Inā loaʻa iā ʻoe a i ʻole kāu keiki ka Beta Thalassemia, ʻike mākou i ke ʻano paʻakikī o ke ola. ʻAʻole maʻalahi ka hana ʻana i nā hoʻoili koko maʻamau a me ke ola ʻana me nā pilikia e hele pū me ia. Akā i kēia lā, me ka holomua o ka ʻepekema lapaʻau, e kamaʻilio mākou e pili ana i kahi ʻano lapaʻau e hiki ai ke ho'ōla loa i kēia maʻi. ʻO ia ka hoʻoili ʻana o nā cell stem, a i ʻole e like me ka ʻike ʻana o ka poʻe he nui, "Stem Cell Transplant".
I ka ʻōlelo maʻalahi, he aha ka hoʻoili ʻana o nā pūnaewele kumu?
E hoʻomaopopo maʻalahi kākou i kēia. E noʻonoʻo he hale hana koko ko ko kākou kino. Kāhea mākou i kēia he iwi ʻiʻo . ʻO kēia ka ʻāpana huʻahuʻa i loko o ko kākou mau iwi nui. I ka thalassemia, ʻo ka mea e hana ʻia ana, ʻaʻole hana pono kekahi o nā mīkini (nā pūnaewele) i loko o kēia hale hana, ʻo ia hoʻi, i loko o ka iwi ʻiʻo. No laila, ʻaʻole lawa nā hunaola koko ʻulaʻula maikaʻi a olakino i hana ʻia.
I loko o kahi hoʻoili ʻana o nā cell kumu, ua wehe ʻia nā cell iwi iwi hana ʻole o kou kino a ua pani ʻia me nā cell kumu koko (Hematopoietic Stem Cells) mai kahi kanaka olakino. Ua like kēia mau cell hou me kahi hale hana hou. Hele lākou i kou iwi iwi a hoʻomaka e hana i nā cell koko ʻulaʻula olakino.
ʻO ia hoʻi, ua like ia me ka hoʻopau ʻana i nā mīkini kahiko, hana ʻole, ke hoʻokomo ʻana i kekahi mau mīkini hou, a hoʻomaka hou i ka hale hana.
Pehea e hana ʻia ai kēia kaʻina hana transplant?
Hana ʻia kēia ma kekahi mau ʻanuʻu.
Ma mua o ke kanu ʻana
ʻO ka mea mua, pono ʻoe e luku i nā hunaola iwi kahiko a hana ʻole i loko o kou kino. ʻO ia ke kumu o ka chemotherapy . Hiki i ka huaʻōlelo "chemo" ke hoʻoweliweli i kekahi poʻe, akā ma ʻaneʻi ua hoʻohana ʻia ia e hana i kahi i loko o ka iwi no nā hunaola hou a olakino e komo mai a noho. Ua like ia me ka hoʻomaʻemaʻe ʻana i nā nāhelehele kahiko a pau a me ka hoʻomākaukau ʻana i ka lepo ma mua o ke kanu ʻana.
I ka wā o ke kāpili ʻana
ʻAʻole kēia he ʻoki kino nui e like me kou manaʻo. Ua like ia me ka hāʻawi ʻana i ke koko. Hoʻokomo ʻia nā pūnaewele kumu mai kahi mea hāʻawi i loko o kou kino ma o kahi ʻōmole palaki (catheter) i kau ʻia i loko o kou umauma. Hele kēia mau pūnaewele ma o kou kahe koko, loaʻa ko lākou wahi i loko o ka iwi iwi, a noho ma laila. A laila wale nō e hoʻomaka ai lākou e hana i nā pūnaewele koko olakino.
Mai hea mai kākou e loaʻa ai kēia mau pūnaewele?
ʻO kēia ka ʻāpana koʻikoʻi a paʻakikī hoʻi o kēia lāʻau lapaʻau. ʻAʻole hiki iā mākou ke lawe i nā pūnaewele mai kekahi kanaka wale nō. Pono ke kiʻekiʻe loa o ka hoʻohālikelike genetic ma waena o ka mea hāʻawi a me ka mea loaʻa.
- ʻO ka pāʻani kūpono loa:ʻO ka mea hāʻawi maikaʻi loa no kēia, he kaikunāne a he kaikuahine paha o ka mea maʻi. ʻOi aku ka nui o ko lākou kūlike hoʻoilina.
- Nā koho ʻē aʻe: Akā, mai hoʻōki i ka manaʻolana ʻaʻole ʻoe i loaʻa i kahi kaikaina e kūlike me kou. Aia nā manawa kūpono e loaʻa ai kahi kūlike genetic ma o nā papa inoa mea hāʻawi honua, ʻoiai inā ʻaʻole ʻoe pili. Hiki i kēia ke lilo i kaʻina hana e hoʻopau manawa.
He aha nā pilikia o kēia lāʻau lapaʻau?
E like me nā lāʻau lapaʻau nui a pau, aia kekahi mau pilikia. He mea nui e kūkākūkā ākea i kēia mau mea me kāu kauka.
| Pōpilikia | He wehewehe maʻalahi |
|---|---|
| Ka hōʻino ʻana o nā kino | Inā piʻi ka nui o ka hao i loko o ke kino ma muli o ke kahe koko pinepine ʻana a ua hōʻino ʻia nā ʻōpū e like me ka puʻuwai a me ke akepaʻa, e piʻi aʻe paha ka pilikia ma hope o ke kāpili ʻana. ʻO ia ke kumu he mea nui e hana pololei ʻia ka chelation therapy ma mua o ke kāpili ʻana. |
| ʻO ka maʻi Graft versus Host (GVHD) | ʻO ka mea e hana ʻia ma kēia hihia, ʻo ia ka ʻike ʻana o nā pūnaewele o ka mea hāʻawi, i hoʻokomo hou ʻia i loko o ke kino, i ke kino o ka mea maʻi ma ke ʻano he 'ʻenemi' a hoʻouka iā ia. Aia nā lāʻau lapaʻau e kāohi i kēia. |
| Nā maʻi | ʻO nā lāʻau lapaʻau i hoʻohana ʻia e kāohi i ka GVHD a me ka chemotherapy i hāʻawi ʻia ma mua o ka hoʻoili ʻana e hōʻemi i ka pale ʻana o ke kino. ʻOi aku ka nui o ka hiki ke loaʻa iā ʻoe nā maʻi bacteria. Eia nō naʻe, e kuhikuhi nā kauka i nā lāʻau lapaʻau e like me nā antibiotics e pale aku i kēia i kēia manawa. |
ʻO ka mea nui, ʻoi aku ka holomua o kēia lāʻau lapaʻau i ka poʻe ʻōpio, ʻoiai nā keiki ma lalo o 14 makahiki. Eia kekahi, ʻo ka emi ʻana o ka hōʻino ʻana i nā ʻōpū o ke kino ma mua o ka hoʻoili ʻana, ʻoi aku ka maikaʻi o nā hopena.
Nā hopena ʻaoʻao hiki ke loaʻa ma hope o ka mālama ʻana
Aia kekahi mau hopena ʻaoʻao pōkole a me ka wā lōʻihi e hiki ke hana ma hope o kahi hoʻoili ʻana.
ʻO ka mea nui loa ka hopena i ka hiki ke loaʻa nā keiki (Infertility) . ʻO ka chemotherapy kiʻekiʻe i hāʻawi ʻia ma mua o ka hoʻoili ʻana hiki ke hōʻino i nā ovaries o nā wahine a me ka hana ʻana o ka sperm i nā kāne. Akā i kēia manawa aia nā hopena no kēia. Hiki i nā kāne ke mālama i kā lākou sperm a hiki i nā wahine ke mālama i kā lākou hua (sperm/egg freezing) ma mua o ka mālama ʻana. He mea nui e kamaʻilio me kāu kauka e pili ana i kēia ma mua a loaʻa ka ʻōlelo aʻo.
Eia kekahi, hiki ke hana ʻia kēia mau mea ma hope koke iho o ke kāpili ʻana:
- ʻEha waha a ʻāʻī paha
- Ka luaʻi a me ka luaʻi
- Ke kahe koko a i ʻole ka palapū
- Ka pehu ʻana o nā māmā
Ma kahi o 2 a 6 mau pule no kēia mau hunaola kumu e hele ai i ka iwi iwi, hoʻomaka e hana, a hoʻihoʻi i ka helu o nā hunaola i loko o kou koko i ka maʻamau. E nānā pono loa ke kime lapaʻau iā ʻoe i kēia manawa. No laila, ʻaʻohe mea e hopohopo ai.
Leka Lawe-Home
- ʻO ke kāpili ʻana i nā pūnaewele kumu kahi lāʻau lapaʻau e hiki ke ho'ōla loa i ka beta thalassemia, akā, ʻaʻole kūpono ia no nā mea āpau.
- ʻO kēia ke komo ʻana i ka hoʻololi ʻana i nā pūnaewele iwi maʻi me nā pūnaewele kumu i loaʻa mai kahi mea hāʻawi olakino.
- ʻO ka mea hāʻawi kūpono loa he kaikunāne a he kaikuahine paha o ka mea maʻi, akā hiki ke loaʻa nā mea hāʻawi ʻē aʻe.
- Ma muli o ka loaʻa ʻana o nā pilikia a me nā hopena ʻaoʻao, he mea nui e kūkākūkā pono i nā mea āpau me kāu kauka ma mua o ka hoʻoholo ʻana i kēia lāʻau lapaʻau.
- Ke hoʻomaikaʻi mau nei kēia mau lāʻau lapaʻau, no laila e hoʻomau i ka manaʻolana no ka wā e hiki mai ana.
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