Aia kekahi pilikia me nā pale o kou ʻōnaehana nerve? E aʻo kākou e pili ana i ka maʻi Demyelinating!

Ua like ko kākou ʻōnaehana nerve me kahi ʻōnaehana paʻakikī o nā uea. Ma o kēia mau uea e hele ai nā leka mai ko kākou lolo a i nā ʻāpana āpau o ke kino. No laila, ʻo kēia mau 'uea', ʻo ia hoʻi nā ʻaʻalolo `(Neurons), he 'ʻūpā' liʻiliʻi no ka pale ʻana. Kāhea mākou i kēia `(Myelin) . Ua like kēia me ka ʻūpā palakiko ma luna o kahi uea uila. ʻO kēia ʻūpā `(Myelin)` ka mea e pale ai i nā ʻaʻalolo a hiki i nā leka uila ke hele wikiwiki ma o ia mea. E noʻonoʻo, inā ua hōʻino ʻia kekahi mea i loko o kēia ʻūpā `(Myelin)`, e hoʻopilikia ʻia nā leka e hele ana ma o ko kākou mau aʻalolo, e like me ka uea me ka ʻūpā palakiko i haki. ʻO ia ka mea a mākou e kapa nei he `(Demyelinating Disease)` .

He aha ka maʻi Demyelinating?

I ka ʻōlelo maʻalahi, ʻo ka maʻi demyelinating kahi kūlana e hōʻino ai i ka myelin i loko o kou lolo, ke kaula spinal, a me nā aʻalolo . E like me kaʻu i ʻōlelo ai ma mua, ʻo ka myelin ka ʻūpā pale e hoʻopuni ana i nā neurons i loko o kā mākou ʻōnaehana nerve waena a me ka ʻōnaehana nerve peripheral. Hoʻoikaika kēia ʻūpā myelin, pale, a hoʻokaʻawale i nā hunaola nerve. ʻAʻole wale ia, akā kōkua pū ia i nā impulses uila e hele ma waena o nā hunaola.

No laila, inā loaʻa iā ʻoe kahi maʻi demyelinating, eia ka mea e hana ʻia: hoʻouka hewa kāu ʻōnaehana pale i kēia ʻūpā myelin, a i ʻole nā ​​​​​​pūnaewele e hana ana i ka myelin. E noʻonoʻo iā ia e like me kā mākou ʻōnaehana pale, e like me ka ʻōnaehana pale o ko mākou kino, e hoʻouka ana i kona poʻe ponoʻī. Hoʻololi kēia i ke ʻano o ke kamaʻilio ʻana o nā aʻalolo kekahi i kekahi, ke ʻano o kā lākou hana, a hoʻomaka nā hōʻailona like ʻole e ʻike ʻia.

He aha nā ʻano maʻi demyelinating?

Hiki i kēia mau maʻi demyelinating ke hele mai i nā ʻano like ʻole. Hiki ke hoʻokaʻawale ʻia lākou e like me nā mea e hoʻopilikia nui i kā mākou ʻōnaehana nerve waena (ʻo ia hoʻi, ka lolo a me ke kaula spinal) a me nā mea e hoʻopilikia i ka ʻōnaehana nerve peripheral (ʻo ia hoʻi, nā aʻalolo ʻē aʻe e puka ana mai ka lolo a me ke kaula spinal).

Nā maʻi demyelinating maʻamau e hoʻopilikia ana i ka ʻōnaehana nerve waena:

• ʻO ka Sclerosis Multiple (MS) : ʻO kēia ka maʻi maʻamau a kaulana loa o kēia mau maʻi.
• ʻO ka maʻi Neuromyelitis Optica Spectrum (NMOSD)
• ʻO ka Myelitis Transverse (TM)
• ʻO ka Encephalomyelitis Hoʻolaha ʻAkika (ADEM)
• ʻO ka Leukoencephalopathy Multifocal Holomua (PML)
• ʻO ka Myelinolysis Pontine Waena (i kapa ʻia hoʻi ʻo Osmotic Demyelination Syndrome)

Nā maʻi demyelinating maʻamau e hoʻopilikia ana i ka ʻōnaehana nerve peripheral:

• ʻO ka maʻi Guillain-Barré (GBS)
• ʻO ka maʻi Charcot-Marie-Tooth (CMT)
• ʻO ka Polyneuropathy Demyelinating Inflammatory Mau (CIDP)

"Ke ʻōlelo ʻoe he `Demyelinating Disease`, ʻo ia hoʻi ke ʻano mau he `(MS)`?"

ʻAʻole, ʻaʻole. Aia kekahi mau kūlana ʻē aʻe i hāʻule i loko o ka māhele o nā maʻi Demyelinating. Eia nō naʻe, ma nā ʻāina e like me ʻAmelika ʻĀkau, ʻo MS ka mea maʻamau o kēia.

Pehea ka maʻamau o kēia mau maʻi?

ʻO ka Multiple Sclerosis kekahi o nā maʻi demyelinating maʻamau. Ua ʻike ʻia kahi noiʻi 2019 ua kokoke i hoʻokahi miliona mau kānaka ma ʻAmelika Hui Pū ʻIa wale nō e noho nei me MS. Aia kekahi poʻe me kēia maʻi ma Sri Lanka, akā he paʻakikī ke loaʻa nā helu helu pololei e pili ana i ia mea.

He aha nā hōʻailona o kahi maʻi demyelinating?

Hiki ke ʻokoʻa loa nā hōʻailona o kēia mau maʻi, a ʻokoʻa nō hoʻi lākou ma muli o ke ʻano o ka maʻi. Eia kekahi mau hōʻailona maʻamau o kahi maʻi demyelinating e hoʻopilikia ana i ka ʻōnaehana nerve waena:

• Nā loli o ka ʻike: ʻIke pōwehiwehi, hiki ʻole ke hoʻokaʻawale i nā kala (ʻoi aku ka ʻulaʻula a me ka ʻōmaʻomaʻo), ʻeha i ka neʻe ʻana o nā maka, a i ʻole ka ʻike ʻana i ʻelua mau mea i ka manawa hoʻokahi (ʻike pālua).
• Manaʻo mae a nalowale paha ka ʻike ma nā wahi like ʻole o ke kino. Me he mea lā ua mae kekahi i kou mau lima a i ʻole kou mau wāwae.
• ʻO ke kūlana i ʻike ʻia ʻo 'MS hug': ʻO ia hoʻi ke manaʻo e like me kekahi e paʻa pono ana iā ʻoe, a puni kou umauma a ʻōpū paha, a i ʻole e ʻūmiʻi ana iā ʻoe.
• Luhi: Manaʻo luhi no ke kumu ʻole, luhi wale nō.
• Nā pilikia mimi a me ka ʻōpū: Paʻakikī i ka mimi ʻana, a i ʻole ka makemake koke e mimi (ʻo ia hoʻi, pono e hele koke i ka wā e pono ai ʻoe e hele), paʻa paʻa, a pēlā aku.
• Ke kūlou ʻoe i kou ʻāʻī i mua, e ʻike ʻoe i kahi ʻano ʻūlū e like me ka uila e holo ana ma kou kua, nā lima, a me nā wāwae.
• Paʻakikī ke hele. Hihia nā wāwae, me he mea lā ua nalowale ke kaulike.
• Ka nāwaliwali a i ʻole ka ʻoʻoleʻa o nā ʻiʻo.

Hiki paha iā ʻoe ke ʻike i hoʻokahi wale nō o kēia mau hōʻailona, ​​a i ʻole e ʻike paha ʻoe i kekahi mau i ka manawa hoʻokahi. Eia kekahi, hiki ke loli ke koʻikoʻi o kēia mau hōʻailona i ka hala ʻana o ka manawa.ʻO ia hoʻi, i kekahi manawa, e lilo paha nā hōʻailona i mea ʻino iki aʻe (ʻoi aku ka ikaika), a laila e emi iho no kekahi manawa.

He aha nā kumu o ka maʻi Demyelinating?

ʻO ke kumu nui o kēia mau maʻi, ʻo ia ka hōʻino ʻana i ka myelin a me nā cell e hana ana i ka myelin. E like me kaʻu i ʻōlelo ai ma mua, hiki mai kēia hōʻino ma muli o ka hoʻouka hewa ʻana o kā mākou ʻōnaehana pale ponoʻī i ka myelin olakino. ʻO ka maʻamau, pale kā mākou ʻōnaehana pale i ke kino mai nā mea hoʻoulu maʻi e like me ka bacteria a me nā virus. Akā i kekahi manawa, me ka ʻole o nā kuhikuhi kūpono, manaʻo hewa kēia ʻōnaehana pale i kā mākou mau cell myelin ponoʻī he mea ʻino i ke kino. Ke hana ʻia kēlā, loaʻa ka mumū ma kēlā mau wahi, e hana ana i nā hōʻailona o ka maʻi demyelinating.

Hiki i kekahi mau kumu ʻē aʻe ke kōkua i ka ulu ʻana o ka maʻi demyelinating:

• Ma muli o kahi maʻi viral a bacteria paha .
• ʻO ka predisposition genetic (ʻo ia hoʻi, kekahi mau loli i kāu DNA e hoʻonui ai i kou pilikia o ka hoʻomohala ʻana i kahi maʻi autoimmune).
• Ma muli o nā kūlana olakino ʻē aʻe, e like me ka nele o nā wikamina .

I kekahi manawa, ʻaʻole hiki ke loaʻa kahi kumu kikoʻī no kēia mau maʻi . Ke hana ʻia nei nā noiʻi hou aku e pili ana i kēia.

Pehea e ʻike ʻia ai ka maʻi Demyelinating?

Inā loaʻa iā ʻoe kēia mau hōʻailona, ​​​​pono ʻoe e ʻike mua i ke kauka. E hoʻolohe ʻo ia i kāu mau hōʻailona a hana i kahi hoʻokolokolo kino. E lawe pū ʻo ia i kahi mōʻaukala olakino piha. Inā kānalua ʻo ia he maʻi demyelinating kou, hiki ke kuhikuhi ʻia ʻoe i kahi neurologist . ʻO ka neurologist he kauka i loaʻa ka hoʻomaʻamaʻa kūikawā i nā maʻi o ka ʻōnaehana nerve.

E hana ke kauka neurologist i kahi hoʻokolohua neurological a, inā pono, e kauoha i nā hoʻokolohua hou aʻe. ʻAʻohe hoʻokolohua hoʻokahi e ʻike ai i ka demyelination. E hoʻohana kāu kauka i hoʻokahi a ʻoi aku paha o nā hoʻokolohua ma lalo nei e kāpae i nā kūlana ʻē aʻe me nā hōʻailona like a hiki i kahi hōʻailona pololei:

• MRI (Magnetic Resonance Imaging): Hiki i kēia ke hana i nā kiʻi kikoʻī o ka lolo a me ke kaula spinal.
• Lumbar Puncture a i ʻole Spinal Tap: Pili kēia i ka lawe ʻana i kahi liʻiliʻi o ka wai cerebrospinal mai ke kaula spinal a nānā iā ia.
• Optical Coherence Tomography (OCT): Ke nānā nei kēia i ke aʻalolo optic.
• ʻElectromyography (EMG):Ke ana kēia i ka hana uila o nā ʻiʻo a me nā aʻalolo.
• Nā hoʻāʻo koko: E kāpae i nā kūlana olakino ʻē aʻe a e nānā i kekahi mau pae huaora.
• Hoʻāʻo ʻana i nā Mana Hoʻāla: Ana i ka wikiwiki o ka hele ʻana o nā hōʻailona uila ma o nā aʻalolo.

Pehea e ʻike ʻia ai ka maʻi Demyelinating me ka MRI?

He hoʻāʻo ka MRI e hoʻohana ana i kahi magnet a me nā nalu lekiō e hana i nā kiʻi o kou lolo a me ke kaula iwi kuamoʻo. Hāʻawi kēia i kāu kauka i kahi kiʻi maikaʻi aʻe o nā mea e hana nei i loko o kou kino. Inā loaʻa iā ʻoe kahi maʻi demyelinating, hiki i kahi scan MRI ke hōʻike i nā wahi i hōʻino ʻia (i kapa ʻia he lesions) i loko o kou lolo a me ke kaula iwi kuamoʻo.

Pehea e mālama ʻia ai ka maʻi Demyelinating?

ʻOkoʻa ka mālama ʻana no ka maʻi demyelinating ma muli o ke ʻano o ka maʻi āu e loaʻa ai . E hana pū kāu kauka me ʻoe e kōkua i ka hoʻokele ʻana i kāu mau hōʻailona a, i kekahi mau hihia, e hoʻolohi i ka laha ʻana o ka maʻi. Hiki i nā koho lapaʻau ke komo pū me:

• Nā lāʻau lapaʻau: Nā lāʻau lapaʻau e hōʻemi i ka hana maʻi, kaohi i nā hōʻailona, ​​a hoʻololi paha i ka hana o ka ʻōnaehana pale kino.
• Hoʻōla Kino a me ka Hoʻōla Hana: Kōkua me nā mea e like me nā pilikia hele wāwae, nāwaliwali o nā ʻiʻo, a kōkua iā ʻoe e hana maʻalahi i nā hana o kēlā me kēia lā.

E hoʻoholo kāu kauka i ka hoʻolālā lapaʻau maikaʻi loa e pili ana i kāu mau hōʻailona a me ke kūlana. Ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau, e aʻo e pili ana i nā hopena ʻaoʻao a me nā mea e manaʻo ai . Inā loaʻa iā ʻoe nā hōʻailona hou a i ʻole e ʻoi aku ka ʻino ma hope o ka hoʻomaka ʻana i ka lāʻau lapaʻau, e haʻi koke i kāu kauka. ʻO ka wikiwiki o kou hoʻomaka ʻana i ka lāʻau lapaʻau, ʻoi aku ka maikaʻi o kāu mau hopena.

He aha ka nānā ʻana/wānana no kēia mau maʻi?

ʻOkoʻa loa ke ʻano o ka nānā ʻana ma muli o ka maʻi demyelinating e hoʻoulu ai i kāu mau hōʻailona. Hiki i kēia mau maʻi ke hoʻopilikia i nā ʻano he nui o kou ola, me ke ʻano o kou noʻonoʻo ʻana, neʻe ʻana, a me kou manaʻo. No ka laʻana, hiki iā ʻoe ke paʻakikī i ka hele wāwae a i ʻole ka hana ʻana i nā hana o kēlā me kēia lā. Pono paha kekahi poʻe i ke kōkua mai nā ʻohana e noho i kahi palekana.

No kekahi poʻe, he ʻoluʻolu loa nā hōʻailona a ʻaʻohe hopena lōʻihi . No kekahi poʻe, he koʻikoʻi nā hōʻailona a he hopena nui i ke ola o kēlā me kēia lā . He ʻokoʻa ke kūlana o kēlā me kēia kanaka. ʻAʻohe lāʻau lapaʻau no kēia mau kūlana , akā hiki i kāu kauka ke kōkua iā ʻoe e hoʻokele i kāu mau hōʻailona i kou ola a pau.

Ke hoʻololi nei ka maʻi Demyelinating i ka manaʻolana ola?

Hiki i ka maʻi Demyelinating ke hoʻopilikia i kou ola, akā ʻaʻole ka hapa nui o nā maʻi e hoʻopilikia pololei i ka lōʻihi o kou ola . Ma keʻano laulā, hōʻike kekahi mau noiʻi e pōkole iki ke ola o kekahi me ka maʻi demyelinating ma mua o kekahi me ka ʻole o ka maʻi. Akā pili kēia i ka nui o ka pōʻino i hana ʻia i kāu mau hunaola nerve. He ʻokoʻa ia mai kēlā kanaka a i kēia kanaka. Hiki i kāu kauka ke pane maikaʻi loa i kēia nīnau ma muli o kou kūlana kikoʻī.

Āhea wau e ʻike ai i ke kauka?

Inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona o ka maʻi demyelinating, e ʻike koke i ke kauka:

• Nā loli o ka ʻike
• Ka mae a nalowale paha o ka manaʻo
• Hana paʻakikī
• Nā pilikia mimi a i ʻole ka defecating
• Paʻakikī ka hele wāwae
• ʻOʻoleʻa a nāwaliwali paha o nā ʻiʻo

He aha nā nīnau e pono iaʻu e nīnau aku i kaʻu kauka?

Ke ʻike ʻoe he maʻi demyelinating kou, nui paha kāu mau nīnau. Mai kānalua e nīnau i kāu kauka i nā nīnau e like me kēia:

• He aha ke ʻano o ka maʻi demyelinating i loaʻa iaʻu?
• E ʻoi aku ka ʻino o kēia maʻi (ʻo ia hoʻi, e "holomua" anei)?
• He aha ke ʻano o ka lāʻau lapaʻau āu e paipai nei?
• Aia kekahi mau hopena ʻaoʻao o ka lāʻau lapaʻau?
• Pehea kaʻu wānana?

He ʻāpana koʻikoʻi loa ka Myelin o kou kino. Mālama ia i kāu mau hunaola nerve a mālama iā lākou e hana pono. Inā ua hōʻino ʻia, hiki iā ʻoe ke ʻike i nā hōʻailona e like me ka ʻeha, ka paʻakikī o ka neʻe ʻana, a me ka paʻakikī o ka noʻonoʻo pono ʻana. Hiki i ke kauka ke ʻike a mālama i ke kūlana demyelinating e hoʻopilikia nei iā ʻoe. ʻOiai ʻaʻohe lāʻau lapaʻau no kēia mau maʻi, pono ʻoe e hoʻokele i kāu mau hōʻailona i kou ola a pau me ke kōkua o kāu hui lapaʻau. E kamaʻilio mau me kāu kauka e pili ana i kou kūlana, nā koho lapaʻau, nā hōʻailona hou, a i ʻole inā manaʻo ʻoe e ʻoi aku ka ʻino o kāu mau hōʻailona.

ʻO ka mea nui loa āu e pono ai e ʻike (Leka Lawe-Home)

No laila, ʻo ka maʻi Demyelinating kahi kūlana e kū mai ana i ka wā e hōʻino ʻia ai ka ʻupena myelin i loko o kā mākou ʻōnaehana nerve. He mea weliweli paha kēia, akā e hoʻomanaʻo, ʻaʻole ʻoe hoʻokahi. Hiki ke ʻokoʻa nā hōʻailona mai kēlā kanaka a kēia kanaka, a pēlā nō hoʻi ka hopena o ka maʻi. ʻO ka mea nui loa, inā loaʻa iā ʻoe kekahi o nā hōʻailona i ʻōlelo ʻia ma kēia ʻatikala, mai hoʻowahāwahā iā lākou a e ʻike koke i ke kauka. Inā ʻike mua ʻoe i ka maʻi a hoʻomaka pono i ka mālama ʻana, hiki iā ʻoe ke kāohi nui i kāu mau hōʻailona a ola i kahi ola maʻamau a maikaʻi. ʻO kāu kauka a me kou ʻohana ke kākoʻo nui i kēia huakaʻi.

ʻO ka maʻi Demyelinating, Myelin, ʻōnaehana nerve, Multiple Sclerosis, MS, Nā hōʻailona, ​​​​​​lāʻau lapaʻau