Ðe ɖeɖi tea ŋuwò ŋutɔ ɣeaɖewoɣia? Le ɣeyiɣi ma ke me la, ɖe nèkpɔ dzesi wɔnukuwo abe ƒunukpeƒeveame, asibidɛ siwo vuvu, kple ɣeaɖewoɣi wò asibidɛwo ƒe nugbɔwo zua blɔ kple blɔ ne èdo go vuvɔa? Ðe dɔléle siawo ƒe dzesi siwo dzena zi ɖeka hã ɖea fu na wòa? Ekema esia ate ŋu anye nɔnɔme si mebɔ o si woyɔna be Mixed Connective Tissue Disease, alo MCTD abe alesi míeyɔnae kpuie ene. Mègatsi dzi o, mina míaƒo nu tso esia ŋu bɔbɔe.
Nuka tututue nye MCTD?
Kpuie ko la, MCTD nye dɔléle si tsoa dɔlélenutsiŋutete gbɔ. Bu eŋu ale: míaƒe ŋutilã ƒe ametakpɔnu, si nye dɔlélenutsiŋutete, li be wòakpɔ mía ta tso dɔlékui siwo hea dɔléle vɛ me. Gake le dɔléle sia ƒomevi me la, mía ŋutɔwo ƒe ametakpɔnu bua vodadatɔe be mía ŋutɔwo ƒe lãmeka siwo le lãmesẽ me nye futɔwo eye wòdzea wo dzi dzedze gɔme.
MCTD ƒe etɔxɛe nye be menye dɔléle ɖeka koe wònye o, ke boŋ enye kadodoŋusẽ ƒe dɔléle gã etɔ̃ bubuwo ƒe dzesiwo ƒe ƒuƒoƒo. Esia tae woyɔnɛ be "Mixed". Wogayɔnae be "overlap syndrome". Dɔléle etɔ̃awoe nye:
- Systemic lupus erythematosus (SLE): Zi geɖe la, míeyɔa esia be ‘lupus’.
- Scleroderma: Esia nana ŋutigbalẽa ƒoa ke eye wòsesẽna.
- Polymyositis: Esia nana lãmekawo gbɔdzɔna eye wovuvuna.
Ame aɖewo ate ŋu aɖe nɔnɔmewo abe ŋutigbalẽ ƒe dɔléle, ƒunukpeƒetetedɔ, alo Sjögren ƒe dɔléle ene ƒe dzesiwo hã afia tsɔ kpe ɖe dzesi siawo ŋu.
Nukae nye MCTD ƒe dzesiwo?
Zi geɖe la, dzesi siawo katã medzena zi ɖeka o. Wodzena ɖe wo nɔewo yome le ɣeyiɣi aɖe megbe. Eyata ate ŋu asesẽ be woakpɔ MCTD le gɔmedzedzea me.
| Dzesi si dzena | Numeɖeɖe bɔbɔe aɖe |
|---|---|
| Sese le eɖokui me be ɖeɖi te ye ŋu eye agbe mele ye si o | Ðeɖiteameŋu si gbɔ eme ɣesiaɣi le susu aɖeke manɔmee. Sese le ɖokuiwò me abe ɖe agbe mele wò ŋutilã me o ene. |
| Ŋutilã ƒe dzoxɔxɔ (asrã) . | Menye dzoxɔxɔ sesẽe o, ke boŋ ŋutilã ƒe dzoxɔxɔ sue aɖe si nɔa anyi ɖaa koe wònye. |
| Lãmetsiwo kple ƒunukpeƒewo ƒe vevesese | Lãmetsiwo ƒe vevesese kple gbɔdzɔgbɔdzɔ, kple ƒunukpeƒe siwo vuvu, siwo sesẽ kple vevesese. |
| Raynaud ƒe nudzɔdzɔa | Esia nye dzesi si bɔ ɖe ame geɖe me. Ne vuvɔ le ame ŋu alo le nuteɖeamedzi me la, ʋu si sina yia asiwo, afɔwo, ŋɔti, kple tomekawo me dzi ɖena kpɔtɔna, si wɔnɛ be kasia wozua blɔ, emegbe wozua blɔ. Emegbe wogatrɔna biãna eye wogatrɔna va nɔa nɔnɔme si sɔ me. Àte ŋu ase le ɖokuiwò me be yeƒe lãme gbã alo anɔ veve sem le ɣeyiɣi sia me. |
| Asibidɛwo ƒe vuvu | Asibidɛawo sena le wo ɖokui me be yevuvu eye ʋuʋudedi le wo ŋu. Ɣeaɖewoɣi la, esia nu yina le ŋkeke ʋɛ aɖewo megbe, gake le ɣeyiɣi aɖe megbe la, ame aɖewo ƒe ŋutigbalẽ ate ŋu asẽ si ana wòasesẽ be woabɔbɔ woƒe asibidɛwo (sclerodactyly). |
| Ŋutilã ƒe teƒeteƒewo | Teƒe dzĩ alo aŋutiɖiɖi-blɔ alo abi siwo le abɔta. |
Aleke MCTD sena le eɖokui me ne exɔ dzo?
Ame siwo ŋu dɔléle sia le ate ŋu adze dzesi siwo nu sẽ ŋutɔ ɣeaɖewoɣi. Míeyɔa esia be ‘flare-up’. Le ɣeyiɣi sia me la, ƒunukpeƒeveame kple lãmekawo ƒe veve ate ŋu ava zu nusi dzi womate ŋu ado dzi atsɔ o. Abe amesi ŋu `Rheumatoid arthritis` le ene la, ƒunukpeƒewo ateŋu avuvu, asẽ, eye woase veve. `Raynaud ƒe nudzɔdzɔ` hã ateŋu adzɔ enuenu eye wòasẽ wu.
Nukae hea MCTD vɛ?
Womeke ɖe nusi tututu gbɔ dɔléle sia tso ŋu haɖe o. Menye dɔléle si ƒe dome wonyi tẽe o. Gake numekukuwo ɖee fia be ne kadodoŋusẽdɔléle le ƒomea me la, ame bubuwo ate ŋu axɔe le afɔku aɖe me. Gakpe ɖe eŋu la, wosusu be dɔlékui aɖewo, atikewo abe `polyvinyl chloride` kple `silica` ƒe amedzidzedze hã ateŋu ahe esia vɛ.
Amekawoe le afɔku me wu be woaxɔ dɔléle sia?
MCTD bɔ ɖe nyɔnu siwo xɔ tso ƒe 20-40 me wu.Le wo dome. Gake ema mefia be ŋutsuwo alo ame siwo xɔ ƒe bubuwo mate ŋu axɔe o. Ame sia ame, le ƒe ɖesiaɖe me, ate ŋu axɔ dɔléle sia.
Nukawoe nye kuxi siwo ate ŋu ado tso MCTD me?
MCTD nye dɔléle si ate ŋu ahe kuxi sesẽwo vɛ ɣeaɖewoɣi, eyata ele vevie ŋutɔ be woaɖu dɔlélea dzi.
Ðo ŋku edzi be menye amesiamee axɔ kuxi siawo katã o. Woate ŋu axe mɔ ɖe nusiawo dometɔ geɖe nu ne woda wo nyuie.
Kuxi vevi siwo dona tso eme dometɔ aɖewoe nye esi:
- Aklã me ʋusɔgbɔdɔ: Esiae nye nu vevitɔ si wua MCTD dɔnɔwo. Edzɔna ne ʋuka siwo tsɔa ʋu yia lãkusi me ƒe nyaƒoɖeamenu dzi ɖe edzi.
- Interstitial lung disease: Aɖuɖɔtoe ƒe lãkusiwo ƒe abi kple abi.
- Dzidɔ
- Ayikuwo ƒe gbegblẽ
- Nuɖuɖumeŋusẽ ƒe gbegblẽ
- Ʋusɔgbɔdɔ
- Lãmetsiŋusẽ ƒe ku (necrosis) .
- Tosese ƒe dɔmawɔmawɔ nyuie
Aleke ɖɔkta wɔa anya MCTD?
Abe alesi míegblɔe va yi ene la, dɔléle sia ƒe dzesiwo nyanya ate ŋu asesẽ elabena wodzena vivivi le ɣeyiɣi aɖe megbe. Ate ŋu axɔ ƒe geɖe hafi woanya nenye be MCTD ye. Ne dzesi siawo le ŋuwò la, anɔ eme be woaɖo wò ɖe ɖɔkta si bi ɖe ƒunukpeƒewo kple dɔlélenutsiŋutete ƒe dɔlélewo me, si woyɔna be ƒunukpeƒeŋutinunyala .
Ðɔkta dia nu vevi ene siwo ake be MCTD le eŋu:
1. Anti-U1-RNP dɔlékuiwutikewo ƒe agbɔsɔsɔ fũ le ʋu me: Esiae nye dodokpɔ vevitɔ si woatsɔ anya MCTD.
2. Ayiku alo lãmekawo ƒe dɔwɔwɔ ƒe kuxi sesẽ aɖeke meli o: Zi geɖe la, kuxi siawo ate ŋu asẽ ɖe lupus (SLE) dɔnɔwo dzi.
3. Ƒunukpeƒetetedɔ sesẽ kple aklã me ʋusɔgbɔdɔ ƒe anyinɔnɔ: Ƒã hafi wokpɔa esiawo ɖeɖeko le lupus alo scleroderma me.
4. Raynaud ƒe nudzɔdzɔ kple asibidɛwo ƒe vuvu: Dzesi siawo dzena le lupus dɔnɔwo ƒe 25% ko me.
Nukawoe nye atikewɔwɔ na MCTD?
MCTD ƒe atike aɖeke meli haɖe o. Gake atikewɔmɔnu nyui geɖewo li siwo ate ŋu akpe ɖe ŋuwò nàɖu wò dzesiwo dzi, axe mɔ ɖe kuxiwo nu, eye nànɔ agbe si sɔ. Atikewɔwɔ nɔ te ɖe nusiwo le abe alesi wò dzesiawo nu sẽe kple ŋutinu siwo ŋu wògblẽ nu le ene dzi.
| Atike ƒomevi aɖe | Taɖodzinu si le eŋudɔwɔwɔ |
|---|---|
| Corticosteroids ƒe atikewo | Kpɔɖeŋu: Prednisone. Ðe abi si le ŋutilãa me dzi kpɔtɔ eye nàtsi dɔlélenutsiŋutete ƒe dɔwɔwɔ nu. |
| Atike siwo wozãna tsɔ tsia asrãdɔ nu | Kpɔɖeŋu: Hydroxychloroquine ƒe atike. Xɔ mɔ ɖe dɔlélea ƒe ʋuʋu nu eye nàɖu dzesi siwo mesẽ o dzi. |
| Calcium ƒe mɔxenu siwo xea mɔ na ʋuwo | Kpɔ Raynaud ƒe nudzɔdzɔa dzi. Esiawo nana lãmeka siwo le ʋukawo ƒe gliwo me la ɖea dzi ɖi. |
| Dɔlélenutsiŋutete ƒe dɔlélenutsiŋutete bubuwo | Ne ŋutinu veviwo (abe lãkusi, dzi ene) gblẽ nu le eŋu la, ɖu dɔlélenutsiŋutete dzi nyuie. |
| Atike siwo wozãna tsɔ tsia ʋusɔgbɔdɔ nu | Kpɔ aklã me ʋusɔgbɔdɔ dzi. |
Nu kawoe nàte ŋu awɔ atsɔ alé be na ɖokuiwò?
Tsɔ kpe ɖe atikewo nono ŋu la, tɔtrɔ suesuesuewo wɔwɔ le wò agbenɔnɔ me ate ŋu akpe ɖe ŋuwò ŋutɔ be nàɖu dzesi siawo dzi.
- Vevesesenutsitikewo zazã: Le vevesese kple abi si nu mesẽ o gome la, àte ŋu ano atike siwo me steroid mele o siwo tsia dzodzodzoetsitsi nu (NSAIDs) abe Ibuprofen ene, ne èbia wò ɖɔkta vɔ .
- Takpɔkpɔ tso vuvɔ me: Esia le vevie be nàxe mɔ ɖe Raynaud ƒe nudzɔdzɔa nu. Do asigɛwo kple tomeka ne èle dodom le vuvɔŋɔli. Ðe tsi fafɛ kple nufamɔ̃ si gbɔ eme ƒe kadodo dzi kpɔtɔ.
- Ƒo asa na atamanono:Sigaretnono xea mɔ na ʋukawo. Esia ate ŋu ana Raynaud ƒe dɔlélea nagagblẽ ɖe edzi. Eyata ne ènoa atama la, ele vevie ŋutɔ be nàdzudzɔ.
- Ðe nuteɖeamedzi dzi kpɔtɔ: Nuteɖeamedzi ate ŋu ahe Raynaud ƒe nudzɔdzɔa hã vɛ. Eyata dze agbagba nàna wò susu nadze akɔ anyi to nuwo abe gbɔgbɔ ƒe kamedede kple ŋugbledede ene dzi. Di kpekpeɖeŋu tso susumedɔléle ŋuti aɖaŋuɖola gbɔ ne ehiã.
Ɣekaɣie wòhiã be nàyi ɖɔkta gbɔ?
Ne dzesi siwo ŋu míeƒo nu tsoe va yi dometɔ aɖe le ŋuwò, vevietɔ ne wole nu gblẽm le wò gbesiagbedɔwo ŋu la, anyo be nàyi ɖɔkta gbɔ. Ne lãmeka alo ƒunukpeƒe yeyewo le veve sem na wò, asibidɛwo vuvu, alo Raynaud ƒe dzesiwo le ŋuwò la, anyo wu be nàyi ɖɔkta gbɔ aɖado wo kpɔ.
Nya aɖewo siwo nàte ŋu abia ɖɔktaa:
* Nuka gbɔe nye dzesiawo tsona?
* Ðe kadodoŋusẽdɔléle siwo wu ɖeka le ŋunyea?
* Dodokpɔ kawoe wòle be mawɔ?
* Nukawoe nye atike siwo wozãna na dɔléle sia?
* Nukae mate ŋu awɔ atsɔ axe mɔ ɖe dzobibi nu?
Agbenɔnɔ kple dɔléle sia ate ŋu asesẽ ɣeaɖewoɣi. Gake ne wowɔ atike na wò nyuie eye nènɔ agbe nyuie la, àte ŋu anɔ agbe nyuie. Nɔ kadodo me kple wò ɖɔkta eye nàƒo nu tso nusiwo ŋu nètsi dzi ɖo ŋu gaglãa.
Gbedasi si Wotsɔ Yi Aƒeme
- MCTD nye dɔléle sesẽ aɖe si mebɔ o, si nana dɔléle geɖe ƒe dzesiwo va ƒoa ƒu.
- Esi wònye be dzesiawo dzena ɖe wo nɔewo yome ta la, ate ŋu axɔ ɣeyiɣi aɖe hafi woate ŋu anya dɔlélea nyuie.
- Togbɔ be womate ŋu ada dɔléle sia keŋkeŋ o hã la, woate ŋu aɖu dzesiawo dzi, axe mɔ ɖe kuxiwo nu, eye woanɔ agbe si sɔ.
- Takpɔkpɔ tso vuvɔ me, atamanono, kple nuteɖeamedzi dzi ɖuɖu kpena ɖe ame ŋu ŋutɔ le dzesiawo dzi ɖeɖe kpɔtɔ me.
- Ƒo nu tso wò nɔnɔmea ŋu na wò ɖɔkta ɣesiaɣi eye nàyi dodokpɔ kple atikewɔwɔ siwo sɔ dzi. Menye wò ɖeka koe o!
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