Mhoroi! Nhasi tichataura nezvemushonga wakaoma asi unokosha zvikuru. Kana iwe kana mumwe munhu mumhuri yako aine chirwere chinonzi Cystic Fibrosis, chiremba wako angangodaro akakunyorera mushonga unonzi Trikafta. Une musanganiswa wemishonga mitatu inonzi Elexacaftor, Tezacaftor, uye Ivacaftor. Izvi hazvina kufanana nemushonga wenguva dzose, asi mushonga wakasarudzika unoshanda pakutsvaga chikonzero chechirwere uye kuchikanganisa. Saka ngationei kuti mushonga uyu unoshandiswa sei chaizvo, zvinhu zvekungwarira, uye migumisiro yaungave nayo.
Chii chaizvo chinoitika nemushonga uyu?
Zvichitaurwa zviri nyore, Cystic Fibrosis chirwere chinokonzerwa nemajini chinoita kuti mvura dzakasiyana-siyana dzemuviri, kunyanya madzihwa ari munhengo dzakadai semapapu nepancreas, dzive dzakakora uye dzinonamira zvakanyanya. Izvi zvinogona kukonzera matambudziko ekufema, hutachiona hwemapapu, uye matambudziko ekugaya chikafu.
Mushonga uyu, Trikafta, unoshanda nekugadzirisa zvishoma puroteni isiri kushanda zvakanaka muvarwere vane shanduko yemajini inonzi F508del . Izvi zvinoreva kuti pane kudzora zviratidzo, unobatsira kuderedza kukanganisa kwemajini kunokonzera chirwere ichi. Izvi zvinozorodza zvikuru varwere ava.
Zvinhu zvaunofanira kuudza chiremba wako usati watanga mushonga
Zvakakosha kuti chiremba wako azive nhoroondo yako yese yehutano usati wanyora mushonga uyu. Mushonga uyu haukodzeri munhu wese. Iva nechokwadi chekuudza chiremba wako, kunyanya kana uine chimwe chezvirwere izvi:
- Kana uine chirwere cheitsvo .
- Kana uine chirwere chechiropa (izvi zvakakosha zvikuru).
- Kana uine allergies kuElexacaftor, Tezacaftor, Ivacaftor, kana chero imwe mishonga, chikafu, kana dhayi iri mumushonga uyu.
- Kana uine pamuviri kana kuti uchironga kuva nemwana munguva pfupi iri kutevera.
- Kana uri amai vanoyamwisa.
Zvichibva paruzivo urwu, chiremba wako achasarudza kana mushonga uyu wakakunakira iwe kana kuti kana muyero wacho uchifanirwa kuchinjwa.
Ndingashandisa sei mushonga uyu chaizvo?
Kuti mushonga uyu uwane pundutso yakakwana, zvakakosha kuutora sezvakarairwa.
Chinhu chinonyanya kukosha ndechekugara uchinwa mushonga uyu pamwe chete nechikafu chine mafuta kana mafuta , nekuti mishonga iri mumushonga uyu inonyoroveswa zvakanaka nemuviri kana ikasanganiswa nemafuta.
Semuenzaniso, unogona kutora mushonga uyu:
- Nemazai
- Nenzungu yemafuta
- Nechikafu chine chizi (semuenzaniso pizza yechizi)
- Ne avocado
- Neyogati (yogati ine mafuta akazara)
Zvimwe zvinhu zvekurangarira:
- Medza mapiritsi ese . Usaapwanya kana kuapwanya, kana kuatsenga sechingamu.
- Edza kunwa mushonga wako panguva imwe chete zuva nezuva. Kana wangozvijaira, hauzokanganwi.
- Usambofa wakatora mushonga uyu nemazambiringa kana muto wegirepurepure. Zvinoshandiswa mumuto wegirepurepurepure zvinogona kukanganisa zvakanyanya mashandiro emushonga uyu.
- Usarega kutora mushonga wako kusvika chiremba wako akuudza kuti udaro.
- Mushonga uyu dzimwe nguva unopihwa vana vane makore anopfuura matanhatu, asi chete pasi pekutarisirwa kwakakosha kwechiremba.
Ko kana ndikatora mushonga wakawandisa netsaona?
Kana uchifunga kuti watora mushonga uyu wakawandisa, usavhunduka. Fonera National Poisons Information Centre kuColombo National Hospital nekukasika. Kana kuti enda kuEmergency Treatment Unit (ETU) yechipatara chiri pedyo. Zviri nani kana uchikwanisa kutora mushonga uyu paunoenda.
Zvinhu zvisingafaniri kushandiswa nemushonga uyu
Trikafta mushonga une simba unogona kushanda pamwe chete nemimwe mishonga. Saka, unofanira kuudza chiremba wako nezvemishonga yese yauri kutora, kwete chete iyo yawakanyorerwa nachiremba wako, asiwo mishonga inotengeswa pasina kunyorerwa chiremba, mavhitamini, uye mishonga yemiti.
| Mishonga nezvikafu zvinogona kukanganisa Trikafta | |
|---|---|
| Dzivisa kutora Trikafta neizvi | |
| Mimwe mishonga yekurapa pfari | Carbamazepine, Phenobarbital, uye Phenytoin |
| Mishonga inorwisa mabhakitiriya | Rifampin, Rifabutin |
| Zvigadzirwa zvemiti | Wort yeSt. John |
| Chikafu | Muto weGrapefruit nemuto weGrapefruit |
| Bvunza chiremba wako kana uri kutora Trikafta neizvi. | |
| Mamwe maantibayotiki | Clarithromycin, Erythromycin |
| Mishonga inorwisa fungus | Fluconazole, Itraconazole, Ketoconazole |
| Mishonga inodzvinyirira masoja emuviri | Cyclosporine, Sirolimus, Tacrolimus |
| Zvimwe | Digoxin, Warfarin, mimwe mishonga yekurapa chirwere cheshuga (semuenzaniso Glimepiride, Glipizide) |
Ndezvipi zvingakonzera migumisiro yekutora mushonga?
Kufanana nemushonga upi zvawo, Trikafta inogona kukonzera mimwe migumisiro yakaipa. Mimwe yacho inogona kunge yakakomba. Saka zvakakosha kuziva izvi.
| Mhedzisiro yedivi | Tsananguro uye zvekuita |
|---|---|
| Migumisiro yakakomba inofanira kutaurwa kuna chiremba wako nekukasika | |
| Zviratidzo zvekukuvara kwechiropa | Weti yero yakasviba kana yebrown, maziso kana ganda rakatsvuka, kurwadziwa mudumbu rekumusoro kurudyi, kushaya chido chekudya, kuda kurutsa, kuneta kusingawanzoitiki. Kana ukaona izvi, taurira chiremba wako nekukasika. |
| Kurwara kwakanyanya | Mapundu paganda, kuvaviwa, kuzvimba kwechiso, miromo kana rurimi, kuoma kufema. Izvi zvinokonzeresa emergency. |
| Kuchinja kwekuona | Taura nezvekuchinja kupi zvako kuna chiremba wako , zvakaita sekunge maziso machena akaonekwa (cataracts) kana kuti kuona zvisipo. |
| Shuga shoma muropa (Hypoglycemia) | Kusagadzikana, kuvhiringidzika, dzungu, nzara yakawandisa, kudikitira zvakanyanya, kudedera, uye kurova kwemoyo nekukurumidza. |
| Migumisiro isingawanzova yakakomba, asi inofanira kutaurwa kuna chiremba kana ikaramba iripo | |
| Matambudziko ekugaya chikafu | Kurwadziwa kwemudumbu, manyoka, gasi. |
| Zviratidzo zvakajairika | Musoro, dzungu, fivha, kuzara kwe sinus. |
| Kunyanya kuvakadzi | Kurwadziwa panguva yekuenda kumwedzi. |
Kana uine zvimwe zviratidzo zvisingawanzoitiki zvisiri pane urongwa uhwu, udza chiremba wako nezvazvo zvakare.
Mharidzo Yekuenda Nayo Kumba
- Trikafta mushonga unokosha kwazvo weCystic Fibrosis unokanganisa chikonzero chikuru chechirwere.
- Mushonga uyu unofanira kutorwa pamwe chete nechikafu chine mafuta kana mafuta . Usatore mushonga uyu usina chinhu.
- Usambotora mushonga uyu nemuto wegrapefruit. Zvakare, udza chiremba wako nezvemimwe mishonga yese yauri kutora.
- Tsvaga rubatsiro rwechiremba nekukasika kana ukaona zviratidzo zvekukuvadzwa kwechiropa (maziso achitsvuka, weti yakasviba) kana kuti une allergy yakanyanya.
- Sangana nachiremba pazuva rakarongwa uye usapotsa kuongororwa ropa nemaziso kwaanonyorera.
- Mushonga uyu ndewako chete. Usambougovana nevamwe.
💬 Comments (0)
Hapana zvakataurwa parizvino. Isa mhinduro yako pano kekutanga.
Wedzera zvaunofunga