Khawuthelekelele, uzive uhlaziyekile kakhulu kusasa. Awunantlungu emzimbeni wakho. Ungenza yonke imisebenzi yakho yemihla ngemihla kakuhle. Kodwa xa uvuka kusasa ngomso, uziva ngathi awukwazi nokuvuka ebhedini. Umzimba wakho wonke udiniwe kwaye udiniwe. Awukwazi nokucinga ngomsebenzi owenze kakuhle izolo. Le yimeko apho iimpawu zikhula kwaye zincipha imihla ngemihla, iveki neveki, into esiyibiza ngokuba yi-'Dynamic Disability' kwezonyango. Nangona le yingongoma enzima, masithethe ngayo namhlanje.
Yintoni 'Ukukhubazeka Okunamandla'?
Ngamafutshane, 'ukukhubazeka okuguquguqukayo' kuxa iimpawu zemeko ethile zingahlali zifana, kodwa zitshintsha ngamandla nangobunzima ngokuhamba kwexesha. Kwezinye iintsuku ungenza izinto ngendlela eqhelekileyo. Kodwa kwezinye iintsuku, ezo mpawu ziyanda ngequbuliso (sikubiza oku ngokuthi 'kukuqhambuka') kwaye zenze kube nzima kuwe ukwenza imisebenzi yakho yemihla ngemihla.
La maxesha okwanda kweempawu anokuhlala iintsuku ezimbalwa, iiveki ezimbalwa, okanye iinyanga. Emva koko, iimpawu ziyaphela zize zibuyele esiqhelweni.
Eyona nto ibalulekileyo ekufuneka uyiqonde yile: Ngomhla oziva uphilile, umntu okubonayo usenokungacingi nokuba unesiphene. Uza kukubona usempilweni ngokupheleleyo. Yiyo loo nto abanye basenokude bacinge ukuba "uyaxoka."
Umahluko phakathi 'kosuku oluhle' 'nosuku olubi'
Ukuze siqonde ngcono le meko, makhe sijonge le tshathi. Oku kuya kukubonisa ngokucacileyo umahluko phakathi kweentsuku ezimbini kumntu onesifo 'sokukhubazeka'.
| Umsebenzi | Mholweni emini nje | Usuku Olubi / Ukunyuka Kwesantya |
|---|---|---|
| Ukuhamba/ukuzilolonga | Ungahamba ngokulula kwaye wenze umthambo. | Kunzima nokuvuka ebhedini, umzimba wam wonke ubuhlungu, kwaye kunzima nokuhamba. |
| Umsebenzi/Isikolo | Yiya emsebenzini, ungasebenza ngononophelo. | Andinakuya emsebenzini, kunzima ukugxila kwinto ethile. |
| Unxibelelwano loluntu | Ndiziva ngathi ndidibana nabahlobo, ndisiya kolu hambo, kwaye ndithathe inxaxheba kwiincoko ezimnandi. | Andifuni nokuthetha namntu, ndihlala ekhaya. |
| Imeko yengqondo | Ndonwabile kwaye ndihlaziyekile. | Intlungu kunye nokungabi namandla okuzinceda kukwenza udandatheke kwaye ube nomsindo. |
Iimeko eziqhelekileyo zonyango ezibangela 'ukukhubazeka okuguqukayo'
Le meko ayiphelelanga kwisifo esinye kuphela. 'Ukukhubazeka okunamandla' kunokwenzeka nakwesiphi na isifo esingapheliyo esineempawu ezitshintsha imihla ngemihla. Eminye imizekelo yile:
- I-Ankylosing Spondylitis (AS): Le yimeko ye-arthritis echaphazela umqolo kunye namanye amalungu emzimbeni. Ngezinye iintsuku iintlungu kunye nokuqina kwazo azibalulekanga kangako, kodwa ngezinye iintsuku iintlungu ziba nzima kangangokuba kunzima nokubamba umqolo uthe nkqo.
- I-Multiple Sclerosis (MS): Esi sisifo esichaphazela ingqondo kunye nomqolo (inkqubo yemithambo-luvo). Iimpawu ziyafika zihambe (ziphinde zibuye), zize ziphele ngokupheleleyo okanye kancinci (ukuxolelwa) emva kweentsuku okanye iiveki ezimbalwa. Oku kukwabizwa ngokuba yi-relapsing-remitting disease pattern. Usenokungabi nangxaki kangangeenyanga okanye iminyaka.
- Ezinye iimeko: Ukongeza, abantu abanezifo ezingapheliyo ezifana ne-rheumatoid arthritis, i-lupus, i-fibromyalgia, kunye nesifo sikaCrohn nabo banokuhlangabezana nale meko 'yokukhubazeka okunamandla'.
Ingaba 'Ukukhubazeka Okunamandla' kunye 'Nokukhubazeka Okungabonakaliyo' zizinto ezifanayo?
Nangona la magama mabini edla ngokubhidaniswa njengelinye, kukho umahluko omncinci phakathi kwawo omabini.
- 'Ukukhubazeka Okungabonakaliyo': kubhekisa nakuphi na ukukhubazeka okungabonakaliyo kwihlabathi langaphandle. Umzekelo, umntu onganxibi ziglasi, ongaboni kakuhle, onentlungu engapheliyo, onesifo sengqondo, okanye onengxaki yokuva. Ezi zinto azibonakali kwihlabathi langaphandle.
- 'Ukukhubazeka Okunamandla':Oku kuyinyani ngakumbi kwiimeko apho ubukhali beempawu butshintshatshintsha , oko kuthetha ukuba ziyatshintsha imihla ngemihla.
Ngamafutshane, 'ukukhubazeka okuguquguqukayo' phantse kusoloko 'kukukhubazeka okungabonakaliyo.' Nangona kunjalo, ayizizo zonke 'ukukhubazeka okungabonakaliyo' 'okuguquguqukayo.'
Imingeni yokuphila nale meko
Ukuphila 'nokukhubazeka okunamandla' akulula. Kukho izizathu ezahlukeneyo zoko.
1. Ukungaqondani kwabanye: "Ubuphilile izolo, kutheni ulele ebhedini namhlanje?" "Kumele ukuba udiniwe." Kubuhlungu xa usiva amabali anje. Abantu abayiboni imeko yakho, ngoko bacinga ukuba uyaxoka.
2. Ubunzima bokucwangcisa: Kuyoyikisa ukucwangcisa into efana nokuya kuhambo nabahlobo okanye ukuya kwisiganeko kuba ukuba iimpawu zakho ziya zisiba mandundu ngomzuzu wokugqibela, kuya kufuneka urhoxise yonke into.
3. Ingqesho neMfundo: Nokuba ungaya emsebenzini namhlanje, ukungaqiniseki kokuba uza kukwazi na ukuhamba ngomso kwenza kube nzima ukugcina umsebenzi ozinzileyo nokuqhubeka nemfundo yakho.
4. Ukuziva unetyala: Ngeentsuku ezimnandi, uziva ngathi, "Owu, bendifanele ukuba ndisebenze nzima." Ngeentsuku ezimbi, uziva unetyala, "Ndibangela abanye abantu babandezeleke ngenxa yam."
Ngoko ke ujongana njani nale meko?
Nangona kukho le mingeni, ngenkxaso nolawulo olufanelekileyo, ungaphila ubomi obutofotofo ngakumbi.
- Thetha nogqirha wakho: Le yeyona nto ibalulekileyo. Cacisa ugqirha wakho malunga nendlela iimpawu zakho ezitshintsha ngayo imihla ngemihla. Ukugcina idayari yeempawu kunokuba luncedo kakhulu. Oku kuthetha ukubhala phantsi iintsuku zakho ezimbi, iintsuku zakho ezintle, kunye nendlela obuqhuba ngayo ngaloo mihla. Oku kuya kunceda ugqirha wakho aqonde imeko yakho ngcono kwaye enze isicwangciso sonyango esingcono.
- Yiba nobubele kuwe: Musa ukuzibetha ngeentsuku ezinzima. Mamela umzimba wakho. Phumla ukuba uyawufuna.
- Nxibelelana: Chazela usapho lwakho, abahlobo abasondeleyo, kunye nomntu othembekileyo emsebenzini ngemeko yakho. Xa beyiqonda imeko yakho, kuya kuba lula kubo ukukunika inkxaso oyifunayo.
- Sebenzisa 'iintsuku zakho ezimnandi' ngobulumko: Musa ukuzibhokoxa kakhulu ngokwenza umsebenzi omninzi ngeentsuku zakho ezimnandi. Ukuba wenza njalo, kunokwenzeka ukuba 'ube nokuphazamiseka' ngosuku olulandelayo. Lawula amandla akho.
Nangona ukuhlala nale meko kunokuba nzima, khumbula ukuba awuwedwa. Ngeengcebiso ezifanelekileyo zonyango, inkxaso evela kubantu obathandayo, nobubele kuwe, ungenza olu hambo lube lula.
Umyalezo Wokuya Ekhaya
- 'Ukukhubazeka Okunamandla' yimeko yokwenyani yezonyango apho ubukhali beempawu zakho butshintshatshintsha imihla ngemihla okanye ngamanye amaxesha.
- Oku akuthethi ukuba 'uyaxoka' okanye 'uyavila'.
- Imihla yakho emihle nemihla yakho emibi zonke ziyinxalenye yokugula kwakho.
- Kubaluleke kakhulu ukuba uthethe ngokukhululekileyo ngemeko yakho nogqirha wakho, usapho lwakho, kunye nabahlobo bakho obathembayo.
- Ukufunda ukulawula amanqanaba akho amandla kunye nokuphumla xa kufuneka kunokwenza ubomi bube lula.
- Awuwedwa. Ungaze ungathandabuzi ukufuna uncedo olufanelekileyo lwezonyango.
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