So wo nipadua akɔhyɛ, nanso w’adwene wɔ ahofadi? Momma yɛnka Locked-in Syndrome (LiS) ho asɛm .

Fa no sɛ wobɛtumi ate biribiara a wopɛ ase na woate biribiara a wopɛ, nanso wuntumi nkasa anaasɛ worentumi ntutu wo nipadua... te sɛ nea woakɔhyɛ w’ankasa wo nipadua mu. So ɛnyɛ te sɛ nea wontumi nyɛ ho hwee saa sɛ wubesusuw eyi ho? Ɛno ne ntini mu tebea a ɛyɛ awerɛhow, nanso ɛntaa nsi koraa a yɛbɛka ho asɛm nnɛ no pɛpɛɛpɛ. Wɔfrɛ eyi Locked-in Syndrome, anaasɛ `(LiS)` tiawa.

Dɛn ne Locked-in Syndrome?

Sɛ yɛbɛka no tiawa a, locked-in syndrome yɛ ntini mu yare a ɛntaa nsi a ɛma wo ntini a wufi wo pɛ mu yɛ no nyinaa nyɛ adwuma, gye ntini a ɛhwɛ w’ani no so no nkutoo. Eyi kyerɛ sɛ wuntumi nyɛ biribiara a wopɛ sɛ woyɛ, te sɛ wo nsa anaa wo nan a wobɛka, kasa, anaa wode w’anim ada nkate adi.

Nanso nea ɛyɛ nwonwa ne sɛ, onipa a ɔwɔ saa tebea yi mu no wɔ ne nkatede, ne nyansa, ne ne nkae nyinaa sɛnea ɛte daa. Wotumi te nea ɛrekɔ so wɔ wɔn ho no na wɔte ase. Nanso wonni ɔkwan biara a wɔbɛfa so ayɛ ho biribi. Ɛte sɛ obi a wakɔda wɔn ankasa nipadua mu, a ontumi nkasa anaasɛ ontumi nkɔ baabiara.

Mpɛn pii no, saa nkurɔfo yi nam wɔn aniwa a wɔma ɛkɔ soro ne fam, anaa wɔn ani a wɔma ɛbɔ, a wotumi di so no so di nkitaho. Ɛtɔ mmere bi a wɔde mfiri titiriw a ɛboa di dwuma de yɛ eyi.

Nea ɛde tebea yi ba titiriw ne yɛn amemene no fã pɔtee bi a wɔfrɛ no pons a ɛsɛe. Yɛbɛka eyi ho asɛm akɔ akyiri akyiri yi.

Dɛn ne locked-in syndrome (LiS) ahorow atitiriw?

Wɔahu ɔyare a wɔatoto mu (LiS) atitiriw abiɛsa. Momma yɛnhwɛ nea wɔyɛ.

1. Classical mode a wɔde di dwuma

Eyi ne ɔkwan a wɔtaa fa so yɛ ade. Wɔ eyi mu no, nipadua no nyinaa ntumi nkɔ baabiara koraa. Ɛno kyerɛ sɛ wontumi mfi wɔn pɛ mu nyɛ nneɛma biara. Nanso, wotumi de wɔn ani kɔ soro ne fam na wɔbɔ wɔn ani. Afei nso, wɔn adwene ne wɔn nyansa da so ara yɛ nea ɛfata. Wotumi te nneɛma a ɛrekɔ so wɔ wɔn ho no yiye.

2. Krataa a enni mũ

Eyi ne classical type no yɛ pɛ. Ɛne sɛ, sɛ nipadua no nyinaa nni nkwa mpo a, aniwa no tumi kɔ soro ne fam, ɛbɔ. Nanso, wɔ eyi mu no, ɛtɔ mmere bi a ebia kankyee ne nkate bi bɛka nipadua no afã horow bi. Ɛno ne nsonsonoe ketewaa a ɛwɔ ha.

3. Total Immobility Mode a Wɔde Di Dwuma

Eyi ne ɔkwan a emu yɛ den sen biara na ɛntaa nsi. Wɔ eyi mu no, nipadua no nyinaa twitwa koraa, na tumi a ɛkeka aniwa no yera. Nanso, nea ɛyɛ nwonwa no, saa nkurɔfo yi nso wɔ nsusuwii ne nyansa a ɛfata. Nnuruyɛfo si eyi so dua denam amemene no mu ntini (cortical function) dwumadi a wɔde sɔhwɛ ahorow te sɛ ``electroencephalogram - EEG)``, a ɛsusuw amemene mu asorɔkye a wɔsɔ hwɛ no so.

Henanom na wobetumi anya locked-in syndrome (LiS)?

Nokwarem no, tebea a wɔfrɛ no locked-in syndrome (LiS) yi betumi aba wɔ mfe biara mu. Nanso nhwehwɛmu ada no adi sɛ ɛtaa ba nnipa a wɔadi fi mfe 30 kosi 50 mu .

Saa tebea yi abu so dɛn?

Locked-in syndrome (LiS) yɛ tebea a ɛntaa nsi koraa. Esiane sɛ ɛtɔ mmere bi a wodi mfomso hu sɛ ɛyɛ aduruyɛ mu yare nti, ɛyɛ den ma nhwehwɛmufo sɛ wɔbɛka nnipa dodow pɔtee a wonya bi afe biara. Nanso, wogye tom sɛ ɛntaa nsi koraa.

Dɛn ne sɛnkyerɛnne ahorow a ɛwɔ locked-in syndrome (LiS) ho?

Ebia nkɛntɛnso a ɛwɔ nipadua no so no bɛsono kakra a egyina locked-in syndrome (LiS) ko a wowɔ so.

Mpɛn pii no, sɛ wudi kan hu obi a ɔwɔ locked-in syndrome a, wususuw sɛ onnim hwee, kyerɛ sɛ, ɔwɔ koma mu. Eyi te saa efisɛ wontumi nyɛ ho biribi ɔkwan biara so. Akyiri yi nkutoo na wuhu sɛ wɔn ani da hɔ.

Nneɛma a nnipa pii ntumi nyɛ:

• Aduan a wɔwe
• Nneɛma a wɔmene
• Ɔkasa
• Anim a wɔda no adi (te sɛ serew, awerɛhow a wɔte nka) .
• Nipadua no nkankyee biara nni aniwa no ase

Nneɛma a nnipa pii betumi ayɛ (wɔ tete nneɛma ne nea ɛnyɛ pɛ mu):

• Wubetumi de w’ani akɔ soro ne fam (nanso ɛnyɛ ɔfã biako, kyerɛ sɛ, ɛkɔ soro).
• Wubetumi abɔ w’ani.

Nneɛma a obiara (wɔ akwan horow nyinaa so) betumi ayɛ:

• Mitumi te nneɛma a ɛrekɔ so wɔ me ho, nnipa a wɔrekasa.
• Sɛ obi kasa anaa ɔkenkan biribi a, wubetumi ate ase.
• Wubetumi asusuw nneɛma ho na woasusuw nneɛma ho sɛnea woyɛe ansa na tebea yi resɔre no.
• Dae-nyane kyinhyia yɛ ade a ɛfata.

So wote ɛyaw nka wɔ locked-in syndrome (LiS) ho?

Eyi nso gyina Locked-In Syndrome (LiS) ko a wowɔ so.

• Obi a ontumi nkɔ baabiara koraa nte honam fam yaw nka efisɛ wɔn nipadua nyinaa ntumi nkɔ baabiara koraa.
• Obi a ne nipadua no nwie pɛyɛ betumi ate ɛyaw ne nkate afoforo wɔ nipadua no afã horow bi.

Dɛn na ɛde locked-in syndrome (LiS) ba?

Sɛnea yɛadi kan aka no, ade titiriw a ɛde locked-in syndrome (LiS) ba ne yɛn amemene no fã pɔtee bi a wɔfrɛ no pons a ɛsɛe.

Ɔsɛe a ɛba amemene no fã a ɛwɔ pons no so

Pons yɛ ntini mu nhama a ɛte sɛ ɔpɔnkɔ nan. Ɛwɔ medulla oblongata, amemene no fã a ɛba fam sen biara, ne cerebellum a ɛhwɛ yɛn nipadua no kankyee so, titiriw sɛnea ɛkari pɛ no ntam.

Pons yɛ amemene no fã bi a wɔfrɛ no cerebrum, a ntini akwan a ɛho hia pii a ɛka yɛn amemene, akyi berɛmo, ne amemene no bom wom. Wɔ locked-in syndrome mu no, sɛ pons no sɛe a, ntini mu nsɛnkyerɛnne a efi amemene no mu kɔ nipadua no mu ntini ahorow no nyinaa siw. Eyi nti na nipadua no nyinaa yɛ mmubuafo no. Saa ɔsɛe yi nso ka amemene no dua no mfinimfini a ɛhwɛ anim yɛbea ne kasa so no. Eyi nti na yentumi mfa yɛn anim nkyerɛ nkate horow, nwe aduan, mmmene, anaa yɛnkasa.

Ade titiriw a ɛtaa sɛe pons no ne ischemic stroke anaa hemorrhagic stroke, a ɛka corticospinal, corticopontine, ne corticobulbar akwan a ɛwɔ amemene no mu no.

• Ischemic stroke yɛ bere a mogya a ɛkɔ amemene no mu no siw mogya ntini bi a ɛde mogya kɔ amemene no mu no ano, na ɛma mogya a ɛkɔ amemene no mu no twa.
• Mogya a ɛtɔ gu nipadua mu ne bere a mogya fi ase fi ntini bi a ɛwɔ amemene no mu mu kɔ amemene no mu mpofirim.

Nneɛma afoforo a ɛma pons no sɛe

Wɔ ɔyare a ɛma obi hwe ase akyi no, nneɛma afoforo pii a ɛntaa nsi betumi asɛe pons no, na ɛde locked-in syndrome (LiS) aba.

• Ɔyare mmoawa a ɛba amemene no afã horow bi so.
• Tumor anaa masses a ɛwɔ pons anaa amemene no dua mu.
• Demyelination yɛ ahobammɔ kataso (myelin) a atwa ntini mu nkwammoaa ho ahyia no a ɛyera.
• Sɛ nhwɛso no, aduruyɛ mu tebea horow bi , amyotrophic lateral sclerosis (ALS) ne Guillain-Barre syndrome .
• Trauma a ɛkɔ pons no so.
• Nnubɔne a wɔde di dwuma ɔkwammɔne so .

Ɔkwan bɛn so na wohu sɛ obi anya locked-in syndrome (LiS)?

Esiane sɛ nnipa a wɔwɔ locked-in syndrome (LiS) no nyɛ wɔn ade wɔ nneɛma a ɛkanyan ɛyaw (i.e., wonni nipadua no mu mmuae biara) a nnuruyɛfo de hwɛ sɛ wɔyɛ ho biribi no ho nti, ebia mfiase no nnuruyɛfo bedi mfomso asusuw sɛ wonnim hwee. Enti, ɛtɔ mmere bi a, sɛ wobehu (LiS) no betumi ayɛ den na egye bere pii.

Ade a ɛho hia sen biara wɔ locked-in syndrome (LiS) a wobehu mu ne sɛ wobeyi tebea afoforo a ebetumi de saa sɛnkyerɛnne ahorow yi aba no afi hɔ. Afei nso, sɛ́ nhyehyɛe a wɔde hu yare no ne ayaresa no fã no, ɛho hia sɛ wohu nea ɛde locked-in syndrome no ba.

Nhwehwɛmu ahorow a wɔde hu yare no

Nnuruyɛfo de nhwehwɛmu ahorow pii di dwuma de hu locked-in syndrome (LiS), hwehwɛ nea ɛde ba, na wɔpow tebea afoforo.

• MRI (Magnetic Resonance Imaging - MRI) scan anaa CT (Computed Tomography - CT) scan: Saa nhwehwɛmu yi betumi ahu sɛ ebia asɛe wɔ wo pons anaa w’amemene no afã afoforo anaa.
• Cerebral angiography: Saa nhwehwɛmu yi tumi hu sɛ mogya atɔ wɔ amemene no dua ntini mu anaa amemene no mu baabi foforo anaa.
• Electroencephalogram (EEG): Eyi na ɛkyerɛ sɛnea amemene no mu anyinam ahoɔden yɛ adwuma. Eyi ma nnuruyɛfo hu sɛ w’amemene no dwumadi ne sɛnea woda ne wo nyane no yɛ nea ɛfata anaa. Ebetumi aboa ma wɔahu nsonsonoe a ɛda LiS ne tebea afoforo ntam.
• Tumi a ɛkanyan: Eyinom susuw anyinam ahoɔden dwumadi a ɛwɔ amemene ne akyi berɛmo no afã horow mu de bua nneɛma te sɛ ɛyaw, aso, anaa aniwa a ɛkanyan no. Nnuruyɛfo de di dwuma de susuw amemene no ntini a asɛe ne amemene no mmuae a ɛyɛ papa ho.
• Electromyography: Eyi kyerɛ sɛnea wo ntini ne wo ntini ahorow reyɛ adwuma yiye. Wobetumi de sɔhwɛ yi adi dwuma de ayi ntini ne ntini a asɛe no afi hɔ.
• Mogya mu nhwehwɛmu: Nneɛma a ɛsakra nipadua mu nneɛma, titiriw denam sodium dodow a ɛwɔ mogya no mu a wɔbɛhwɛ so no betumi aboa ma wɔahu sɛ ebia tebea bi a wɔfrɛ no pontine myelinolysis na ɛde ba anaa.
• Cerebrospinal fluid (CSF) nhwehwɛmu: Eyi betumi aboa ma wɔahu sɛ ebia ɔyare mmoawa anaa tebea bi a nipadua no tumi ko tia nyarewa no na ɛde sɛnkyerɛnne ahorow no reba anaa.

Ɔkwan bɛn so na wɔsa locked-in syndrome (LiS)?

Sɛ yɛbɛka nokware a, ayaresa anaa ayaresa pɔtee biara nni hɔ a wɔde sa locked-in syndrome (LiS). Ade biako pɛ a ɛsɛ sɛ wɔyɛ, sɛ ɛbɛyɛ yiye a, ne sɛ wɔbɛsa nea ɛde yare no ba no na wɔasiw nsɛnnennen foforo ano.

Nea ɛka ɔyare a wɔatoto mu a wɔde di dwuma ho ne ayaresa a ɛboa ne nkitahodi ntetee .

Ayaresa a ɛboa

Ɔhwɛ a ɛboa ma wɔhome ne aduan a wɔde ma ho hia, titiriw wɔ mfiase no. Mpɛn pii no, nnipa a wɔwɔ LiS no hia mmoa a wɔde home a wɔde nsa ayɛ. Wɔsan nso yɛ tracheotomy (afiri a wɔde fa tokuru ketewaa bi a ɛwɔ kɔn mu mu kɔ mframa afiri no mu).

Esiane sɛ ɛnyɛ nea asiane biara nni ho sɛ wobedidi anaa wɔbɛnom anom a wɔde LiS ahyɛ mu nti, mpɛn pii no, saa nkurɔfo yi nya afiri ketewaa bi a wɔfrɛ no gastrostomy tube (G-tube) a wɔde hyɛ wɔn yafunu mu tẽẽ. Ɛha na wɔde aduan ne nsu ma.

Ayaresa afoforo a wɔde ka ho ne:

• Nsɛnnennen a ebetumi afi obi a ontumi nkɔ baabiara mu aba a wobesiw ano. Nhwɛsoɔ:Nneɛma te sɛ ahurututu mu yare, nsu mu yare (UTIs), ne mogya a ɛtɔ (thrombosis).
• Nhyɛso mu opira/mpa so akuru a wobesiw ano .
• Fa nipadua mu ayaresa ma na amma akwaa a ɛtwetwe, a ɛyɛ baabi a obi tumi keka ne ho a ɛso tew esiane nkwaa, ntini, anaa ntini a ɛyɛ mmerɛw a ɛwɔ akwaa no mu a ɛyɛ den nti.
• Fa nipadua mu ayaresa ma na ama wɔasan asiesie nneɛma nketenkete biara a wofi wɔn pɛ mu yɛ a aka anaasɛ ɛrenya ahoɔden (sɛ ebi wɔ hɔ a).

Nkitahodi ho ntetee

Ɔkasa ho ayaresa ho animdefo betumi aboa nnipa a wɔwɔ locked-in syndrome (LiS) no ma wɔadi nkitaho pefee denam aniwa a wɔde keka wɔn ho ne wɔn ani a wɔbɛbɔ so. Saa nkitahodi kwan yi yɛ soronko ma obiara. Sɛ nhwɛso no, sɛ wohwɛ soro a, ebetumi akyerɛ "yiw" na sɛ wohwɛ fam a, ebetumi akyerɛ "dabi" (anaasɛ nea ɛne no bɔ abira). Afei nso, sɛ obi foforo kenkan krataa a, ebia obetumi atwe adwene asi nkyerɛwde a wɔpɛ sɛ wɔde yɛ nsɛmfua ne kasamu ahorow no so.

Wɔ aniwa a ɛkeka ne ho nsɛnkyerɛnne akyi no, ɛlɛtrɔnik nkitahodi mfiri , te sɛ infrared aniwa a ɛkeka ne ho a wɔde yɛ adwuma ne kɔmputa so nne a wɔde yɛ nipadua no ama nnipa a wɔwɔ LiS adi nkitaho ahofadi kɛse na wɔanya Intanɛt.

So ebetumi aba sɛ obi ho bɛtɔ wo koraa afi locked-in syndrome (LiS) mu?

Ɛdenam nea ɛde locked-in syndrome (LiS) ba so no, ebia nipadua no mu tumi ahorow bi asan aba bio. Nanso, wɔn ho nyɛ den koraa. Ebia nnipa binom a wɔwɔ LiS no benya kankyee ne nkate bi wɔ wɔn nipadua no afã horow bi.

Nnipa pii ntumi nsan nnya ntini a ayera no dwumadi bio da, nanso wobetumi asua sɛnea wɔbɛfa aniwa a wɔde keka wɔn ho so di nkitaho.

So wobetumi asiw locked-in syndrome (LiS) ano?

Nea ɛyɛ awerɛhow no, wontumi nsiw locked-in syndrome (LiS) dodow no ara ano. Nanso, sɛ wowɔ asiane kɛse mu sɛ wobɛnya akisikuru a, asiane a ɛwɔ hɔ sɛ wubenya LiS nso betumi ayɛ kɛse.

Wo ne wo duruyɛfo nkasa mfa asiane a ɛwɔ hɔ sɛ wubenya akisikuru ne akwan a wobɛfa so atew saa asiane no so ho.

Dɛn ne obi a ɔwɔ locked-in syndrome (LiS) no anidaso?

Nnipa a wɔwɔ locked-in syndrome (LiS) no nkɔmhyɛ gyina nea ɛde yare no ba, yare no ko, ne mmoa ne ɔhwɛ dodow a wɔde ma wɔn so.

Nhwehwɛmu bi a wɔyɛe nnansa yi daa no adi sɛ nnipa a wɔwɔ LiS bɔɔ amanneɛ sɛ wɔwɔ asetra mu anigye ne mfaso kɛse, titiriw bere a wonya asetra mu nnwuma pa ne mfiridwuma a ɛma wotumi sesa nneɛma a ɛboaa wɔn ma wodii dwuma sɛnea ɛsɛ wɔ fie ne ɔmanfo mu no.

Nnipa pii a wɔwɔ LiS betumi de mmubuafo akongua a wɔde mfiri di dwuma ne kɔmputa a mfiridwuma a ɛma wotumi sesa nneɛma di dwuma.

Bere tenten ahe na wubetumi atra ase wɔ locked-in syndrome (LiS) ho?

Nnipa binom a wɔwɔ locked-in syndrome (LiS) no ntra ase nsen yare no mfiase, esiane aduruyɛ mu nsɛnnennen nti. Nanso, afoforo tra ase mfe 10 kosi 20 na wɔbɔ amanneɛ sɛ wɔn asetra pa.

Mɛyɛ dɛn ahwɛ me ho, anaa obi a ɔwɔ LiS?

Sɛ wowɔ locked-in syndrome (LiS) a, ɛho hia sɛ wohwɛ hu sɛ wo nsa bɛka ayaresa pa na wɔasiw nsɛnnennen te sɛ ahurututu mu yare ne mpa so akuru a ɛnam sɛ wuntumi nkɔ baabiara so ba no ano.

Ɛho hia nso sɛ wobɛhwehwɛ akwan a wobɛfa so adi nkitaho – sɛ ɛyɛ aniwa a wɔde kankan anaasɛ mfiridwuma a ɛboa te sɛ aniwa a wɔde di akyi mfiridwuma. Susuw ho sɛ wobɛka kuw bi a wɔboa wɔn ho akɔhyia afoforo a wɔanya osuahu a ɛte saa ara.

Sɛ worehwɛ obi a ɔwɔ `(LiS)` a, ɛho hia sɛ wobɛkamfo no ama wahwɛ sɛ wobenya ayaresa a eye sen biara na wɔanya mfiridwuma a ɛboa wɔn ma wodi nkitaho na wɔde wɔn ho kɛse.

Awiei koraa no, ade a ɛho hia sen biara (Take-Home Message) .

Locked-in Syndrome (LiS) yɛ tebea a ɛntaa nsi na emu yɛ den. Sɛ obi nya ɔyare bi a ɛte sɛɛ a, ebetumi ayɛ den. Nanso kae sɛ w’aduruyɛfo kuw no wɔ hɔ sɛ wɔbɛboa wo ne w’adɔfo. Ɛho hia sɛ wobɛkɔ so anya ayaresa pa na woasua akwan foforo a wobɛfa so adi nkitaho bere a wo ne LiS te no.

Esiane nnɛyi ɔhwɛ a ɛkɔ akyiri a wɔde boa ne mfiridwuma mu nkɔso nti, nnipa pii a wɔwɔ Locked-In Syndrome (LiS) retra ase a edi mũ na mfaso wɔ so. Enti mma anidaso da. Ɔhaw biara ano aduru wɔ hɔ, ɔkwan a wɔfa so gyina asɛnnennen biara ano.

` Locked-in Syndrome, Pons, Amemene mu Yare, Ntini mu Nyarewa, Obubuafo, Nkitahodi