Ke ʻeha mau nei kou mau ʻiʻo a nāwaliwali paha? E kamaʻilio kākou e pili ana i ka Polymyositis!

Ke manaʻo nei ʻoe i kekahi manawa i ka ʻeha ma kou mau ʻiʻo, a i ʻole ka manaʻo o ke kōkua ʻole? A i ʻole he pilikia paha kekahi āu i ʻike ai? Hiki i kēia mau mea ke hoʻopilikia maoli iā mākou i ko mākou ola o kēlā me kēia lā. I kēia lā e kamaʻilio mākou e pili ana i kahi maʻi e hoʻopilikia i ko mākou mau ʻiʻo, akā ʻaʻole maʻamau loa. Ua kapa ʻia kēia he polymyositis.

He aha ka Polymyositis? I ka ʻōlelo maʻalahi...

I ka ʻōlelo maʻalahi, he maʻi autoimmune kakaikahi ka polymyositis. Ke lohe ʻoe i ka huaʻōlelo "maʻi autoimmune," he mea paʻakikī paha ke hoʻomaopopo, ʻeā? E ʻae mai iaʻu e wehewehe penei.

Loaʻa iā kākou kahi ʻōnaehana pale ma ko kākou kino. Ua like ia me kahi pūʻali koa ma ko kākou ʻāina. ʻO ke kuleana o kēia ʻōnaehana ka pale ʻana iā kākou ma ke kaua ʻana i nā germs a me nā mea hoʻoulu maʻi mai waho. Eia naʻe, i kekahi manawa hele hewa kēia ʻōnaehana pale o kākou. A laila hoʻomaka ia e hoʻouka ʻaʻole wale i nā ʻenemi mai waho, akā, i nā pūnaewele olakino a me nā ʻiʻo o ko kākou kino ponoʻī. ʻO ia ke ʻano i kapa ʻia he maʻi autoimmune.

ʻO ia ka mea e hana ʻia ana i ka polymyositis. Hoʻomaka kā mākou ʻōnaehana pale e hoʻouka i ko mākou mau ʻiʻo ponoʻī, ʻo ia hoʻi, nā ʻiʻo. He ʻano myositis kēia. ʻO ka Myositis kahi mumū mau loa, ʻo ia hoʻi, ka pehu ʻana o nā ʻiʻo. Hele mai kēia mumū a hala i ka hala ʻana o ka manawa, a i ka hopena e hoʻonāwaliwali i ko mākou mau ʻiʻo.

Inā loaʻa iā ʻoe ka polymyositis, hiki i kēia mumū ke loaʻa i kekahi mau ʻiʻo i ka manawa hoʻokahi. He mea maʻamau ia i nā ʻiʻo kokoke i waenakonu o ke kino. Eia kekahi laʻana:

• Ma kou mau lima (nā lima)
• Ma ka ʻāpana o ka ʻūhā a me nā ʻūhā
• I loko o ka umauma
• Hoʻi
• I loko o ka ʻōpū
• Ma ka ʻāʻī

ʻAʻole maopopo loa i nā kauka ke kumu o ka polymyositis, a ʻaʻohe lāʻau lapaʻau. Akā hiki i ke kauka ke kōkua iā ʻoe e mālama i kāu mau hōʻailona a hoʻokele i ke ʻano o ko lākou hopena i kou ola o kēlā me kēia lā.

Pehea ka maʻamau o kēia maʻi?

He maʻi laha ʻole ka Polymyositis. Manaʻo nā loea he emi ma mua o 25 o 100,000 mau kānaka e loaʻa ana i ka maʻi i kēlā me kēia makahiki. No laila hiki iā ʻoe ke noʻonoʻo i kona laha ʻole.

He aha nā hōʻailona o kēia? Pehea mākou e ʻike ai?

Aia kekahi mau hōʻailona maʻamau o ka polymyositis. E nānā kākou i ko lākou ʻano:

• Nāwaliwali o nā ʻiʻo: Manaʻo paha ʻoe e nalowale ana ka ikaika o kou mau ʻiʻo, ʻoiai ma kou mau poʻohiwi a me kou mau pūhaka.
• ʻEha a me ka ʻoʻoleʻa o nā ʻiʻo: He mea ʻeha paha ke hoʻopā aku.
• Paʻakikī ke ale ʻana: Ua kapa ʻia kēia e nā kauka he "dysphagia." Manaʻo ia ʻaʻole e iho ana ka meaʻai a mea inu paha i loko o kou puʻu.
• Paʻakikī i ka ʻōlelo ʻana: Lilo nā huaʻōlelo i mea hūpō, e paʻakikī ai ke ʻōlelo maopopo.
• Paʻakikī ka hanu ʻana a i ʻole ka pōkole o ka hanu: Ua kapa ʻia kēia he "dyspnea." Manaʻo paha ʻoe e like me ʻoe e pilikia ana i ka hanu ʻana me ka hoʻoikaika iki.
• Luhi mau: ʻAʻohe mea pehea ka nui o kāu hiamoe ʻana, manaʻo ʻoe ʻaʻohe ou ikaika, luhi mau ʻoe.
• ʻEha hui.
• Kuni.
• ʻOʻoleʻa o ke kino: Manaʻo kou kino he ʻoʻoleʻa e like me ka lāʻau, ʻoiai ke ala ʻoe i ke kakahiaka.
• Ka emi ʻana o ke kaumaha.

Hiki i kēia mau hōʻailona ke hoʻolilo iā ʻoe i mea paʻakikī ke hana i kāu mau hana maʻamau. E noʻonoʻo e like me kēia:

• He mea paʻakikī ke ala aʻe mai ka noho ʻana ma luna o ka noho.
• Manuʻa koʻu mau wāwae i koʻu piʻi ʻana i nā alapiʻi.
• He mea paʻakikī ke hāpai i kahi mea kaumaha.
• He mea paʻakikī ke hāpai i kou lima a hāpai i kahi mea.

ʻO kahi mea nui e hoʻomanaʻo ai: Hiki i kekahi o nā hōʻailona o ka polymyositis ke alakaʻi i nā pilikia e hiki ke hoʻoweliweli i ke ola. No laila, inā manaʻo ʻoe e pilikia ana ʻoe i ka hanu ʻana a ʻaʻole hiki ke ale pono, e hele i ka haukapila a kāhea koke i kahi ambulance . He mea nui e kamaʻilio me kāu kauka e pili ana i kēia mau mea a e noho mākaukau.

No ke aha e kū mai ai ka polymyositis? He aha ke kumu?

E like me kā mākou i kūkākūkā ai ma mua, he maʻi autoimmune ka polymyositis. Akā, ʻaʻole maopopo i nā loea ke kumu o ia mea. ʻO ia hoʻi, he mea pohihihi nō ke kumu e hoʻomaka koke ai kā mākou ʻōnaehana pale e hoʻouka i ko mākou kino ponoʻī.

I kekahi manawa hiki ke hoʻomaka wale ka polymyositis me ke kumu ʻole. Kāhea nā kauka i kēia he "idiopathic." Eia nō naʻe, i kekahi mau hihia, hiki ke hoʻoulu ʻia e nā kūlana olakino ʻē aʻe a i ʻole nā ​​​​​​hopena i kekahi mau lāʻau lapaʻau.

ʻOi aku ka nui o kou loaʻa ʻana o ka polymyositis inā loaʻa iā ʻoe nā maʻi autoimmune ʻē aʻe. Eia kekahi laʻana:

• Lupus
• ʻO ka ʻāʻī rheumatoid
• ʻO ka ʻeha koko

Eia kekahi, hiki i kekahi mau maʻi viral ke hoʻonui i ka polymyositis.

• Covid-19 `(COVID-19)`
• Ka maʻi palū (ka maʻi palū)
• ʻO ke anu maʻamau
• HIV `(HIV)`

ʻO wai ka mea i ʻoi aku ka paʻakikī o ka loaʻa ʻana? He aha nā kumu pilikia?

ʻOiai hiki i kekahi ke hoʻomohala i ka polymyositis, ʻoi aku ka nui o kekahi mau hui e hoʻomohala iā ia.

• No nā wāhine: ʻOi aku ka nui o ka loaʻa ʻana o kēia maʻi i nā wāhine ma mua o nā kāne.
• No nā poʻe me nā maʻi autoimmune ʻē aʻe.
• No nā poʻe ma waena o 30 a me 60 mau makahiki: ʻOiai hiki ke ulu i kēlā me kēia makahiki, ʻoi aku ka maʻamau i waena o nā pākeke o kēia hui makahiki.

Pehea ʻoe e ʻike ai i kēia? Pehea e ʻike ai ke kauka i kēia?

Hoʻomaopopo ke kauka i ka polymyositis me kahi hoʻokolokolo kino a me nā hoʻokolohua ʻē aʻe. ʻO ka mea mua, e nīnau ʻo ia iā ʻoe e pili ana i kāu mau hōʻailona, ​​​​pehea ka lōʻihi o ko lākou ʻike ʻana, a pehea kou manaʻo. A laila, e nānā ʻo ia i kou mau ʻiʻo, ʻoiai nā mea nāwaliwali a hōʻike i nā hōʻailona. E nīnau pū ʻo ia iā ʻoe pehea kou manaʻo ke hana ʻoe i kekahi mau neʻe ʻana.

E hoʻohana kāu kauka i kekahi mau hoʻokolohua e hōʻoia i ka polymyositis. Hiki i kekahi o kēia mau hoʻokolohua ke kōkua i ka hoʻopau ʻana i nā kūlana ʻē aʻe e hoʻoulu ai i nā hōʻailona like. Hiki i kāu kauka ke hoʻohana i nā hoʻokolohua e like me kēia:

• Nā hoʻāʻo koko: Nānā kēia i nā enzymes ʻiʻo a i ʻole nā ​​​​antibodies e hōʻike ana inā ua hōʻino ʻia kou mau ʻiʻo.
• ʻO ke kiʻi MRI (Magnetic Resonance Imaging): Hiki i kēia ke nānā no ka mumū, a i ʻole ka pehu ʻana, i loko o kou mau ʻiʻo.
• Hoʻāʻo EMG (Electromyography): Hiki i kēia ke ʻike i ka hana ʻāʻī maʻamau ʻole.
• Biopsy ʻiʻo: Pili kēia i ka lawe ʻana i kahi ʻāpana liʻiliʻi o ka ʻiʻo i hoʻopilikia ʻia a nānā iā ia ma lalo o kahi microscope. Hiki i kēia ke hāʻawi i kahi manaʻo o ka nui o ka hōʻino ʻia i ka ʻiʻo ʻiʻo a me kona olakino holoʻokoʻa.

Aia kekahi lāʻau lapaʻau? Pehea ʻoe e mālama ai i kēia?

ʻO ka mea pōʻino, ʻaʻohe lāʻau lapaʻau no ka polymyositis. Akā, mai hopohopo. Hiki i kāu kauka ke ʻōlelo i nā lāʻau lapaʻau e kōkua i ka hoʻokele ʻana i ka mumū, a i ʻole ka pehu ʻana, i loko o kou mau ʻiʻo. ʻOiai ʻaʻole e hoʻōla loa kēia mau lāʻau lapaʻau i ka polymyositis, hiki iā lākou ke kōkua i ka hōʻemi ʻana i ka hopena o nā hōʻailona i kou ola o kēlā me kēia lā. Hiki i nā poʻe he nui ke kāohi i ka maʻi me kēia mau lāʻau lapaʻau, e hoʻokō ana i kahi manawa me ka ʻole o ka mumū a me nā hōʻailona liʻiliʻi (i kapa ʻia he 'remission').

ʻO nā lāʻau lapaʻau i hoʻohana pinepine ʻia no ka polymyositis:

• Corticosteroids: He ʻano lāʻau lapaʻau anti-inflammatory kēia i kuhikuhi ʻia e ke kauka. Kōkua lākou i ka hoʻomalu ʻana i ka pehu a me ka ʻeha.
• Nā Immunosuppressants: Hana kēia mau lāʻau lapaʻau ma ka hoʻemi ʻana i ka hana o kāu ʻōnaehana pale, kahi e hoʻemi ai i ka pōʻino hiki iā ia ke hana i kou mau ʻiʻo. I nā huaʻōlelo maʻalahi, ua like ia me ka hoʻomālielie ʻana i ko mākou pūʻali koa ponoʻī.
• ʻO ka Intravenous Immunoglobulin (IVIG): Pili kēia i ka hāʻawi ʻana iā ʻoe i kahi mahele hou o nā antibodies ma o kahi aa. Hiki i kēia lāʻau IVIG ke hoʻohuli hou i ka nānā ʻana o kāu ʻōnaehana pale. A laila hiki iā ia ke hoʻouka iki i nā ʻiʻo ponoʻī o kou kino. Ua like ia me ka hāʻawi ʻana i kāu ʻōnaehana pale i kahi hana e hana ai, no laila hiki iā ia ke hana i ka hōʻino liʻiliʻi i kou mau ʻiʻo.
• Hoʻōla kino:E aʻo aku kāu kauka a mea hoʻoponopono kino paha iā ʻoe i nā hoʻomaʻamaʻa kino a me nā kīkoʻo e mālama i nā ʻiʻo i hoʻopilikia ʻia i ka palupalu a me ka ikaika. Hiki i ka hoʻoponopono kino ke kōkua i ka hoʻoikaika ʻana i kou mau ʻiʻo a hōʻemi i nā hōʻailona polymyositis i ka wā e hiki mai ana.

Hiki ke pale ʻia kēia mai ka hana ʻana?

No ka mea, ʻaʻole ʻike ʻia ke kumu kikoʻī o kēia maʻi, ʻaʻohe ala e pale aku ai. ʻAʻole hiki iā mākou ke wānana i ka mea e loaʻa ai, i ka wā e ʻike ʻia ai nā hōʻailona, ​​a inā paha e hoʻi hou mai.

Pehea ke ʻano o ka noho ʻana me ka polymyositis? He aha ka mea e manaʻo ai?

ʻO ka maʻamau, he maʻi ka polymyositis no ke ola holoʻokoʻa. ʻOiai ʻaʻohe lāʻau lapaʻau, hiki i nā poʻe he nui ke mālama i ka maʻi a mālama i nā hōʻailona i ka liʻiliʻi me ka hui pū ʻana o nā lāʻau lapaʻau.

Eia nō naʻe, i kekahi mau hihia, hiki i ka polymyositis ke hoʻoulu i nā pilikia e hoʻoweliweli i ke ola. Hiki ke make, ʻoiai inā hoʻopilikia nui ia i nā ʻiʻo i loko o kou puʻu a me ka umauma e kōkua iā ʻoe e hanu a ale.

Hoʻoulu ka Polymyositis i ka mumū a me ka nāwaliwali i kou mau ʻiʻo, ʻoi aku hoʻi ma waenakonu o kou kino. Pono pinepine ʻoe e hoʻokele iā ia no ke koena o kou ola, me nā wā o nā hōʻailona e hele mai a hele aku. ʻOiai ʻaʻohe lāʻau lapaʻau mau loa, hiki i kāu kauka ke kōkua iā ʻoe e ʻimi i kahi hoʻolālā lapaʻau e kūpono iā ʻoe. Hiki i kēia ke kōkua i ka hōʻemi ʻana i ka hopena o ka maʻi i kou ola o kēlā me kēia lā. Hiki i nā poʻe he nui ke kāohi i ka maʻi a ʻike i nā hōʻailona liʻiliʻi.

Āhea wau e ʻike ai i ke kauka?

Inā loaʻa iā ʻoe ka nāwaliwali o nā ʻiʻo hou, ka ʻeha, a i ʻole nā ​​​​hōʻailona ʻē aʻe, ʻoiai inā ʻaʻole lākou e hoʻomaikaʻi i loko o kekahi mau lā, e ʻike koke i ke kauka.

E kamaʻilio me kāu kauka inā e ʻoi aku ka ʻino o kāu mau hōʻailona a i ʻole inā e pālahalaha ana lākou i nā wahi ʻē aʻe. E haʻi pū i kāu kauka inā manaʻo ʻoe ʻaʻole e holo pono ana kāu lāʻau lapaʻau e like me ka wā ma mua, a inā e ʻoi aku ka ʻino a ʻoi aku paha ka ʻino o kāu mau hōʻailona polymyositis.

Inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona, ​​e hele koke i kahi lumi pilikia a kāhea aku paha i 911 (a i ʻole kāu helu pilikia kūloko):

• Inā ʻaʻole hiki iā ʻoe ke hoʻoneʻe i kahi ʻāpana o ke kino hiki iā ʻoe ke hoʻoneʻe maʻamau.
• Inā pilikia ʻoe i ka hanu ʻana.
• Inā pilikia ʻoe i ka moni ʻana.

He aha nā nīnau āu e nīnau ai i kāu kauka?

He mea maikaʻi ke nīnau i kāu kauka i nā nīnau e like me kēia:

• Hiki paha iaʻu ke loaʻa i kekahi ʻano myositis ʻē aʻe?
• He aha ke ʻano o ka lāʻau lapaʻau e pono ai iaʻu?
• He aha nā hōʻailona a i ʻole nā ​​​​loli e pono iaʻu e makaʻala?
• ʻEhia pinepine e pono ai iaʻu e hele mai no nā hoʻokolohua e nānā i kaʻu mau hōʻailona a hoʻololi paha i kaʻu lāʻau lapaʻau?

He mea kēia i loaʻa mai nā hanauna mai?

Ua ʻike ʻia kekahi mau noiʻi he pilina genetic ko ka polymyositis (a me nā ʻano myositis ʻē aʻe). ʻO ke ʻano kēia, hiki i nā keiki ke hoʻoilina i kekahi mau hoʻololi genetic mai ko lākou mau mākua, kahi e hoʻonui ai i ko lākou pilikia o ka loaʻa ʻana o ke ʻano.

Eia nō naʻe, ʻaʻole i ʻike nā loea i nā hoʻololi genetic kikoʻī e hoʻoulu ai i ka polymyositis. A ʻaʻole hiki ke hōʻoia inā loaʻa iā ʻoe ka polymyositis, ua piʻi aʻe ka pilikia o kāu mau keiki i ka loaʻa ʻana iā ia.

Inā ʻoe e hopohopo nei e pili ana i ka hoʻoili ʻana i kēia mau maʻi i kāu mau keiki, e kamaʻilio me kāu kauka e pili ana i ke aʻo ʻana i nā ʻano genetic.

He aha ke kūlana o ke ola o kekahi kanaka me ka polymyositis?

ʻAʻole maʻamau ka hoʻopilikia ʻana o ka polymyositis i kou ola (pehea ka lōʻihi o kou ola ʻana). Eia nō naʻe, hiki iā ia ke hana i nā pilikia e hoʻoweliweli ai i ke ola, ʻoiai inā nāwaliwali loa nā ʻiʻo ma kou ʻāʻī a me kou puʻu. Inā pilikia ʻoe i ka hanu ʻana a i ʻole ka moni ʻana, e haʻi koke i kāu kauka. Hiki iā ia ke kōkua iā ʻoe e hoʻoponopono i kāu lāʻau lapaʻau e hoʻokele i kēia mau hōʻailona ma mua o ko lākou lilo ʻana i mea weliweli.

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai

He maʻi paʻakikī a hoʻoweliweli hoʻi ka Polymyositis. Eia nō naʻe, me ke aʻo lapaʻau kūpono, ka lāʻau lapaʻau, a me kou hoʻolaʻa ponoʻī, ua hiki i ka poʻe he nui ke hoʻokele maikaʻi i ke kūlana a ola i nā ola holomua.

E hoʻomanaʻo, ʻaʻole ʻoe hoʻokahi. I ka wā e noho ai me kahi maʻi e like me kēia, he mea waiwai nui ke kākoʻo o ka ʻohana a me nā hoaaloha. He mea nui hoʻi e kamaʻilio ākea me kāu kauka e pili ana i kou mau hopohopo a me kou mau makaʻu. A laila wale nō hiki iā ʻoe ke hoʻomohala i kahi hoʻolālā lapaʻau kūpono iā ʻoe.

E kamaʻilio me kāu kauka e pili ana i ka pilikia o nā pilikia koʻikoʻi, ʻoiai nā mea e pili ana i nā ʻiʻo e kāohi ana i ka ale ʻana a me ka hanu ʻana. E wehewehe ʻo ia iā ʻoe i nā hōʻailona e makaʻala ai. Mai hoʻowahāwahā i nā hōʻailona. ʻO ka ʻimi mua ʻana i ke kōkua lapaʻau e kōkua iā ʻoe e pale aku i nā pilikia he nui.

ʻO Polymyositis, Polymyositis, Nāwaliwali o nā ʻiʻo, ʻEha ʻiʻo, Nā maʻi autoimmune, Paʻakikī i ke ale ʻana, Paʻakikī i ka hanu ʻana, Lapaʻau