Iwe kana mumwe munhu waunoziva akamboudzwa nachiremba kuti ane chirwere cheFabry here? Ichi chirwere chisingawanzoitiki, chinokonzerwa nemajini. Mumwe mushonga chaiwo unoshandiswa kugadzirisa zviratidzo zvechirwere ichi unonzi Migalastat. Saka nhasi, ngatitaurei nezvemushonga uyu, nzira chaiyo yekuushandisa, matanho ekudzivirira, uye migumisiro yese inogona kuitika, nenzira iri nyore, seshamwari yakanaka.
Mushonga werudzii weMigalastat?
Zvichitaurwa zviri nyore, Migalastat mushonga unoshandiswa kurapa chirwere cheFabry. Unowanikwawo pamusika unonzi Galafold. Pano unofanira kurangarira chinhu chakakosha zvikuru.
Uyu hausi mushonga wechirwere cheFabry. Zvisinei, mushonga uyu unogona kubatsira kudzora kukuvara kunokonzerwa nechirwere uye kugadzirisa zviratidzo, zvichikubvumidza kurarama hupenyu hwakanaka uye hwakajairika.
Mushonga uyu unogona kushandiswawo kune zvimwe zvirwere zvisiri zvechirwere cheFabry. Kana muine mibvunzo nezveizvi, zvakanaka kutaura nachiremba wenyu.
Zvinhu zvekuudza chiremba wako usati watora mushonga uyu
Usati wakupa Migalastat, zvakakosha kuti chiremba wako azive zvizere nezvehutano hwako. Saka, kana chimwe chezvinotevera chichishanda kwauri, iva nechokwadi chekuudza chiremba wako nezvazvo.
- Kana uine chirwere cheitsvo: Kana uine chirwere chinokonzerwa neitsvo, zvakakosha kuti uzviburitse pachena.
- Kana uine allergies kune chimwe chinhu: Tiudze kana uine allergies, kwete kuMigalastat chete, asi kune chero mimwe mishonga, chikafu, ruvara rwechikafu, kana kuchengetedza.
- Kana uine pamuviri kana kuti uri kuedza kubata pamuviri: Zvakakosha kuzivisa chiremba wako nezveizvi, sezvo uchifanira kungwarira zvakanyanya paunenge uchishandisa chero mushonga panguva idzi.
- Kana uri amai vanoyamwisa: Kurukura izvi nachiremba wako sezvo mishonga inogona kukanganisa mwana wako kuburikidza nemukaka wemuzamu.
Mushonga uyu unofanira kushandiswa sei nemazvo?
Kuti uwane mhedzisiro yakanyanya kubva pamushonga, zvakakosha zvikuru kuushandisa nemazvo sezvakarairwa.
- Maitiro ekutora: Inwa mushonga uyu nemuromo negirazi remvura.
- Tevedzera mazano ekurapa: Tevedzera mirairo yakapihwa nachiremba wako kana iri papakeji yemishonga sezvakarairwa.
- Dumbu Risina Chinhu: Iyi inyaya yakakosha zvikuru . Mushonga uyu unofanira kutorwa mudumbu risina chinhu.Mudumbu musina chinhu. Kutaura chokwadi, haufanirwe kudya zvakare kwemaawa maviri mushure mekudya kana kwemaawa maviri mushure mekutora mushonga. Hapana dambudziko rekunwa mvura yakachena panguva iyi. Usambotora mushonga uyu pamwe nechikafu.
- Usapwanye kana kupwanya piritsi: Usacheke, kupwanya, kana kutsenga kapisiyu yemushonga uyu. Medza yese.
- Tora mushonga panguva yakatarwa: Inwa mushonga panguva yakatarwa. Dzivisa kutora mushonga unopfuura unokurudzirwa nachiremba.
- Usarega kutora mushonga usina kurairwa nachiremba: Usarega kutora mushonga usina kurairwa nachiremba wako.
Pakupa vana
Kungwarira kwakakosha kunofanira kutorwa pakupa mushonga uyu kuvana vadiki. Saka, taura nachiremba wevana nezve mushonga uyu uye tevera mazano ake.
Kupfuura mwero wemushonga
Kana uchifunga kuti watora mushonga wakawandisa, usavhunduka uye fonera National Poisons Information Centre kuColombo National Hospital nekukasika. Neimwe nzira, enda kuEmergency Treatment Unit (ETU) yechipatara chiri pedyo nekukurumidza.
Ndinofanira kuitei kana ndikarasikirwa nemushonga?
Zvakakosha kutora mushonga uyu sezvawakarairwa, usingaderedze chero dose. Zvisinei, kana ukarasikirwa nedose, usavhunduka. Bvunza chiremba wako kuti akupe mazano ezvekuita zvinotevera. Usaite zvekufungidzira.
Ndezvipi zvingakonzera migumisiro yakaipa?
Sezvinongoita chero mushonga upi zvawo, vamwe vanhu vanogona kusangana nemigumisiro yakaipa pavanotora Migalastat. Kunyangwe yakawanda yacho isiri yakanyanya kuipa, kune dzimwe nguva apo unofanira kungwarira zvikuru.
| Rudzi rwemhedzisiro yakaipa | Hunhu |
|---|---|
| Migumisiro inofanira kuziviswa kuna chiremba wako nekukasika | |
| Kusawirirana neAllergy | Zviratidzo zvakaita semapundu paganda, kuvaviwa kana mapundu, kuzvimba kwechiso, miromo kana rurimi. |
| Migumisiro inofanira kuudzwa chiremba kana ikaramba iripo kana kuti ichinetsa | |
| Matambudziko ekugaya chikafu | Manyoka, kurwadziwa mudumbu, kuda kurutsa. |
| Zvimwe zvirwere zvakajairika | Musoro. |
Zvakakosha: Rondedzero iyi inogona kunge isina migumisiro yese. Kana ukaona zviratidzo zvisingawanzoonekwi zviri pano, taura nachiremba wako kuti akupe mazano ekurapa.
Mushonga uyu unofanira kuchengetwa sei?
- Chengeta kure nevana: Chengeta mushonga uyu panzvimbo yakachengeteka pasingasvikirwi nevana vadiki .
- Tembiricha: Chengeta patembiricha yemumba (pakati pe15 ne30 degrees Celsius).
- Mishonga yapera: Rasa mishonga yapera nguva yayo yekushanda.
Chinyorwa chino chingori pfupiso yemushonga weMigalastat. Kana muine mimwe mibvunzo nezveizvi, ndapota kurukurai pachena nachiremba wenyu mogadzirisa chero zvinokunetsai.
Mharidzo Yekuenda Nayo Kumba
- Migalastat mushonga unoshandiswa kudzora chirwere cheFabry, asi hausi mushonga.
- Mushonga uyu unofanira kutorwa mudumbu risina chinhu (maawa maviri usati wadya kana maawa maviri mushure mekudya).
- Usati watora mushonga, zivisa chiremba wako nezvechirwere chako cheitsvo, allergies, nemimwe mishonga yese yauri kutora.
- Kana ukaona zviratidzo zvekurwara neganda zvakaita semapundu kana kuzvimba, tsvaga rubatsiro rwechiremba nekukasika.
- Dzivisai kurega kushandisa mushonga kana kuchinja mwero wemushonga musina kurairwa nachiremba wenyu.
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