Ngaba unePhenylketonuria, okanye iPKU njengoko sonke sisazi, imeko ebangela ukwanda kwe-amino acid phenylalanine egazini lakho? Ngoko ke, mhlawumbi uyazi kakuhle into yokuba iPegvaliase yinaliti ekhethekileyo enikwa ukulawula eli nqanaba. Mhlawumbi unemibuzo emininzi engqondweni yakho malunga nale yeza. Ungakhathazeki, namhlanje siza kuthetha ngale yeza, ukusebenza kwayo, iziphumo ebezingalindelekanga kunye nendlela yokuyisebenzisa ngokukhuselekileyo ngendlela elula onokuyiqonda.
Kalula nje, yintoni le yeza ibizwa ngokuba yiPegvaliase?
Le yeyona ngcaciso ilula. Abantu abane-PKU banemeko apho imizimba yabo ingakwaziyo ukuwohloka okanye ukugaya kakuhle into ebizwa ngokuba yi-phenylalanine. Oku ke kuyaqokelelana egazini kwaye kungonakalisa ingqondo kunye nenkqubo yemithambo-luvo.
Ngoko ke, into eyenziwa yi-Pegvaliase injection kukuba inceda umzimba wakho. Oko kukuthi, inceda umzimba wakho ukuba uqhekeze le phenylalanine umzimba wakho ongenakuyiqhekeza. Emva koko iyayeka ukwakheka egazini lakho kwaye amanqanaba alawulwa. Eli yeza lidla ngokuthengiswa phantsi kwegama le- Palynziq .
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokusebenzisa eli yeza
Kulungile, ngaphambi kokuba uqale eli yeza, ngokuqinisekileyo nangokunyanisekileyo kufuneka uthethe nogqirha wakho ngezi zinto. Musa ukuzifihla ezi zinto, kuba oku kubaluleke kakhulu kukhuseleko lwakho.
- Ii-Allergies: Ukuba une-allergies, kungekuphela nje kwi-Pegvaliase, kodwa nakweyiphi na enye imithi, ukutya, idayi, okanye isithinteli, qiniseka ukuba uxelele ugqirha wakho ngayo.
- Ukukhulelwa: Ukuba ukhulelwe okanye uceba ukuba nomntwana kungekudala, kufuneka uxelele ugqirha wakho.
- Ukuba ungumama oncancisayo: Ukuba ungumama oncancisayo, qiniseka ukuba uyamxelela umntwana wakho ngaloo nto.
Ngokusekelwe kolu lwazi, ugqirha uya kugqiba ukuba eli yeza lifanelekile kuwe okanye akunjalo, kwaye ngawaphi amanyathelo okhuseleko ekufuneka anikwe wona.
Indlela yokusebenzisa amayeza ngokuchanekileyo?
Olu luhlobo lwenaliti onokuyifaka phantsi kwesikhumba ekhaya. Kodwa ungakhathazeki. Ugqirha wakho okanye umongikazi oqeqeshiweyo uza kukuchazela ngokucacileyo nangendlela ecacileyo indlela yokuyinika kunye nendlela yokulungiselela iyeza.
- Thatha kuphela idosi emiselweyo: Thatha idosi emiselwe ngugqirha wakho, kanye ngexesha elimiselweyo. Musa ukuyeka ukuthatha amayeza de ugqirha wakho akuxelele ukuba uyeke.
- Ukulahlwa ngokukhuselekileyo kweenaliti kunye neesirinji: Oku kubaluleke kakhulu. Ungaze ulahle iinaliti kunye neesirinji ezisetyenzisiweyo enkunkuma.Zifanele zifakwe kwisikhongozeli seplastiki esikhethekileyo nesityebileyo (isikhongozeli esibukhali). Ukuba awunaso, buza ugqirha wakho ukuba ungasifumana njani.
- Imiyalelo Ekhethekileyo: Uza kufumana incwadana yemiyalelo ekhethekileyo (iMedGuide) xa unikwa eli yeza. Lifunde ngononophelo ngalo lonke ixesha. Musa ukuba namahloni okubuza ugqirha wakho ukuba kukho into ongayiqondiyo.
Khumbula, eli yeza limiselwe wena wedwa. Ungaze ulinike omnye umntu.
Izinto ekufuneka uzilumkele ngakumbi xa usebenzisa amayeza
Ugqirha wakho uza kujonga imeko yakho rhoqo ngelixa usebenzisa la mayeza. Oku kungabandakanya umsebenzi wegazi.
Okubaluleke kakhulu: Lumka kwiimpendulo eziqatha ze-allergy!
Into enye ekufuneka uyilumkele kakhulu xa usebenzisa eli yeza kukuba kungenzeka ukuba kubekho ii-allergy ezinkulu, okanye i-anaphylaxis. Le yimeko engxamisekileyo esongela ubomi.
Ngenxa yale ngozi, ugqirha wakho uza kukunika i- epinephrine auto-injector . Sisixhobo esifana nepeni. Wena kunye nelungu losapho niza kufundiswa indlela kunye nexesha lokusisebenzisa xa kukho i-allergy.
Kubalulekile ukuyigcina le nto kuwe ngamaxesha onke. Yigcine ikufutshane nawe naphi na apho uya khona, nokuba usekhaya.
Kwakhona, hlala ugcina iKhadi leSipaji sesigulana osinikwayo kwaye ulibonise ugqirha nomongikazi abakunyangayo.
Zithini iziphumo ebezingalindelekanga ezinokubakho?
Njengayo nayiphi na iyeza, eli linokuba nemiphumo emibi. Eminye ingxamisekile, ngelixa eminye ixhaphakile. Masiyichaze.
| Isiphumo/impawu | Inkcazo kunye nento omawuyenze |
|---|---|
| Iziphumo ebezingalindelekanga ezinzulu ekufuneka zixelwe kugqirha ngoko nangoko | |
| Iimpendulo ezinzima ze-allergy okanye i-angioedema | Ukurhawuzelela kwesikhumba, amaqhuqhuva, ukurhawuzelela, ukudumba kobuso, amehlo, imilebe, ulwimi, izandla okanye iinyawo, ubunzima bokuginya, ubunzima bokuphefumla. Ukuba kukho nayiphi na kwezi zinto, yazisa ugqirha wakho ngoko nangoko kwaye uye kwi-ETU yesibhedlele esikufutshane. |
| Iimpendulo zokufakwa | Intlungu esifubeni, ubunzima bokuphefumla, ukuphefumla nzima, ukuquleka, ukuziva unesizungu. Funa uncedo lwezonyango ngokukhawuleza. |
| Iziphumo ebezingalindelekanga ezihlala zingeyongozi, kodwa kufuneka zixelwe kugqirha ukuba ziyaqhubeka | |
| Iingxaki zenkqubo yokugaya ukutya | Urhudo, iintlungu zesisu, ukuhlanza. |
| Ezinye iingxaki eziqhelekileyo | Isiyezi, intloko ebuhlungu, iintlungu zamalungu. |
| Ukungonwabi kwindawo yokutofa | Intlungu, ukubomvu, okanye ukudumba kwindawo efakwe kuyo inaliti. |
Olu luhlu alubandakanyi zonke iziphumo ebezingalindelekanga. Ukongeza, ukuba ufumana into engaqhelekanga, thetha nogqirha wakho ngayo.
Kuthekani ukuba ndisela amayeza amaninzi okanye ndiphoswe kukutya?
Umthamo ogqithisileyo
Khawuthelekelele ukuba ukuba ukrokrela ukuba usele eli yeza ngokugqithisileyo, kukho izinto ezimbini ekufuneka uzenze ngoko nangoko.
1. Yiya kwiYunithi yoNyango oluNgxamisekileyo (ETU) yesibhedlele esikufutshane.
2. Fowunela iZiko loLwazi ngeTyhefu leSizwe kwiSibhedlele sikaZwelonke saseColombo.
Ukuba uphoswe yidosi yamayeza (iDosi ephoswe)
Ungakhathazeki. Musa ukuthatha idosi ephindwe kabini ukuze uhlawule idosi oyiphosileyo. Oko kunokuba yingozi. Okufuneka ukwenze kukulibala ngedosi oyiphosileyo uze uthathe idosi elandelayo ngexesha elicwangcisiweyo.
Indlela yokugcina amayeza ngokufanelekileyo?
Ukuze kugcinwe umgangatho weyeza, kubaluleke kakhulu ukuligcina ngokufanelekileyo.
- Eyona ndlela ilungileyo: Ukuyigcina efrijini yeyona ndlela ilungileyo. Kodwa ungaze uyibeke efrijini. Oko kuthetha ukuba ungayifaki efrijini.
- Ubushushu begumbi: Ukuba kuyimfuneko, ingagcinwa kubushushu begumbi ukuya kuthi ga kwi-25 degrees Celsius (77 degrees Fahrenheit) ukuya kuthi ga kwiintsuku ezingama-30. Nangona kunjalo, ukuba uyakwenza oko, nayiphi na intsalela emva kweentsuku ezingama-30 kufuneka ilahlwe. Akukhuthazwa ukuyibuyisela efrijini.
- Amanye amanqaku: Gcina amayeza kwiphakheji yawo yokuqala. Khusela ekukhanyeni. Gcina kude nokufikelela kwabantwana nezilwanyana zasekhaya. Lahla amayeza aphelelwe lixesha.
Umyalezo Wokuya Ekhaya
- I-Pegvaliase yinaliti ekhethekileyo enikwa ukulawula inqanaba le-phenylalanine egazini labantu abane-PKU.
- Eyona ngozi inkulu xa usebenzisa eli yeza kukuba ne-allergy enzima. Ngoko ke , soloko uphethe i-epinephrine auto-injector oyinikwa ngugqirha wakho.
- Ngaphambi kokuba uqale ukusebenzisa amayeza, xelela ugqirha wakho ngazo zonke iimeko zakho zempilo, ii-allergies, kunye namanye amayeza owasebenzisayo.
- Landela imiyalelo ngqo yendlela yokusebenzisa iyeza kunye nendlela yokususa iinaliti.
- Ukuba ufumana naziphi na iimpawu ezingaqhelekanga, ingakumbi ubunzima bokuphefumla, ukudumba, okanye iintlungu zesifuba, funa ingcebiso kagqirha ngokukhawuleza.
- Ukuba unemibuzo okanye amathandabuzo malunga nale mithi, ungoyiki ukuthetha nogqirha wakho ngayo.
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