Muviri wako wakabatwa here, asi pfungwa dzako dzakasununguka? Ngatitaure nezve Locked-in Syndrome (LiS)

Fungidzira uchikwanisa kunzwisisa nekunzwa zvese zvaunoda, asi usingakwanise kutaura kana kufambisa muviri wako... sekunge wakavharirwa mumuviri wako. Hazvinzwi sekunge hauna simba here kufunga nezvazvo? Ndiyo mhando yechirwere chetsinga chisina kunaka, asi chisingawanzoitiki chatichataura nezvacho nhasi. Izvi zvinonzi Locked-in Syndrome, kana kuti `(LiS)` muchidimbu.

Chii chinonzi Locked-in Syndrome?

Zvichitaurwa zviri nyore, chirwere chepfungwa chisingawanzoitiki umo tsandanyama dzako dzese dzinoita basa rekuzvidira, kunze kwetsandanyama dzinodzora mafambiro emaziso ako, dzinorega kushanda. Izvi zvinoreva kuti haugone kuita chero chaunoda kuita, senge kufambisa maoko ako kana makumbo, kutaura, kana kuratidza manzwiro ako nechiso chako.

Asi chinoshamisa ndechekuti, munhu ari mumamiriro aya ane pfungwa dzake dzese, njere, uye ndangariro sezvakajairika. Vanogona kunzwa nekunzwisisa zviri kuitika zvakavapoteredza. Asi havana nzira yekupindura. Zvakafanana nemunhu akavharirwa mumuviri wake, asingakwanise kutaura kana kufamba.

Vanhu ava vanowanzo taurirana nekufambisa maziso avo kumusoro nekudzika, kana kupenya, izvo zvavanogona kudzora. Dzimwe nguva vanoshandisa matekinoroji anobatsira pachinangwa ichi.

Chikonzero chikuru chechirwere ichi kukuvara kwechikamu chepfungwa dzedu chinonzi pons. Tichataura nezvazvo zvakadzama gare gare.

Ndeapi marudzi makuru echirwere cheLocked-in (LiS)?

Mhando nhatu huru dzechirwere cheLock-in-in (LiS) dzakawanikwa. Ngationei kuti chii.

1. Maitiro ekare

Iyi ndiyo mhando inonyanya kuwanikwa. Muchiitiko ichi, muviri wese hauchafambi zvachose. Izvi zvinoreva kuti havakwanise kuita chero mafambiro ekuzvidira. Zvisinei, vanogona kufambisa maziso avo kumusoro nekudzika vobwaira. Zvakare, pfungwa dzavo nehungwaru hwavo zvinoramba zviri zvakajairika. Vanogona kunzwa zvinhu zviri kuitika zvakavapoteredza zvakanaka.

2. Fomu risina kuzara

Izvi zvakafanana nerudzi rwekare. Kureva kuti, kunyangwe muviri wese usina hupenyu, maziso anogona kufamba-famba kumusoro nekudzika, achibwaira. Zvisinei, muchiitiko ichi, dzimwe nguva panogona kunge paine kufamba-famba uye kunzwa kunosara mune dzimwe nzvimbo dzemuviri. Ndiwo mutsauko mudiki pano.

3. Maitiro Ekusafamba-famba Kwese

Ichi ndicho chimiro chakanyanya kuoma uye chisingawanzoitiki. Muizvi, muviri wese unorema zvachose, uye kugona kufambisa maziso kunorasika. Asi, zvinoshamisa kuti, vanhu ava vanewo kufunga kwakanaka uye njere. Vanachiremba vanosimbisa izvi nekuyedza mashandiro e cerebral cortex (cortical function) nemiedzo yakaita se ``electroencephalogram - EEG)``, iyo inoyera mafungu europi.

Ndiani anogona kuwana chirwere cheLocked-in syndrome (LiS)?

Kutaura zvazviri, chirwere ichi chinonzi locked-in syndrome (LiS) chinogona kuitika chero pazera ripi zvaro. Zvisinei, tsvakurudzo yakaratidza kuti chinowanzoitika kuvanhu vane makore ari pakati pe30 ne50 .

Dambudziko iri rakajairika zvakadii?

Locked-in syndrome (LiS) chirwere chisingawanzoitiki. Nekuti dzimwe nguva chirwere ichi chinoonekwa zvisizvo kana kuti chinofungidzirwa zvisirizvo kuti chirwere, zvinonetsa vaongorori kutaura kuti vangani chaizvo vanochiwana gore rega rega. Zvisinei, zvinogamuchirwa kuti hazviwanzoitiki.

Ndezvipi zviratidzo zve locked-in syndrome (LiS)?

Mhedzisiro yemuviri inogona kusiyana zvishoma zvichienderana nerudzi rwe locked-in syndrome (LiS) yaunayo.

Kazhinji, paunotanga kuona munhu ane chirwere chekuvharirwa mukati, unofunga kuti haana chaanoziva, kureva kuti, ari pakoma. Izvi zvinokonzerwa nekuti haakwanise kupindura chero nenzira ipi zvayo. Inguva pfupi ndipo paunozoona kuti anenge achiziva.

Zvinhu zvisingagone kuitwa nevanhu vazhinji:

• Kutsenga chikafu
• Kumedza
• Kutaura
• Matauriro echiso (sekunyemwerera, kusuruvara)
• Hapana kufamba kwemuviri pasi pemaziso

Zvinhu zvinogona kuitwa nevanhu vazhinji (muchimiro chekare uye chisina kukwana):

• Unogona kufambisa maziso ako kumusoro nekudzika (asi kwete kurutivi kuenda kurutivi, ndiko kuti, wakatwasuka).
• Unogona kukwenya maziso.

Zvinhu zvinogona kuitwa nemunhu wese (mumhando dzese):

• Ndinonzwa zvinhu zvichiitika zvakandipoteredza, vanhu vachitaura.
• Unogona kunzwisisa kana mumwe munhu achitaura kana kuverenga chimwe chinhu.
• Unogona kufunga uye kufunga sezvawakaita mamiriro ezvinhu aya asati aitika.
• Kurara nekumuka nguva nenguva kwakajairika.

Unonzwa kurwadziwa ne locked-in syndrome (LiS) here?

Izvi zvinoenderanawo nerudzi rweLocked-In Syndrome (LiS) yaunayo.

• Munhu asingachafambi zvachose haanzwi kurwadziwa mumuviri nekuti muviri wake wese hauna kufamba zvachose.
• Munhu ane chimiro chisina kukwana anogona kunzwa kurwadziwa uye mamwe manzwiro mune dzimwe nhengo dzemuviri.

Chii chinokonzera chirwere cheLocked-in syndrome (LiS)?

Sezvatakambotaura, chikonzero chikuru che locked-in syndrome (LiS) kukuvara kwechikamu chepfungwa dzedu chinonzi pons.

Kukuvadzwa kwechikamu cheuropi chepons

Pons inhengo yetsinga yakaita sehorseshave. Iri pakati pe medulla oblongata, chikamu chepazasi chebrainstem, necerebellum, iyo inodzora mafambiro emuviri wedu, kunyanya kuenzana.

Pons chikamu cheuropi chinonzi cerebrum, chine nzira dzakawanda dzinokosha dzetsinga dzinobatanidza cerebrum yedu, spinal cord, uye cerebellum. Mu locked-in syndrome, kana pons ikakuvara, zviratidzo zvese zvetsinga kubva kuuropi kuenda kumhasuru dziri mumuviri zvinovharika. Ndokusaka muviri wese uchioma. Kukuvara uku kunokanganisawo nzvimbo dziri muuropi dzinodzora kutaridzika kwechiso nekutaura. Ndokusaka tisingakwanise kuratidza manzwiro nezviso zvedu, kutsenga chikafu, kumedza, kana kutaura.

Chikonzero chikuru uye chinowanzo konzera kukuvara kwepons ischemic stroke kana hemorrhagic stroke, iyo inokanganisa nzira dze corticospinal, corticopontine, uye corticobulbar mu brainstem.

• Kurohwa kweropa kunokonzerwa ne ischemic kunoitika kana ropa rakagwamba richivhara tsinga yeropa inoenda kuuropi, zvichiita kuti ropa risaende kuuropi.
• Kurohwa kweropa kunoitika kana ropa rikatanga kubuda muuropi richibva mutsinga iri muuropi.

Zvimwe zvinokonzera kukuvara kwemaponi

Kuwedzera kune sitiroko, zvimwe zvikonzero zvisingawanzoitiki zvinogona kukonzera kukuvara kwepons, zvichikonzera locked-in syndrome (LiS).

• Kutapukirwa kwezvimwe zvikamu zveuropi.
• Mamota kana kuti mabundu ari mupons kana brain stem.
• Kubviswa kwemyelin (myelin) kunokonzerwa nekurasikirwa kwechinhu chinodzivirira (myelin) chakakomberedza masero etsinga.
• Zvimwe zvirwere, semuenzaniso , amyotrophic lateral sclerosis (ALS) uye Guillain-Barre syndrome .
• Kushungurudzika kwevapfuri.
• Kushandisa zvinodhaka zvisina kunaka .

Nzira yekuziva sei chirwere chakavharirwa (LiS)?

Nekuti vanhu vane locked-in syndrome (LiS) havapinduri kana paine zvinorwadza (kureva kuti, havana mhinduro dzemuviri) izvo vanachiremba vanoshandisa kuti vaongorore kuti vanopindura sei, vanachiremba vanogona kutanga vafunga zvisirizvo kuti havana chavanoziva. Saka, kuongorora chirwere (LiS) dzimwe nguva kunogona kuoma uye kunotora nguva.

Chinhu chinonyanya kukosha pakuongorora chirwere chelocked-in syndrome (LiS) ndechekubvisa zvimwe zvirwere zvinogona kukonzera zviratidzo izvi. Zvakare, sechikamu chekuongorora chirwere uye chirongwa chekurapa, zvakakosha kuziva chiri kukonzera chirwere chelocked-in syndrome.

Kuongororwa kwezvirwere

Vanachiremba vanoshandisa bvunzo dzinoverengeka kuti vaongorore chirwere cheLocked-in syndrome (LiS), vaone chikonzero chacho, uye vaone kuti hapana zvimwe zvirwere.

• Kuongororwa kweMRI (Magnetic Resonance Imaging - MRI) kana CT (Computed Tomography - CT): Kuongororwa uku kunogona kuona kana paine kukuvara kwepons yako kana zvimwe zvikamu zveuropi hwako.
• Cerebral angiography: Kuongororwa uku kunogona kuona kana paine ropa rakagwamba mutsinga dzeuropi kana kune imwe nzvimbo muuropi.
• Electroencephalogram (EEG): Iyi inoyera mashandiro emagetsi europi. Izvi zvinoita kuti vanachiremba vaone kana mashandiro europi hwako uye kurara kwako kwakajairika. Zvinogona kubatsira kusiyanisa LiS nezvimwe zvirwere.
• Zvine simba zvinobuda: Izvi zvinoyera mashandiro emagetsi muzvikamu zveuropi nemusana zvichienderana nezvinhu zvakaita sekurwadziwa, kunzwa, kana zvinokurudzira kuona. Vanachiremba vanoashandisa kuongorora mashandiro europi akakuvara uye maitiro europi ane hutano.
• Electromyography: Iyi inoyera kuti tsandanyama netsinga dzako zviri kushanda zvakanaka sei. Iyi bvunzo inogona kushandiswa kubvisa tsandanyama netsinga dzakakuvara.
• Kuongororwa kweropa: Kuongorora metabolic panel, kunyanya nekutarisa huwandu hwesodium muropa, kunogona kubatsira kuona kana chirwere chinonzi pontine myelinolysis chiri chikonzero.
• Kuongororwa kweCerebrospinal fluid (CSF): Izvi zvinogona kubatsira kuona kana hutachiona kana chirwere che autoimmune chiri kukonzera zviratidzo.

Ko chirwere cheLock-in Syndrome (LiS) chinorapwa sei?

Kutaura chokwadi, hapana mushonga chaiwo kana mushonga we locked-in syndrome (LiS). Chinhu chega chekuita, kana zvichibvira, kurapa chinokonzera chirwere ichi uye kudzivirira mamwe matambudziko.

Kurapwa kwechirwere chelocked-in kunosanganisira kurapa nekubatsira uye kudzidziswa kutaurirana .

Kurapa Kunotsigira

Kubatsira pakufema nekupa chikafu kwakakosha, kunyanya pakutanga. Vanhu vane LiS vanowanzoda rubatsiro rwekufema rwekugadzira. Vanovhiyiwawo ne tracheotomy (chubhu inopinzwa nepaburi diki mumutsipa ichipinda mupaipi yemhepo).

Nekuti hazvina kunaka kudya kana kunwa nemuromo neLiS, vanhu ava vanowanzova nechubhu diki inonzi gastrostomy tube (G-tube) inopinzwa zvakananga mudumbu ravo. Apa ndipo panopiwa chikafu nemvura.

Mamwe marapirwo ekuwedzera anosanganisira:

• Kudzivirira matambudziko anogona kumuka kana munhu asingafambi. Semuenzaniso:Zvinhu zvakaita sepneumonia, zvirwere zvemunzira yeweti (UTIs), uye kuvharika kweropa (thrombosis).
• Kudzivirira kukuvara kwekumanikidzwa/maronda emubhedha .
• Kurapa muviri kudzivirira kukwenya kwemakumbo, uko kuri kurasikirwa nekufamba kunokonzerwa nekuoma kwemajoini, tsandanyama, kana nyama dzakapfava dzemakumbo.
• Ipa kurapa kwemuviri kuti ugadzirise chero kufamba kudiki kwasara kana kuti kuripo (kana kuripo).

Kudzidziswa kwekutaurirana

Varapi vekutaura vanogona kubatsira vanhu vane chirwere cheLocked-in syndrome (LiS) kutaurirana zvakajeka kuburikidza nekufamba kwemaziso uye kupenya. Maitiro aya ekutaurirana akasiyana kune munhu wega wega. Semuenzaniso, kutarisa kumusoro kunogona kureva "hongu" uye kutarisa pasi kunogona kureva "kwete" (kana zvinopesana). Uyewo, kana mumwe munhu akaverenga tsamba, anogona kukwanisa kunongedzera kune bhii raanoda kushandisa kugadzira mazwi nemitsara.

Kuwedzera pazviratidzo zvekufamba kwemaziso, zvishandiso zvemagetsi zvekutaurirana , zvakaita se infrared eye movement sensors uye computer voice prosthetics, zvakabvumira vanhu vane LiS kutaurirana vakasununguka uye kushandisa internet.

Zvinokwanisika here kupora zvizere kubva kuLocked-in Syndrome (LiS)?

Zvichienderana nechikonzero che locked-in syndrome (LiS), mamwe mafambiro emuviri anogona kudzoka. Zvisinei, kupora zvachose hakuwanzoitiki. Vamwe vanhu vane LiS vanogona kunge vaine kufamba uye kunzwa mune dzimwe nhengo dzemuviri wavo.

Vanhu vazhinji havambofi vakarasikirwa nekushanda kwetsinga, asi vanogona kudzidza kutaurirana kuburikidza nekufamba kwemaziso.

Ko chirwere cheLock-in Syndrome (LiS) chinogona kudzivirirwa here?

Zvinosuwisa kuti, nyaya zhinji dze locked-in syndrome (LiS) hadzigone kudzivirirwa. Zvisinei, kana uri panjodzi huru yekubatwa nesitiroko, njodzi yako yekubatwa neLiS inogonawo kuwedzera.

Taura nachiremba wako nezvenjodzi yako yekubatwa nestroke uye nzira dzekuderedza njodzi iyoyo.

Ndeipi tarisiro yemunhu ane chirwere cheLocked-in syndrome (LiS)?

Kufanotaura kwevanhu vane chirwere chelocked-in syndrome (LiS) kunoenderana nechikonzero chechirwere, rudzi rwechirwere, uye huwandu hwerutsigiro nerubatsiro rwavanowana.

Ongororo ichangobva kuitwa yakawana kuti vanhu vane LiS vakataura kuti vane hupenyu hunofadza uye hune chinangwa, kunyanya pavakawana mabasa akanaka ekubatsira vanhu uye tekinoroji inochinja-chinja yakavabatsira kuita basa rakajairika kumba uye munharaunda.

Vanhu vazhinji vane LiS vanogona kushandisa wiricheya ine injini uye komputa ine tekinoroji inochinjika.

Unogona kurarama kwenguva yakareba sei uine chirwere cheLocked-in syndrome (LiS)?

Vamwe vanhu vane chirwere cheLocked-in syndrome (LiS) havararame mushure mekutanga kwechirwere ichi, nekuda kwematambudziko ehutano. Zvisinei, vamwe vanorarama kwemakore gumi kusvika makumi maviri uye vanoti hupenyu hwavo hwakanaka.

Ndingazvitarisira sei ini pachangu, kana mumwe munhu ane LiS?

Kana uine chirwere cheLock-in Syndrome (LiS), zvakakosha kuti uve nechokwadi chekuti unowana rubatsiro rwakanaka rwekurapa kudzivirira matambudziko akadai sepneumonia uye maronda emubhedha anokonzerwa nekusagona kufamba.

Zvakakoshawo kutsvaga nzira dzekutaurirana - kungave kuburikidza nekufambisa maziso kana tekinoroji yekubatsira senge tekinoroji yekutevera maziso. Funga nezvekubatana neboka rekutsigirana kuti usangane nevamwe vakambosangana nezviitiko zvakafanana.

Kana uri kutarisira munhu ane `(LiS)` , zvakakosha kuti uvatsigire kuti vave nechokwadi chekuti vanowana rubatsiro rwehutano rwakanakisisa uye kuti vawane matekinoroji anovabatsira kutaurirana uye kuva vakazvimiririra.

Chekupedzisira, chinhu chinonyanya kukosha (Mharidzo Yekuenda Kumba)

Locked-in Syndrome (LiS) chirwere chisingawanzoitiki uye chakakomba. Kuongororwa seizvi kunogona kunetsa. Asi yeuka, timu yako yezvekurapa iripo kuti ikutsigire iwe nevadikanwi vako. Zvakakosha kuramba uchiwana rubatsiro rwakanaka rwezvekurapa uye kudzidza nzira itsva dzekutaurirana paunenge uchirarama neLiS.

Nekubatsira kwazvino kuri kuitwa nevanorwara uye kufambira mberi kwetekinoroji, vanhu vazhinji vane Locked-In Syndrome (LiS) vari kurarama hupenyu hwakazara uye hune chinangwa. Saka usamborega tariro. Pane mhinduro yedambudziko rega rega, nzira yekutarisana nematambudziko ese.

` Locked-in Syndrome, Pons, Brain Disease, Neurology, Kuoma Muviri, Kutaurirana