ʻO kēia anei ke kanesa i loko o kou puʻuwai? E aʻo kākou e pili ana i ka Cardiac Angiosarcoma

Ua noʻonoʻo paha ʻoe i ke ʻano kupaianaha o ko kākou puʻuwai? Akā i kekahi manawa, hiki i kēia puʻuwai ke loaʻa nā maʻi ma nā ʻano i manaʻo ʻole ʻia. I kēia lā e kamaʻilio mākou e pili ana i kahi maʻi kanesa kakaʻikahi akā koʻikoʻi loa. ʻO ka lohe ʻana i kēia e hopohopo iki paha ʻoe, akā he mea nui loa ia e makaʻu i kēia.

He aha kēia mea i kapa ʻia ʻo cardiac angiosarcoma?

I ka ʻōlelo maʻalahi, ʻo ka angiosarcoma cardiac he puʻupuʻu ʻino e ulu ana i loko o kou puʻuwai. Hoʻomaka ia ma ka uhi o nā kīʻaha koko i loko o kou puʻuwai. Mai laila mai, laha ia i ka ʻiʻo puʻuwai.

ʻO ka hapa pinepine, ma kahi o 80% o nā hihia, ulu kēia puʻupuʻu kakaikahi ma ke keʻena ʻākau o luna o ka puʻuwai, i kapa ʻia ʻo ka atrium ʻākau . I kekahi manawa hiki ke ulu pū kekahi ma ke keʻena ʻākau o lalo, i kapa ʻia ʻo ka ventricle ʻākau , a i ʻole ma ka ʻeke pale a puni ka puʻuwai, i kapa ʻia ʻo ka pericardium . He mea kākaʻikahi loa, hiki ke ulu ma ka ʻaoʻao hema o ka puʻuwai.

He maʻi kanesa ikaika loa kēia a laha wikiwiki. Hiki iā ia ke ālai a ʻūlū paha i nā wahi koʻikoʻi a puni ka puʻuwai, e like me nā kīʻaha koko a me nā valves. Ma muli o ke ʻano o kēia maʻi kanesa, hiki ke paʻakikī i kekahi manawa ke wehe loa iā ia me ke ʻoki ʻana.

Pehea ka maʻamau o kēia maʻi?

ʻO ka ʻoiaʻiʻo, he maʻi laha ʻole ka angiosarcoma cardiac. Wahi a nā hōʻike autopsy, ʻaʻole i hōʻike ʻia ma mua o 0.03% o nā hihia o nā neoplasms cardiac mua. No laila e noʻonoʻo, ʻoi aku ka laha ʻole o kēia ʻano angiosarcoma.

Akā, ʻo ke mea kupanaha, o nā puʻupuʻu ʻino e hiki ke hana i loko o ka puʻuwai o kahi pākeke, ʻo ia ke ʻano maʻamau .

ʻIke pinepine ʻia kēia maʻi i nā poʻe ma lalo o 65 mau makahiki. He mea maʻamau ia i nā poʻe ma waena o 20 a me 40 mau makahiki. Ua ʻōlelo ʻia hoʻi he ʻelua a ʻekolu paha manawa ka nui o ka loaʻa ʻana o kēia maʻi kanesa i nā kāne ma mua o nā wahine.

He aha nā hōʻailona o kēia?

Hiki ke ʻokoʻa nā hōʻailona o ka angiosarcoma cardiac ma muli o kahi o ka puʻupuʻu. ʻAʻole paha e ʻike kekahi poʻe i kekahi mau hōʻailona nui i ka wā mua. Eia nō naʻe, aia kekahi mau hōʻailona maʻamau e ʻike ʻia:

• Paʻakikī ka hanu ʻana (ua kapa pū nā kauka i kēia he "dyspnea"). Hiki ke manaʻo ʻia e like me ʻoe e hanu ana ma ka piʻi ʻana i kahi alapiʻi.
• ʻEha ka umauma . Me he mea lā e ʻomi ʻia ana, me he mea lā e ʻomi ʻia ana.
• Luhi a me ka luhi . Manaʻo mau i ka luhi me ke kumu ʻole.
• Ka nalowale koke o ka ʻike (syncope).
• Ke manaʻo nei e kuʻi wikiwiki ana kou puʻuwai a ʻano ʻē (kapa mākou i kēia "palpitations").

E noʻonoʻo, aia kekahi kanaka ʻōpio i kapa ʻia ʻo Nalini. No kekahi manawa i kēia manawa, ua luhi ʻo ia a ua ʻike iki ʻo ia i kahi ʻūlū iki i loko o kona umauma. Ua manaʻo ʻo ia he hana nui paha ia. Akā ma hope o kekahi mau lā, ua hele ʻo ia e ʻike i ke kauka i ka wā i paʻakikī ai iā ia ke hanu. Malia paha ʻo ia nā hōʻailona mua o kahi maʻi e like me kēia.

Inā ua pālahalaha ke kanesa ma ʻō aku o ka puʻuwai i nā ʻāpana ʻē aʻe o ke kino, e ʻike ʻia paha nā hōʻailona ʻē aʻe, e like me ka anemia , a i ʻole ka pohō kaumaha i wehewehe ʻole ʻia .

No ke aha e hana ʻia ai kekahi mea e like me kēia? He aha nā kumu?

ʻAʻohe kumu maopopo a paʻa no ka ulu ʻana o ka angiosarcoma cardiac, akā manaʻoʻiʻo nā kauka he kuleana ko kekahi mau kumu.

• Ua manaʻo ʻia ʻo ka poʻe me nā mutations i loko o kā lākou mau genes , e like me ka gene POT1, ʻoi aku ka nui o ka loaʻa ʻana o kēia maʻi kanesa.
• ʻO kekahi mea hiki ke hana ʻia, ʻo ka poʻe i loaʻa i ka radiation therapy ma ka umauma ma ke ʻano he lāʻau lapaʻau no kekahi maʻi ʻē aʻe i ka wā ʻōpiopio, aia paha lākou i ka nui o ka pilikia o ka loaʻa ʻana o kēia maʻi ma hope aku o ke ola.

He aha nā kumu pilikia?

Aia kekahi mau kumu pilikia ʻē aʻe e hiki ke hoʻopilikia i ka ulu ʻana o kēia maʻi:

• Ma hope o ka loaʻa mua ʻana o ka radiation therapy ma ke ʻano he lāʻau lapaʻau no kekahi maʻi kanesa ʻē aʻe.
• Ka ʻike ʻia ʻana o kekahi mau kemika e hiki ai ke hoʻoulu i ka maʻi kanesa.
• No ka poʻe me ke ʻano i kapa ʻia ʻo lymphedema, ʻo ia hoʻi ka pehu ʻana o ka ʻōnaehana lymphatic .

He aha nā pilikia e hiki mai ana o kēia maʻi?

No ka mea he maʻi koʻikoʻi ka angiosarcoma cardiac, hiki iā ia ke alakaʻi i nā pilikia like ʻole.

• Ka hāʻule ʻana o ka puʻuwai : Ka hiki ʻole o ka puʻuwai ke pamu i ke koko pono.
• Ka ālai ʻana o ka vena cava : He ālai ʻana o ke aʻa nui e lawe ana i ke koko mai ke kino o luna a i ka puʻuwai.
• Nā maʻi ʻōuli o ka puʻuwai (arrhythmia) : Nā loli maʻamau ʻole i ka puʻuwai.
• ʻO ka effusion pericardial : He wai e like me ka wai e hoʻopiha ana i ka ʻeke a puni ka puʻuwai.
• ʻO ka tamponade cardiac : ʻO ka hōʻiliʻili ʻana o ka wai i ʻōlelo ʻia ma luna nei e kau i ke kaomi ma ka puʻuwai.
• Ka luaʻi ʻana o ka valve o ka puʻuwai: Ke kahe nei ke koko i hope ma o nā valve o ka puʻuwai me ka ʻole o ka pani pono ʻana.
• ʻŌhūhū ālai: He kūlana koʻikoʻi i hoʻokumu ʻia e ke ālai ʻana i ke kahe koko.

He mea hopohopo paha ka lohe ʻana i kēia mau mea a pau, akā, he mea nui e ʻike i kēia mau mea.

Pehea e ʻike ʻia ai kēia maʻi?

E hana kekahi kauka i kekahi mau hoʻokolohua e hōʻoia inā loaʻa iā ʻoe kēia maʻi a ʻaʻole paha.

• ʻO ka echocardiogram transthoracic `(echocardiogram transthoracic)`Ua like kēia me ke kiʻi ultrasound o ka puʻuwai. He hoʻāʻo ʻeha ʻole ia i hana ʻia ma ka ʻili o ka umauma.
• ʻO ka echocardiogram transesophageal : Pili kēia i ke komo ʻana i kahi ʻōmole liʻiliʻi ma o ka esophagus e ʻike maopopo i ka puʻuwai.
• CT scan (computed tomography - CT scan) : Hiki i kēia ke hana i nā kiʻi kikoʻī o ka puʻuwai a me nā wahi a puni.
• MRI o ka puʻuwai (kiʻi resonance magnetic) : Hoʻohana i kahi kahua magnetic a me nā nalu lekiō e hana i nā kiʻi kikoʻī o ka puʻuwai.
• ʻO ke kiʻikuhi ʻana o ka Positron emission tomography (PET) : Kōkua kēia i ka ʻike ʻana i nā pūnaewele hana, e like me nā pūnaewele kanesa.
• Catheterization Cardiac : He hoʻāʻo kahi e hoʻokomo ʻia ai kahi ʻōmole liʻiliʻi ma o kahi kīʻaha koko i loko o ka puʻuwai e ana i ke kaomi a lawe i nā laʻana.
• Biopsy puʻuwai : Lawe ʻia kahi ʻāpana liʻiliʻi o ka ʻiʻo mai ka puʻuwai a nānā ʻia ma lalo o kahi microscope e hōʻoia i ka maʻi kanesa.

Pehea e mālama ʻia ai?

He paʻakikī iki ka mālama ʻana i kēia maʻi. ʻO nā ʻano lapaʻau nui:

• ʻO ke ʻoki kino : Inā hiki, ʻo ka wehe loa ʻana i ka puʻupuʻu e hāʻawi i ka manawa kūpono loa e ola ai . Eia nō naʻe, inā ua pālahalaha ke kanesa i nā ʻāpana ʻē aʻe o ka puʻuwai, he mea paʻakikī paha ke wehe loa. He mea nui loa ke koho ʻana i kahi kauka ʻoki kino i loaʻa ka ʻike me kēia mau puʻupuʻu kakaikahi.
• Kemoterapi : Hiki i kēia ke kōkua i ka hōʻoluʻolu ʻana i nā hōʻailona a kōkua i kekahi poʻe e ola lōʻihi iki.
• Lapaʻau radiation : I kekahi mau hihia, hiki i kēia ke kōkua i ka hoʻomaikaʻi ʻana i ke kūlana.

Hiki ke kū mai nā pilikia mai ka mālama ʻana?

ʻAe, hiki i kekahi mau lāʻau lapaʻau ke hoʻoulu i nā pilikia, ʻoiai ma hope o ke ʻoki ʻana:

• Ke kahe ʻana o ke koko.
• Nā ʻano hewa o ka manawa o ka puʻuwai (arrhythmia).
• Nāwaliwali i ka hana a ka puʻuwai.

ʻO ia ke kumu e hoʻolālā ai nā kauka i ka lāʻau lapaʻau ma hope o ka noʻonoʻo ʻana i kēia mau mea a pau.

He aha kāu e manaʻo ai me kēia maʻi?

I ka ʻoiaʻiʻo, he kūlana paʻakikī iki kēia.

ʻOiai ma hope o ka mālama ʻia ʻana , hiki i ka puʻupuʻu ke hoʻi mai . I ka manawa pinepine, i ka wā e ʻike ʻia ai ka angiosarcoma cardiac, ua pālahalaha (metastasized) i nā wahi ʻē aʻe, e like me ke akepaʻa, nā māmā, a me ka lolo. I kekahi manawa, hiki nō hoʻi ke pālahalaha i nā iwi a me nā kelepa adrenal. ʻO ia ke kumu he mea paʻakikī ka mālama ʻana i kēia maʻi kanesa a me ka hoʻopakele ʻana i nā ola.

He aha ka manaʻo no ka maʻi? (Manaʻo)

He mea kaumaha ke ʻōlelo aku i kēia, akā ʻaʻole maikaʻi loa ka wānana no ka angiosarcoma cardiac . He maʻi ʻino loa kēia a laha i nā ʻiʻo a puni.

ʻO ka awelika o ke ola o kekahi kanaka me kēia maʻi ma waena o 10 a me 16 mau mahina.Pēlā i helu ʻia ai. Me ka ʻole o ke ʻoki kino, ʻoiai me nā lāʻau lapaʻau ʻē aʻe, ola ka hapa nui o ka poʻe ma waena o 9 a me 12 mau mahina. Wahi a kekahi mau kuhi he pōkole kēia manawa e like me 5 mau mahina a emi mai paha.

He 14% wale nō o ka poʻe i ʻike ʻia me ka angiosarcoma cardiac e ola ana i ʻelima mau makahiki ma hope o ka hōʻoia ʻana. ʻO ka angiosarcoma cardiac i pālahalaha (metastasized) i nā ʻāpana ʻē aʻe o ke kino he mea make pinepine ia.

He mea maʻamau ke kaumaha a me ka makaʻu ke lohe ʻoe i kahi mea e like me kēia. Eia nō naʻe, ʻo ka ʻike ʻana i kēia ʻike e kōkua iā ʻoe e kamaʻilio me kāu mau kauka a hoʻomaopopo i kāu mau koho maikaʻi loa.

Aia kekahi mau ala e hōʻemi ai i kēia pilikia?

ʻOiai ʻaʻohe ala e pale loa ai i kēia, aia kekahi mau mea hiki iā ʻoe ke hoʻāʻo e hōʻemi i ka pilikia.

• He mea nui e kaupalena i ka hoʻopili ʻana i nā kemika e hiki ai ke hoʻoulu i ka maʻi kanesa.
• Inā loaʻa iā ʻoe kahi maʻi genetic e hoʻonui ai i kou pilikia no kēia ʻano maʻi kanesa, e kamaʻilio me kāu kauka e pili ana i ia mea. A laila, hiki paha iā ʻoe ke loaʻa nā nānā ʻana e hiki ai ke ʻike mua i ka maʻi.

Pehea ʻoe e mālama ai iā ʻoe iho?

ʻO nā mea maʻamau āu e hana ai i kou wā olakino e lilo i mea nui aʻe i ka wā e hakakā nei ʻoe me ka maʻi kanesa.

• ʻO ka ʻai ʻana i ka meaʻai momona e hāʻawi i ke kino i ka ikehu e pono ai.
• Inā ʻoe e luhi ana ma muli o ka mālama ʻana, he mea nui loa ka loaʻa ʻana o ka hoʻomaha lawa .
• E hoʻāʻo i nā mea e like me ka yoga, ka noʻonoʻo ʻana, a me nā hoʻomaʻamaʻa hanu hohonu e hoʻomaha ai i kou manaʻo.
• He manaʻo maikaʻi nō hoʻi e hui pū me kahi hui kākoʻo (ʻoiai inā ma ka pūnaewele) kahi e hiki ai iā ʻoe ke kaʻana like i kou mau manaʻo.

Hiki i ka mālama hospice ke kōkua iā ʻoe e hōʻoluʻolu i ka hopena o kou ola.

Āhea wau e ʻike ai i ke kauka?

Mai poina e ʻike i kāu kauka i kēlā me kēia manawa i hoʻopaʻa ʻia. Eia nō naʻe, e kelepona koke aku i kāu kauka inā:

• Inā e hoʻi hou mai ana kāu mau hōʻailona.
• Inā e ʻoi aku ka ʻino o nā hōʻailona.
• Inā makemake ʻoe i ke kōkua me nā hopena ʻaoʻao mai ka lāʻau lapaʻau.

Āhea ʻoe e hele ai i ka lumi pilikia?

Inā loaʻa iā ʻoe kēia mau hōʻailona, ​​e ʻimi koke i ka mālama ulia pōpilikia:

• Inā pilikia nui ʻoe i ka hanu ʻana .
• Inā loaʻa iā ʻoe ka ʻeha nui o ka umauma .
• Inā ua loaʻa iā ʻoe ka chemotherapy, loaʻa iā ʻoe ke kuni a i ʻole nā ​​​​hōʻailona ʻē aʻe o ka maʻi (e laʻa, ke anu, kahi ʻeha e like me ka mea e kahe ana).

He aha nā nīnau āu e nīnau ai i kāu kauka?

No ka mea, he maʻi laha ʻole ka angiosarcoma cardiac, hiki ke paʻakikī ke loaʻa ka ʻike nui e pili ana i ia mea. Hiki iā ʻoe ke nīnau i kāu kauka e like me:

• "Ua laha anei kēia maʻi ʻaʻai i nā wahi ʻē aʻe o koʻu kino?"
• "Hiki iaʻu ke hana ʻoki kino?"
• "Ke nānā nei i nā scan, me he mea lā hiki ke wehe ʻia ka puʻupuʻu holoʻokoʻa?"
• "He aha ke ʻano o ka lāʻau lapaʻau āu e ʻōlelo mai nei noʻu?"
• "He aha ka manaʻo no kekahi e like me koʻu kūlana?"

ʻOiai ʻaʻole i lohe ka nui o ka poʻe i ka angiosarcoma cardiac, hiki ke paʻakikī ke wehewehe i kou kūlana i kou ʻohana a me nā hoaaloha. Mai makaʻu e nīnau i kāu kauka e pili ana i nā mea āu e maopopo ʻole ai. E hoʻohana i nā kumuwaiwai a me nā lawelawe i loaʻa iā ʻoe e kōkua. Inā ʻaʻole maikaʻi kou ʻano, e kamaʻilio me kahi mea āu e hilinaʻi ai e pili ana i kāu mau pono. ʻO ke kamaʻilio ʻana me kahi kākāʻōlelo a me ka hoʻonohonoho ʻana no nā lawelawe hospice e kōkua iā ʻoe e ʻoluʻolu.

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai

He maʻi ʻaʻai laha ʻole a koʻikoʻi hoʻi ka Cardiac Angiosarcoma. He mea nui e makaʻala i kēia a e makaʻala i nā hōʻailona. ʻO ka wikiwiki o ka ʻike ʻia ʻana, ʻo ka nui o ka hiki ke mālama ʻia.

• He maʻi ʻaʻai laha ʻole kēia akā he koʻikoʻi.
• Inā ʻike ʻia nā hōʻailona, ​​e ʻimi koke i ke kōkua lapaʻau.
• E kamaʻilio ākea me kāu kauka e pili ana i nā lāʻau lapaʻau a me kā lākou hopena.
• Mai kānalua e ʻimi i ka hōʻoluʻolu a me ke kākoʻo noʻonoʻo.

Manaʻolana wau he mea pono kēia ʻike iā ʻoe. E ola kino!

ʻO ke kanesa puʻuwai, angiosarcoma, maʻi puʻuwai, nā hōʻailona kanesa, ka mālama ʻana i ke kanesa, ke olakino puʻuwai, nā kanesa laha ʻole