Une mapatya here? Unoziva here nezvedambudziko iri rine njodzi? (Twin-to-Twin Transfusion Syndrome - TTTS)

Kana uri amai vane pamuviri, kutanga, makorokoto! Zvisinei, zvakakoshawo kuziva nezvezvirwere zvinogona kuitika dzimwe nguva pakubata pamuviri kwemapatya. Chimwe chezvirwere zvakadaro chisingatarisirwi asi chakakodzera kuziva nezvacho iTwin -to-Twin Transfusion Syndrome , inozivikanwawo seTTTS muchidimbu. Usazvidya mwoyo, ngatitaure nezvazvo zviri nyore.

Chii chinonzi Twin-to-Twin Transfusion Syndrome (TTTS)? Zvichitaurwa zviri nyore...

Fungidzira kuti mapatya maviri ari mudumbu mako ane placenta imwe chete . Tinodaidza mapatya aya kuti (mapatya e monochorionic) . Kazhinji, vana vese vanogamuchira ropa nezvinovaka muviri zvakafanana kubva ku placenta iyi. Zvisinei, muchiitiko ichi (TTTS), kupatsanurwa ikoko hakuitike zvakanaka.

Zvichitaurwa zviri nyore, mwana mumwe chete (ngatimuti 'mapatya anopa' ) haawani ropa rakakwana kubva muplacenta. Mumwe mwana (ngatimuti 'mapatya anogamuchira' ) anonyanya kuwanda. Kusarongeka uku mukuyerera kweropa ndiko kunokonzera TTTS. Ichi chirwere chisingawanzoitiki asi chinogona kunge chakakomba. Kuongororwa kwakanyatsoitwa nenyanzvi yeMaternal-Fetal Medicine (MFM) kwakakosha. Kuonekwa nekukurumidza, kutariswa, uye kurapwa zvinogona kutungamira kumhedzisiro yakanaka kuvana vese.

Chii chinoitika kune 'mupi wepatya'?

Mwana ari kuwana ropa shoma kubva muplacenta. Saka, huwandu hweropa mumuviri wake hunodzikirawo. Izvi zvinogona kukonzera kuti mwana akure zvishoma nezvishoma, uye huwandu hwemvura yeamniotic yakamupoteredza hunogonawo kudzikira. Izvi zvinokonzerwa nekuti mwana ari kuita weti shoma. Izvi zvinokonzerwa nekuti mvura yeamniotic inoumbwa zvakanyanya neweti yemwana. Kana mvura yeamniotic ikadzikira, saga rinobata mwana rinogona kutetepa, kana kutonyangarika. Izvi zvine njodzi, nekuti mwana haakwanise kufamba zvakanaka, uye tambo yerukuvhute inogona kumanikidzwa.

Chii chinoitika kune 'mapatya anogamuchira'?

Mwana uyu ari kugamuchira ropa rakawanda kupfuura zvaanofanira kuwana. Ropa iri rekuwedzera rinoisa dambudziko guru pamoyo wemwana, uye rinogona kutokonzera kutadza kushanda kwemoyo . Kana muviri wemwana anopa ropa usina kudya kwakakwana, muviri wemwana anogamuchira unofanira kushanda nesimba. Nekuti mwana uyu anofanira kugadzirisa ropa rakawanda, anoita weti kupfuura zvaagara achiita. Nekuda kweizvozvo, amniotic sac yake inokura zvakanyanya.

Dambudziko iri (TTTS) rinobata ani?

TTTS inongobata pamuviri apo mapatya ane placenta imwe chete (monochorionic) , uye anotaridzika zvakafanana (mapatya akafanana). Kazhinji, mapatya aya ane TTTS ane amniotic sacs mbiri dzakasiyana (diamniotic). Tinodaidza mapatya aya kuti (monochorionic diamniotic twins) .

Zvisinei, kashoma, pane zviitiko apo vana vaviri vane placenta imwe chete neamniotic sac (monoamniotic). Muzviitiko zvakadaro, TTTS inogonawo kuitika. Zvisinei, mapatya akadaro haawanzoitiki.

TTTS inogona kuitika panguva yekuzvitakura kwenguva yakareba sei?

Dambudziko iri rinogona kutanga kukura pamavhiki gumi nematanhatu, asi rinogona kuitika chero nguva panguva yekuzvitakura.

Zvakafanana sei (TTTS)?

TTTS inowanikwa muinenge 15% yemapatya ane pamuviri mumwe chete.

Ndezvipi zviratidzo zveTTTS?

Vanaamai vazhinji vane TTTS havaratidzi zviratidzo chaizvo. Zvisinei, vamwe vanogona kusangana ne:

• Kunzwa sekuti chibereko chiri kukura nekukurumidza kupfuura zvaitarisirwa.
• Kunzwa kurwadziwa kana kuomarara mudumbu.
• Kuwedzera uremu kamwe kamwe.

Kana uine zviratidzo izvi, unofanira kuona chiremba wako nekukasika.

Chii chinokonzera TTTS?

Kazhinji, kana paine pamuviri pemapatya ane placenta imwe chete, vana vese vanogovana huwandu hwakafanana hweropa kubva muplacenta. Zvisinei, muTTTS, kubatana kwetsinga dzeropa dziri muplacenta kunoita kuti ropa ripatsanurwe zvisina kuenzana. Mwana mumwe chete (mwana anogamuchira) anowana ropa rakawanda, uye mumwe mwana (mwana anopa ropa) anowana shoma.

Haugone kudzora kukura kweplacenta. (TTTS) chiitiko chinongoerekana chaitika. Hachisi chinhu chawakaita kana chausina kuita. Saka usazvipa mhosva. (TTTS) haidzivirike.

Ndiani ari panjodzi yekubatwa nechirwere ichi (TTTS)?

Izvi hazvina hukama hwemajini kana nhaka. Izvi zvinoitika netsaona. Zvisinei, izvi zvinogona kuitika chete mupamuviri pemapatya ane placenta imwe chete (monochorionic) .

Ndezvipi zvinetso zvinogona kuitika nekuda kweTTTS?

Kana ikasarapwa, kana kuti chirwere ichi chikaitika pakutanga kwekuzvitakura, TTTS inogona kukonzera matambudziko makuru ehutano kumwana, uye inogona kutouraya. Saka, zvakakosha kutsvaga kurapwa kana kutariswa zvakanyanya kubva kunyanzvi yemishonga yemadzimai nemwana asati azvarwa (MFM specialist) kana nzvimbo yekuchengetedza mwana asati azvarwa. Kunyangwe kana kurapwa nekukasika, pane njodzi yekubvisa pamuviri.

Mamwe matambudziko anowanzoitika neTTTS anosanganisira:

• Matambudziko anokonzerwa nekuzvarwa nguva isati yakwana (akadai sekutadza kufema zvakanaka, matambudziko etsinga).
• Mapatya anogamuchira chirwere ichi anogona kutadza kushanda zvakanaka kwemoyo kana mamwe matambudziko emwoyo nekuda kwemvura yakawandisa.
• Mapatya emupi anogona kunge aine matambudziko ekukura kana kuti itsvo.

TTTS inoonekwa sei?

Chiremba wako wepamuviri achaongorora TTTS ne ultrasound scan . Chinhu chekutanga chinoratidzwa nachiremba pa scan ndechekuti kune mapatya maviri akafanana ane placenta imwe chete.

Kana zvichifungidzirwa kuti TTTS inogona kukonzerwa nemwana ari mudumbu, chiremba wako anogona kukutumira kuna chiremba wezvekurapa mwana ari mudumbu (MFM specialist) kuti aongororwe zvakare.Ikoko, nyanzvi ichaona chimwe kana zvimwe zvezvinhu izvi pa ultrasound scan:

• Musiyano wehukuru pakati pevana vaviri ava.
• Mwana mumwe ane mvura yemudumbu yakawandisa, nepo mumwe mwana ane mvura yemudumbu shoma.
• Kusarongeka kweropa muvana vacheche (izvi zvinogona kuonekwa neDoppler ultrasound test).

Mune zvimwe zviitiko, bvunzo ye fetal MRI (magnetic resonance imaging) uye fetal echocardiography (echo) zvinogonawo kudiwa.

Chikwata chenyu chekuchengetedza vana vasati vaberekwa chichakutarisisai zvakanyanya panguva yese yekuzvitakura kwenyu. Mungangoda kuongororwa neultrasound nguva nenguva kuti muone hutano hwemwana.

Chiremba achaongororawo hutano hwako. Dzimwe nguva, kuwedzera kwemvura yeamniotic parutivi rwemugamuchiri kunogona kukonzera kukura kwechibereko chako uye chibereko chako chemuromo wechibereko chisashande zvakanaka. Kuchinja uku kunogonawo kukonzera kusununguka nguva isati yakwana.

Matanho e (TTTS) ndeapi?

Kuongororwa kwe ultrasound kunoongorora kuoma kwechirwere (TTTS), kureva kuti, padanho rachiri. Izvi zvinobvumira chiremba kuona kuti chirwere chiri kufambira mberi sei uye kukurudzira nzira dzakanakisisa dzekurapa.

Kune matanho mashanu eTTTS:

• Danho rekutanga: Mvura yeamniotic inenge isina kana kuti inenge isina mvura yeamniotic. Kazhinji mvura yeamniotic inenge yakawandisa yakakomberedza mwana anogamuchira.
• Danho rechipiri: Dundira remwana anopa mwana harionekwe pa ultrasound. Izvi zvinoreva kuti mwana anopa mwana anenge arega kuita weti zvakanaka.
• Danho rechitatu: Pane kusawirirana kukuru mukuyerera kweropa pakati pevana. Izvi zvinogona kukanganisa mashandiro emwoyo wemwana mumwe chete.
• Danho rechina: Mwana mumwe chete kana vose vari vaviri vanoratidza zviratidzo zvekuzvimba kweganda kana muviri.
• Danho rechishanu: Mwana mumwe chete kana vose vafa.

Muchikamu chekutanga (TTTS), kuongororwa chete kunogona kukwana. Zvisinei, kana mamiriro acho akawedzera kuipa, zvinogona kuitika nekukurumidza. Mushure mechikamu chechipiri (TTTS), kana pamuviri pako uri pasi pemavhiki makumi maviri nematanhatu, kuvhiyiwa kwemwana ari mudumbu kunowanzo kurudzirwa.

Ndezvipi zvinorapwa (TTTS)?

Kurapwa kunoenderana nekuti uri papi panguva yekuzvitakura kwako uye kuti uri padanho ripi reTTTS.

• Kuongororwa nekutarisa: Chiremba wako achanyatsoongorora pamuviri wako achishandisa ultrasound scans. Iyi isarudzo kana uine danho rekutanga (TTTS) kana paine zvikonzero zvinoita kuti kuvhiyiwa kana mamwe marapirwo asakwanisike.
• Septostomy: Izvi zvinosanganisira kugadzira buri diki mumembrane pakati pemasagi eamniotic evana vaviri. Izvi zvinogona kuenzana nekumanikidzwa mumasagi ese ari maviri eamniotic. Izvi hazvina njodzi yakawanda, asi hazvirape chikonzero cheTTTS.
• Kuderedza Amniore:Mukuita uku, chiremba anoshandisa tsono diki, isina chinhu kuti abvise mvura yemudumbu yakawandisa kubva muhomwe yemwana anogamuchira. Chiremba wako anogona kukurudzira izvi padanho rekutanga (TTTS) kana muzviitiko zvakakomba zveTTTS mushure mekuzvitakura. Maitiro aya haarapi chikonzero chikuru cheTTTS, saka kana mvura yemudumbu ikawedzera zvakare, ingangoda kuitwa kakawanda.
• Kubviswa kweropa ne laser ne fetoscopic: Maitiro aya anosanganisira kupinza kamera diki (fetoscope) muchibereko uye kushandisa laser beam kuvhara tsinga dzeropa dziri pamusoro pe placenta dziri kukonzera kusaenzana kweropa pakati pevana. Chinangwa chemaitiro aya ndechekuchinja kuyerera kweropa kubva kumwana mumwe kuenda kune mumwe, kuitira kuti mwana wega wega ave neropa rakasiyana. Iyi isarudzo yedanho rechipiri kana kupfuura (TTTS) uye pamuviri uri pakati pemavhiki gumi nematanhatu nemakumi maviri nematanhatu.
• Kuvharwa kwerukuvhute: Iyi inzira yekupedzisira iyo chiremba wako angakurudzira kana vacheche vese vasingakwanise kuponeswa, kana kana mwana mumwe ari mumamiriro ezvinhu ane njodzi. Kuvhiyiwa uku kunomisa kuyerera kweropa kumwana mumwe, zvichipa mumwe mwana mukana wakanaka wekurarama.
• Kubereka: Kana mwana apfuura zera rekuzvitakura, chiremba anogona kukurudzira kuberekwa.

Chikwata chenyu chehutano chichakubatsirai kusarudza kurapwa kwakakunakirai. Vachapindura mibvunzo yenyu yese uye vachataura nemi nezvenjodzi, mabhenefiti, uye dzimwe nzira dzekurapa kwega kwega.

TTTS inotungamirwa sei?

Chiremba wako, pamwe chete nenyanzvi yemishonga yemadzimai nemwana asati azvarwa (MFM), vachanyatsoongorora nhumbu yako. Uchaongororwa nguva dzose neultrasound (zvichida kamwe chete kana kaviri pasvondo), uye ungangodawo kuongororwa ne echocardiogram yemwana asati azvarwa panguva yekuzvitakura kwako. Chikwata chako chekuchengeta chichakupa rutsigiro rwezvekurapa nerwepfungwa munguva yako yese yekuzvitakura.

Chii chandinofanira kutarisira kana zvakadaro?

Mhedzisiro yacho inoenderana nekuti uri papi panguva yekuzvitakura kwako kana waonekwa kuti une mimba uye kuti chirwere chacho chakakomba zvakadii (danho). Nekufambira mberi mune zvesainzi yezvekurapa, kutarisa kwakaringana uye kurapwa nekukurumidza zvinogona kupa vana vese mukana uri nani wekurarama. Taura nachiremba wako nezvezvinotarisirwa uye zvingangoitika kuti unzwisise kuti TTTS ichakanganisa sei pamuviri wako nemwana wako. Mapatya mazhinji ari mupenyu anofanira kugara muNICU (Neonatal Intensive Care Unit) kwenguva pfupi mushure mekuzvarwa kuti vatange kuzvara.

(TTTS) inogona kuva chiitiko chinoshungurudza zvikuru uye chinoshungurudza. Yeuka kuzvitarisira uye kutsvaga rutsigiro kubva kuchikwata chako chehutano, mudiwa, neshamwari.

Chiyero chekupona mu (TTTS) chii?

Mwero wekupona unoenderana nekuti chirwere cheTTTS chakanyanya sei, kuti waonekwa riini, uye kana uchirapwa. Kuwana kurapwa kwakakodzera kunogona kuita mutsauko mukuru muhuwandu hwekupona kwako neTTTS:

• Inenge 90% yemapatya akaonekwa aine chirwere cheTTTS chakakomba pakutanga kwekuzvitakura ari panjodzi yekufa asati aberekwa (kana akasarapwa).
• Pakati pe85% ne90% yenhumbu dzakarapwa (TTTS) dzinoita kuti mwana mumwe chete apone.
• Pakati pe50% ne65% yepamuviri pakarapwa (TTTS), vana vese vari vaviri vanorarama.

Nekuti zvinhu zvakawanda zvine chekuita nekurarama, taura nechikwata chekuchengeta mwana wako nezve fungidziro yekuti mwana wako achararama sei.

Mibvunzo ipi yandinofanira kubvunza timu yangu yehutano?

Mimwe mibvunzo yaunogona kubvunza:

• Pamuviri pangu pasiyana sei nepamuviri pemapatya pasina TTTS?
• Ndichafanira kuona nyanzvi here? Ndiani ari muchikwata changu chekuchengeta varwere?
• Kangani pandinofanira kuskena kana mimwe miedzo?
• (TTTS) ichakanganisa sei zvirongwa zvangu zvekuzvarwa?
• Ndichanzwa shanduko mumuviri wangu nekuda kweTTTS here? Kana zvakadaro, chii chandinofanira kutarisira?
• Munokurudzira kurapwa kupi padambudziko rangu? Sei?
• Ndedzipi tsika dzemararamiro (dzakadai sekudya, kurovedza muviri, kuzorora, uye kurapa) dzamunokurudzira kuti dzitsigire hutano hwangu?

Chii chinonzi 'Daisy Baby' ichi?

'Daisy baby' izita rimwe remwana ane TTTS. Sangano reTwin-to-Twin Transfusion Syndrome (TTTS) Foundation rakatanga kushandisa zita iri. Zita iri rakatanga mushure mekunge muvambi waro adyara mbeu dzedaisy mubindu ravo nevanakomana vake mapatya vakasara. Bindu redaisy chiratidzo chetariro yekuti mwana wese ane chirwere cheTTTS achararama.

Chekupedzisira, chinhu chinonyanya kukosha! (Mharidzo Yekuenda Kumba)

Kuongororwa neTwin-to-Twin Transfusion Syndrome (TTTS) kunogona kuva chiitiko chinotyisa. Zvakajairika kuti unzwe kutya uye kunetseka nezvezvinotevera kwauri nemapatya ako. Taura nachiremba wako nezvesarudzo dzakanakisa dzekurapa mamiriro ako ezvinhu. Tsvaga rutsigiro kubva kushamwari nemhuri sezvo pamuviri wako uchienderera mberi. Kubatana neboka rekutsigira mhuri dzakambosangana neTTTS kunogonawo kuva nzira yakanaka yekukubatsira murwendo urwu. Yeuka, hausi wega. Nemazano ekurapa akakodzera uye rutsigiro, uchakwanisa kutarisana nedambudziko iri zvakananga!

` Twin-to-Twin Transfusion Syndrome, TTTS, mapatya, pamuviri, placenta, amniotic fluid, monochorionic