He aha ka mea e hana ʻia i ka pēpē inā loaʻa iā ʻoe ka rubella i ka wā hāpai? E makaʻala kākou i ka Congenital Rubella Syndrome!

Ma ke ʻano he makuahine e hiki mai ana, ke manaʻo nei ʻoe i kekahi manawa i ka makaʻu a me ka hopohopo ʻoiai inā loaʻa iā ʻoe ke anu? He mea maʻamau loa ia. No ka mea, ke noʻonoʻo nui nei ʻoe i kāu pēpē makamae i loko o kou ʻōpū. No laila, i kēia lā e kamaʻilio mākou e pili ana i ka hopena o ia mea i ka pēpē i loko o ka ʻōpū inā loaʻa ka makuahine i ka rubella i ka wā hāpai. ʻO kēia ka mea a nā kauka e kapa nei ʻo Congenital Rubella Syndrome (CRS) . ʻOiai he lōʻihi iki ka inoa, e hoʻomaopopo maʻalahi kākou.

He aha ka Congenital Rubella Syndrome?

I ka ʻōlelo maʻalahi, ʻo ka congenital rubella syndrome (CRS) he hui o nā pilikia olakino e kū mai ana i nā pēpē ke loaʻa i kahi makuahine hāpai ka rubella (i ʻike ʻia hoʻi ʻo German measles). ʻO ka huaʻōlelo "congenital" ma ʻaneʻi ʻo ia hoʻi "aia i ka wā hānau."

Ke komo ka maʻi rubella i loko o ke kino o ka pēpē, hiki iā ia ke hoʻopilikia i ka ulu ʻana o ka ʻōpū ma nā ʻano like ʻole. Hiki i kēia mau hopena ke hana i nā pilikia ma hope o ka hānau ʻana o ka pēpē. No ka laʻana, nā cataracts a i ʻole ka maʻi puʻuwai hānau. Hiki ke ʻokoʻa ke koʻikoʻi o CRS mai kēlā kanaka a kēia kanaka. I ka hapanui o nā hihia, ʻoi aku ka koʻikoʻi o ke kūlana inā loaʻa ka makuahine i ka rubella i ka wā hāpai mua, ʻoiai ma mua o 13 mau pule.

Pehea ka maʻamau o kēia ʻano?

Ma nā ʻāina e like me ʻAmelika, ua haʻahaʻa loa ka nui o ka maʻi rubella congenital (CRS) no ka mea ua hoʻohana nui ʻia ka lāʻau pale rubella. Eia nō naʻe, he mea hopohopo ia, inā mākou e nānā i ke ao holoʻokoʻa , ua hōʻike ʻia ma kahi o 100,000 mau hihia CRS i kēlā me kēia makahiki. Ma ko mākou ʻāina pū kekahi, ua hoʻokomo ʻia ka lāʻau pale rubella i loko o ka papahana lāʻau pale aupuni, no laila ua kāohi ʻia kēia kūlana. Eia nō naʻe, he mea nui loa ka ʻike.

He aha nā hōʻailona o ka congenital rubella syndrome?

Hiki ke ʻokoʻa loa nā hōʻailona a me ke koʻikoʻi o kēia maʻi CRS mai kēlā kanaka a kēia kanaka, e like me kaʻu i ʻōlelo ai ma mua. ʻO ka mua o ka hāpai ʻana o ka makuahine i ka maʻi rubella, ʻo ka nui o ka hiki ʻana o ka pēpē ke loaʻa i nā hōʻailona koʻikoʻi. I kekahi manawa, inā ʻaʻole koʻikoʻi ke ʻano o ka CRS, ʻaʻohe paha he mau hōʻailona maopopo i ka wā hānau.

Eia kekahi o nā hōʻailona mua e ʻike koke ʻia ma hope o ka hānau ʻana o ke pēpē:

• Kaumaha hānau haʻahaʻa.
• I kekahi manawa e ʻike paha ʻoe i nā kiko poepoe polū-poni a i ʻole nā ​​pehu ma ka ʻili o kāu pēpē. Kapa kekahi poʻe i kēia he "blueberry muffin rash" no ka mea ua like ia me nā kiko ma ka muffin blueberry.
• Nā kiko a me nā ʻāpana poni, ʻulaʻula, a ʻeleʻele paha ma ka ʻili (Purpura).
• ʻOi aku ka liʻiliʻi o ke poʻo o kahi pēpē ma mua o ka maʻamau (Microcephaly).

Eia kekahi mau hōʻailona ʻē aʻe e ʻike ʻia ma hope koke iho o ka hānau ʻana o ke pēpē:

• ʻO nā cataract hānau a me ka hoʻonui ʻia o ke kaomi o nā maka (Glaucoma).
• Maʻi Puʻuwai Hānau. Aia nā ʻano like ʻole o kēia. No ka laʻana, nā lua ma waena o nā keʻena o ka puʻuwai (Ventricular Septal Defects, Atrial Septal Defects), nā pilikia me nā kīʻaha koko i loko o ka puʻuwai (Patent Ductus Arteriosus, Peripheral Pulmonary Artery Stenosis) a pēlā aku. E wehewehe nā kauka i kēia mau mea iā ʻoe me nā kikoʻī hou aku.
• Ka Lohi o ka Hoʻomohala ʻana: ʻO ke ʻano kēia ua lohi ka pēpē i ke kolo ʻana, ka noho ʻana, ka hele ʻana, a me ke kamaʻilio ʻana, e like me ke kūpono no ko lākou mau makahiki.
• Ka hoʻonui ʻia ʻana o ke akepaʻa a i ʻole ka spleen (Hepatosplenomegaly).
• Poho ka lohe. I kekahi manawa hiki i kēia ke holomua a hiki i ka kuli loa.
• ʻO ka anemia hemolytic ke kumu o ka haki ʻana o nā ʻāpana koko ʻulaʻula.
• Ke kīnā noʻonoʻo.
• Pneumonia.
• Ka mumū ʻana o ka lolo a me nā meninges (Meningoencephalitis).
• ʻO ka Retinopathy Pigmentary.
• Nā maʻi iwi.
• Nā ʻōpū lymph pehu.

He mea nui: ʻO nā pēpē i hānau ʻia me ka Congenital Rubella Syndrome (CRS) he nui ka pilikia o ka loaʻa ʻana o ka maʻi diabetes insulin-dependent a me ka maʻi thyroid ma hope aku o ke ola.

He aha ke kumu o kēia?

ʻO ke kumu nui o ka maʻi rubella congenital (CRS) ʻo ia ka wā e loaʻa ai iā ʻoe ka rubella i kou wā hāpai. A laila hele ka maʻi rubella mai ka makuahine ma o ka placenta a hoʻopili i ka pēpē i loko o ka ʻōpū. Hiki i ka maʻi ke hōʻino i nā cell o ka fetus a hoʻopilikia i ka ulu ʻana o nā ʻano kino like ʻole o ka pēpē. ʻO ia ke kumu e loaʻa ai nā pilikia olakino i ka wā hānau.

E noʻonoʻo i ke ʻano o kēia pilikia:

• Inā loaʻa ka makuahine i ka rubella i loko o nā pule he 12 mua o ka hāpai ʻana , hiki i ka CRS ke hoʻopilikia i ka 85% o nā pēpē hānau hou.
• Inā loaʻa ka maʻi ma waena o 13 a me 16 mau pule o ka hāpai ʻana , hiki iā ia ke hoʻopilikia a hiki i ka 50% o nā pēpē hānau hou.
• Inā loaʻa ka maʻi i ka hapa lua o ka trimester ʻelua , hiki iā ia ke hoʻopili ma kahi o 25% o nā pēpē hānau hou.

He maʻi ʻo Rubella i hoʻokumu ʻia e kahi maʻi i kapa ʻia ʻo `(RuV)`. ʻO ka hōʻailona nui he ʻulaʻula, ʻānai e hoʻomaka pinepine ana ma ka maka a laha a puni ke kino. ʻAʻole i maʻamau kēia i nā ʻāina he nui ma muli o ka lāʻau pale. Eia nō naʻe, aia nō ka rubella ma kekahi mau wahi o ka honua.

Hiki i nā pēpē me CRS ke hoʻolaha i ka maʻi?

ʻAe, he mea nui kēlā. Manaʻo nā kauka he maʻi lele kahi pēpē me ka maʻi rubella congenital no ka liʻiliʻi o hoʻokahi makahiki. Eia nō naʻe, inā he 3 mahina ka pēpē a ʻelua mau hoʻāʻo rubella, hoʻokahi mahina ke kaʻawale, hoʻi mai 'maikaʻi ʻole' (ʻo ia hoʻi, ʻaʻole i loaʻa ka maʻi), a laila ʻaʻole ia e maʻi lele hou. No laila, pono e mālama pono ʻia e pale aku i nā poʻe ʻē aʻe i kēlā manawa.

Pehea ʻoe e ʻike ai i kēia kūlana CRS?

Aia kekahi mau ala e ʻike ai i ka maʻi congenital rubella:

• Nānā ʻana i ka hāpai ʻana: Ma nā ʻāina he nui, he hana maʻamau ka nānā ʻana no ka rubella a me kekahi mau maʻi ʻē aʻe i ka wā hāpai. Inā loaʻa iā ʻoe nā hōʻailona o ka rubella i ka wā hāpai, e kauoha kāu kauka i nā hoʻokolohua e hōʻoia i ka hōʻailona. A laila e wehewehe lākou iā ʻoe i ka pilikia o kāu pēpē e loaʻa ana iā CRS.
• ʻIke ʻia ka ʻōpū i ka wā hāpai: Inā loaʻa iā ʻoe ka rubella i ka wā hāpai, hiki i kāu kauka ke paipai i kekahi mau hoʻokolohua kūikawā e ʻike ai inā ua laha ka maʻi i kāu pēpē. No ka laʻana, amniocentesis, chorionic villus sampling, a me ka fetal blood sampling. He mau hoʻokolohua paʻakikī kēia, a e hana wale kāu kauka inā pono.
• ʻIke ma hope o ka hānau ʻana: Ma hope o ka hānau ʻana o ka pēpē , hiki ke hana ʻia kahi hoʻāʻo koko (hoʻāʻo ELISA) e nānā i nā antibodies i ka maʻi rubella i loko o ke koko o ka pēpē. Hiki ke hoʻāʻo ʻia kahi laʻana mimi, laʻana lawai, a i ʻole ka swab ihu e ʻike inā loaʻa i ka pēpē ka maʻi rubella. Hiki i ke kauka ke kauoha i kēia mau hoʻāʻo inā ʻike ʻia ka makuahine ua loaʻa iā ia ka rubella i ka wā hāpai, a inā paha e hōʻike ana ka pēpē i nā hōʻailona o CRS.

Inā ua hōʻoia ʻia kāu pēpē he rubella, e paipai ke kime lapaʻau i kekahi mau hoʻokolohua hou aʻe e nānā i ke olakino holoʻokoʻa o ka pēpē a e ʻike i nā pilikia olakino ʻē aʻe i hiki ke hoʻokumu ʻia e CRS.

He aha nā lāʻau lapaʻau no kēia?

ʻO ka mea pōʻino, ʻaʻohe lāʻau lapaʻau a i ʻole ka lāʻau lapaʻau pololei no ka congenital rubella syndrome (CRS). Eia kekahi, ʻo kekahi o nā hopena, e like me ka nalowale o ka lohe a me ke kīnā noʻonoʻo, he mau loa ia, ʻo ia hoʻi ke ola mau nei lākou. Eia nō naʻe, hiki ke mālama ʻia a mālama ʻia paha kekahi mau hōʻailona, ​​​​e like me ka anemia hemolytic a me ka interstitial pneumonia. Hiki ke mālama ʻia kekahi mau maʻi puʻuwai me ke ʻoki kino.

E hoʻomohala ke kime lapaʻau o kāu pēpē i kahi hoʻolālā lapaʻau kikoʻī e pili ana i nā hōʻailona a me nā pono o kāu pēpē. Pono paha kēia i ke kōkua o nā loea he nui.

Inā loaʻa i kaʻu pēpē ka CRS, he aha kaʻu e manaʻo ai?

ʻAʻole like ka hopena o ka maʻi rubella hānau i kēlā me kēia pēpē, a hiki ke ʻokoʻa kona koʻikoʻi. Pono kekahi mau hoʻāʻo a me nā loiloi e hoʻomaopopo piha ai i ka nui o ka hopena o CRS i kāu pēpē. Hiki ke lilo i kaʻina hana e hoʻopau manawa ai. Akā, ʻaʻole ʻoe hoʻokahi i kēia huakaʻi. E hele pū ana ka hui lapaʻau o kāu pēpē me ʻoe i kēlā me kēia ʻanuʻu o ke ala, e wehewehe ana i ke ʻano o CRS a pehea e pili ai i ka wā e hiki mai ana o kāu pēpē a me kou ʻohana.

Hiki iaʻu ke pale aku i kēia kūlana CRS?

ʻAe! ʻO kēia ka mea nui loa. ʻO ka Congenital Rubella Syndrome (CRS) kahi maʻi hiki ke pale ʻia!

ʻO ke ala maikaʻi loa e hana ai i kēia, ʻo ia ka loaʻa ʻana o ka lāʻau pale rubella ma mua o kou hāpai ʻana. ʻO ia hoʻi ka loaʻa ʻana o ka lāʻau pale rubella.

Ma Sri Lanka, hāʻawi mākou i nā keiki i ka lāʻau pale MMR, ka mea e pale aku ai i ka maʻi ʻōpala, ka mumps a me ka rubella. ʻO ka maʻamau, hāʻawi ʻia ka mahele mua ma waena o 9-12 mau mahina o ka makahiki a me ka lua o ka mahele i 3 mau makahiki (hiki ke ʻokoʻa iki kēia mau manawa ma muli o ka papa hana lāʻau pale aupuni, no laila e nānā me kāu luna olakino kūloko).

Inā ʻaʻole ʻoe i loaʻa i ka lāʻau pale i kou wā kamaliʻi, a inā ʻaʻole ʻoe maopopo e pili ana i ia mea, he mea nui e kamaʻilio me kāu kauka e pili ana i ka loaʻa ʻana i kēia manawa. Inā loaʻa iā ʻoe ka lāʻau pale i kou wā makua, e hoʻomanaʻo e pale i ka hāpai ʻana no 28 mau lā (ma kahi o hoʻokahi mahina) ma hope o ka loaʻa ʻana o ka lāʻau pale. He ʻōlelo aʻoaʻo koʻikoʻi loa kēia.

Pehea e mālama ai i kaʻu pēpē me CRS?

Ma muli o nā pilikia olakino o kāu pēpē me CRS, pono paha iā ia ka mālama olakino a me ka mālama ʻana i ko lākou wā ʻelemakule. He mea nui e kākoʻo ʻoe i kāu pēpē a e hōʻoia e loaʻa iā lākou ka mālama olakino maikaʻi loa a me ke kākoʻo e pono ai lākou. E kōkua kēia i kāu pēpē e ola i ke ola maikaʻi loa.

ʻO ka maʻi rubella hānau kahi maʻi e hiki ke loaʻa ka hopena koʻikoʻi i ke olakino o ka pēpē. Akā ʻo ka nūhou maikaʻi, hiki ke pale ʻia me ka lāʻau pale rubella (lāʻau pale MMR). I nā manawa hiki, e ʻike i kāu kauka ma mua o kou hāpai ʻana e hōʻoia i kou palekana mai ka rubella a me nā maʻi lele ʻē aʻe. He kōkua nui ia nou a me kāu pēpē.

Nā mea nui e hoʻomanaʻo (Leka Lawe-Home)

Eia kekahi mau mea e pono ai ʻoe e hoʻomanaʻo mai nā mea a mākou i kamaʻilio ai:

• ʻO ka maʻi congenital rubella (CRS) kahi maʻi koʻikoʻi hiki ke loaʻa i kahi pēpē inā loaʻa ka rubella i kahi makuahine hāpai.
• Hiki i kēia ke kumu i ka pēpē e loaʻa i nā pilikia olakino like ʻole (maka, pepeiao, puʻuwai, lolo) mai ka hānau ʻana mai.
• ʻO ka mea nui, hiki ke pale nui ʻia kēia me ka lāʻau pale MMR.
• Inā ʻoe e hāpai ana i kahi pēpē, e nīnau i kāu kauka inā ua palekana ʻoe mai ka rubella ma mua o kou hāpai ʻana . E loaʻa i ka lāʻau pale inā pono.
• Inā loaʻa iā ʻoe ka lāʻau pale MMR, e pale i ka hāpai ʻana no hoʻokahi mahina ma ka liʻiliʻi.
• Inā hāpai ʻoe a manaʻo ʻoe ua loaʻa iā ʻoe ka rubella, e ʻimi koke i ke kōkua lapaʻau.

Lana ko mākou manaʻo he mea pono kēia ʻike iā ʻoe. ʻO ka ʻohana olakino ka hauʻoli nui loa!

ʻO ka maʻi Rubella hānau, CRS, Rubella, German Measles, Hāpai keiki, lāʻau pale Rubella, lāʻau pale MMR, Ola kino o ke keiki, nā maʻi hānau