So wo ba kumaa no taa nya hwene mu nsu? Ontumi nhu ne nipadua bere a wadidi awie no? So ɔbɔ abɛn bere a ɔrehome no? Eyinom betumi ayɛ atiridiinini ho sɛnkyerɛnne, nanso ɛtɔ mmere bi a biribi a anibere wom kɛse betumi aba akyi. Sɛ́ ɛna no, ɛyɛ awosu sɛ wobɛdwene saa nneɛma yi ho. Ɛnnɛ, yɛbɛka tebea bi a ɛntaa nsi nanso ɛho hia ne sɔhwɛ titiriw a wobetumi de ahu no ho asɛm.
Nea edi kan no, ma yɛnhwɛ, dɛn ne cystic fibrosis?
Sɛ yɛbɛka no tiawa a, Cystic Fibrosis (CF) yɛ awosu mu yare a ɛnam yɛn awosu mu ma, a ɛkyerɛ sɛ yenya fi awo mu. Ɛnyɛ yare a wɔde kɔ nnipa mu. Nsuo ne nsuo foforɔ a obi a ɔwɔ saa yareɛ yi de ba no yɛ duru na ɛyɛ nnam koraa sene deɛ obi a ɔte ase yɛ no.
Susuw ho hwɛ, mpɛn pii no, nsu a ɛwɔ yɛn nipadua mu no afasu (te sɛ nsu afiri) no wɔ nsu a ɛyɛ tratraa a ɛyɛ hwerɛma. Eyi na ɛma yɛn akwaa yɛ nwini, ɛho tew, na ahobammɔ wom. Nanso wɔ obi a ɔwɔ CF fam no, saa nsu a ɛyɛ nwini yi yɛ den, ɛyɛ nnam, na ɛyɛ ntini. Saa nsu a ɛyɛ den yi fi ase siw ntini ne akwan no ano, titiriw wɔ ahurututu ne aduan mu nneɛma mu (titiriw dwensɔtwaa no mu).
Eyi betumi ama ahome ayɛ den, ahurututu mu yare a ɛtaa ba, ne aduannuru afoforo a enni nipadua no mu efisɛ nipadua no nnye aduan a edi no yiye. Wɔ ahurututu ne dwensɔtwaa akyi no, tebea no betumi aka mmerɛbo, ntini, dwensɔtwaa, ne awo akwaa nso.
CF yɛ yare a enni sabea. Eyi kyerɛ sɛ wontumi nsa no koraa, nanso sɛ wɔsa no yiye na wɔhwɛ so yiye a, wobetumi adi sɛnkyerɛnne ahorow no so na nkurɔfo atumi atra ase sɛnea ɛsɛ. Ɛyɛ tebea a ɛkɔ so nkakrankakra a bere kɔ so no, yare no ho sɛnkyerɛnne no mu yɛ den nkakrankakra nso.
Dɛn ne abofra kumaa a ɔwɔ CF ho sɛnkyerɛnne?
Abofra a ɔwɔ CF betumi ada saa sɛnkyerɛnne ahorow yi mu biako anaa nea ɛboro saa adi bere koro mu. Hu saa sɛnkyerɛnne ahorow yi wɔ wo ba no mu. Nanso kae sɛ ɛnyɛ abofra biara a ɔwɔ saa sɛnkyerɛnne ahorow yi na ɔwɔ CF. Nanso ɛho hia sɛ yɛma yɛn ani da hɔ.
| Nsɛnkyerɛnne a ɛkyerɛ | Nkyerɛkyerɛmu a Ɛyɛ Mmerewa |
|---|---|
| Nkɔso a entumi nyɛ yiye | Ɛwom mpo sɛ akokoaa no nom nufusu pii na odi yiye de, nanso ɔyɛ teateaa na ne mu duru nyɛ nea ɛfata ne mfe. Nea enti a ɛte saa ne sɛ nsu a ɛwɔ dwensɔtwaa no mu no siw, na ɛmma enzyme ahorow a ehia na ama wɔatumi ayam aduan no ntumi nkɔ dwensɔtwaa no mu. |
| Nsu a ɛho ayɛ hare anaasɛ srade wom | Nsu betumi ayɛ fitaa, ayɛ huam, na ayɛ te sɛ nea srade wom. Nea enti a ɛte saa ne sɛ srade a efi aduan mu no fi nipadua mu a wɔanwene. |
| Ɔhome a ɛyɛ den ne ahurututu a ɛtaa yɛ | Nsu a ɛyɛ den kɔhyɛ ahurututu no mu, na ɛma ɛyɛ den sɛ wɔbɛhome. Sɛ wohome, titiriw bere a worehome a, wote abɛn nnyigyei bi a efi wo koko mu reba. |
| Ahurututu mu yare a wɔtaa nya | Esiane sɛ ɛnyɛ den sɛ mmoawa nyin wɔ nsu a ɛyɛ den so nti, nyarewa te sɛ ahurututu mu yare anaa ahurututu mu yare taa ba. |
| Ɔfe a ɛrenkɔ | Ebia ɔfe a ɛkɔ so tra hɔ, a ɛte sɛ ahurututu bɛba bere a nipadua no bɔ mmɔden sɛ ebeyi nsu a akɔhyɛ ahurututu mu no afi hɔ no. |
| Nkyene dɛ a wɔte nka wɔ abofra no honam ani | Eyi yɛ ade titiriw bi. Awofo ka sɛ, sɛ wɔfew wɔn ba ano a, wɔte nka sɛ nkyene bi wɔ wɔn honam ani. Yɛbɛka nea enti a eyi bae no ho asɛm akyi. |
Ɔkwan bɛn so na nnuruyɛfo hu yare yi? - Fifiri Sɔhwɛ
Sɛ abofra bi nya atifi hɔ sɛnkyerɛnne ahorow no a, oduruyɛfo bi betumi asusuw eyi ho na wakamfo akyerɛ sɛ wɔnyɛ nhwehwɛmu mpɛn pii. Eyinom bi ne awosu mu nhwehwɛmu ne koko mu X-ray. Nanso, sɔhwɛ a ɛho hia sen biara a wɔde si so dua sɛ obi anya CF ne fifiri nhwehwɛmu.
Eyi yɛ ade a ɛnyɛ den koraa sɛ wobɛyɛ. Sɛ yɛbɛka no tiawa a, nkyene wɔ yɛn fifiri mu. Chloride na ɛyɛ saa nkyene yi.ne sodium ne sodium. Esiane sɛ chloride ntumi nkɔ obi a ɔwɔ CF nkwammoaa mu na mfi mu yiye nti, chloride pii wɔ wɔn fifiri mu sen obi a ɔte ase. Fifiri mu nhwehwɛmu kyerɛ chloride dodow.
Ɔkwan bɛn so na wɔyɛ fifiri mu nhwehwɛmu? So ɛbɛpira akokoaa no?
Sɛ́ ɛna no, ɛyɛ ade a ɛfata sɛ wubenya asɛmmisa yi. Nanso biribiara nni hɔ a enti ɛsɛ sɛ yesuro. Eyi nyɛ sɔhwɛ a ɛyɛ yaw koraa.
Wobetumi ayɛ sɔhwɛ yi wɔ obiara a wadi mfe biara so. Nanso, ebia nkokoaa a wɔawo wɔn foforo no rentumi mma fifiri a ɛdɔɔso mma sɔhwɛ no wɔ wɔn nkwa nna kakraa a edi kan no mu. Enti, wɔtaa yɛ sɔhwɛ yi bere a akokoaa no adi adapɛn abien kosi anan.
Sɛnea wɔyɛ sɔhwɛ no ni:
1. Nea edi kan no, aduruyɛ adwumayɛfo no muni bi bɛhohoro baabi ketewaa bi a ɛwɔ akokoaa no nsa anaa ne nan (mpɛn pii no ne moma so) ho yiye.
2. Afei, wɔde gel a nnuru bi a wɔfrɛ no pilocarpine wom gu beae no, na wɔde electrode ketewaa bi si so.
3. Afei wɔde anyinam ahoɔden nkanyan ketewaa bi a ɛkame ayɛ sɛ wontumi nhu no fa saa electrode yi so ma. Mma ɛnhaw wo, eyi mfa nnade nni dwuma, na ɛrempira akokoaa no ɔkwan biara so. Ebia wobɛte nka sɛ wo ho yɛ wo yaw kakra. Eyi kanyan fifiri ntini ahorow no na ɛma fifiri ba ntɛmntɛm.
4. Simma kakraa bi akyi no, wɔhohoro beae no na wɔde afiri titiriw bi (te sɛ plastic coil) a ɛboaboa fifiri ano gu so na wɔkyekyere.
5. Sɛ akokoaa no di agoru bɛyɛ simma 30 a, wɔde fifiri dodow a wɔhwehwɛ no ka eyi ho.
6. Afei wɔde fifiri nhwɛsode a wɔaboaboa ano yi kɔ adwumayɛbea hɔ kɔsusuw chloride dodow.
Dɛn na amanneɛbɔ no ka?
Sɛ wonya nsa ka sɔhwɛ ho amanneɛbɔ no wie a, oduruyɛfo no betumi agyina gyinapɛn ahorow no so ahu sɛ ebia abofra no wɔ CF anaasɛ onni bi. Wɔsusu nsusuiɛ no wɔ akuo a wɔfrɛ no `mmol/L` (millimoles wɔ lita biara mu).
Kae sɛ wo duruyɛfo nkutoo na obetumi akyerɛ nea efi mu ba yi ase na watu wo fo wɔ nea ɛsɛ sɛ woyɛ akyi. Enti mma wo ho nnpopo na gyina akontaabu a ɛwɔ amanneɛbɔ no so si gyinae.
| Chloride dodow a ɛwɔ nipadua no mu | Dɛn na ɛno kyerɛ? (Nea ɛkyerɛ) . |
|---|---|
| Sɛ ɛboro 60 mmol/L | Ɛda adi sɛ abofra no wɔ CF. Oduruyɛfo no betumi ahyɛ sɛ wɔnyɛ nhwehwɛmu foforo de si eyi so dua. |
| Sɛ ennu 40 mmol/L a | Abofra no nni CF. Oduruyɛfo no bɛhwehwɛ nneɛma afoforo a ɛde sɛnkyerɛnne ahorow no ba. |
| Ɛwɔ 40 kosi 60 mmol/L ntam | Eyi yɛ nea efi mu ba a ɛwɔ ntam. Ebia ebehia sɛ wosan yɛ sɔhwɛ no bio. Ebia wo duruyɛfo nso bɛkamfo akyerɛ sɛ wɔnyɛ nhwehwɛmu foforo mfa nhwehwɛ CF ahorow a ɛnyɛ nea wɔtaa hu. |
Ɔkwan bɛn so na wobetumi asiesie akokoaa no ama sɔhwɛ no?
Eyi ne ɔfã a ɛyɛ mmerɛw sen biara. Saa sɔhwɛ yi nhia ahosiesie titiriw biara.
- Ɛho nhia sɛ wosakra wo ba no aduan, nnuru, anaa dwumadi ahorow ansa na wɔayɛ nhwehwɛmu no. Wubetumi atoa wo da no so sɛnea wotaa yɛ no.
- Ade a ɛho hia sen biara ne sɛ woremfa nnuru a wɔde yɛ aduru anaa aduru biara nhyɛ wo ba no nipadua mu da a edi sɔhwɛ no anim. Titiriw ɛnyɛ basa anaa nan a wɔresɔ ahwɛ no so. Eyinom betumi aka nea efi sɔhwɛ no mu ba no.
Sɛ wo ba no wɔ saa sɛnkyerɛnne ahorow yi a, mma wo ho nnpopo anaasɛ wo ho nnyɛ wo hu, na mmom kɔ oduruyɛfo a ɔfata nkyɛn ntɛm ara na woanya afotu. Dodow a wohu yare no ntɛm no, dodow no ara na hokwan a ɛwɔ hɔ sɛ wobefi ase sa yare no na wɔama abofra no anya asetra pa.
Nkrasɛm a Wɔde Kɔ Fie
- Cystic fibrosis yɛ awosu mu yare a wonya fi awo mu na ɛma nipadua no mu ntini a ɛyɛ mmerɛw no yɛ den, na ɛka akwaa te sɛ ahurututu ne dwensɔtwaa.
- Ɛho hia paa sɛ wobɛkɔ oduruyɛfo nkyɛn sɛ wo ba no wɔ sɛnkyerɛnne ahorow te sɛ ne mu duru a ɛnkɔ soro, ne koko a ɔtaa yɛ den, ɛyɛ den sɛ ɔbɛhome, ne nsu a srade wom a.
- Fifiri mu nhwehwɛmu ne sɔhwɛ a ɛho hia sen biara, ɛnyɛ yaw, na ahobammɔ wom a wɔde hu yare yi.
- Saa sɔhwɛ yi susuw chloride (nkyene) dodow a ɛwɔ fifiri mu. Mmofra a wɔwɔ CF no wɔ chloride dodow a ɛdɔɔso sen sɛnea ɛte daa wɔ wɔn fifiri mu.
- Mma wo ho nnyɛ wo hu wɔ nea efii nhwehwɛmu no mu bae no ho, bere nyinaa wo ne wo duruyɛfo nkasa na ama woanya ntease a emu da hɔ.
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