So wo ba no wɔ Short Bowel Syndrome (SBS)? Momma yɛnka ho asɛm tiawa.

So wo ba kumaa no kɔ so yare? So ne mu duru so tew a onnim mpo, bere a wanom nufusu anaa wadidi mpo? So ne mu duru nyɛ kɛse koraa? Sɛ́ ɔwofo no, ɛyɛ ade a ɛfata sɛ wuhu nneɛma a ɛte sɛɛ a, wobɛte ehu ne dadwen kɛse nka. Ɛtɔ da bi a, ebia aduruyɛ mu tebea bi wɔ saa sɛnkyerɛnne ahorow yi akyi a yɛntee ho asɛm pii. Ɛnnɛ yɛrebɛka tebea a ɛte saa biako ho asɛm, "Short Bowel Syndrome".

Dɛn ne Ɔyare Tiatiaa (SBS)?

Sɛ yɛbɛka no tiawa a, Short Bowel Syndrome (SBS) yɛ tebea a wo ba nipadua ntumi nnye aduannuru ne nsu a ɛdɔɔso. Nea enti a ɛte saa ne sɛ abofra no dwensɔtwaa ketewa no fã bi nni hɔ anaasɛ entumi nyɛ adwuma yiye. Sɛ yɛbɛka no yiye a, dwensɔtwaa no nware sɛnea ɛsɛ. Saa tebea yi betumi aba bere a wɔawo no, anaasɛ ebetumi aba nso bere a wɔayɛ oprehyɛn ayi dwensɔtwaa ketewa no fã kɛse bi esiane aduruyɛ mu tebea foforo nti akyi.

Sɛ yɛbɛte eyi ase a, ma yenni kan nhwɛ nea ɛkɔ so wɔ yɛn dwensɔtwaa ketewa no mu.

Dwuma a yɛn dwensɔtwaa ketewa no di

Fa dwensɔtwaa ketewa no ho sɛ ‘adwinnade a wɔde yɛ adwuma’ tenten bi wɔ adwumayɛbea bi. Aduan a yedi no fã bi yam wɔ yafunu no mu na ɛkɔ dwensɔtwaa ketewa no mu. Afei, bere a ɛnam saa dwensɔtwaa tenten yi so no, biribiara a ɛho hia ma nipadua no wɔ saa aduan no mu - kyerɛ sɛ, protein, carbohydrates (starch ne asikre), srade, vitamins, minerals te sɛ iron, calcium - no kɔ nipadua no mu. Wɔnam dwensɔtwaa kɛse no mu yi nwura a aka no fi hɔ sɛ nsu a wɔde gu mu.

Yɛn dwensɔtwaa ketewa no afã atitiriw abiɛsa na ɛwɔ hɔ:

• Duodenum: Ɔfã a ɛyɛ tiaa sen biara wɔ yafunu no akyi.
• Jejunum: Mfinimfini fã.
• Ileum: Ɛyɛ dwensɔtwaa kɛse no fã a ɛware sen biara.

Wɔ SBS fam no, saa ‘processing line’ yi nware sɛnea ɛsɛ. Wo de susuw ho hwɛ, sɛ wɔde ɔkwan a ne tenten yɛ kilomita biako so twetwe aduannuru, na wɔtew saa kwan no so mpofirim a, dɛn na ɛbɛba? Ná kar a wɔfrɛ no aduan no de ahopere bɛfa saa kwan tiawa no so na ennya bere mfa nyi nneɛma (aduannuru) a ɛwɔ mu no nyinaa. Saa ara na ɛkɔ so wɔ SBS mu. Esiane sɛ dwensɔtwaa no yɛ tiaa nti, aduan no fi nipadua no mu ansa na ayam no yiye na nipadua no agye aduannuru no. Eyi yɛ tebea a emu yɛ den a sɛ wɔansa a, ebetumi aka abofra no nkwa mpo.

Wobɛyɛ dɛn ahu sɛ abofra bi wɔ SBS? Dɛn ne sɛnkyerɛnne ahorow no?

Abofra a ɔwɔ SBS betumi anya saa sɛnkyerɛnne ahorow yi mu biako anaa nea ɛboro saa. Nsɛnkyerɛnne a ɛtaa ba, titiriw wɔ nkokoaa ne mmofra nkumaa mu ne akisikuru a nsu wom.

Dɛn nti na abofra nya Short Bowel Syndrome?

Nneɛma atitiriw abien na ɛma eyi ba.

1. Nea efi awo mu: Ebia wɔbɛwo mmofra binom a wɔn dwensɔtwaa ketewaa no ayɛ tiaa. Anaasɛ ebia na wɔn dwensɔtwaa no fã bi ayera, anaasɛ dwensɔtwaa no nnyinii koraa bere a ɛrenyin wɔ ɛna no awotwaa mu no. Wɔfrɛ saa tebea yi `(Intestinal Atresia)`.

2. Sɛ́ oprehyɛn mu nsunsuanso bɔne: Ɛsɛ sɛ wɔyɛ mmofra binom oprehyɛn yi wɔn dwensɔtwaa ketewaa no fã bi esiane aduruyɛ mu tebea afoforo nti. Nneɛma a ɛtaa ma wɔyɛ oprehyɛn yi bi ne:

• Necrotizing enterocolitis: Ɔyare mmoawa a emu yɛ den, titiriw wɔ nkokoaa a wɔawo wɔn ntɛm mu, a dwensɔtwaa no afã horow wuwu esiane mogya a ɛkɔ fam nti.
• Gastroschisis: Tebea a ɛma dwensɔtwaa no puepue wɔ nipadua no akyi bere a akokoaa no renyin wɔ awotwaa no mu.
• Volvulus: Tebea a ɛma dwensɔtwaa no kyinkyim na mogya no ntumi nkɔ.
• Crohn yare no:Tebea a ɛma aduan mu yɛ hyew bere tenten.
• Intussusception: Tebea a ɛma dwensɔtwaa no fã bi kɔhyɛ ɔfã foforo mu.

Dɛn ne nsɛnnennen a ebetumi afi SBS mu aba?

SBS nyɛ tebea a ɛyɛ mmerɛw. Sɛ wɔanhwɛ abofra no so yiye a, obetumi anya nsɛnnennen ahorow.

• Nsu a ɛho nhia: Ebia nipadua no bɛkora nsu so bere nyinaa efisɛ entumi nnye nsu dodow a ɛho hia.
• Aduan pa a wonnya nni: Mu duru a ɛso tew ne onyin a ɛyɛ mmerɛw esiane aduan pa a ɛho hia a wonnya nti.
• Vitamin ne mineral a enni nipadua no mu: Vitamin a ɛho hia (A, D, E, K, B12) ne minerals (calcium, magnesium, zinc) a enni nipadua no mu.
• Diaper mu akisikuru a emu yɛ den: Nsu a ɛtaa ba a acid wom no betumi ama honam ani a ɛwɔ baabi a wɔde diaper no ayɛ no kɔkɔɔ kɛse na ayɛ no yaw.
• Mmɛn mu yare: Mmerɛbo no betumi aka wo, titiriw sɛ wo nsa ka aduannuru a wɔde fa anom (TPN) bere tenten a.
• Asaabo mu abo: Esiane nneɛma te sɛ calcium a wɔtwetwe no a ɛnkari pɛ nti.
• Mmoawa nyin boro so wɔ dwensɔtwaa ketewa no mu: Sɛ dwensɔtwaa no nyɛ adwuma yiye a, ebetumi ama mmoawa a wopira anyin dodo.

Enti, sɛ wo ba no wɔ SBS ho sɛnkyerɛnne, titiriw bere a wɔayɛ ne dwensɔtwaa oprehyɛn akyi a, ɛho hia yiye sɛ wobɛkɔ wo duruyɛfo nkyɛn ntɛm ara .

Dɛn ne ayaresa ahorow a wɔde sa SBS?

Abofra a ɔwɔ SBS a wɔbɛsa no yare no yɛ kuw mmɔdenbɔ. Nnipa pii, a mmofra nnuruyɛfo, oprehyɛn ho animdefo, ne aduannuru ho abenfo ka ho, bom yɛ ayaresa nhyehyɛe a eye sen biara ma wo ba. Botae titiriw a ɛwɔ ayaresa mu ne sɛ wobedi yare no ho sɛnkyerɛnne ahorow so bere a wɔma abofra no aduan a ɛho hia no.

1. Nsakrae a Ɛba Aduandi Mu

Eyi ne ayaresa no fã a ɛho hia sen biara.

• Total Parenteral Nutrition (TPN): Wɔ dwensɔtwaa mu oprehyɛn akyi anaa bere a dwensɔtwaa no ntumi nnye aduannuru koraa no, wɔde aduannuru a abofra no hia nyinaa (protein, srade, carbohydrates, vitamins, ne minerals) ma abofra no denam nsu titiriw bi te sɛ nkyene so denam ntini bi so. Eyi twa aduan mu nneɛma ho hyia koraa na ɛde aduannuru ka mogya no ho tẽẽ. Eyi yɛ ayaresa a egye abofra no nkwa.
• Aduandi a Wɔde Ma Wɔ Awotwaa Mu / Tube Feeding:Sɛ abofra no dwensɔtwaa yɛ adwuma kakra a, wɔde nnuan a ɛyɛ nsu titiriw fa afiri bi a wɔde fa hwene mu kɔ yafunu no mu anaasɛ fa afiri bi a wɔde oprehyɛn bata yafunu no ho tẽẽ so ma. Eyi betumi ama abofra no anya aduannuru foforo de aka aduan a wɔde ano di ho.
• Nsakrae a ɛba aduan mu: Bere a akokoaa no fi ase di n’ano nkakrankakra no, oduruyɛfo ne aduannuru ho ɔbenfo no de aduan ho nhyehyɛe titiriw bi bɛma. Wɔ mu no, .
• Nkakrankakra wɔbɛka akyerɛ wo sɛ ma wɔn aduan mpɛn pii da biara.
• Ɛka sɛ ɛtew nnuan a srade, asikre, ne nhama pii wom so.
• Ɛka sɛ ɛma wonya nnuan a protein ne carbohydrates pii wom.
• Wɔkamfo kyerɛ sɛ wɔmfa vitamin ne mineral a ɛho hia no mma sɛ aduan a wɔde ka aduan ho.

2. Nnuru a wɔde di dwuma

Wɔde nnuru ahorow di dwuma de siw yare no ho sɛnkyerɛnne ahorow so na ɛma aduannuru a wɔde di dwuma no tu mpɔn.

• Nnuru a ɛtew yafunu mu acid so (`Proton pump inhibitors`).
• Nnuru a ekum ɔyare mmoawa hwɛ sɛnea mmoawa nyin wɔ dwensɔtwaa mu no so.
• Nnuru a ɛtew akisikuru so na ɛma aduan fa dwensɔtwaa mu ntɛmntɛm.
• Hormone ahorow a ɛma aduannuru a wɔtwe kɔ nipadua mu no tu mpɔn.

3. Oprehyɛn a wɔyɛ

Wɔ tebea horow bi a emu yɛ den mu no, ebia ɛho behia sɛ wɔyɛ oprehyɛn foforo na ama abofra no dwensɔtwaa ayɛ adwuma yiye. Sɛ nhwɛso no, akwan horow bi wɔ hɔ a wɔfa so ma dwensɔtwaa kyɛ. Wɔ tebea horow a emu yɛ den yiye mu, baabi a ayaresa foforo biara ntumi nyɛ adwuma yiye no, ebia ɛho behia sɛ wɔde dwensɔtwaa foforo ma.

Anidaso a anidaso wom a ɛne sɛ dwensɔtwaa bɛsakra

Eyi ne anidaso kɛse ma mmofra ne awofo a wɔwɔ SBS. Yɛn nipadua yɛ nwonwa. Sɛ woyi dwensɔtwaa no fã bi fi hɔ wie a, dwensɔtwaa no fã a aka no fi ase sesa bere a bere kɔ so no. Wɔfrɛ eyi `Intestinal Adaptation`.

Eyi ne nea ɛba:

• Dwonku a aka no mu ɔfasu no ani kɛse kɔ soro.
• Afã nketenkete a ɛte sɛ nsateaa (villi) a ɛtwe aduannuru no yɛ tenten na ɛyɛ den.
• Dwonku no ntwemu kɔ soro.
• Ahoɔhare a aduan tu no brɛ ase, na ɛma wonya bere pii ma aduannuru no twetwe.

Esiane saa kwan a wɔfa so yɛ nsakrae yi nti, mmofra pii tumi dan nkakrankakra fi aduan a wɔde ma wɔ anom (TPN) so kɔ aduan a wɔde ma wɔ anom so. Mprempren wɔanya nnuru foforo te sɛ teduglutide a ebetumi ama nsakrae yi ayɛ ntɛmntɛm.

SBS yɛ akwantu a ɛyɛ den. Nanso sɛ wɔde ayaresa a ɛfata, aduan pa a wɔde di dwuma yiye, ne ɔdɔ ne ahofama a awofo de ma a, mmofra yi nso betumi atra ase pa na anigye wom. Ɛho hia yiye sɛ wo ne wo duruyɛfo ne nnuruyɛfo kuw no di nkitaho na wudi wɔn afotu akyi.