Kana chiremba akakuudza iwe kana mwana wako kuti une chirwere cheropa chinonzi Beta Thalassemia, zvakakosha kuziva rudzi rwechirwere chaunacho. Nekuti rudzi rwechirwere chaunacho ndirwo ruchasarudza zviratidzo nekurapwa kwaunoda. Ungatya zvishoma paunonzwa zita iri. Asi usazvidya mwoyo, tichatsanangura zvese zvakajeka uye zviri nyore.
Zvichitaurwa zviri nyore, chii chinonzi beta thalassemia?
Beta thalassemia chirwere chinokonzerwa nemajini chinokanganisa ropa redu. Zvakanaka, ngationei kuti izvi zvinoitika sei mumuviri.
Mukati memasero matsvuku eropa muropa redu mune puroteni yakakosha inonzi hemoglobin . Iyi ndiyo nzira inotora okisijeni kubva mumapapu yoiendesa kumasero mumuviri wese. Zvakafanana nebasa rekuendesa okisijeni. Mumunhu ane beta thalassemia, iyi protein ye hemoglobin haigadzirwe zvakanyanya sezvainoda. Chikonzero cheizvi kuchinja, kana kuti kuchinja, mujini rine chekuita nekugadzirwa kwehemoglobin (HBB gene).
Kana hemoglobin yadzikira, masero emuviri haagamuchire huwandu hunodiwa hweokisijeni. Ndosaka zviratidzo zvakasiyana-siyana zvichionekwa. Kune mhando nhatu huru dzechirwere ichi. Ngatizvitarisei zvakasiyana.
1. Beta Thalassemia inokonzerwa nekuwedzerwa ropa
Izvi zvinonziwo Thalassemia Major . Iyi ndiyo mhando yakanyanya kuipa yethalassemia. Dambudziko iri rinongoitika chete kana mwana akagara nhaka makopi maviri ejini rechirwere ichi kubva kuvabereki vese.
Mwana ane chirwere ichi anowanzoonekwa asati asvitsa makore maviri .
Sevabereki, tinoziva kuti zvinogona kuoma zvikuru kugamuchira nhau dzekuti mwana wenyu mudiki ane chirwere chakakomba. Zvakajairika kunzwa kuremerwa uye kunetseka. Usave wega panguva ino. Taura nemhuri yako neshamwari nezveizvi. Rutsigiro rwavo ruchakusimbisa zvikuru. Uyewo, kana uchinzwa kuremerwa uye kunetseka, kumbira chiremba wako kuti akutumire kune mupi wezano wehutano hwepfungwa. Hazvina basa kunyara nazvo, uye zvakakosha kuramba wakasimba kumwana wako.
Ndezvipi zviratidzo zvinogona kuonekwa mumamiriro ezvinhu aya?
- Kushaya ropa kwakanyanya: Nekuda kwe hemoglobin shoma, mwana anonzwa aneta uye aneta nguva dzese. Vanogona kutaridzika sevakachenuruka.
- Kukura kwakanonoka: Kukura kwemwana kunonoka zvikuru kana tichienzanisa nevamwe vana.
- Kuwedzera kwepleen nechiropa:Sezvo huwandu hwakawanda hwemasero matsvuku eropa akakuvara huchiungana muspleen nechiropa, nhengo idzi dzinokura zvishoma nezvishoma nekufamba kwenguva.
- Kupera simba kwemapfupa: Sezvo mupfupa uchifanira kugadzira masero matsvuku eropa, mupfupa unogona kuzvimba uye mapfupa anogona kutetepa uye kupwanyika.
- Kunonoka kuyaruka: Sezvaunokura, kuyaruka kunogona kunonoka nekuda kwemigumisiro pakushanda kwemahormone.
- Njodzi yekurwara nechirwere cheshuga uye kuumbwa kweropa kunogonawo kuwedzera kana munhu akura.
Nzira dzekurapa
Kuti udzore dambudziko iri rekushaya ropa kwakanyanya, kuwedzerwa ropa nguva dzose kwakakosha. Zvisinei, kana ukaramba uchipa ropa, huwandu hwesimbi mumuviri hunogona kuwedzera zvisingadiwi. Iyi simbi yakawedzerwa inogona kukuvadza chiropa, mwoyo, uye endocrine system.
Kudzivirira izvi, mushonga unonzi Iron Chelation Therapy unoshandiswa. Muchidimbu, uyu unobvisa iron yakawandisa inenge yaungana mumuviri. Kune mishonga inopihwa nekuda kweizvi.
2. Beta Thalassemia isingashandisirwe ropa
Izvi zvinonziwo Thalassemia Intermedia . Zviratidzo zveizvi hazvina kunyanya kuipa sezvakaita zveThalassemia Major yambotaurwa.
Kazhinji, munhu ane chirwere ichi anoenda kuna chiremba nekuda kwematambudziko akadai sekuneta nguva dzose, kutsvuka kweganda (jaundice), kana kutadza kukura zvakanaka.
Zviratidzo zvinogona kuonekwa muchirwere ichi
- Kuwedzera kwepleen.
- Kunonoka kuyaruka.
- Mapfupa asina simba uye njodzi yekutyoka nyore nyore.
- Kuneta kunokonzerwa nekushaya ropa.
Nekuti zviratidzo zvechirwere ichi hazvina kunyanya kuipa, kuwedzerwa ropa nguva dzose hakudikanwi . Ungasafanira kupa ropa kweupenyu hwako hwese. Asi izvozvo zviri kuna chiremba wako kuti asarudze.
3. Beta Thalassemia Minor
Izvi zvinonziwo "Thalassemia Trait." Munyika medu, vanhu vazhinji vanoti chirwere ichi "kuva murwere ane thalassemia."
Iyi ndiyo mhando ye thalassemia isina kunyanya kuipa . Munhu ane chirwere ichi angasava nezviratidzo kunze kweanemia isina kunyanya kuipa . Vanhu vazhinji vanorarama kwemakore vasingatombozivi kuti vane chirwere ichi. Dzimwe nguva chinowanikwa netsaona kana ropa richiongororwa chimwe chirwere.
Dambudziko iri hariwanzodi kurapwa nguva dzose kunze kwekunge wanzwa kuneta kana kuneta.
Asi kunyangwe usina zviratidzo, zvakakosha kuziva kuti une Thalassemia Trait. Kunyanya kana uri kuroora kana kuti uri kuronga kuva nemwana. Nekuti kana mumwe wako ariwo ane Thalassemia Trait, pane mukana wekuti mwana wako ave neThalassemia Major, chirwere chakakomba. Ndosaka zvichikosha kutaura nachiremba wako nezvazvo uye kuongororwa.
| Rudzi rweThalassemia | Kukoshesa zvinhu zvakanyanya | Zviratidzo zvikuru uye kurapwa |
|---|---|---|
| Thalassemia Major | Zvakakomba zvikuru | Kushaya ropa kwakanyanya, kukura zvishoma nezvishoma. Kuwedzerwa ropa nguva dzose uye kurapwa nesimbi kwakakosha. |
| Thalassemia intermedia | Zvakakomba zviri pakati nepakati | Kushaya ropa zviri pakati nepakati, kuneta. Kazhinji hapana chikonzero chekuwedzerwa ropa nguva dzose. |
| Thalassemia minor (Minor/Hunhu) | Hazvina kukosha (mamiriro ekutakura zvinhu) | Kazhinji hapana zviratidzo. Hapana kurapwa kunodiwa. Asi kuziva kwakakosha pakuronga mhuri. |
Mharidzo Yekuenda Nayo Kumba
- Beta thalassemia chirwere chinogara nhaka chinoderedza kugadzirwa kwehemoglobin.
- Kune mhando nhatu huru dzeizvi: huru (yakanyanya), yepakati (yepakati), uye diki (yakapfava/yakadzikama).
- Thalassemia major inoda kuwedzerwa ropa nguva dzose uye kurapwa nekubvisa iron.
- Kana uine thalassemia minor (chirwere chinotapurirana chirwere), ungasava nezviratidzo. Zvisinei, kuziva kana mumwe wako ari iyewo ane chirwere ichi kwakakosha zvikuru kana uchitarisira kuva nemwana ane hutano.
- Usanyara kana kutya kutaura pachena nachiremba wako nezverudzi rwe thalassemia yaunayo, kurapwa kwayo, uye chero mibvunzo yaungave nayo.
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