉꯝꯃꯤ꯫
- ꯃꯌꯥꯏ ꯑꯣꯏꯕꯥ ꯏꯝꯄꯦꯛꯇ ꯂꯩꯕꯥ ꯃꯤꯑꯣꯏꯁꯤꯡ: ꯂꯥꯏꯑꯣꯡꯁꯤꯡꯅꯥ ꯑꯀꯥꯌꯕꯥ ꯈꯔꯥ ꯄꯤꯔꯕꯁꯨ, ꯃꯈꯣꯌ ꯑꯁꯤ ꯂꯥꯏꯌꯦꯡꯕꯥ ꯑꯃꯁꯨꯡ ꯆꯥꯡ ꯅꯥꯏꯅꯥ ꯃꯦꯗꯤꯀꯦꯜ ꯁꯨꯄꯔꯚꯤꯖꯅꯒꯥ ꯂꯣꯌꯅꯅꯥ ꯐꯖꯅꯥ ꯃꯦꯅꯦꯖ ꯇꯧꯕꯥ ꯌꯥꯏ꯫
- ꯌꯥꯝꯅꯥ ꯁꯥꯊꯤꯅꯥ ꯁꯣꯀꯍꯜꯂꯕꯥ: ꯃꯤꯑꯣꯏꯁꯤꯡ ꯑꯁꯤꯅꯥ ꯁꯥꯊꯤꯅꯥ ꯁꯣꯀꯄꯥ, ꯋꯥꯈꯂꯒꯤ ꯑꯁꯣꯛ-ꯑꯄꯟ ꯑꯁꯤꯅꯆꯤꯡꯕꯥ ꯂꯩꯕꯥ ꯌꯥꯏ, ꯃꯈꯣꯌꯅꯥ ꯃꯁꯥ ꯃꯊꯟꯇꯥ ꯍꯤꯡꯕꯗꯥ ꯑꯋꯥꯕꯥ ꯃꯥꯌꯣꯛꯅꯔꯀꯄꯥ ꯌꯥꯏ ꯑꯃꯁꯨꯡ ꯂꯦꯞꯇꯅꯥ ꯃꯦꯗꯤꯀꯦꯜ ꯀꯦꯌꯔ ꯃꯊꯧ ꯇꯥꯕꯥ ꯌꯥꯏ꯫
ꯑꯩꯅꯥ ꯀꯗꯥꯏꯗꯥ ꯗꯣꯛꯇꯔꯒꯥ ꯎꯅꯒꯗꯒꯦ?
ꯀꯔꯤꯒꯨꯝꯕꯥ ꯅꯍꯥꯛ ꯅꯠꯠꯔꯒꯥ ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯅꯥ TSC ꯂꯩꯔꯕꯗꯤ, ꯅꯍꯥꯛꯀꯤ ꯄꯨꯟꯁꯤ ꯆꯨꯞꯄꯥ ꯆꯥꯡ ꯅꯥꯏꯅꯥ ꯗꯣꯛꯇꯔ ꯑꯃꯒꯥ ꯇꯥꯟꯅꯕꯁꯤ ꯌꯥꯝꯅꯥ ꯃꯔꯨꯑꯣꯏ꯫ ꯃꯁꯤꯅꯥ ꯑꯅꯧꯕꯥ ꯄ꯭ꯔꯣꯕ꯭ꯂꯦꯝ ꯑꯃꯍꯦꯛꯇꯕꯨ ꯇꯣꯌꯅꯥ ꯈꯪꯗꯣꯀꯄꯥ ꯑꯃꯁꯨꯡ ꯂꯥꯏꯌꯦꯡꯕꯗꯥ ꯃꯇꯦꯡ ꯄꯥꯡꯏ꯫
ꯅꯍꯥꯛꯅꯥ ꯀꯗꯥꯏꯗꯥ ꯏꯃꯔꯖꯦꯟꯁꯤ ꯇ꯭ꯔꯤꯇꯃꯦꯟꯇ ꯌꯨꯅꯤꯠ (ETU)ꯗꯥ ꯆꯠꯀꯗꯒꯦ?
ꯃꯤꯅꯠ 5ꯗꯒꯤ ꯍꯦꯟꯅꯥ ꯁꯥꯡꯅꯥ ꯆꯠꯄꯥ (ꯐꯤꯠ) ꯅꯠꯠꯔꯒꯥ ꯃꯁꯤꯡ ꯌꯥꯝꯂꯕꯥ ꯁꯤꯖ꯭ꯌꯨꯔꯁꯤꯡ (status epilepticus) ꯑꯁꯤ ꯃꯦꯗꯤꯀꯦꯜ ꯏꯃꯔꯖꯦꯟꯁꯤ ꯑꯃꯅꯤ꯫ ꯑꯁꯤꯒꯨꯝꯕꯥ ꯀꯦꯁꯁꯤꯡ ꯑꯁꯤꯗꯥ ꯄꯦꯁꯦꯟꯇ ꯑꯗꯨꯕꯨ ꯈꯨꯗꯛꯇꯥ ꯍꯣꯁ꯭ꯄꯤꯇꯥꯜ ꯑꯃꯒꯤ ꯏꯃꯔꯖꯦꯟꯁꯤ ꯇ꯭ꯔꯤꯇꯃꯦꯟꯇ ꯌꯨꯅꯤꯠ (ETU)ꯗꯥ ꯄꯨꯈꯠꯀꯗꯕꯅꯤ꯫
ꯃꯁꯤꯒꯤ ꯃꯊꯛꯇꯥ, ꯀꯔꯤꯒꯨꯝꯕꯥ ꯅꯍꯥꯛꯀꯤ ꯗꯣꯛꯇꯔꯅꯥ ꯅꯍꯥꯀꯄꯨ ꯃꯔꯨꯑꯣꯏꯅꯥ ꯆꯦꯀꯁꯤꯟꯅꯥ ꯂꯩꯅꯕꯥ ꯍꯥꯌꯔꯀꯄꯥ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ (ꯈꯨꯗꯝ ꯑꯣꯏꯅꯥ, ꯌꯥꯝꯅꯥ ꯁꯥꯊꯤꯕꯥ ꯃꯀꯣꯛ ꯁꯣꯀꯄꯥ, ꯀꯤꯗꯅꯤꯒꯤ ꯑꯅꯥꯕꯥ) ꯂꯩꯔꯕꯗꯤ, ꯈꯨꯗꯛꯇꯥ ꯃꯦꯗꯤꯀꯦꯂꯒꯤ ꯄꯥꯎꯇꯥꯛ ꯂꯧꯕꯤꯌꯨ꯫
ꯇꯦꯛ-ꯍꯣꯝ ꯃꯦꯁꯦꯖ ꯇꯧꯕꯥ꯫
- ꯇꯤꯎꯕꯔꯁ ꯁ꯭ꯛꯂꯦꯔꯣꯁꯤꯁ ꯑꯁꯤ ꯖꯤꯅꯦꯇꯤꯛ ꯑꯣꯏꯕꯥ ꯂꯥꯌꯅꯥ ꯑꯃꯅꯤ, ꯑꯗꯨꯕꯨ ꯑꯌꯥꯝꯕꯥ ꯀꯦꯁꯁꯤꯡꯗꯗꯤ ꯃꯁꯤ ꯏꯅꯍꯦꯔꯤꯇꯦꯗ ꯑꯣꯏꯗꯦ꯫
- ꯂꯥꯌꯅꯥ ꯑꯁꯤꯗꯥ ꯊꯣꯀꯄꯥ ꯂꯝꯐꯃꯁꯤꯡ ꯑꯁꯤ ꯀꯦꯟꯁꯔꯒꯤ ꯑꯣꯏꯗꯦ꯫
- ꯂꯥꯏꯑꯣꯡꯁꯤꯡ ꯑꯁꯤ ꯃꯤꯑꯣꯏ ꯑꯃꯗꯒꯤ ꯃꯤꯑꯣꯏ ꯑꯃꯗꯥ ꯌꯥꯝꯅꯥ ꯈꯦꯠꯅꯩ꯫ ꯈꯣꯡ-ꯈꯨꯠ ꯁꯣꯛ-ꯄꯅꯕꯥ ꯑꯃꯁꯨꯡ ꯁꯣꯛ-ꯄꯅꯕꯥ ꯑꯁꯤ ꯈ꯭ꯕꯥꯏꯗꯒꯤ ꯀꯃꯟ ꯑꯣꯏꯕꯥ ꯂꯥꯏꯑꯣꯡꯁꯤꯡꯅꯤ꯫
- ꯂꯥꯌꯅꯥ ꯑꯁꯤ ꯃꯄꯨꯡꯐꯥꯅꯥ ꯐꯍꯅꯕꯥ ꯉꯃꯗ꯭ꯔꯕꯁꯨ, ꯂꯥꯏꯑꯣꯡꯁꯤꯡ ꯀꯟꯠꯔꯣꯜ ꯇꯧꯕꯗꯥ ꯃꯇꯦꯡ ꯄꯥꯡꯕꯥ ꯉꯝꯕꯥ ꯑꯃꯁꯨꯡ ꯑꯐꯕꯥ ꯄꯨꯟꯁꯤ ꯑꯃꯥ ꯍꯤꯡꯕꯗꯥ ꯃꯇꯦꯡ ꯄꯥꯡꯕꯥ ꯏꯐꯦꯛꯇꯤꯚ ꯑꯣꯏꯕꯥ ꯂꯥꯏꯌꯦꯡꯁꯤꯡ ꯂꯩ꯫
- ꯆꯦꯀꯑꯄꯀꯤꯗꯃꯛꯇꯥ ꯃꯇꯝ ꯆꯥꯅꯥ ꯗꯣꯛꯇꯔꯒꯥ ꯇꯥꯟꯅꯕ ꯑꯃꯁꯨꯡ ꯅꯍꯥꯛꯀꯤ ꯍꯤꯗꯥꯛ-ꯂꯥꯡꯊꯀꯁꯤꯡ ꯑꯗꯨ ꯄ꯭ꯔꯦꯁ꯭ꯛꯔꯥꯏꯕ ꯇꯧꯔꯀꯄꯒꯤ ꯃꯇꯨꯡꯏꯟꯅꯥ ꯂꯧꯕꯥ ꯍꯥꯌꯕꯁꯤ ꯌꯥꯝꯅꯥ ꯃꯔꯨꯑꯣꯏ꯫
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