So woahyɛ no nsow pɛn sɛ nnipa binom anim, wɔn afono, anaa wɔn ti nhwi yɛ kɔkɔɔ a ɛkɔ soro kakra? Ɛtɔ da bi a, eyinom nyɛ yaw anaasɛ ɛnyɛ yaw. Bere a nnipa pii susuw sɛ eyi yɛ honam ani yare a ɛfata no, eyi betumi ayɛ tebea a ehia sɛ wɔde wɔn adwene si so kakra. Ɛnnɛ yɛreka tebea bi a wɔfrɛ no ‘Discoid Lupus’ a ɛde saa nsɛnkyerɛnne yi ba ho asɛm. Ɛwom sɛ eyi yɛ din a wonnim kakra de, nanso ɛho hia yiye sɛ wubehu ho asɛm.
Sɛ yɛbɛka no tiawa a, dɛn ne Discoid Lupus?
Discoid Lupus, a wɔfrɛ no pɛpɛɛpɛ sɛ `Discoid Lupus Erythematosus (DLE),` yɛ tebea a ɛka yɛn honam ani tẽẽ. Ɛyɛ `Cutaneous Lupus Erythematosus (CLE)` nkyekyɛmu a ɛfa lupus ho no ho. Asɛmfua `Cutaneous' kyerɛ `ɛfa honam ani.` Eyi kyerɛ sɛ saa lupus ahorow yi ka yɛn honam ani titiriw.
Obi a ɔwɔ discoid lupus no nya akuru kurukuruwa, kɔkɔɔ, ɛkɔ soro kakra, na ɛyɛ den wɔ ne honam ani, titiriw wɔ n’anim, n’afono, ne hwene, ne ne ti nhwi so. Ebia eyinom bɛyɛ kurukuruwa bere kɔ so no. Wɔsan frɛ eyi honam ani lupus a enni sabea. Nea enni sabea kyerɛ sɛ ɛtra hɔ kyɛ.
Enti dɛn ne ‘Lupus’?
Sɛ yɛka ‘lupus’ ho asɛm a, yɛtaa ka yareɛ bi a wɔfrɛ no `Systemic Lupus Erythematosus (SLE) ho asɛm.` Eyi ne lupus a ɛtaa ba. Lupus ayarefo 100 biara mu bɛyɛ 70 na wɔwɔ saa tebea yi.
Afei, hwɛ, bere a discoid lupus (DLE) ka honam ani titiriw no, nea wɔfrɛ no SLE no ka nipadua no nyinaa. Ɛno ne nea ‘nhyehyɛe’ kyerɛ. Ɛyɛ yare a nipadua no tumi ko tia nyarewa . Sɛ yɛbɛka no tiawa a, yɛn nipadua no ahobammɔ nhyehyɛe, nipadua no mu tumi a ɛko tia nyarewa no kɔ so yɛ basabasa na efi ase tow hyɛ yɛn ankasa nkwammoaa ne ntini a ɛte apɔw so. Eyi de ɔfe anaa ɔfe ba nipadua no nyinaa mu.
Mpɛn pii no, obi a ɔwɔ SLE betumi anya sɛnkyerɛnne ahorow te sɛ eyinom:
- Atiridii a ɛba a ntease biara nnim
- Nkwaa mu yaw ne ɛho ahonhon
- Ɔbrɛ a ɛkɔ so daa
- Koko mu yaw
- Nsõ ne nkekae ahorow a ɛda adi wɔ honam ani
- Owia hann ho nkate (photosensitivity) .
Nea ɛho hia ne sɛ ɛnyɛ obiara a ɔwɔ discoid lupus na obenya systemic lupus erythematosus (SLE), a ɛka nipadua no nyinaa. Yɛbɛka saa asɛm no ho asɛm akyiri yi kakra.
Lupus (CLE) ahorow bɛn na ɛka honam ani?
Sɛnea yɛadi kan aka no, discoid lupus yɛ lupus bi a ɛka honam ani. Nneɛma atitiriw abiɛsa na ɛwɔ hɔ. Ɛsono sɛnea honam ani akuru no te wɔ ɔkwan biara so kakra.
| Lupus a ɛyɛ hu no su | Sɛnea honam ani nsensanee te |
|---|---|
| Discoid Lupus a wɔfrɛ no Lupus | Nsonsonoe a ɛyɛ kurukuruwa, ɛyɛ den, ɛyɛ kɔkɔɔ, ɛyɛ nsensanee, te sɛ sika. Mpɛn pii no, ɛda adi wɔ anim, aso, ne ti nhwi so. |
| Subacute Cutaneous Lupus a ɛwɔ nipadua no mu | Nneɛma a ɛte sɛ mprɛte anaasɛ ɛyɛ nsensanee. Mpɛn pii no, epue wɔ koko, akyi, ne kɔn so. |
| Lupus a Ɛyɛ Hu a Ɛyɛ Honam ani | Ɛha na "butterfly rash" a agye din no ba. Akisikuru kɔkɔɔ bi a ɛte sɛ owia hyew pue wɔ afono ne hwene no so. |
So obi betumi anya lupus a ɛboro biako?
Yiw, ebetumi aba. Nnipa binom wɔ lupus biako pɛ. Ɛno kyerɛ sɛ nnipa binom betumi anya SLE nkutoo, na afoforo nso betumi anya DLE nkutoo. Nanso ɛtɔ mmere bi a obi tumi nya lupus bɛboro biako bere koro mu.
Nanso kae eyi. Nnipa dodow no ara a wɔwɔ discoid lupus (DLE) nni systemic lupus erythematosus (SLE) a ɛka nipadua no nyinaa. Nnipa a wɔwɔ DLE no mu bɛyɛ 5%, anaa bɛyɛ 100 biara mu 5, akyiri yi wobenya SLE. Afei nso, nnipa a wɔwɔ SLE no mu bɛyɛ nkyem anan mu biako (25%) benya honam ani akuru a ɛte sɛ nea wohu wɔ discoid lupus mu no. Enti abusuabɔ bi da tebea abien no ntam, nanso ɛnyɛ obiara a ɔwɔ biako na obenya foforo no.
Dɛn na ɛde discoid lupus ba? Hena na ɔwɔ asiane mu kɛse?
Nokwarem no, nnuruyɛfo da so ara nnim nea ɛde lupus ba ankasa, a discoid lupus ka ho. Nanso ɛda adi pefee sɛ biribi a ɛnteɛ wɔ yɛn nipadua mu tumi a ɛko tia nyarewa no ho na ɛde ba. Afei nso, saa yare yi taa tu mmirika wɔ mmusua mu . Eyi kyerɛ sɛ sɛ obi a ɔwɔ w’abusua mu wɔ yare bi a nipadua no tumi ko tia nyarewa te sɛ lupus a, ebia wo nso wobɛkɔ asiane mu.
Momma yɛnhwɛ nea asiane kɛse wom sɛ obenya discoid lupus.
| Asiane a ɛde ba | Nkyerɛmu |
|---|---|
| Bɔbea | Mmea wɔ asiane kɛse mu sɛ wobenya saa yare yi sen mmarima. |
| Mfeɛ | Ɛtaa ba nnipa a wɔadi fi mfe 15 kosi 44. Ɛtaa ba mmea a wɔadi mfe 30 kosi 40 mu titiriw. |
| Wora kɔla/abusuakuw | Nhwehwɛmu ada no adi sɛ nnipa a wɔn honam ani yɛ tuntum (sɛ nhwɛso no, wɔn a wofi Afrika anaa Asia) wɔ asiane kɛse mu sɛ wobenya saa yare yi sen wɔn a wɔn honam ani yɛ hare . |
Dɛn ne discoid lupus ho sɛnkyerɛnne ne ɔhaw ahorow?
Nsɛnkyerɛnne titiriw ne discoid akuru a yɛadi kan aka ho asɛm no.
- Beae: Wɔtaa hu wɔ ti nhwi ne anim, nanso ebetumi aba nipadua no afã afoforo nso, titiriw mmeae a owia bɔ.
- Su ahorow: Mpɛn pii no, saa nsensanee yi nyɛ yaw, na saa ara nso na ɛnyɛ ɛyaw . Wɔyɛ kɔkɔɔ, wɔama so kakra, na ɛtɔ mmere bi a, ɛte sɛ nsensanee wɔ wɔn ani.
- Tebea horow a ɛba akyiri yi: Sɛ nsensanee yi sa wie a, ebetumi ayɛ akuru na ne kɔla asesa . Ɛtɔ da bi a, honam ani betumi ayɛ fitaa anaa bruu/tuntum.
Nsɛnnennen a ebetumi aba
- Nwi a ɛtɔ: Sɛ saa nsensanee yi pue wɔ ti nhwi so a, nhwi a ɛwɔ saa beae no betumi atɔ. Nea enye koraa ne sɛ sɛ akuru bi ba saa beae no a, nhwi nyin betumi agyae koraa .
- Honam ani kokoram ho asiane:Sɛ wowɔ discoid lupus nsensanee bere tenten a, asiane a ɛkɔ soro kakraa bi pɛ na ɛwɔ hɔ sɛ wubenya honam ani kokoram wɔ saa mmeae no. Titiriw sɛ saa nsensanee yi ba ano no mu a, ebia asiane a ɛwɔ hɔ sɛ obi benya honam ani kokoram bi a wɔfrɛ no squamous cell carcinoma no akɔ soro.
- Chilblain Lupus: Eyi yɛ tebea a ɛntaa nsi koraa. Wɔ tebea yi mu no, nsensanee anaa nsensanee a ɛyɛ kɔkɔɔ pue wɔ honam ani bere a awɔw wom no. Eyinom betumi ayɛ yaw paa.
Ɔkwan bɛn so na wobetumi ahu yare yi?
Sɛ wowɔ saa sɛnkyerɛnne ahorow yi a, ade a eye sen biara a ɛsɛ sɛ woyɛ ne sɛ wobɛkɔ honam ani yare ho oduruyɛfo nkyɛn . Ɔbɛhwehwɛ wo mu na wayɛ nhwehwɛmu de akyerɛ sɛ woahu sɛ wowɔ wo yare no.
Wɔfrɛ eyi honam ani nipadua mu nhwehwɛmu . Nea ɛka eyi ho ne sɛ wobegye honam ani fã ketewaa bi afi baabi a wɔde aduru a wɔde kum akisikuru no wɔ hɔ no. Afei wɔde kɔ aduruyɛdan bi mu na wɔde afiri a wɔde hwɛ nneɛma nketenkete hwehwɛ mu. Sɛ yɛhwɛ nsakrae a ɛba saa nkwammoaa no mu a, yebetumi ahu no yiye sɛ ebia ɛyɛ discoid lupus anaa honam ani yare foforo.
Dɛn ne ayaresa ahorow no?
Wontumi nsa discoid lupus no koraa. Nanso, ayaresa betumi aboa ma woadi yare no ho sɛnkyerɛnne ahorow so, asiw ɔhyew foforo ano, na aboa wo ma woatra ase sɛnea ɛsɛ. Wo duruyɛfo no begyina sɛnea wo sɛnkyerɛnne ahorow no mu yɛ den so akyerɛ wo ayaresa a ɛfata.
Wɔabobɔ akwan titiriw a wɔfa so sa yare no bi din wɔ ase ha.
| Ayaresa no su | Dwumadi ne nhwɛso ahorow |
|---|---|
| Steroid Nnuru a Wɔde Yɛ Nnuan | Eyinom yɛ nnuru a wɔde yɛ aduru a wɔde gu akisikuru no so tẽẽ. Wɔtew ɔfe ne ɔfe a ɛwɔ honam ani no so. Sɛ nhwɛso no: `fluocinolone acetonide`, `hydrocortisone butyrate`. |
| Nnuru a Wɔde Ko Tia Asramma | Eyinom yɛ nnuru a wɔde sa yare a wonom. Mma ɛnyɛ wo nwonwa sɛ nnuru a wɔde sa asramma nso yɛ adwuma yiye ma lupus. Wɔboa ma honam ani nsensanee so tew na ɛtew ɔbrɛ so. Sɛ nhwɛso no: `hydroxychloroquine (Plaquenil®)`. |
| Nnuru a ɛma nipadua no tumi ko tia nyarewa (Calcineurin Inhibitors) . | Eyinom nso yɛ srade ahorow. Wɔhwɛ nipadua no mu tumi a ɛko tia nyarewa no dwumadi so kodu baabi na ɛtew ɔfe so. Sɛ nhwɛso no: `tacrolimus`, `pimecrolimus`. |
| Nnuru afoforo a wɔde ko tia ɔyare mmoawa | Wɔ nsɛm a yare no mu yɛ den kɛse mu no, nnuruyɛfo betumi akyerɛw nnuru a wɔnom te sɛ dapsone ne methotrexate nso. |
Nea ɛho hia: Ɛsɛ sɛ wofi ayaresa yi mu biara ase wɔ nnuruyɛfo afotu nkutoo so . Mfa nnuru nni dwuma wɔ w’ankasa wo ho.
Ɔkwan bɛn so na wobetumi asiw ɔhyew ano?
Nea ɛsɛ sɛ obiara a ɔwɔ discoid lupus hu ni. Wɔ lupus ayarefo bɛyɛ 70% fam no, sɛnkyerɛnne ahorow no mu yɛ den bere a wɔde wɔn ho hyɛ hann a ɛyɛ ultraviolet (UV) a efi owia mu mu no. Eyi kyerɛ sɛ nsensanee foforo betumi apue, nsensanee a ɛwɔ hɔ dedaw no betumi ayɛ kɔkɔɔ, anaasɛ ayɛ kɛse. Eyi ho hia titiriw ma obi a ɔte ɔman te sɛ yɛn de a owia a ano yɛ den wɔ afe mũ no nyinaa mu.
Sɛnea ɛbɛyɛ a wobɛbɔ wo ho ban afi owia ho na woasiw yare no ano no, yɛ nea edidi so yi:
- Fa aduru a ɛbɔ wo ho ban fi owia ho gu wo ho da biara ansa na woapue akɔ owia mu. Paw aduru a ɛbɔ owia ho ban a ɛtrɛw (ɛbɔ ho ban fi UVA ne UVB nyinaa ho) a anyɛ yiye koraa no SPF 30 wom.
- Ɛnyɛ bere a worefi adi nko na ɛyɛ papa sɛ wode nnuru a ɛbɔ wo ho ban fi owia ho bedi dwuma, na mmom bere a woda dan mu nso, titiriw sɛ wobɛn mfɛnsere bi a.
- San fa aduru a ɛbɔ wo ho ban fi owia ho gu so nnɔnhwerew 4 biara. San fa gu so ansa na wo ho fifiri anaasɛ woakɔ nsu no mu.
- Kwati owia hann a ano yɛ den sen biara wɔ anɔpa 10 kosi awia 4 ntam sɛnea wubetumi biara.
- Sɛ worekɔ abɔnten a, fa nneɛma te sɛ ntade a nsa tenten, kyɛw a ɛtrɛw, ne nkatanim di dwuma .
- Fluorescent akanea a ɛwɔ dan mu mpo tumi ma UV mframa bi ba, enti kwati sɛ wobɛtra akanea a ɛtete saa ase akyɛ dodo.
- Mfa mpa a wɔde hyɛ wo honam ani hwɛbea nni dwuma da .
Sɛ wudi anammɔn yi akyi yiye a, wubetumi adi wo sɛnkyerɛnne ahorow no so kɛse.
Nkrasɛm a Wɔde Kɔ Fie
- Discoid lupus yɛ lupus a ɛtra hɔ kyɛ a ɛka honam ani titiriw.
- Eyi ma nsensanee kurukuruwa a ɛyɛ kɔkɔɔ a ɛte sɛ sika kɔkɔɔ pue wɔ anim ne ti nhwi so. Mpɛn pii no, eyinom nyɛ yaw anaasɛ ɛnyɛ yaw.
- Ɛwom sɛ wontumi nsa koraa de, nanso wobetumi de aduruyɛ adi sɛnkyerɛnne ahorow no so yiye.
- Owia ahobammɔ yɛ ade a ɛsɛ sɛ wobɔ! Sɛ wode aduru a ɛbɔ wo ho ban fi owia ho bedi dwuma da biara na woakwati owia hann a ano yɛ den a, ɛho hia yiye na amma yare no ansɛe.
- Sɛ wowɔ nsensanee te sɛ eyi wɔ wo honam ani a, akyinnye biara nni ho sɛ kɔ honam ani yare ho oduruyɛfo nkyɛn kɔhwehwɛ afotu.
- Mfa ntwitwiw anaa ntwitwa honam ani nkekae. Eyi betumi ama obi anya akuru ne ɔyare mmoawa.
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