An bɛɛ bɛ kuma banaw kan, nka bana dɔw bɛ yen minnu sirilen bɛ tariku ko kɛrɛnkɛrɛnnenw na. O maana dusukasilen dɔ ye Agent Orange ye, an bɛ kuma min kan bi. N’a sɔrɔ i ma o tɔgɔ mɛn fɔlɔ. Nka a nafa ka bon kosɛbɛ k’a dɔn a ye nɔ min bila hadamaden miliyɔn caman ka ɲɛnamaya la.
Nin Agent Orange ye mun ye?
N’an y’a fɔ cogo nɔgɔman na, Agent Orange ye binfagalan ye min fanga ka bon kosɛbɛ . A kɛra Ameriki sɔrɔdasiw fɛ Vietnam kɛlɛ senfɛ kabini san 1962 fo san 1971. U ka laɲini tun ye ka kungo belebeleba ni jiriw tiɲɛ pewu, jugu sɔrɔdasiw tun dogolen bɛ yɔrɔ minnu na. Miiri k’a filɛ, o waati kɔnɔna na, Agent Orange galɔn miliyɔn 11 fiyɛra yɔrɔ la min bɛ se ɛkitɛri miliyɔn 20 ɲɔgɔn ma Vietnam jamana na.
Nka daliluw bɔlen kɔ a faratiw kan, n’o ye a ka nɔ juguw ye hadamadenw na, Ameriki ye nin binfagalan in dilanni n’a tali bali pewu san 1971. Nka o waati la, tiɲɛni kɛra kaban.
Mɔgɔ joli de tun bɛ o furakisɛ fagalen in na?
Tiɲɛ na, mɔgɔ hakɛ min tɔɔrɔla, mɔgɔ si t’a dɔn tigitigi. Nka, jateminɛw y’a jira ko Ameriki sɔrɔdasi miliyɔn 3 ɲɔgɔn minnu tun bɛ baara la Vietnam o waati la ani siwili miliyɔn 3 ni kɔ minnu tun sigilen bɛ Vietnam, n’a sɔrɔla olu de ye o kemikɛli in sɔrɔ. O b’a jira ko o ye tiɲɛni kɛ cogo min na.
Agent Orange tali taamasiɲɛ jumɛnw ye?
Nin fura in nɔ bɛ danfara bɔ mɔgɔ ni mɔgɔ cɛ. Hali ni mɔgɔ dɔw bɛ bana taamasiɲɛ misɛnniw sɔrɔ, dɔw bɛ bana jugumanba dɔw sɔrɔ. A taamasiɲɛ minnu ka teli ka ye, olu dɔw filɛ nin ye.
| Taamaʃyɛn | Ɲɛfɔli nɔgɔman |
|---|---|
| Kunfilanitu bɛ ɲɛda la | Kunfilanitu jugumanba, kɛrɛnkɛrɛnnenya la ni kurukuruw ye. |
| Banakisɛ minnu bɛ sɔrɔ tuma caman | Banaw ni banakisɛw bɛ to ka sɔrɔ farikolo tangacogo fanga dɔgɔyali fɛ. |
| Farikolo yɔrɔw bɛ sɔgɔsɔgɔ | Bolo ni senw sɔgɔsɔgɔli, a bɛ kɛ i n’a fɔ wuluw bɛ boli ka yaala, walima sɔgɔsɔgɔninjɛ. |
| Sɛgɛn kojugu (Sɛgɛn) . | Sɛgɛn kojugu ani sɛgɛn kun tɛ. |
| Ninakili gɛlɛya | Ninakilidegun walima ninakili gɛlɛya. |
| Farikolo fununi (Edema) . | Funu, kɛrɛnkɛrɛnnenya la senw ni senkɔniw yɔrɔ la. |
| Farikolo yɛrɛyɛrɛ (Tremors) . | Farikolo yɔrɔw i n’a fɔ senkɔniw bɛ yɛrɛyɛrɛ hali ni u bɛ lafiɲɛ, o kɔrɔ ye ko u jɔlen don dɔrɔn. |
O bɛ se ka bana jugu jumɛnw lase mɔgɔ ma?
Kɛnɛyako gɛlɛya minnu bɛ sɔrɔ Agent Orange tali fɛ, olu ka jugu kosɛbɛ. Hali ni bana 14 dɔrɔn de tun bɛ dɔn fɔlɔ, ɲininiw y’a jira ko bana caman wɛrɛw bɛ tali kɛ a la.
Faratiba min bɛ nin ko in na, o ye ko nin nɔ ninnu bɛ se ka bɔ hali san caman kɔnɔ a tali kɔfɛ . Ani fana, k’a sababu kɛ o ye nɔ minnu bila bangebagaw la, hali denmisɛn minnu wolola, bangekɔlɔsi fɛɛrɛw tun bɛ olu la .
Bana minnu dɔnna, olu dɔw bɛ sɔrɔ lisi min bɛ duguma.
- Kansɛri suguyaw:
- Sugunɛbilenni kansɛri
- B-cell jolidɛsɛ
- Hodgkin ka banakisɛfagalanw
- Miyɛloma caman
- Linfoma min tɛ Hodgkin ye
- Kansɛri min bɛ sɔrɔ ɲɛgɛnɛsira la
- Ninakilidegun kansɛri (misali la fogonfogon kansɛri) .
- Sarkoma min bɛ kɛ farikolo yɔrɔ nɔgɔlenw na
- Bana juguman wɛrɛw:
- AL amyloïdose - farikolojɔlifɛn dɔ bilali farikolo yɔrɔw la min tɛ cogo la.
- Kulorokini - faritanabana jugumanba don.
- Jabɛti suguya 2nan
- Hypothyroïdie - thyroïde gland ka baara dɔgɔyali.
- Dusukun tantanni (ischemic heart disease) - Joli sira minnu bɛ joli lase dusukun ma, olu datuguli.
- Parkinson ka bana ni Parkinson ka bana
- Neuropathie périphérique (banakisɛfagalanw) minnu bɛ sɔrɔ farikolo yɔrɔw la
- Porphyria - bana min bɛ fari ni farikolo yɔrɔw minɛ.
- Bangekɔlɔsi jugumanba, kɔnɔtiɲɛ, ani den falencogo juguman.
Agent Orange bɛ nin nɔ ninnu sɔrɔ cogo di?
O tiɲɛni bɛɛ ju ye kemikɛlifɛn dɔ ye min bɛ wele ko diyɔsini min bɛ sɔrɔ Agent Orange kɔnɔ. Diyɔsini ye fɛn ye min bɛ baga kosɛbɛ, a bɛ sɔrɔ ni kulori, karɔbɔli ani idɔrɔzi jeni. A ka jugu kosɛbɛ hadamadenw, baganw ani jiriw ma.
Ni diyɔsini donna farikolo la, a bɛ an farikolo yɔrɔ nafamaw, farikolokisɛw, farikolo tangacogo ani ɔrimɔni tiɲɛ. diyɔsini ye kansɛribana fura barikama ye .
O nɔ juguyara kosɛbɛ, bawo a fiyɛra sigida la ka tɛmɛ a dilannikɛla ka hakɛ fɔlen kan siɲɛ 20 . O nɔ bɛ ye hali bi Vietnam jamana dɔw la ani mɔgɔ minnu y’u sen don kɛlɛ la.
O kɛra mɔgɔw la cogo di?
- Ni aw bɛ sisi baga fiyɛ.
- Ni aw bɛ dumuni walima ji min min nɔgɔlen don ni furakisɛ ye.
- Ni a magara fari la ani ka don farikolo la fari fɛ.
- Fura minnu bɛ fiɲɛ na, olu bɛ don farikolo la ɲɛ, da walima fari joginda fɛ.
O bana ninnu bɛ furakɛ cogo di?
Furakɛli kelen tɛ kɛ Agent Orange tali nɔw la. Furakɛli bɛ bɔ bana kɛrɛnkɛrɛnnen na min bɛ mɔgɔ la.
- opereli ka kuruw bɔ walima ka kansɛri furakɛ ni fiɲɛ ye .
- opereli min bɛ kɛ walasa ka bangekɔlɔsi fɛɛrɛw latilen .
- Fura dicogo banaw ma i n’a fɔ sukarodunbana ni Parkinson .
- Dumuni nafama dunni, dumuni dafalen.
Min nafa ka bon kosɛbɛ, o ye ko dɔgɔtɔrɔ bɛna aw sɛgɛsɛgɛ ani ka fura ɲuman dɔn aw ye. Furakɛli min bɛ baara kɛ mɔgɔ dɔ ye, a bɛ se ka kɛ ko a tɛna ɲɛ mɔgɔ wɛrɛ ma.
An bɛ se ka kalan nafama min sɔrɔ nin maana in na, o ye cogo min na, tiɲɛni kuntaalajan, bɔnsɔnw ni ɲɔgɔn cɛ, bɛ se ka kɛ hadamadenw na, ni kemikɛli bagajiw ye minnu bɛ bɔ sigida la.
O la, ni nin barokun kofɔlen taamasiɲɛ minnu ka ca ni kelen ye (misali la, sɛgɛn kojugu kun t’a la, bolow ni senw bɛ kirin, banakisɛw bɛ to ka sɔrɔ) waati kelen na ani waati jan kɔnɔ, aw kana aw hakili ɲagami o la , aw bɛ taa dɔgɔtɔrɔso la joona walasa ka laadilikan sɔrɔ
Take-Home cikan
- Agent Orange ye binfaga ye min baga ka bon kosɛbɛ, a tun bɛ kɛ Vietnam kɛlɛ waati la.
- Fura min bɛ yan, o ye diyɔsini ye, o bɛ bana jugu caman lase mɔgɔ ma, kansɛri fana sen bɛ o la.
- Nin fura in tali nɔ bɛ se ka ye hali san caman kɔfɛ.
- O bɛ se ka nɔ bila bangebagaw la, ka bangekɔlɔsi jugumanba lase u denw yɛrɛ ma.
- Hali n’o tɛ tali kɛ Sri Lanka la, kalan nafamaba don min b’an kalan sigida nɔgɔli bɛ se ka tiɲɛni min lase hadamadenw ka kɛnɛya ma.
- A nafa ka bon tuma bɛɛ ka dɔgɔtɔrɔ ka ladilikan ɲini ni taamasiɲɛw bɛ aw la minnu ɲɛfɔlen tɛ, minnu bɛ mɛn sen na.
👩🏽 ⚕️ Ɲininkali wɛrɛw (FAQs)
💬 Pirfenidone (Esbriet) furakisɛw/furakisɛw ye fura kɛrɛnkɛrɛnnenba ye min bɛ di bana jumɛn na?
Nin tɛ fura gansan ye dɛ! Nin ye farikolojidɛsɛ fura ye min fanga ka bon ani min sɔngɔ ka gɛlɛn diɲɛ kɔnɔ, min bɛ fogonfogon sɔgɔsɔgɔni ni fogonfogon dɛsɛ hakɛ sumaya bana juguba in na min bɛ wele ko ‘Idiopathic Pulmonary Fibrosis (IPF)’, o ye bana ye min na an fogonfogon bɛ sɔgɔsɔgɔ/ka sɔgɔsɔgɔ ani an tɛ se ka ninakili (ka sɔgɔsɔgɔ) k’a sɔrɔ kun jɛlen tɛ !
💬 Ni fogonfogonw sirilen don, furakisɛ ninnu (Esbriet) tali bɛ fogonfogonw dɛmɛ cogo di?
Ni an fogonfogon joginna, fiɲɛbanakisɛw bɛ don ka kolajɛ kɛ, o bɛ kɛ sababu ye ka joginda bila mɔgɔ la, nka IPF la, o farikolokisɛw bɛ kɛ diɲɛnatigɛla ye ka fogonfogon bɛɛ jogin. Ni furakisɛ in donna an fogonfogon la, a bɛ farikolojɔli dumuni min bɛ wele ko TGF-beta (o de b’a fɔ farikolo ye a ka kolajɛ dilan) bali/ka a datugu pewu. O bɛ dɔ bɔ kosɛbɛ fogonfogon la sɔgɔsɔgɔninjɛ hakɛ la.
💬 Mun na a bɛ fɔ mɔgɔ minnu bɛ fura in (Pirfenidone) ta, olu kana bɔ tile la (Fotosensitivité)? Farati jumɛnw bɛ o la?
Gɛlɛya belebeleba ye ko ni aw ye furakisɛ in ta, aw fari bɛ kɛ ‘tile yeelen (UV yeelen)’ (Fotosensitivity) ye kosɛbɛ! Hali ni aw bɔra tile la dɔɔni, aw fari bɛ jeni i n’a fɔ tasuma (Sunburn) ani ka kuru belebelebaw to yen (o la tilekunfura ni fini datugulenw nafa ka bon). Ani fana, o bɛ se ka kɛ sababu ye ka sugunɛ tiɲɛ kosɛbɛ ani ka bana bila a la (Elevated Liver Enzymes), o la ni kɔnɔboli/fɔɔnɔ bɛ aw la, aw ka kan ka o fɔ aw ka dɔgɔtɔrɔ ye joona.
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