Moni! Lero tikambirana za mankhwala ovuta koma ofunikira kwambiri. Ngati inu kapena wina m'banja mwanu muli ndi vuto lotchedwa Cystic Fibrosis, dokotala wanu mwina adakupatsani mankhwala otchedwa Trikafta. Ali ndi mankhwala osakaniza atatu otchedwa Elexacaftor, Tezacaftor, ndi Ivacaftor. Izi sizili ngati mankhwala wamba, koma mankhwala apadera omwe amapita ku gwero la matendawa ndikukhudza. Tiyeni tiwone momwe mankhwalawa amagwiritsidwira ntchito, zinthu zomwe muyenera kusamala nazo, komanso zotsatirapo zake zoyipa.
Kodi kwenikweni chimachitika ndi mankhwala awa ndi chiyani?
Mwachidule, Cystic Fibrosis ndi matenda a majini omwe amachititsa kuti madzi osiyanasiyana m'thupi, makamaka ntchofu m'ziwalo monga mapapo ndi kapamba, azikhala okhuthala komanso omata kwambiri. Izi zingayambitse mavuto opuma, matenda opatsirana m'mapapo, komanso mavuto otsegula m'mimba.
Mankhwalawa, Trikafta, amagwira ntchito pokonza pang'ono puloteni yomwe sikugwira ntchito bwino mwa odwala omwe ali ndi kusintha kwa majini kotchedwa F508del . Izi zikutanthauza kuti m'malo moletsa zizindikiro, zimathandiza kuchepetsa zotsatira za vuto la majini lomwe limayambitsa matendawa. Izi ndi mpumulo waukulu kwa odwalawa.
Zinthu zomwe muyenera kuuza dokotala wanu musanayambe kumwa mankhwala
Ndikofunikira kwambiri kuti dokotala wanu adziwe mbiri yonse ya thanzi lanu musanapereke mankhwala awa. Mankhwalawa si oyenera aliyense. Onetsetsani kuti mwauza dokotala wanu, makamaka ngati muli ndi vuto lililonse mwa izi:
- Ngati muli ndi matenda aliwonse a impso .
- Ngati muli ndi matenda aliwonse a chiwindi (izi ndizofunikira kwambiri).
- Ngati muli ndi ziwengo ku Elexacaftor, Tezacaftor, Ivacaftor, kapena mankhwala ena aliwonse, chakudya, kapena utoto womwe uli mu mankhwalawa.
- Ngati muli ndi pakati kapena mukukonzekera kukhala ndi mwana posachedwa.
- Ngati ndinu mayi woyamwitsa.
Kutengera ndi izi, dokotala wanu adzasankha ngati mankhwalawa ndi oyenera kwa inu kapena ngati mlingo wake uyenera kusinthidwa.
Kodi ndimagwiritsa ntchito bwanji mankhwalawa molondola?
Kuti mupindule kwambiri ndi mankhwalawa, ndikofunikira kuwamwa motsatira malangizo.
Chofunika kwambiri ndikumwa mankhwalawa nthawi zonse pamodzi ndi chakudya chokhala ndi mafuta kapena mafuta , chifukwa mankhwala omwe ali mu mankhwalawa amayamwa bwino ndi thupi akaphatikizidwa ndi mafuta.
Mwachitsanzo, mutha kumwa mankhwalawa:
- Ndi mazira
- Ndi batala wa mtedza
- Ndi mbale yokhala ndi tchizi (monga pizza ya tchizi)
- Ndi avokado
- Ndi yogurt (yogurt yodzaza mafuta)
Zinthu zina zoti mukumbukire:
- Mezani mapiritsi onse . Musawaswe kapena kuwaphwanya, kapena kuwatafuna ngati kutafuna chingamu.
- Yesani kumwa mankhwala anu nthawi yomweyo tsiku lililonse. Mukayamba kuchita izi chizolowezi, simudzayiwala.
- Musamwe mankhwalawa pamodzi ndi mphesa kapena madzi a mphesa. Zosakaniza zomwe zili mu madzi a mphesa zingakhudze kwambiri momwe mankhwalawa amagwirira ntchito.
- Musasiye kumwa mankhwala anu mpaka dokotala wanu atakuuzani kuti mutero.
- Mankhwalawa nthawi zina amaperekedwa kwa ana opitirira zaka 6, koma pokhapokha ngati akuyang'aniridwa ndi dokotala.
Nanga bwanji ngati mwadzidzidzi ndamwa mankhwala ochulukirapo?
Ngati mukuganiza kuti mwamwa mankhwala ochulukirapo, musachite mantha. Imbani nthawi yomweyo ku National Poisons Information Centre ku Colombo National Hospital . Kapena pitani ku Emergency Treatment Unit (ETU) ya chipatala chapafupi. Ndi bwino ngati mungathe kutenga paketi ya mankhwala mukapita.
Zinthu zomwe siziyenera kugwiritsidwa ntchito ndi mankhwalawa
Trikafta ndi mankhwala amphamvu omwe amatha kuyanjana ndi mankhwala ena. Chifukwa chake, muyenera kuuza dokotala wanu za mankhwala onse omwe mukumwa, osati omwe dokotala wanu wakupatsani okha, komanso mankhwala osagulitsidwa ndi dokotala, mavitamini, ndi mankhwala azitsamba.
| Mankhwala ndi zakudya zomwe zingagwirizane ndi Trikafta | |
|---|---|
| Pewani kumwa Trikafta ndi izi | |
| Mankhwala ena a khunyu | Carbamazepine, Phenobarbital, ndi Phenytoin |
| Mankhwala opha tizilombo | Rifampin, Rifabutin |
| Zogulitsa zitsamba | Wort wa St. John |
| Chakudya | Madzi a mphesa ndi mphesa |
| Funsani dokotala wanu ngati mukumwa Trikafta ndi izi. | |
| Maantibayotiki ena | Clarithromycin, Erythromycin |
| Mankhwala oletsa bowa | Fluconazole, Itraconazole, Ketoconazole |
| Mankhwala oletsa chitetezo chamthupi | Cyclosporine, Sirolimus, Tacrolimus |
| Zina | Digoxin, Warfarin, mankhwala ena a matenda a shuga (monga Glimepiride, Glipizide) |
Kodi zotsatirapo zake zingakhale zotani chifukwa chomwa mankhwalawo?
Monga mankhwala ena aliwonse, Trikafta ingayambitse zotsatira zina zoyipa. Zina mwa izi zitha kukhala zoopsa. Chifukwa chake ndikofunikira kwambiri kudziwa izi.
| Zotsatira zoyipa | Kufotokozera ndi choti muchite |
|---|---|
| Zotsatirapo zoyipa zomwe ziyenera kufotokozedwa kwa dokotala wanu nthawi yomweyo | |
| Zizindikiro za kuwonongeka kwa chiwindi | Mkodzo wachikasu kapena bulauni wakuda, maso kapena khungu lachikasu, kupweteka kumtunda kwa kumanja kwa m'mimba, kusowa chilakolako cha chakudya, nseru, kutopa kosazolowereka. Ngati muwona izi, uzani dokotala wanu nthawi yomweyo. |
| Zotsatira zoopsa za ziwengo | Kutupa pakhungu, kuyabwa, kutupa kwa nkhope, milomo kapena lilime, kuvutika kupuma. Izi ndi zadzidzidzi. |
| Kusintha kwa masomphenya | Uzani dokotala wanu za kusintha kulikonse, monga kufinya kwa maso oyera (cataracts) kapena kusawona bwino. |
| Shuga wochepa m'magazi (Hypoglycemia) | Kusakhazikika, kusokonezeka, chizungulire, njala yochuluka, thukuta kwambiri, kunjenjemera, komanso kugunda kwa mtima mwachangu. |
| Zotsatirapo zomwe nthawi zambiri sizili zoopsa, koma ziyenera kufotokozedwa kwa dokotala ngati zikupitirira | |
| Mavuto a m'mimba | Kupweteka m'mimba, kutsegula m'mimba, mpweya. |
| Zizindikiro zodziwika bwino | Mutu, chizungulire, malungo, kutsekeka kwa sinus. |
| Makamaka kwa akazi | Ululu panthawi ya msambo. |
Ngati muli ndi zizindikiro zina zachilendo zomwe sizili pamndandandawu, uzani dokotala wanu za zizindikirozo.
Uthenga Wopita Nawo Kunyumba
- Trikafta ndi mankhwala ofunikira kwambiri a cystic fibrosis omwe amakhudza chomwe chimayambitsa matendawa.
- Mankhwalawa ayenera kumwedwa pamodzi ndi chakudya chokhala ndi mafuta kapena mafuta . Pewani kumwa pamimba yopanda kanthu.
- Musamwe mankhwalawa pamodzi ndi madzi a mphesa. Komanso, uzani dokotala wanu za mankhwala ena onse omwe mukumwa.
- Funani thandizo lachipatala mwachangu ngati mukumva zizindikiro za kuwonongeka kwa chiwindi (maso achikasu, mkodzo wakuda) kapena ngati muli ndi vuto lalikulu la ziwengo.
- Kumanani ndi dokotala pa tsiku lomwe mwakonza ndipo musaphonye mayeso a magazi ndi maso omwe amakulemberani.
- Mankhwalawa ndi a inu nokha. Musagawane ndi ena.
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