Sɛ wo duruyɛfo ka kyerɛ wo anaa w’abusua mu obi wɔ ALS (Amyotrophic Lateral Sclerosis) a, yenim sɛ ebetumi ayɛ adesoa kɛse. Sɛ nnuruyɛfo ne tebea yi te ase a, wɔkyerɛw ayaresa ahorow ma. Edaravone yɛ nnuru titiriw a ɛte saa no mu biako a ɛboa ma wɔhyɛ yare yi kwan so. Enti, wɔ asɛm yi mu no, yɛbɛbɔ mmɔden sɛ yebebua wo nsɛmmisa a ɛfa aduru yi ho no tiawa na emu ada hɔ.
Dɛn ne Edaravone?
Sɛ yɛbɛka no tiawa a, Edaravone yɛ aduru a ɛyɛ nsu a wɔde sa yare bi a wɔfrɛ no Amyotrophic Lateral Sclerosis (ALS) , a ebinom nso frɛ no "Lou Gehrig yare."
Dɛn na saa aduru yi yɛ ankasa? Fa no sɛ nkrasɛm a efi amemene no mu fa ntini mu na ɛhyɛ yɛn nipadua so. Wɔ ALS mu no, saa ntini mu nkwammoaa yi sɛe. Edaravone boa ma saa ntini mu nkwammoaa a ɛwɔ wo nipadua mu yi nya apɔwmuden. Enti, ebetumi aboa ma ntini mu tumi a ɛyera a ɛba bere kɔ so no ayɛ brɛoo.
Nea ɛho hia ne sɛ eyi nyɛ ALS aduru, nanso ɛboa ma wodi yare no ho sɛnkyerɛnne ahorow so na ɛma yare no kɔ so brɛoo.
Nneɛma a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ansa na woanom saa aduru yi
Ansa na ɔbɛkyerɛw Edaravone ama wo no, ɛho behia sɛ wo duruyɛfo hu w’akwahosan ho abakɔsɛm nyinaa. Hwɛ hu sɛ wobɛka saa nneɛma yi ho asɛm titiriw akyerɛ wɔn.
- Sɛ wowɔ ayamtu anaa ahurututu mu nyarewa afoforo a.
- Sɛ wowɔ aduru yi ho adwenemhaw a , edaravone, nnuru bi a wɔfrɛ no sulfites , nnuru afoforo, nnuan, kɔla a wɔayɛ anaa nneɛma a wɔde sie.
- Sɛ woanyinsɛn anaasɛ worebɔ mmɔden sɛ wubenyinsɛn a.
- Sɛ woyɛ ɛna a ɔma nufu a.
Saa nsɛm yi ho hia paa ma w’ahobammɔ. Enti wo ne wo duruyɛfo nkasa a womfa biribiara nsie.
Ɔkwan bɛn so ankasa na wode saa aduru yi di dwuma?
Esiane sɛ eyi ba sɛ nsu nti, ɛsɛ sɛ wohwɛ yiye kakra bere a wode redi dwuma no.
- Di aduruyɛ mu afotu akyi: Fa w’aduru no sɛnea wo duruyɛfo akyerɛ wo no pɛpɛɛpɛ bere nyinaa, wɔ mmere a wɔakyerɛw ama wo no mu.
- Wosow yiye: Wosow aduru toa no yiye ansa na wode adi dwuma.
- Susuw a ɛteɛ: Fa aduru titiriw bi a wɔde susuw syringe, kuruwa, anaa nsenia a ɛka aduru no ho di dwuma fa susuw aduru no. Mfa teaspoons a wowɔ daa a wowɔ wɔ fie no nni dwuma., efisɛ wɔn susuw no nyɛ pɛpɛɛpɛ.
- Fa yafunu a hwee nni mu: Ɛyɛ papa sɛ wobɛfa saa aduru yi bere a wo yafunu da mpan, a ɛkyerɛ sɛ dɔnhwerew biako ansa na woadi anaa nnɔnhwerew abien wɔ adidi akyi.
- "Cycles" kwan: Wɔtaa de saa aduru yi ma wɔ "cycles" mu. Wei kyerɛ sɛ wowɔ nna a wonom aduru no ne nna a wonnom. Sɛ nhwɛso no, wobetumi ama wo nhyehyɛe a wode bɛnom aduru no nnafua 14 na afei woagyae nnafua 14. Ɛho hia paa sɛ wubedi nhyehyɛe yi akyi pɛpɛɛpɛ. Sɛ wowɔ nsɛmmisa bi fa ho a, bisa wo duruyɛfo no ma ɔnhwɛ sɛ wote ase. Nnom nsen dodow a wɔakyerɛw ama wo, efisɛ eyi betumi de ɔhaw ahorow a emu yɛ den aba.
Sɛ wopa nnuru dodow bi a, dɛn na ɛsɛ sɛ woyɛ?
Sɛ wo werɛ fi sɛ wobɛnom dose bi a, fa no bere a woakae ara pɛ. Nanso, sɛ ɛkame ayɛ sɛ bere aso sɛ wobɛma wo dodow a edi hɔ no a, twa dodow a woayera no so na fa wo dodow a edi hɔ no wɔ bere a woahyɛ da ayɛ no mu. Mfa nnuru abien prɛko pɛ da mfa nsiesie dodow a woayera no.
Na sɛ midi mfomso fa nneɛma pii nso ɛ?
Sɛ wususuw sɛ woanom nnuru pii sen nea wɔakyerɛw ama wo wɔ akwanhyia mu a, frɛ Ɔman Awuduru Ho Amanneɛbɔbea a ɛwɔ Colombo Ɔman Ayaresabea no ntɛm ara. Anaasɛ kɔ ayaresabea a ɛbɛn wo no Emergency Treatment Unit (ETU) .
Dɛn ne nsunsuanso bɔne a ebetumi afi mu aba?
Te sɛ aduru biara no, edaravone betumi de ɔhaw ahorow aba nnipa binom so, nanso ɛnyɛ obiara na onya bi. Ɛho hia sɛ wohu eyinom.
| Nsunsuanso bɔne | Nkyerɛmu |
|---|---|
| Nneɛma a ɛsɛ sɛ wobɔ wo duruyɛfo amanneɛ ntɛm ara | |
| Nneɛma a ɛma obi ho yɛ no yaw | Wora mu akisikuru, ɛyaw, akisikuru, anim, anofafa, tɛkrɛma anaa menewa a ɛho ahonhon. |
| Mogya mmoroso a ɛba fam | Adwene a ɛyɛ basaa, ti a ɛyɛ hare, aniwa a ɛyɛ kusuu. |
| Ɔhome a ɛyɛ den | Ɔhome a ɛyɛ tiaa, ahome a ɛyɛ den. |
| Nneɛma a ɛsɛ sɛ wɔbɔ oduruyɛfo no amanneɛ sɛ wɔkɔ so yɛ a | |
| Tipaeɛ | Ti a ɛtaa yɛ no yaw. |
| Nipadua a ɛkari pɛ a ɛyera | Sɛ wote nka sɛ wuntumi nnyina pintinn bere a wonam anaa wogyina hɔ no. |
| Akuru a ɛyɛ soronko | Honam ani akisikuru esiane ade ketewaa bi mpo nti. |
Sɛ wunya sɛnkyerɛnne foforo biara a ɛyɛ soronko a wɔanka ho asɛm wɔ saa nsɛm yi mu a, yɛsrɛ sɛ ka ho asɛm nso kyerɛ wo duruyɛfo.
Ɔkwan bɛn so na wɔbɛbɔ aduru no ho ban na wɔayi afi hɔ?
- Adekorabea: Fa aduru no sie baabi a mmofra ne afieboa ntumi nkɔ hɔ bere nyinaa . Ɛyɛ papa sɛ wode besie wɔ dan mu hyew (a ɛwɔ digrii Celsius 20-25 ntam). Bɔ ho ban fi ɔhyew a ɛboro so ne owia hann tẽẽ ho. Nea ɛho hia sen biara no, tow aduru biara a aka no gu bere a woabue toa no mu nnafua 15 akyi. Sɛ ɛnte saa a, tow gu bere a da a ɛbɛba awiei no atwam no.
- Nnuru a Wɔtow gu: Ɔkwan pa a wobɛfa so atow nnuru a ne bere atwam anaasɛ wompɛ agu ne sɛ wubebisa w’ayaresabea anaa nnurutɔnbea no wɔn nhyehyɛe no ho asɛm. Sɛ ɛno ntumi nyɛ yiye a, yi nnuru no fi ade no mu, fa biribi te sɛ kɔfe a wɔayam, dɔte, anaa mpataa nwura a wɔde adi dwuma fra mu, na fa gu kotoku anaa ade a wɔatoto mu denneennen mu na tow gu nwura mu. Mfa nsu nhohoro tiafi mu da.
Wɔakyerɛw saa aduru yi ama wo nkutoo. Enti, mma ɛnkyɛ obi foforo biara esiane biribiara nti. Oduruyɛfo no begyina w’ayaresa tebea ne w’akwahosan ho abakɔsɛm so akyerɛw saa aduru yi.
Nkrasɛm a Wɔde Kɔ Fie
- Edaravone nyɛ ALS aduru, nanso ɛboa ma wodi sɛnea yare no mu yɛ den no so.
- Di "cycles" nhyehyɛe a wo duruyɛfo de ama wo no akyi pɛpɛɛpɛ. Mma nntwa nnuru dodow biako mpo so, na nnom pii nso.
- Sɛ wunya akisikuru ho sɛnkyerɛnne a emu yɛ den te sɛ w’anim, w’anofafa a ɛho ahonhon, anaasɛ ɛyɛ den sɛ wobɛhome a, hwehwɛ aduruyɛfo afotu ntɛm ara.
- Hwɛ hu sɛ wobɛka nyarewa foforo biara (titiriw ayamtu) ne nneɛma a ɛma wo ho yɛ wo hyew ho asɛm akyerɛ wo duruyɛfo.
- Bue nnuru toa no na tow emu biara a aka no gu wɔ nnafua 15 akyi.
- Fa ahofadi ne wo duruyɛfo bɛkasa afa nsɛmmisa anaa nsɛm biara a ɛhaw wo ho.
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