ʻO kekahi mau maʻi, no ka laʻana, ʻo ka poʻe me nā maʻi e like me Thalassemia, pono lākou e hāʻawi pinepine i ke koko i ke kino. Ke loaʻa iā mākou ke koko no ka manawa lōʻihi e like me kēia, hiki i ka pae hao i loko o ko mākou kino ke piʻi pono ʻole. Kāhea mākou i kēia he hao nui. Hiki ke waiho ʻia kēia hao i hoʻonui ʻia i loko o nā ʻōpū koʻikoʻi e like me ko mākou puʻuwai a me ke akepaʻa a hōʻino iā lākou. No laila, ʻo kahi lāʻau lapaʻau kūikawā a nā kauka e hoʻohana ai e wehe i kēia hao keu mai ke kino ua kapa ʻia ʻo Deferasirox. E kamaʻilio kākou e pili ana i kēia i kēia lā.
He aha ʻo Deferasirox? He aha kāna hana maoli?
I ka ʻōlelo maʻalahi, hana kēia lāʻau lapaʻau i kapa ʻia ʻo Deferasirox e like me ka magnet. Hoʻopili ia i nā ʻāpana hao keu i makemake ʻole ʻia i loko o ko mākou koko, hopu iā lākou, a kōkua iā lākou e wehe ʻia mai ke kino. Ua kapa ʻia kēia kaʻina hana ʻo Chelation i ka ʻepekema lapaʻau. Pale kēia i ka hōʻino ʻia e hiki i ka hao keu ke hana i ko mākou mau kino koʻikoʻi. Hiki ke loaʻa kēia lāʻau lapaʻau ma lalo o nā inoa inoa e like me Jadenu.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka lawe ʻana i kēia lāʻau lapaʻau
Pono kāu kauka e ʻike i kou mōʻaukala olakino piha ma mua o ke kau ʻana i kēia lāʻau. E hōʻoia e haʻi iā lākou e pili ana i kekahi o kēia mau kūlana, ʻoiai inā loaʻa iā ʻoe:
- Inā loaʻa iā ʻoe kekahi maʻi kanesa.
- Inā he ʻike maka maikaʻi ʻole kou a i ʻole nā maʻi maka.
- Inā he pilikia kou i ka lohe ʻana.
- Inā he maʻi puʻupaʻa a maʻi akepaʻa paha kou.
- Inā loaʻa iā ʻoe kahi maʻi e hoʻemi ai i ka helu o nā keʻokeʻo koko, nā platelets, a i ʻole nā keʻokeʻo koko ʻulaʻula i loko o ke koko (helu koko haʻahaʻa).
- Inā he maʻi ʻaleka kou i kēia lāʻau lapaʻau Deferasirox a i ʻole kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻoluʻu paha.
- Inā ʻoe e hāpai ana, e hoʻāʻo ana e hāpai, a e hānai waiū ana paha.
Pono e hoʻohana ʻia ka lāʻau lapaʻau ma ke ʻano kūpono.
He mea nui loa e hahai i nā ʻōlelo kuhikuhi pololei no ka hoʻohana ʻana i kēia lāʻau.
- E lawe i ka ʻōpū ʻole: Pono e lawe ʻia kēia lāʻau lapaʻau ma ka ʻōpū ʻole . ʻO ia hoʻi, ma ka liʻiliʻi he 30 mau minuke ma mua o ka ʻai ʻana, a i ʻole 2 mau hola ma hope o ka ʻai ʻana.
- E lawe i ka manawa kūpono: E lawe i ka nui i kuhikuhi ʻia i ka manawa i kuhikuhi ʻia e kāu kauka. Mai lawe ʻoi aku ma mua o ka helu i kuhikuhi ʻia i ka lā.
- Mai ho'ōki: Mai ho'ōki koke i ka lawe ʻana i kēia lāʻau me ka ʻole o ke aʻo ʻana a kāu kauka.
Ke hāʻawi ʻia i nā keiki liʻiliʻi
Hiki ke kuhikuhi ʻia kēia lāʻau lapaʻau i nā keiki ma luna o 2 mau makahiki i kekahi mau hihia i koho ʻia. Eia nō naʻe, na ke kauka o kāu keiki kēia hoʻoholo. No laila, inā ʻoe e hāʻawi ana i kēia lāʻau lapaʻau i kahi keiki, e hahai pono i nā kuhikuhi a ke kauka.
He aha inā e hala iaʻu kahi mahele o ka lāʻau lapaʻau?
Inā ʻoe e poina i kahi lāʻau lapaʻau, e lawe koke iā ia i kou hoʻomanaʻo ʻana. Eia nō naʻe, inā kokoke ka manawa no kāu lāʻau lapaʻau aʻe, e kāpae i ka lāʻau lapaʻau i poina a lawe i kāu lāʻau lapaʻau aʻe i ka manawa i hoʻonohonoho ʻia.Mai lawe i ʻelua mau lāʻau i ka manawa hoʻokahi.
He aha inā lawe nui wau i ka lāʻau lapaʻau?
E noʻonoʻo ua lawe nui ʻoe i ka lāʻau lapaʻau i ka manawa kūpono ʻole. Inā hana ʻia kēlā, mai hopohopo a kāhea koke aku i ke Kikowaena ʻIke Lāʻau Lapaʻau Lahui ma ka Halemai Lahui ʻo Colombo . A i ʻole e hele i ka Emergency Treatment Unit (ETU) o ka haukapila kokoke loa.
Nā lāʻau lapaʻau ʻē aʻe e hiki ke launa pū me Deferasirox
Hiki i kēia lāʻau lapaʻau ke launa pū me kekahi mau lāʻau lapaʻau ʻē aʻe, no laila he mea nui loa e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe āu e lawe nei (me nā huaora a me nā lāʻau lapaʻau).
| ʻAno lāʻau lapaʻau | Ka wehewehe a me nā laʻana |
|---|---|
| Nā mea āu e pono ʻole ai e lawe pū me kēia lāʻau lapaʻau | |
| Nā mea hoʻohui hao | ʻO ka lawe ʻana i kēia lāʻau lapaʻau e wehe i ka hao keu mai ke kino, no laila ʻaʻole e kōkua ka lawe ʻana i nā papa hao ma waho. |
| ʻO kekahi mau lāʻau lapaʻau Hepatitis C | Eg: Dasabuvir, Ombitasvir, Paritaprevir, Ritonavir |
| Nā lāʻau lapaʻau ʻē aʻe e hiki ai ke hana i nā pilina (e haʻi i kāu kauka inā ʻoe e lawe ana i kēia mau mea) | |
| Nā lāʻau hoʻēmi ʻakika | Nā lāʻau lapaʻau no ka gastritis i loaʻa ka alumini. |
| Nā lāʻau hoʻopau ʻeha (NSAID) | Eia kekahi laʻana: Nā lāʻau lapaʻau e like me Ibuprofen lāua ʻo Naproxen. |
| Nā lāʻau hoʻomalu hānau | Hiki i kēia lāʻau lapaʻau ke hōʻemi i ka pono o nā pila hoʻomalu hānau. |
| Nā lāʻau lapaʻau ʻē aʻe | Nui nā lāʻau lapaʻau ʻē aʻe, e like me nā lāʻau hoʻohaʻahaʻa cholesterol (Cholestyramine, Simvastatin), nā lāʻau hopu (Phenobarbital), nā lāʻau hoʻokahe koko (Warfarin), nā steroids (Prednisone), Cyclosporine, Rifampin, a pēlā aku. |
E mālama i kou kino i ka wā e lawe ana i ka lāʻau lapaʻau.
He mea nui loa ia e hoʻolohe i nā loli i loko o kou kino i ka wā e lawe ana i kēia lāʻau.
Nā hopena ʻili koʻikoʻi: Hiki i kēia lāʻau lapaʻau ke hana i nā hopena ʻili koʻikoʻi i kekahi manawa. Hiki ke hana kēia i nā pule ma hope o ka hoʻomaka ʻana o ka lāʻau lapaʻau. Inā loaʻa iā ʻoe kahi ʻulaʻula me ke kuni, nā ʻeha kino, inā lilo ia i poni a me nā pehu, inā hemo ka ʻili, a inā loaʻa iā ʻoe kahi ʻulaʻula me nā puʻupuʻu ma kou ʻāʻī a i ʻole nā armpits , e ʻike koke i ke kauka.
- Nā hoʻokolohua lapaʻau: E nānā kāu kauka i kou ʻike, ka lohe, a me ke koko (ʻoi aku ka hana o nā puʻupaʻa a me ke akepaʻa) ma mua o kou hoʻomaka ʻana e lawe i kēia lāʻau lapaʻau a ʻoiai ʻoe e lawe ana. Mai haʻalele i kēia mau hoʻokolohua.
- Ke kahe koko ʻana o ka ʻōpū: Inā he ʻeleʻele kou mau ʻōpala, ʻālohilohi, a luaʻi paha e like me ke kofe, he hōʻailona paha ia o ke kahe koko ʻana mai kahi ʻōpū ma kou ʻōpū a i ʻole nā ʻōpū. Inā hana ʻia kēia, e haʻi koke aku i ke kauka.
- Pōniuniu: Hiki i kēia lāʻau lapaʻau ke hoʻopīuniu i kekahi poʻe. Mai hoʻokele a hoʻohana paha i nā mīkini a hiki i kou ʻike ʻana i ka hopena o kēia lāʻau lapaʻau iā ʻoe. E makaʻala i ke ala ʻana a i ʻole ka noho ʻana i lalo me ka koke.
- Ka maloʻo ʻana o ka wai i nā keiki: Inā hāʻawi ʻia kēia lāʻau i kāu keiki a loaʻa iā ia ka ʻeha nui o ka ʻōpū, ka luaʻi ʻana, a i ʻole ka hou nui ʻana, e haʻi koke aku i kāu kauka. Hiki ke pilikia ka hāʻawi ʻana i kēia lāʻau inā nalowale nui ka wai i ke kino (dehydration).
Nā hopena ʻaoʻao e hiki ke loaʻa me kēia lāʻau lapaʻau
E like me nā lāʻau lapaʻau āpau, hiki iā Deferasirox ke hana i nā hopena ʻaoʻao. He koʻikoʻi kekahi o lākou, aʻo kekahi he mea maʻamau.
| Ka hopena ʻaoʻao | Wehewehena |
|---|---|
| Nā hopena ʻaoʻao koʻikoʻi e pono e hōʻike koke ʻia i ke kauka | |
| Nā maʻi ʻaleʻale koʻikoʻi | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe, ke alelo, paʻakikī ka hanu ʻana. |
| Nā hōʻailona o ka hōʻino ʻana o ke akepaʻa | Melemele o ka ʻili a i ʻole nā maka, mimi melemele/ʻeleʻele, ʻeha ma ka ʻaoʻao ʻākau o luna o ka ʻōpū, nalowale o ka makemake e ʻai, luhi nui. |
| Nā hōʻailona o ka hōʻino ʻana o ka puʻupaʻa | Hoʻemi ʻia ka nui o ka mimi, paʻakikī ke mimi. |
| Nā loli i ka ʻike a i ʻole ka lohe ʻana | ʻIke pōwehiwehi, lohe emi. |
| Ke kahe koko ʻano ʻē | ʻO ke kahe ʻana o ke koko a me ka ʻeha pono ʻole o ka ʻili. |
| Nā hopena ʻaoʻao maʻamau e pono e hōʻike i kāu kauka inā hoʻomau a hoʻopilikia paha lākou: | |
| Nā pilikia o ka ʻōnaehana hoʻoheheʻe | ʻEha ka ʻōpū, ka maʻi kahe, ka nausea, ka luaʻi. |
| ʻAʻole hiki ke hiamoe | Ka paʻakikī o ka hiamoe ʻana. |
Leka Lawe-Home
- He lāʻau lapaʻau ʻo Deferasirox i hāʻawi ʻia e wehe i ka hao keu mai ke kino. Pono e lawe pololei ʻia e like me ke kauoha a ke kauka, ma ka ʻōpū ʻole.
- E haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe āu e lawe ai, ʻoiai nā painkillers a me nā antacids, no ka mea, hiki i kēia lāʻau ke launa pū me nā lāʻau lapaʻau ʻē aʻe.
- Inā ʻike ʻoe i nā hōʻailona koʻikoʻi e like me ka ʻili ʻulaʻula, nā ʻōpala ʻeleʻele, a i ʻole ka melemele o nā maka, e ʻike koke i ke kauka.
- ʻOiai e lawe ana i kēia lāʻau lapaʻau, e hōʻoia e loaʻa nā hoʻokolohua koko, maka, a me ka pepeiao i kauoha ʻia e kāu kauka.
- Nou wale nō kēia lāʻau lapaʻau. Mai kaʻana like me nā poʻe ʻē aʻe.
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