Kodi minofu yanu ikufooka pang'onopang'ono? Mwina simukudziwa kuti ndi matenda a Primary Lateral Sclerosis (PLS)! Tiyeni tikambirane za izi!

Kodi nthawi zina mumamva ngati miyendo ndi manja anu akutha pang'onopang'ono, kapena mphamvu zanu zikuchepa? Kodi mumamva ngati simuli olimba monga kale mukamayenda, ndipo mwina mumataya mphamvu zanu? Ngakhale izi ndi zizindikiro zomwe simungaziganizire kwambiri, nthawi zina pakhoza kukhala chifukwa chachikulu chomwe chili kumbuyo kwake. Ndicho chimene Primary Lateral Sclerosis, kapena mwachidule PLS.

Tiyeni tiwone tanthauzo la PLS iyi?

Mwachidule, PLS ndi matenda omwe amayamba pang'onopang'ono chifukwa cha mitsempha ya m'mitsempha. Amapangitsa kuti minofu yanu ifooke pang'onopang'ono komanso/kapena kuuma. Zizindikiro nthawi zambiri zimayamba m'miyendo yanu. Pakapita nthawi, kufooka kumeneku kumatha kufalikira ku minofu ina m'thupi lanu.

Taganizirani izi motere: minofu yathu imagwira ntchito ngati chipangizo chamagetsi. Imafunika kulandira 'magetsi', uthenga wochokera ku ubongo, monga momwe iyenera kukhalira. Mu PLS, maselo amitsempha otchedwa Upper Motor Neurons (UMN), omwe ali ngati 'mawaya' omwe amanyamula mauthenga awa, amawonongeka.

Mwatsoka, pakadali pano palibe mankhwala a PLS. Choncho chithandizo chimayang'ana kwambiri pakuletsa zizindikiro zanu ndikukuthandizani kuchita ntchito za tsiku ndi tsiku mosavuta. Mwachitsanzo, kukuthandizani kugwiritsa ntchito ndodo kapena choyendera.

Kodi PLS ndi yofala bwanji?

PLS ndi vuto losowa kwambiri. Palibe ziwerengero zomwe zapezeka pa chiwerengero cha anthu omwe ali ndi vutoli.

Kodi kusiyana pakati pa PLS ndi ALS ndi kotani? Kodi PLS ikhoza kukhala ALS?

Mwina mwamvapo za ALS, kapena Amyotrophic Lateral Sclerosis. PLS ndi ALS zonse ndi matenda a mitsempha ndi minofu. Koma pali kusiyana kwakukulu pakati pa ziwirizi.

Kusiyana kwakukulu ndichakuti PLS imakhudza ma neuron anu apamwamba (UMNs) okha. Izi ndi mitsempha yomwe imanyamula mauthenga kuchokera ku ubongo kupita ku msana. Mu ALS, ma UMN awa amakhudzidwanso, monganso ma neuron otsika (LMNs) , omwe amanyamula mauthenga kuchokera ku msana kupita ku minofu.

Tsopano mwina mukudabwa kuti, 'Ndiye, kodi munthu amene ali ndi PLS pambuyo pake angadwale ALS?' Inde, pali mwayi woti zingatheke. Nthawi zina zizindikiro zoyambirira za ALS zimatha kufanana ndi PLS. Ngati muli ndi zizindikiro zomwe zimakhudza UMN yokha, poyamba mungadziwike kuti muli ndi PLS. Koma ngati pambuyo pake mudzakhala ndi zizindikiro za ALS zomwe zimakhudza UMN ndi LMN, dokotala wanu angasinthe matenda anu kukhala ALS.

Ndipotu, milandu yambiri yomwe imawoneka ngati PLS ikhoza kukhala zizindikiro zoyamba za ALS zomwe zimakhudza UMN (`UMN-predominant ALS`). Ichi ndichifukwa chake madokotala amanena kuti kuti mudziwike ndi PLS, muyenera kukhala ndi zizindikiro kwa zaka zosachepera zitatu mpaka zinayi .

Kodi zizindikiro za PLS ndi ziti?

Zizindikiro za PLS zimawonekera pang'onopang'ono kwambiri.Simudzamva kusiyana kwakukulu nthawi yomweyo.

Zizindikiro zomwe zingawonekere pazigawo zoyamba:

Poyamba mungamve zinthu ngati izi:

• Kuuma kwa miyendo. Zingamveke ngati miyendo yanu yakhazikika.
• Minofu ya miyendo yanu imafooka. Mungamve ngati simuli olimba monga kale.
• Zimakhala zovuta kuyenda, kapena kukhalabe olimba. Mutha kupunthwa kapena kugwa.
• Kupweteka kwa minofu kapena kupweteka kwa minofu kumachitika.

Zizindikiro zomwe zingawonekere pamene matendawa akupita patsogolo:

Pamene matendawa akupita patsogolo, zizindikiro zina monga izi zingawonekere:

• Minofu ya zala, manja, ndi manja imalimbanso komanso imafooka. Zimakhala zovuta kugwira zinthu zazing'ono kapena kulemba.
• Kuvuta kulamulira kukodza. Izi zingayambitse kufulumira kwa mkodzo komanso kusadziletsa.
• Ululu umachitika m'munsi mwa msana ndi khosi.

Zizindikiro zosazolowereka zomwe zimakhudza minofu ya lilime:

Izi zimachitika kawirikawiri, koma anthu ena amathanso kukhudzidwa ndi minofu ya lilime. Ngati izi zitachitika:

• Kulankhula movutikira (dysarthria) kumachitika. Zimakhala zovuta kutchula mawu momveka bwino.
• Kuvuta kumeza (dysphagia). Mungamve ngati mukugwira mphuno mukameza chakudya kapena chakumwa.

Kodi n’chiyani chimayambitsa PLS?

Nthawi zambiri, sitikudziwabe chomwe chimayambitsa PLS. Ndicho chowonadi.

Komabe, nthawi zambiri, pamakhala mtundu wa PLS womwe umakhudza ana aang'ono ndi achinyamata (`juvenile primary lateral sclerosis`). Izi zimachitika chifukwa cha kusintha kwa DNA yawo panthawi yoyembekezera.

Kodi chimachitika ndi chiyani ku matupi athu chifukwa cha PLS?

PLS ndi vuto la mitsempha ya m'mitsempha. Limakhudza kwambiri ma neuron a mu ubongo wanu ndi ulusi wa mitsempha womwe umachokera ku ma neuron amenewo kupita ku msana. Izi zimatchedwanso ma neuron a mumsewu wapamwamba ( UMN).

Tangoganizirani, mukafuna kusuntha mwendo wanu, ubongo wanu umatumiza uthenga. Uthengawu umayenda kudzera mu mitsempha kupita ku ma neuron mu msana, ndipo kuchokera pamenepo kupita ku minofu yodzifunira ya mwendo wanu. Minofu ikalandira uthengawu, imayenda.

Mu PLS, maselo a mitsempha a UMN amafa pang'onopang'ono (kuchepa kwa mphamvu). Kenako, minofu silandira mauthenga ofunikira bwino, kotero minofu sigwira ntchito momwe imayembekezeredwa.

Kodi iyi ndi matenda obadwa nawo?

Matenda a PLS nthawi zambiri sali obadwa nawo. Izi zikutanthauza kuti mutha kudwala matendawa ngakhale palibe m'banja mwanu amene wakhalapo nawo. Nthawi zambiri, amapezeka mwangozi, popanda mbiri ya banja lawo ya matendawa.

Ndani ali pachiwopsezo chachikulu chotenga matenda a PLS?

Matenda a PLS amatha kukhudza aliyense. Nthawi zambiri amapezeka ali ndi zaka pafupifupi 50. Komabe, amatha kukhudza anthu osakwana zaka 50, okalamba, komanso ana. Amafala kwambiri mwa amuna.

Kodi ndi mavuto otani omwe angabwere chifukwa cha PLS?

Pamene PLS ikupita patsogolo, mungavutike kuyenda popanda thandizo. Mungafunike kugwiritsa ntchito ndodo, choyendera, kapena wheelchair. Kuphatikiza apo, pamene minofu yanu ikufooka, mungataye mphamvu zanu ndikugwa mosavuta. Ngati mutatero, mungavulale.

Kodi PLS imapezedwa bwanji?

Dokotala amazindikira matenda a PLS atatha kuyesedwa thupi, kuyesedwa kwa mitsempha, ndi mayeso ena apadera. Adzawunikanso zizindikiro zanu ndikuyesera kuchotsa matenda ena omwe ali ndi zizindikiro zofanana, monga ALS kapena multiple sclerosis. Mayeso angaphatikizepo:

• Kuyezetsa magazi.
• Kuyezetsa kwa electrodiagnostic - Izi zimayesa momwe mitsempha ndi minofu yanu ikugwira ntchito. Zitsanzo zimaphatikizapo maphunziro okhudza kuyendetsa mitsempha ndi maphunziro okhudza singano.
• Kuyesa kwa MRI (Magnetic Resonance Imaging) kwa ubongo ndi msana.
• Kusanthula kwa madzi a m'mitsempha (CSF). Izi zimachitika potenga madzi pang'ono kuchokera ku msana wanu (kubowoledwa kwa lumbar kapena kupopera kwa msana) kuti muwone zolakwika zinazake zokhudzana ndi matenda a mitsempha.

Kodi mankhwala a PLS ndi otani?

Chithandizo cha PLS cholinga chake ndi kukuthandizani kuthana ndi zizindikiro zanu. Izi zingaphatikizepo:

• Mankhwala ochepetsa kuuma kwa minofu, kupunduka, komanso kuvutika kumeza.
• Mankhwala olimbitsa thupi kuti achepetse kufooka kwa minofu, kusinthasintha kwa minofu, komanso kusintha kayendedwe ka mafupa.
• Zipangizo zomwe zimathandiza pa zochita za tsiku ndi tsiku komanso kuyenda. Mwachitsanzo, ndodo, choyendera, kapena mpando wa olumala.
• Mankhwala ochizira kulankhula kapena zipangizo zothandizira mavuto olankhula.

Mankhwala operekedwa pa zizindikiro za PLS:

Mankhwala ena omwe nthawi zambiri amaperekedwa kwa zizindikiro za PLS ndi awa:

• Pakulimba kwa minofu: `(Baclofen)` ndi `(Tizanidine)`
• Kupweteka kwa minofu: `(Quinine)`
• Kumasula minofu: `(Diazepam)`

Kodi pali zotsatirapo zilizonse za mankhwalawa?

Inde, monga mankhwala ena onse, mankhwalawa amatha kukhala ndi zotsatirapo zake. Zotsatirapo zake zimasiyana malinga ndi mankhwalawo. Chifukwa chake, ndikofunikira kwambiri kukambirana ndi dokotala wanu za zotsatirapo zake musanayambe kumwa mankhwala aliwonse.

Kodi PLS ingapewedwe kapena kuchiritsidwa?

Popeza chifukwa chenicheni cha PLS sichikudziwika, pakadali pano palibe njira yoletsera kuti isakule.

Komanso, mwatsoka, pakadali pano palibe mankhwala omwe angachiritse PLS kwathunthu.

Kodi munthu amene ali ndi PLS amakhala ndi moyo wautali bwanji? Kodi angayembekezere chiyani?

Kuchuluka kwa matenda a PLS sikukhudza mwachindunji nthawi yomwe muli ndi moyo. Munthu amene ali ndi PLS akhoza kukhala ndi moyo wabwinobwino, monga momwe munthu amene alibe matendawa amakhalira.

Momwe zizindikiro zanu zimaonekera mofulumira komanso momwe zimakulira mofulumira zimasiyana malinga ndi munthu. Kawirikawiri, matenda oyamba a lateral sclerosis amakula pang'onopang'ono, pakapita zaka zambiri, nthawi zina zaka makumi ambiri. Koma ngati mwadzidzidzi mukumva kuti zizindikiro zanu zikukulirakulira, pitani kwa dokotala nthawi yomweyo.

Mankhwala angathandize kuchepetsa zizindikiro zanu ndikukuthandizani kuchita zinthu zanu za tsiku ndi tsiku popanda kusokoneza. Mungafune kuganizira zogwiritsa ntchito ndodo, choyendera, kapena njinga ya olumala kuti mudzimve kukhala otetezeka komanso odzidalira mukamayendayenda.

Kodi muyenera kupita kwa dokotala liti?

Ngati muwona kusintha kulikonse pang'onopang'ono kwa minofu yanu, monga kuuma kapena kufooka, lankhulani ndi dokotala wanu. Ngati mwapezeka ndi PLS, ngati mankhwala aliwonse omwe mukumwa akukupangitsani kuti zizindikiro zanu ziwonjezeke, kapena ngati mukukumana ndi zotsatirapo zoyipa, uzani dokotala wanu za zimenezo.

Chofunika kwambiri: Ngati mwagwa kapena mwavulala pangozi, pitani kuchipatala mwamsanga.

Mafunso oti mufunse dokotala wanu

Ngati muli ndi PLS, mudzakhala ndi mafunso ambiri oti mufunse dokotala wanu. Mwachitsanzo:

• Ndi mankhwala ati omwe angathandize kuchepetsa zizindikiro zanga?
• Kodi zotsatirapo zake ndi ziti?
• Ndingadziwe bwanji ngati vuto langa lidzaipiraipira pakapita nthawi?
• Ndi masewera olimbitsa thupi otani omwe ndingachite kuti minofu yanga igwire bwino ntchito?
• Kodi ndiyenera kugwiritsa ntchito ndodo kapena choyendera?

Pomaliza, Uthenga Wopita Nawo Kunyumba

Kusintha momwe thupi lanu limasinthira, zomwe zimakupangitsani kuti muzitha kusuntha thupi lanu, kungakhale kovuta kwambiri. Zina mwa zinthu zomwe munkakonda kuchita, pang'onopang'ono zimakhala zovuta. Ngakhale kuti matenda a primary lateral sclerosis (PLS) amakula pang'onopang'ono, amatha kukhudza moyo wanu watsiku ndi tsiku.

Ngati kusinthaku kwakuthupi kukukhudzanso momwe mukumvera, mungapeze mpumulo polankhula ndi katswiri wa zamaganizo .Palibe chochititsa manyazi, anthu ambiri amafunikira thandizo nthawi ngati izi.

Ngati muwona kusintha kwa mphamvu ya minofu yanu, pitani kwa dokotala nthawi yomweyo. Angakupatseni mankhwala kapena zida zoyendetsera thupi kuti zikuthandizeni kukhala odziyimira pawokha komanso omasuka. Kumbukirani, simuli nokha paulendowu.

Matenda oyamba a lateral sclerosis, PLS, kufooka kwa minofu, neuropathy, ma neuron oyenda, ALS, zizindikiro