Ðe nèsea veve kple vevesese le wò ŋutilã me, ƒunukpeƒeveame, alo tɔtrɔ bubu aɖe le wò ŋutigbalẽ ŋu zi geɖea? Ɣeaɖewoɣi la, míeŋlɔa nusiawo be, hesusuna be ɖeɖiteameŋu alo tsitsi si sɔ ko wonye. Gake ɣeaɖewoɣi la, dzesi siawo siwo dze abe ɖe womedo ƒome kple wo nɔewo o ene ate ŋu anye nane si le edzi yim le míaƒe ŋutilã me goglo la ƒe dzesi. Ema nye dɔléle siwo ŋu míele nu ƒom tsoe egbea la dometɔ ɖeka. Emae nye kadodoŋusẽdɔléle, alo abe alesi míegblɔna le Eŋlisigbe me ene la, ‘Kadodoŋusẽdɔléle’.
Kpuie ko la, nukae nye kadodoŋusẽ?
Bu míaƒe ŋutilã abe xɔ ene. Míezãa nuwo abe siminti kple aŋɔ ene tsɔ doa ka kple xɔ sia ƒe akpawo heléa wo ɖe wo nɔewo ŋu, be woanɔ te sesĩe, alo? Nenema ke woyɔa lãmeka ƒomevi si doa ka kple nusianu si le míaƒe ŋutilã me, abe ŋutinuwo, ƒuwo, kple lãmekawo ene, doa alɔe, eye wòkpɔa eta, be kadodoŋusẽ . Esiawo nye lãkusi siwo me protein sɔ gbɔ ɖo. Ami, ƒu, kple ƒunukpeƒetetedɔ nye kadodoŋusẽ sia ƒe kpɔɖeŋu aɖewo.
Eyata, nɔnɔme siawo siwo gblẽa nu le kadodoŋusẽ ŋu lae nye nusi míeyɔna be ‘Kadodo ƒe Dɔléle’. Dɔléle ƒomevi siwo wu 200 ye le hatsotso sia me. Esiawo ate ŋu akpɔ ŋusẽ ɖe wò ƒunukpeƒewo, lãmekawo kple ŋutigbalẽ dzi koŋ. Woateŋu akpɔ ŋusẽ ɖe ememe ŋutinuwo abe ŋku, dzi, lãkusi, ayiku kple ʋukawo hã dzi.
Dɔléle siawo ƒomevi vevi evee li.
Woate ŋu ama dɔlélewo ƒe hatsotso sia ɖe hatsotso vevi eve me. Ema gɔmesese akpe ɖe ŋuwò nàse dɔléle siawo gɔme nyuie wu.
| Dɔléle ƒomevi | Tamebubu kple numeɖeɖe |
|---|---|
| Dɔléle Siwo Dome Ame | Esiawo nye dɔléle siwo domenyiŋusẽfianu ƒe gbɔdzɔgbɔdzɔwo hena vɛ. Eyae nye nɔnɔme siwo ƒe dome wonyi tso dzilawo gbɔ na viwo. Zi geɖe la, nusiawo mebɔ kura o. |
| Dɔlélenutsiŋutete ƒe Dɔlélewo | Nusi dzɔna le afisiae nye be dɔlélenutsiŋutete si wosusu be akpɔ míaƒe ŋutilã ta la dzea mía ŋutɔwo ƒe kadodoŋusẽ si le lãmesẽ me dzi vodadatɔe. Togbɔ be womenya nusi tututu gbɔ wòtso o hã la, woxɔe se be nusiwo le nutoa me (dzudzɔ, ke), nunyiame ƒe veve (vitamin D, C), dɔlékuiwo, kple ɣe ƒe keklẽ si gbɔ eme ate ŋu awɔ akpa aɖe. |
Domenyiŋusẽ ƒe dɔléle gã aɖewo
- Ehlers-Danlos Syndrome (EDS): Esia nana ƒunukpeƒewo te ŋu trɔna akpa, ŋutigbalẽa kekena, eye abi siwo mesɔ o nɔa wo ŋu ne abi le dɔ dam. Aklã ƒe dɔmawɔmawɔ nyuie kple dzitodzito ƒe kuxiwo hã ate ŋu ado mo ɖa.
- Marfan ƒe Dɔléle: Zi geɖe la, ame siawo kɔkɔ ŋutɔ. Asibidɛawo didi ale gbegbe be woate ŋu adze abe akpɔkplɔ ƒe afɔwo ene. Kuxiwo ate ŋu ado mo ɖa le ŋku, dzi, kple ʋuka vevi (aorta) ŋu.
- Osteogenesis Imperfecta: Wogayɔa esia be "ƒumeŋuɖui ƒe dɔléle." Ƒuwo gbãna bɔbɔe. Dzesiawo dometɔ aɖewoe nye ŋku ɣiwo ƒe amadede blɔ/ɣi, aɖuwo ƒe gbagbã bɔbɔe, kple tosese. Esia tsoa domenyiŋusẽfianu ƒe gbɔdzɔgbɔdzɔ si le collagen, si nye protein si hiã vevie na ƒuwo kple ŋutigbalẽ ƒe wɔwɔ me gbɔ.
- Epidermolysis Bullosa (EB): Ŋutilãa va nɔa veve sem ŋutɔ. Abi sue aɖe alo atutu ɖe awu ŋu gɔ̃ hã ate ŋu ana ame naxɔ abi eye wòaxɔ abi.
Zi geɖe la, woate ŋu ade dzesi domenyiŋusẽfianu ƒe nɔnɔme siawo le woƒe ɖevime.
Dɔléle geɖe siwo dɔlélenutsiŋutete hena vɛ
Esiawoe nye kadodoŋusẽdɔléle ƒomevi siwo bɔ wu.
- Rheumatoid Arthritis (RA): Menye ƒunukpeƒetetedɔ koe esia nye o. Le nɔnɔme sia me la, dɔlélenutsiŋutete dzea lãkusi tsɛ si tsyɔ ƒunukpeƒewo dzi. Esia nana ƒunukpeƒewo sea veve, vuvu, dzoxɔxɔ, eye ŋdi me ƒunukpeƒewo sẽna . Tsɔ kpe ɖe eŋu la, ɖeɖiteameŋu sesẽ, ʋusɔgbɔdɔ, kple gbɔdzɔgbɔdzɔ ƒe seselelãme ate ŋu anɔ eme.
- Systemic Lupus Erythematosus (SLE) - Lupus: Lupus nye dɔléle si ateŋu adze ŋutilã ƒe akpa geɖe dzi le ɣeyiɣi ɖeka me. Kpakpaluʋui ƒe ʋuʋudedi nye dzesi si bɔ . Tsɔ kpe ɖe eŋu la, nu me ƒoƒo, taɖa ƒe vuvu, ɣe ƒe keklẽ ƒe seselelãme, ayiku ƒe kuxiwo, kple ƒunukpeƒeveame ate ŋu ado mo ɖa.
- Scleroderma: Esia ƒe dzesi vevitɔe nye ŋutigbalẽa ƒe ƒoƒo kple sesẽ. Mekekena nyuie o. Esia ate ŋu anye ŋutigbalẽa ko, alo ate ŋu agblẽ nu le ŋutinu siwo le ememe ŋu.
- Sjögren ƒe Dɔléle: Le nɔnɔme sia me la, dɔlélenutsiŋutete dzea lãkusi siwo naa aɖuɖɔ kple aɖatsiwo la dzi. Ŋku ƒe ƒuƒu kple nu ƒe ƒuƒue nye dzesi vevitɔwo. Ðeɖiteameŋu kple ƒunukpeƒeveame hã bɔ.
- Polymyositis kple Dermatomyositis: Dɔléle siawo evea siaa nana lãmekawo xɔa abi, si wɔnɛ be lãmekawo gbɔdzɔna ., vevietɔ le abɔta kple akɔta. Eva sesẽna be woafɔ tso zikpui dzi alo alia atrakpui. Dermatomyositis hã gblẽa nu le ŋutigbalẽa ŋu, vevietɔ le ŋkuwo ŋu kple asiwo.
Aleke nàwɔ anya ne dɔléle sia le ŋuwò?
Ne dzesi siawo le ŋuwò la, nu vevitɔ si nàte ŋu awɔe nye be nàyi ɖɔkta bibi aɖe gbɔ. Ðeko ameɖokuidzidzedze ahe vɔvɔ̃ si mehiã o vɛ. Wò ɖɔkta ado wò kpɔ ahabia wò dzesiwo kple wò ƒomea ƒe atikewɔwɔ ŋutinya.
Le ema megbe la, woate ŋu aɖo aɖaŋu be woawɔ dodokpɔ geɖe atsɔ aɖo kpe dɔlélea dzi:
- Ʋu kple aɖuɖɔ dodokpɔ: Kpɔe ɖa be dɔdzẽ kple dɔlékuiwutike tɔxɛ aɖewo le ŋutilãa me hã.
- X-ray kple MRI scan: Kpɔ ƒuwo, ƒunukpeƒewo, kple ŋutinu ememetɔwo ƒe nɔnɔme ɖa.
- Tissue Biopsy: Woaɖe ŋutigbalẽ alo lãmeka sue aɖe ŋutɔ atsɔ adoe kpɔ le nusuekpɔmɔ̃ me.
- Kpɔe ɖa be ŋku kple nu ƒu hã: De dzesi nɔnɔmewo abe Sjögren ƒe Dɔléle ene.
Dɔléle siawo didi ate ŋu asesẽ ɣeaɖewoɣi elabena dzesi mawo ke ate ŋu adze le dɔléle geɖe me. Eyata ele vevie be nàna ɣeyiɣi ɖɔktaa be wòakpɔ dɔlélea nyuie.
Aleke wowɔa atike nɛ?
Atikewɔwɔ ƒe tiatia nɔ te ɖe dɔléle ƒomevi tɔxɛ si le ŋuwò kple eƒe sesẽ dzi bliboe. Atikewɔwɔ ɖeka aɖeke meli si sɔ na amewo katã o.
- Le ame aɖewo gome la, vitamin alo nunyiametikewo nana wo ate ŋu asɔ gbɔ.
- Le dɔléle geɖe siwo dɔlélenutsiŋutete hena vɛ gome la, wonaa atike siwo kpɔa dɔlélenutsiŋutete ƒe dɔwɔwɔ dzi.
- Wona atikewo be woatsɔ aɖu vevesese kple abi dzi.
- Lãmesẽnyawo gbɔ kpɔkpɔ le vevie ŋutɔ be woalé ƒunukpeƒewo kple lãmekawo ƒe dɔwɔwɔ nyuie me ɖe asi.
- Ðewohĩ ahiã hã be nàdi kpekpeɖeŋu tso eŋutinunyala vovovowo gbɔ, abe ŋutigbalẽŋutinunyala alo ŋkudɔdala ene.
Nu vevitɔe nye be nànɔ kadodo me kple wò ɖɔkta edziedzi . Ne tɔtrɔ aɖe va le dzesiawo ŋu alo dzesi yeye aɖewo dze la, na wò ɖɔkta nanya enumake.
Ðe dɔléle siawo ate ŋu asẽa?
Ẽ, kadododɔ aɖewo ate ŋu ahe kuxi sesẽwo vɛ ne womeda wo nyuie o. Le kpɔɖeŋu me:
- Aklã me Ʋusɔgbɔdɔ
- Aklãdɔléle si le Interstitial Lung
- Dzidɔ kple ayiku ƒe gbegblẽ
- Ʋusɔgbɔdɔ
Gake mehiã be nàvɔ̃ le afisia o.Woate ŋu axe mɔ ɖe kuxi siawo dometɔ geɖe nu ahaɖu wo dzi ne wokpɔ dɔlélea le ɣeyiɣi nyuitɔ dzi eye wowɔ ɖe atikewɔwɔ kple aɖaŋuɖoɖo nyuiwo dzi. Esia tae míegblɔna be ne ènya se veve le wò ŋutilã me ko la, lé be nɛ.
Gbedasi si Wotsɔ Yi Aƒeme
- Menye dɔléle ɖeka koe Connective Tissue Disease nye o, ke boŋ enye dɔlélewo ƒe ƒuƒoƒo.
- Dzesi vovovowo ate ŋu ado mo ɖa, abe ƒunukpeƒeveame, ŋutigbalẽ ƒe tɔtrɔ, lãmekawo ƒe gbɔdzɔgbɔdzɔ, kple ɖeɖiteameŋu si gbɔ eme ene.
- Esiawo ate ŋu anye domenyiŋusẽfianu ƒe dɔléle siwo ƒe dome wonyi alo dɔléle siwo dɔlélenutsiŋutete hena vɛ le dɔlélenutsiŋutete ƒe kuxiwo gbɔ.
- Ne dzesi siwo womeɖe o siwo le edzi yim ɣeyiɣi didi aɖe le ŋuwò la, ke yi ɖɔkta gbɔ godoo. Mègadi ɖokuiwò to nyatakakawo didi le internet dzi me o.
- Ne wokpɔ dɔlélea nyuie eye wowɔ atike na ame ŋutɔ la, woate ŋu akpɔ nɔnɔme siawo gbɔ nyuie eye woate ŋu akpɔ agbe nyui nɔnɔ.
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