Kana chiremba wako akakuudza iwe kana mudiwa wako kuti ane cystic fibrosis (CF), ungangove uine mibvunzo yakawanda nezvemushonga wavanokupa. Sezvo iri chirwere chakaoma, zvakakosha kuti uzive zvizere nezvemushonga wavanokupa. Nhasi tichataura nezvemumwe mushonga wakadaro. Ipiritsi remusanganiswa rinonzi ORKAMBI, iro riri musanganiswa wemishonga miviri inonzi Lumacaftor neIvacaftor.
Mushonga werudzii uyu? Chii chaizvo chinoita izvi?
Zvichitaurwa zviri nyore, cystic fibrosis (CF) chirwere chinokonzerwa nekusashanda zvakanaka kweprotein mumuviri wedu. Izvi zvinoita kuti zvinobuda mumapapu edu nenhengo dzemuviri, kunyanya madzihwa, zvive zvakakora uye zvinonamira. Funga nezvazvo, kazhinji madzihwa mumapapu edu anoyerera zvishoma, saka anobuda zviri nyore. Asi madzihwa mumunhu ane CF anenge akakora, seglue. Madzihwa aya akakora anonamira mumapapu, zvichikonzera kuoma kufema, kukosora, uye hutachiona hwenguva dzose.
Lumacaftor; Mushonga uyu unonzi Ivacaftor unoshanda nekushandisa puroteni yandataura isina kunaka woigadzirisa kusvika pamwero wakati. Zvakafanana nekugadzira gedhi rakatyoka. Kana puroteni iyi yatanga kushanda zvakanaka, nzira inofamba nayo munyu nemvura mumasero emuviri inoenzana. Ipapo mucus wakakora, unonamira unova mutete zvishoma uye unotanga kubviswa nyore nyore mumapapu. Izvi zvinogona kudzora zviratidzo zvakawanda zveCF.
Asi chimwe chinhu chekurangarira ndechekuti iyi haisi mushonga we cystic fibrosis (CF). Ingori mushonga unobatsira kudzora zviratidzo uye kuita kuti hupenyu huve nyore.
Zvinhu zvaunofanira kuudza chiremba wako usati watora mushonga
Usati watanga mushonga uyu, zvakakosha kuzivisa chiremba wako nezvenhoroondo yako yese yehutano. Nekuti mamwe mamiriro ezvinhu anoda kutarisirwa zvakanyanya paunenge uchishandisa mushonga uyu. Kana uine chimwe chezvinotevera, iva nechokwadi chekuudza chiremba wako.
| Mamiriro ehutano kana mukana | Sei uchifanira kuudza chiremba? |
|---|---|
| Chirwere chechiropa | Mushonga uyu unogona kukanganisa chiropa. Kana uchitova nematambudziko echiropa, mushonga wako ungangoda kugadziriswa kana kuti ungangoda kuongororwa kakawanda. |
| Chirwere cheitsvo | Zvakakoshawo kufunga nezvekushanda kweitsvo. |
| Kukwira kweropa | Mushonga uyu unogona kukonzera kuti BP iwedzere, saka zvakakosha kuziva izvozvo zvakare. |
| Kana uine pamuviri kana kuti uri kuedza kubata pamuviri | Unofanira kutaura nachiremba wako nezvekuchengetedzwa kwemushonga uyu panguva yekuzvitakura. |
| Kana mwana achiyamwiswa | Kurukurai nachiremba wenyu kana mushonga wacho uchizopinda mumwana kuburikidza nemukaka wemuzamu uye kana uchizoshanda. |
| Kurwara nemimwe mishonga, chikafu, kana dhayi | Ruzivo urwu rwakakosha kuziva kana une allergy yemushonga uyu kana chimwe chezvinhu zvirimo. |
Mushonga uyu munoshandiswa sei?
Ichi ndicho chinhu chinonyanya kukosha. Kana ukasashandisa mushonga uyu nemazvo, mhedzisiro yacho inogona kudzikira.
- Tora nekudya zvine mafuta: Uyu ndiwo mutemo unonyanya kukosha . Kuti mushonga uyu unyurwe zvakanaka nemuviri, unofanira kutorwa nekudya zvine mafuta. Semuenzaniso, tora nechinhu chakaita semazai, bota, chizi, nzungu, avocado. Kana uchipa mwana mudiki, unogona kumupa nemukaka wemuzamu, mukaka weupfu kana zvigadzirwa zvemukaka zvine mafuta akawanda zvakaita seyogati, chizi.
- Inwa sezvakarairwa nachiremba wako: tora mushonga wakakodzera, panguva yakakodzera. Ramba uchiushandisa kusvika chiremba wako akuudza kuti urege.
- Usatore pamwe chete nemuto wegrapefruit: Dzivisa kunwa muto wegrapefruit kana grapefruit paunenge uchitora mushonga uyu.
- Kana ichipiwa vana: Mushonga uyu unogona kunyorerwa vana vane makore anopfuura matanhatu. Zvisinei, chiremba wako achakupa mirairo yakakosha nezveizvi.
Ko kana ndikatora mushonga wakawandisa?
Kana uchifunga kuti watora mushonga unopfuura wakatarwa, fonera National Poisons Information Centre kuColombo National Hospital nekukasika, kana kuenda kuEmergency Department (ETU) yechipatara chiri pedyo.
Ko kana ndikakanganwa mushonga?
Kana ukakanganwa kutora mushonga, tora mushonga nekukurumidza sezvaunoyeuka. Zvisinei, kana kwasara maawa asingasviki matanhatu kuti mushonga wako unotevera utore, usatore mushonga wawakarasikirwa nawo. Siya mushonga wacho wotora mushonga unotevera panguva yakatarwa. Usambotora mishonga miviri panguva imwe chete.
Mimwe mishonga inogona kushanda pamwe chete nemushonga uyu
Ichi chinhu chinofanira kungwarira zvikuru. ORKAMBI inogona kusangana nemimwe mishonga yakawanda. Izvi zvinoreva kuti kuitora pamwe chete nemimwe mishonga kunogona kuchinja mhedzisiro yeORKAMBI, kuchinja mhedzisiro yemimwe mishonga, kana kukonzera migumisiro yakaipa.
Saka, unofanira kuudza chiremba wako nezvemishonga yese yauri kutora (mishonga yezvimwe zvirwere, mavhitamini, mishonga yemishonga yemishonga, mishonga yeAyurvedic, mishonga yekuwedzera kudya).
Pazasi pane mimwe yemishonga inogona kupindirana nemushonga uyu. Rondedzero iyi haina kukwana.
| Usatore mushonga uyu pamwe chete nemumwe mushonga. | |
|---|---|
| Artemether, lumefantrine | Ranolazine |
| Lurasidone | Mimwe mishonga inopihwa yeHIV neHepatitis C |
| Ndapota zivisai chiremba wenyu nekuti izvi zvinogona kukanganisa mishonga yenyu. | |
| Mamwe maantibiotic (semuenzaniso Clarithromycin, Erythromycin) | Mishonga inorwisa fungus (semuenzaniso Fluconazole, Ketoconazole) |
| Mishonga yekurapa pfari (kurwara) (semuenzaniso Carbamazepine, Phenytoin) | Mishonga yekuderedza kushungurudzika kana kuzvidya mwoyo |
| Mishonga inodzvinyirira muviri (semuenzaniso Cyclosporine, Tacrolimus) | Mhando dzema steroid (semuenzaniso, Prednisone) |
| Mapiritsi ekudzivirira pamuviri (Estrogen/Progestin hormones) | Warfarin (mushonga unobvisa ropa rakawanda) |
| Mishonga inonyaradza marwadzo yakaita se ibuprofen | St. John's Wort (mushonga wemishonga) |
Zvimwe zvinhu zvekufunga nezvazvo pakutora mushonga
- Kuongororwa nachiremba nguva dzose: Chiremba wako achakuudza kuti uuye kukiriniki nguva dzose. Enda panguva yakakodzera uye ongorora ropa. Kana zviratidzo zvako zvikasapera, vaudze nezvazvo.
- Ngwarira kuona kwako: Mushonga uyu une njodzi diki yekukonzera cataract, kunyanya kuvana. Saka, unofanira kuongororwa maziso ako nachiremba wemaziso nguva nenguva paunenge uchitora mushonga. Kana ukaona shanduko mukuona kwako, taurira chiremba wako nekukasika.
- Chenjerera nezvekudzivirira pamuviri: Izvi zvakakosha zvikuru kana uri kushandisa mapiritsi ekudzivirira pamuviri ane mahormone. ORKAMBI inogona kuita kuti asashande zvakanaka. Saka, iva nechokwadi chekutaura nachiremba wako nezvekushandisa imwe nzira yekudzivirira pamuviri, yakaita sekondomu kana diaphragm .
Migumisiro inogona kuitika nekuda kwemushonga
Kufanana nemushonga upi zvawo, uyu unogona kukonzera migumisiro yakaipa kune vamwe vanhu. Mimwe yakakomba, mimwe isina kusimba.
| Migumisiro yakakomba inofanira kuziviswa kuna chiremba nekukasika | |
|---|---|
| Kusawirirana kwemuviri | Mapundu paganda, kuvaviwa, kuzvimba kwechiso, miromo, rurimi kana pahuro. |
| Kuoma kufema kana kurwadziwa pachipfuva | Kana uchinetseka kufema kana kunzwa chipfuva chako chichioma. |
| Zviratidzo zvekukuvara kwechiropa | Kurwadziwa mudumbu rekumusoro kurudyi, kurasikirwa nechido chekudya, kuda kurutsa, tsvina ine ruvara rwakachenuruka, weti yero kana yero yakasviba, maziso kana ganda richitsvuka, uye kuneta kwakanyanya. |
| Kuwedzera kweropa | Chiremba achaongorora izvi. |
| Kuchinja kwekuona | Kana kuona kwako kusinganyatsooneki. |
| Migumisiro isingawanzoitiki nekukurumidza, asi inofanira kutaurwa kuna chiremba kana ikaramba iripo | |
| Marwadzo emudumbu | Gasi |
| Manyoka | Kusvotwa |
| Musoro | Kuneta |
| Kuenda kumwedzi kusingaenderani nevakadzi | |
Munochengeta uye munorasa sei mushonga wacho?
- Kuchengetera: Chengeta mapiritsi aya kure nevana nezvipfuyo . Chengeta patembiricha yemukamuri (pakati pe20-25 degrees Celsius). Usashandise mushonga wapera basa.
- Kurasa: Nzira yakanakisisa yekurasa mushonga wapera kana kuti usingachadiwi ndeyekubvisa mapiritsi mumudziyo, kuasanganisa nechimwe chinhu chakaita sekofi yakakuyiwa, ivhu, kana tsvina yekatsi, kuaisa mubhegi rakavharwa zvakasimba, woakanda mumarara. Usadururire mishonga muchimbuzi kunze kwekunge chiremba wako akuudza kuti uite kudaro.
Mharidzo Yekuenda Nayo Kumba
- Nguva dzose tora ORKAMBI (Lumacaftor; Ivacaftor) pamwe chete nechikafu chine mafuta akadai sebota, chizi, kana mazai.
- Mushonga uyu ndewako chete. Usaugovane nevamwe.
- Udza chiremba wako nezvemimwe mishonga yese, mavhitamini, uye mishonga yemiti yauri kutora.
- Tsvaga rubatsiro rwechiremba nekukasika kana ukasangana nematambudziko akakomba akadai sekuchinja kwekuona, kuoma kufema, kana kurwadziwa mudumbu rekumusoro kurudyi.
- Chengeta mazuva ako akarongwa ekiriniki uye bvunzo nachiremba wako.
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