So wopɛ sɛ wuhu tebea yi (Pilocytic Astrocytoma) nso ho asɛm? Momma yɛnkasa!

Oh, so ɛtɔ mmere bi a wo anaa wo ba no ti yɛ wo yaw a ɛkɔ so san ba? Anaasɛ wofe bere nyinaa? Ebia nea enti a ɛte saa no yɛ biribi a wunsusuw ho mpo. Ɛnnɛ yɛrebɛka tebea bi a ɛte sɛ nea ɛyɛ aniberesɛm kakra, nanso ɛtaa yɛ nea wotumi sa yiye ho asɛm. Ɛyɛ amemene mu akisikuru bi a wɔfrɛ no (Pilocytic Astrocytoma) . Edin no te sɛ nea ɛyɛ hu kakra, ɛnte saa? Nanso mma ɛnhaw wo, momma yɛnka ho asɛm nkɔ akyiri.

Dɛn ne eyi (Pilocytic Astrocytoma)?

Sɛ yɛbɛka no tiawa a, Pilocytic Astrocytoma yɛ akisikuru a ɛba amemene no mu. Nkwammoaa bi a wɔfrɛ no astrocytes wɔ yɛn amemene mu . Eyinom yɛ nkwammoaa a ɛte sɛ nsoromma. Wɔn adwuma titiriw ne sɛ wɔbɛboa ntini mu nkwammoaa a ɛwɔ yɛn amemene mu, ntini a ɛde nkrasɛm kɔ no ma ayɛ adwuma yiye. Enti, akisikuru bi a wɔfrɛ no Pilocytic Astrocytoma fi saa nsoromma mu hwɛbea ahorow yi mu ba.

Wiase Nyinaa Akwahosan Ahyehyɛde no kyekyɛ saa akisikuru yi mu sɛ Grade I , a ɛkyerɛ sɛ ɛnyɛ nea ɛyɛ hu . Grade I kyerɛ sɛ sɛ wɔde afiri a wɔde hwɛ nneɛma nketenkete hwɛ a, nkwammoaa a ɛwɔ akisikuru no mu no te sɛ nkwammoaa a ɛteɛ, na ɛnyɛ kokoram nkwammoaa. Wɔsan nso nyin nkakrankakra paa . Mpɛn pii no, wɔntrɛw nkɔ nipadua no afã afoforo. Nanso, wotumi nyin kakra wɔ wɔn kɛse mu. Mpɛn pii no, oprehyɛn a wɔyɛ de yi akisikuru no betumi asa yare no.

Tebea yi abu so dɛn?

Pilocytic Astrocytoma ne amemene mu akisikuru a abu so sen biara wɔ mmofra mu . Wɔ United States nkutoo no, wobu akontaa sɛ saa tebea yi ka mmofra bɛyɛ 100,000 biara mu biako a wonnii mfe 20. Saa ɔkwan yi na ɛyɛ mmofra amemene mu akisikuru nyinaa mu bɛyɛ 15%. Wɔ mpanyimfo mu no, ɛntaa nsi kakra, na ɛyɛ amemene mu akisikuru nyinaa mu bɛyɛ 5%.

Dɛn ne Pilocytic Astrocytoma ho sɛnkyerɛnne ahorow?

Pilocytic Astrocytoma ho sɛnkyerɛnne betumi ayɛ soronko wɔ onipa biara ho. Egyina akisikuru no kɛse ne beae pɔtee a ɛwɔ wɔ amemene no mu so titiriw . Ɛtɔ da bi a, ebia akisikuru no renda sɛnkyerɛnne biara adi kosi sɛ ɛbɛyɛ kɛse. Nanso, sɛnkyerɛnne ahorow bi wɔ hɔ a ɛtaa ba a wobetumi ahu:

• Ti a ɛtaa yɛ no yaw .
• Ɔbrɛ, anaasɛ nna a ɔda bere nyinaa (Lethargy) .
• Ɔfe a wɔfe .
• Nsakrae a ɛba suban, nipasu, ne adwene mu . Ebia wo tirim yɛ den na wo bo fuw sen kan no.
• Nsakrae a ɛba wɔ tumi a obi tumi susuw nneɛma ho, sua ade, na ɔde n’adwene si biribi so mu .
• Kɔn a ɛyɛ den .
• Aniwa a wontumi nhu ade yiye, aniwa abien, anaa aniwa a ɛkeka ne ho ntɛmntɛm .
• Mmerewa a ɛba nipadua no akwaa mu ne sɛnea ɛyɛ den sɛ wɔbɛyɛ biako bere a wɔnantew anaa wɔreyɛ nnwuma no .
• Mmabunbere a ɛba ntɛm esiane nkwaadɔm mu nsakrae nti.

Akisikuru ntaa mma, nanso ɛntaa nsi koraa.

Ɛhe na saa (Pilocytic Astrocytoma) akisikuru yi ba?

Mpɛn pii no, saa akisikuru yi (Pilocytic Astrocytoma) nyin wɔ yɛn ntini a ɛwɔ mfinimfini , a ɛyɛ amemene ne akyi berɛmo no mu. Wɔtaa hu wɔn wɔ ɔfã bi a wɔfrɛ no cerebellum . Cerebellum yɛ yɛn amemene no fã a ɛwɔ akyi, ase, baabi a ti ne kɔn hyia.

Sɛ ɛno da nkyɛn a, saa akisikuru yi nso tumi nyin wɔ mmeae a edidi so yi, ɛwom sɛ ɛyɛ kakraa bi de:

• Optic nerve - Ntini a ɛka yɛn ani ne yɛn anisoadehu bom.
• Hypothalamus - Amemene no fã a ɛho hia a ɛhwɛ hormone ahorow so.
• Brainstem - Afã a ɛka amemene no ne akyi berɛmo no bom.
• Akyi berɛmo mu ntini .

Dɛn na ɛde eyi ba?

Nokwarem no, yɛda so ara nnim nea ɛma saa astrocyte nkwammoaa yi nyin mpofirim a wontumi nni so na ɛyɛ akisikuru ankasa. Nanso, nhwehwɛmu ahu nneɛma pii a ebetumi ama eyi aba:

• Awosu mu nsakrae : Wɔahu sɛ nsakrae bi a ɛba awosu mu nkwaadɔm (BRAF) mu no ne eyi wɔ abusuabɔ.
• Mframa a ɛma ionizing a wɔde wɔn ho hyɛ mu : Bere a wɔrenya mframa a wɔde sa yare sɛ kokoram ahorow afoforo ayaresa, sɛ nhwɛso no, mogya mu kokoram anaa lymphoma.

Nea ɛka ho no, wobetumi ahu Pilocytic Astrocytoma nso wɔ awosu mu tebea horow bi mu . Nhwɛso ahorow:

• (Neurofibromatosis Ɔkwan a Ɛto so 1) .
• (Li-Fraumeni yare no) .
• (Akisikuru a ɛma obi ho yɛ hyew) .

Nsɛnnennen bɛn na eyi betumi de aba?

Nsɛnnennen bi betumi aba esiane Pilocytic Astrocytoma nti. Eyinom bi ne:

• Anisoadehu a wɔhwere .
• Aniwa a ɛrehuruhuruw .
• Mu duru a ɛso tew anaasɛ ɛkɔ soro .

Wɔ nsɛm a ɛntaa nsi na emu yɛ den mu no, baabi a akisikuru no wɔ ne ne kɛse betumi ama amemene no dua no ayɛ nhyɛso (amemene no dua a wɔhyɛ) anaasɛ tebea bi a wɔfrɛ no hydrocephalus, a ebetumi de nkwa ato asiane mu.

Ɔkwan bɛn so na wohu yare yi (Pilocytic Astrocytoma)?

Oduruyɛfo bedi kan ahu wo anaa wo ba no denam nipadua mu nhwehwɛmu a ɔbɛhwɛ, atie wo sɛnkyerɛnne ahorow no yiye, na wagye w’aduruyɛ ho abakɔsɛm so . Afei wɔbɛyɛ nhwehwɛmu de ayi tebea afoforo a ebetumi de sɛnkyerɛnne a ɛte saa ara aba no afi hɔ.

Scan (Radiology) a wɔde hu Pilocytic Astrocytoma

Wɔtaa hu saa akisikuru yi na wosi nea wɔahu no so dua.Scan bi a wɔfrɛ no (MRI - Magnetic Resonance Imaging). Ɛtɔ mmere bi a, ɛyɛ den ma mmofra nkumaa a wɔwɔ ntini mu haw ho sɛnkyerɛnne sɛ wɔbɛtra hɔ dinn bere a wɔreyɛ scan (MRI) no. Wɔ tebea horow a ɛtete saa mu no, nnuruyɛfo kamfo kyerɛ sɛ wɔnyɛ (CT scan - Computed Tomography scan) . Saa scan ahorow yi betumi ahu akisikuru no kɛse, ne nsusuwii, ne beae pɔtee a ɛwɔ. Eyi boa kɛse wɔ ayaresa ho nhyehyɛe a wɔyɛ mu.

Dɛn ne ayaresa ahorow a wɔde sa Pilocytic Astrocytoma?

Ayaresa titiriw a nnuruyɛfo kamfo kyerɛ wɔ Pilocytic Astrocytoma ho ne oprehyɛn a wɔbɛyɛ de ayi akisikuru no afi hɔ . Mpɛn pii no, sɛ wotumi yi akisikuru no fi hɔ koraa wɔ saa kwan yi so a, wobetumi asa Pilocytic Astrocytoma tebea no koraa.

Nanso, ɛtɔ mmere bi a akisikuru no kɛse ne beae a ɛwɔ no ma ɛyɛ den sɛ wobeyi afi hɔ koraa. Sɛ asiane kɛse wɔ hɔ sɛ nsɛnnennen bɛba a, oduruyɛfo a ɔyɛ oprehyɛn no betumi ayi akisikuru no fã bi pɛ na wahwɛ sɛnea ɔfã a aka no kɛse ne ne nyin bere kɔ so no. Sɛ akisikuru no san ba anaasɛ ɔfã a aka no nyin bio a, wobetumi ayɛ oprehyɛn foforo.

Ayaresa foforo a ɛntaa nsi ne mframa a wɔde sa yare . Ebia wo duruyɛfo no gyina faako a akisikuru no wɔ, sɛnea ɛyɛ den sɛ wɔbɛyɛ oprehyɛn no, anaa sɛ ebia wowɔ nnuru afoforo a wubetumi apaw so apaw ayaresa yi. Wo duruyɛfo na obesi ayaresa a eye ma wo ho gyinae.

Nea ɛho hia no, esiane nkɔso a aba wɔ awosu mu nhwehwɛmu mu , a molecule mu nhwehwɛmu a wɔyɛ wɔ Pilocytic Astrocytoma ho ka ho nti, oprehyɛn akyi nhwehwɛmu betumi ahu nkwaadɔm mu nsakrae a ɛde sɛnkyerɛnne ahorow ba no bi, te sɛ BRAF v600E. Ayaresa ahorow bi wɔ hɔ a FDA apene so ama saa nkwaadɔm mu nsakrae yi. Ebia wobɛfata nso ama ayaresa a wɔde sɔ hwɛ anaa ayaresabea sɔhwɛ ahorow . Ebia eyinom so bɛba wo ne afoforo so mfaso. Enti, wo ne wo duruyɛfo nkasa mfa nyɛ molecule nhwehwɛmu ahorow yi wɔ wo akisikuru ntini no so bere a wɔayɛ wo oprehyɛn awie no.

So ayaresa no mu nsunsuanso bɔne bi wɔ hɔ?

Nsunsuanso bɔne bi betumi aba bere a wɔayɛ oprehyɛn de ayi Pilocytic Astrocytoma akisikuru no akyi. Nhwɛsoɔ:

• Mogya a ɛretu .
• Nsaneɛ .
• Rehono .
• Yeaw .
• Tipaeɛ .
• Nsu a ɛwɔ amemene mu .

Wo duruyɛfo a ɔyɛ wo oprehyɛn no ne wo besusuw saa nsunsuanso bɔne yi ho ansa na wafi ayaresa ase, na ɔbɛhwɛ yiye kɛse na wɔasiw saa nsunsuanso bɔne anaa nsɛnnennen yi ano bere a wɔreyɛ oprehyɛn no.

Mframa a wɔde sa yare nso betumi de nneɛma bɔne bi aba:

• Brɛ .
• Akisikuru ne ɔfe .
• Ayamtuo.
• Tipaeɛ .
• Nwi a ɛtɔ .
• Honam ani akisikuru, kɔkɔɔ a ɛyɛ kɔkɔɔ .
• Aduan yɛ nea ɛnyɛ dɛ .
• Nsu a wɔtaa tow anaasɛ ɛho hia sɛ wɔtow ntɛmntɛm .

Me ho bɛtɔ me ntɛm dɛn bere a wɔasa me yare awie no?

(Pilocytic Astrocytoma) Ebia ebegye adapɛn pii ansa na wo nipadua no ayɛ yiye bere a wɔayɛ wo oprehyɛn de ayi akisikuru no awie no. Wo duruyɛfo bɛma wo akwankyerɛ wɔ sɛnea wobɛhwɛ wo ho anaa wo ba bere a wɔayɛ wo oprehyɛn awie no ho. Sɛ wowɔ nsɛmmisa bi a, bisa wo duruyɛfo.

Dɛn ne nkɔmhyɛ a ɛfa tebea yi ho?

Wɔ Grade I (Pilocytic Astrocytoma) fam no, nkɔmhyɛ no ye yiye . Nea enti a ɛte saa ne sɛ ɛyɛ akisikuru a ɛnyɛ hu na ɛntaa ntrɛw nkɔ nipadua no afã afoforo. Dodow a wohu akisikuru no ntɛm na wɔsa no, dodow no ara na hokwan a ɛwɔ hɔ sɛ wɔbɛsa no yɛ kɛse . Afei nso, w’akwahosan nyinaa, mfe a woadi, ne nneɛma afoforo bɛka sɛnea wobehu yare no. Ɛdenam wo tebea so no, wo duruyɛfo betumi ama woahu yare no pɛpɛɛpɛ.

Dɛn ne nkwa a wonya ma (Pilocytic Astrocytoma)?

Mmofra ne mpanyimfo nkumaa a wɔahu sɛ wɔwɔ Pilocytic Astrocytoma ansa na wɔadi mfe 20 no nkwa nna dɔɔso yiye . Nhwehwɛmu bi daa no adi sɛ mfe 10 a wɔde tra ase no boro 92%. Sɛ nnuruyɛfo a wɔyɛ oprehyɛn tumi yi akisikuru no fi hɔ koraa a, saa dodow yi kɔ soro.

So wobetumi asiw Pilocytic Astrocytoma ano?

Esiane sɛ nhwehwɛmufo da so ara nni nea ɛde saa akisikuru yi ba no ase yiye nti, mprempren ɔkwan biara nni hɔ a wɔbɛfa so asiw ano .

Bere bɛn na ɛsɛ sɛ wokɔ oduruyɛfo nkyɛn?

Sɛ wususuw sɛ wo anaa wo ba wɔ Pilocytic Astrocytoma ho sɛnkyerɛnne a, kɔ oduruyɛfo nkyɛn ntɛm ara. Nkanka:

• Ti a ɛtaa yɛ no yaw .
• Nsakrae a ɛba wɔ anisoadehu mu .
• Suban mu nsakrae .
• Nipadua so tumi a wɔhwere, ɛyɛ den sɛ wɔbɛyɛ nneɛma abom .

Afei nso, sɛ wuhu nea edidi so yi mu biara bere a woayɛ wo oprehyɛn de ayi akisikuru no akyi a, ka kyerɛ wo duruyɛfo:

• Ɛyaw a emu yɛ den .
• Rehono .
• Wora kɔla a ɛsakra wɔ baabi a wɔyɛɛ oprehyɛn no .

Sɛ wote nka sɛ biribi anyɛ yiye a, wo ne oduruyɛfo nkasa.

Nsɛm bɛn na ɛsɛ sɛ wubisa oduruyɛfo no?

Mma wo werɛ mmfi sɛ wubebisa nsɛm yi bere a worekɔ wo duruyɛfo nkyɛn no:

• So ɛsɛ sɛ wɔyɛ me oprehyɛn ankasa?
• Dɛn ne ayaresa no mu nsunsuanso bɔne?
• Ɔkwan bɛn so na ɛsɛ sɛ me (anaa me ba) hwɛ me ho bere a wɔayɛ me oprehyɛn awie no?
• Nsɛnnennen bɛn na ɛsɛ sɛ mehwɛ yiye wɔ oprehyɛn akyi?
• Dɛn ne anidaso ahorow a ɛwɔ hɔ sɛ me ho bɛtɔ me?
• So nnuruyɛ mu sɔhwɛ ahorow bi wɔ hɔ a ɛfa me tebea no ho?

Nea etwa to no, nneɛma a ɛsɛ sɛ yɛkae

Ɛyɛ ade a ɛfata sɛ wobɛte ehu ne awerɛhow nka bere a wuhu sɛ wo, wo ba, anaa obi a wodɔ no wɔ amemene mu akisikuru no. Nanso Pilocytic Astrocytoma yɛ tebea a mpɛn pii no wobetumi asa na wɔasa . Mpɛn pii no, ɛntrɛw nkɔ nipadua no afã afoforo, na sɛ woyi akisikuru no fi hɔ a, wobetumi asa koraa.

W’aduruyɛ kuw no bɛboa wo ma woahu ayaresa nhyehyɛe a ɛfata wo. Wɔbɛyɛ nea wobetumi biara nso sɛ wobesiw nsɛnnennen ano na wɔama woasan agyina wo nan so ntɛm ara sɛnea wobetumi. Enti momma mo bo ntɔ mo yam!

` pilocytic astrocytoma, amemene mu akisikuru, mmofraberem kokoram, astrocytoma, amemene mu oprehyɛn, sɛnkyerɛnne, ayaresa