Ua nāwaliwali a ua hoʻonui ʻia kou puʻuwai? E kamaʻilio kākou e pili ana i ka Dilated Cardiomyopathy!

He ʻōkana kupaianaha maoli ko kākou puʻuwai, ʻeā? Pehea ka nui o ko kākou mālama ʻana i kēia puʻuwai e hāʻawi mau ana i ke ola i ko kākou kino holoʻokoʻa? I kekahi manawa, me ka ʻike ʻole ʻia e kākou, hiki i kēia puʻuwai ke loaʻa nā pilikia a me nā maʻi like ʻole. I kēia lā e kamaʻilio kākou e pili ana i kahi maʻi e hoʻonāwaliwali ai i ka puʻuwai a hoʻonui i ka ʻiʻo puʻuwai me ke kumu ʻole, kahi maʻi i loaʻa kahi inoa weliweli iki, akā he mea nui loa ia no kākou a pau e makaʻala. ʻO kēia ka mea a nā kauka e kapa nei (Dilated Cardiomyopathy).

He aha ka Dilated Cardiomyopathy?

I ka ʻōlelo maʻalahi, ʻo kēia kūlana (Dilated Cardiomyopathy) ʻo ia ka wā e kīkoʻo ai ke keʻena pumping nui o kou puʻuwai, ʻo ka ventricle hema , a i ʻole ka ʻiʻo nui o ka puʻuwai, a lilo i mea nui aʻe ma mua o ka maʻamau. E noʻonoʻo e like me ke kaula laholio e kīkoʻo ana, akā i kēia hihia, ʻaʻole maikaʻi ia no ka puʻuwai. Ke nāwaliwali, lahilahi, a hoʻonui ʻia ka ʻiʻo puʻuwai, emi ka hiki o ka puʻuwai ke pumi i ke koko pono. He aha ka mea e hana ai? I kēlā me kēia manawa e paʻi ai ka puʻuwai, waiho ʻia kahi koko liʻiliʻi i loko o ka puʻuwai. ʻO ka hopena, ʻaʻole loaʻa i ke koena o ke kino ka nui kūpono o ke koko momona i ka oxygen. I nā hihia koʻikoʻi, hiki i kēia ke hoʻopilikia i nā ʻāpana ʻē aʻe o ka puʻuwai.

Ua manaʻo nā kānaka noiʻi aia ma kahi o 36 o 100,000 mau kānaka o ka heluna kanaka e ʻeha nei i kēia maʻi. Akā ʻo ka nūhou maikaʻi, aia nā lāʻau lapaʻau no kēia maʻi puʻuwai. A aia kekahi mau mea hiki iā ʻoe ke hana e mālama i ke ʻano.

He aha nā hōʻailona o kēia maʻi?

Nui ka poʻe, ʻoiai i nā wā mua o ka maʻi, ʻaʻole paha e hōʻike i kekahi mau hōʻailona. ʻO ia ka ʻāpana weliweli o kēia maʻi. Akā i ka wā e ʻoi aku ka ʻino o ka hana a ka puʻuwai, hoʻomaka ʻoe e ʻike i nā hōʻailona hou aʻe.

Hiki i nā hōʻailona o ka Dilated Cardiomyopathy ke komo pū me:

• ʻEha a ʻeha paha ka umauma
• ʻŪhū a me ke kūpikipikiʻō
• Pōʻino a poʻo hina paha
• Ka mae ʻana
• Manaʻo luhi ʻole ( Fatigue )
• Nā palpitations a i ʻole ke kani ʻana i loko o kou umauma
• Pōkole o ka hanu / dyspnea
• Ka pehu/ʻeha o ka ʻōpū, nā wāwae, nā kuʻekuʻe wāwae, a me nā wāwae
• Piʻi kaumaha i manaʻo ʻole ʻia mai ka paʻa ʻana o ka wai

Inā loaʻa iā ʻoe kekahi a ʻoi aku paha o kēia mau hōʻailona, ​​​​he mea nui loa e ʻimi koke i ke kōkua lapaʻau.

No ke aha e hana ai kēia (Dilated Cardiomyopathy)?

"No ke aha lā i hiki mai ai kēia iaʻu?" e noʻonoʻo paha ʻoe. ʻO ka ʻoiaʻiʻo, i nā manawa he nui, ʻaʻole hiki i nā loea ke kuhikuhi i ke kumu pololei. Eia nō naʻe, aia kekahi mau kumu i ʻike ʻia. ʻO ia mau mea:

• Puʻuwai puʻuwai kūpono ʻole (nā pilikia rhythm) ( Arrhythmia )
• Ka maʻi hoʻohana ʻona
• ʻO kekahi mau lāʻau anti-cancer (hiki i kēia mau mea ke hōʻeha i ka puʻuwai - nā lāʻau cardiotoxic )
• Nā pilikia e kū mai ana ma hope o ka hāpai ʻana a ma hope paha o ka hānau ʻana
• Maʻi puʻuwai hānau
• Maʻi ʻaʻa coronary
• Maʻi diabetes
• Nā kūlana i hoʻoilina ʻia mai nā mākua ma o nā genes (ua kapa ʻia kēia he familial dilated cardiomyopathy . Hiki i kēia ke helu ma mua o 50% o nā hihia)
• Maʻi hohola
• Maʻi valve puʻuwai
• Ke koko kiʻekiʻe
• ka maʻi HIV
• Nā maʻi e like me ka mumū o ka ʻiʻo o ka puʻuwai (no ka laʻana, myocarditis )
• Ka hoʻohana ʻana i nā lāʻau lapaʻau e like me ka cocaine
• Maʻi thyroid
• Hepatitis viral

I kekahi manawa, hiki i ke kanaka ke loaʻa i nā kumu he nui. No ka laʻana, hiki iā ʻoe ke loaʻa i ka Dilated Cardiomyopathy ma muli o kekahi maʻi ʻē aʻe, ʻoiai he predisposed genetics paha ʻoe.

ʻO wai ka mea i pilikia nui i ka loaʻa ʻana o kēia maʻi?

ʻOi aku ka nui o ka loaʻa ʻana o kēia maʻi i kekahi poʻe ma mua o kekahi. ʻO lākou kēia:

• Nā kānaka ma lalo o 50 mau makahiki
• ʻO ka poʻe o ka hanauna ʻeleʻele (ʻoiai ʻaʻole pili loa kēia iā Sri Lanka, he mea ia i ʻike ʻia ma ka honua holoʻokoʻa)
• Nā kāne kāne
• Inā loaʻa i kekahi o ka ʻohana ka Dilated Cardiomyopathy (ka mana hoʻoilina)

He aha nā pilikia e hiki mai ana o ka Dilated Cardiomyopathy?

Inā holomua kēia maʻi, ʻo ia hoʻi, i nā pae hope loa, hiki ke loaʻa nā pilikia like ʻole. He mea koʻikoʻi loa kēia, ʻo ia ke kumu he mea nui e ʻimi koke i ka lāʻau lapaʻau.

Hiki i kēia mau pilikia ke komo pū me:

• Puʻuwai puʻuwai kūpono ʻole ( Arrhythmia )
• ʻEha umauma ( Angina )
• Nā ʻūpā koko i loko o ka puʻuwai (hiki i kēia mau ʻūpā koko ke hele i nā māmā a hana i kahi kūlana weliweli i kapa ʻia ʻo pulmonary embolism )
• Hoʻopau ʻia ka puʻuwai
• Maʻi hohola
• Ka hāʻule ʻana o ka puʻuwai - ʻO ke ʻano kēia ua nāwaliwali loa ka puʻuwai a ʻaʻole hiki iā ia ke hoʻokō i nā pono o ke kino.
• Maʻi valve puʻuwai
• Hahau

E noʻonoʻo wale i ke koʻikoʻi o kēia mau pilikia. ʻO ia ke kumu e hopohopo ai ʻoe inā ʻike ʻoe i kahi hōʻailona liʻiliʻi loa.

Pehea e ʻike ai nā kauka i kēia maʻi (Dilated Cardiomyopathy)?

Ke hele ʻoe e ʻike i ke kauka, ʻo ka mea mua āna e hana ai, ʻo ia ke lawe i kāu mōʻaukala olakino.E nīnau kāu kauka e pili ana i kou mōʻaukala olakino (e like me nā maʻi a i ʻole nā ​​​​lāʻau lapaʻau āu e lawe ai) a me kou mōʻaukala ʻohana (e like me nā maʻi i loaʻa i kou ʻohana). A laila, e hana lākou i kahi hoʻokolokolo kino . I loko o kēia manawa, e hoʻolohe ke kauka i kou mau māmā e nānā i ka hōʻiliʻili ʻana o ka wai. ʻO ka mea kupanaha, hiki i ke kauka ke lohe i kahi leo ʻē i loko o kou puʻuwai (he murmur puʻuwai) ma mua o kou loaʻa ʻana o kekahi mau hōʻailona.

Ma hope o kēlā, pono ʻoe e hana i nā hoʻokolohua like ʻole e hoʻoholo ai i ke koʻikoʻi o ka maʻi a hoʻolālā i ka lāʻau kūpono iā ʻoe.

He aha nā hoʻokolohua i hana ʻia no kēia?

ʻO ka maʻamau, hiki ke hana ʻia nā hoʻokolohua e like me kēia:

• Angiogram: Nānā kēia e ʻike inā he poloka i loko o nā aʻa coronary e hoʻolako koko i kou puʻuwai.
• Nā hoʻāʻo koko: Nānā kēia i ka hōʻino ʻana o ka puʻuwai a me nā pilikia ʻē aʻe.
• X-ray o ka umauma: Hiki i kēia ke hāʻawi i kahi manaʻo maʻamau inā ʻoi aku ka nui o kou puʻuwai ma mua o ka maʻamau.
• Echocardiogram: He hoʻāʻo koʻikoʻi loa kēia. Ua like ia me kahi 'wikiō' o ka puʻuwai. Hiki iā ia ke hōʻike i ka maikaʻi o ka hana ʻana o ka puʻuwai, pehea ke ʻano o nā ʻiʻo, a pehea ka hana ʻana o nā valves.
• Electrocardiogram (EKG/ECG): Nānā kēia i ka hana uila o ka puʻuwai, ʻo ia hoʻi inā he pilikia me ke kuʻina o ka puʻuwai.
• Hoʻāʻo koʻikoʻi hoʻoikaika kino: Hoʻāʻo kēia i ka pane ʻana o kou puʻuwai ke hoʻoikaika kino ʻoe.
• Ka hoʻāʻo ʻana i ka genetics: Kōkua kēia hoʻāʻo e hoʻoholo inā he predisposition genetic kou i ka maʻi.
• MRI Puʻuwai: Hiki i kēia ke hāʻawi i kahi kiʻi maopopo o ka nui a me ka hana o nā keʻena o ka puʻuwai.
• ʻO ka biopsy Endomyocardial: ʻAʻole hana pinepine ʻia kēia. Pili ia i ka lawe ʻana i kahi hāpana liʻiliʻi o ka ʻiʻo puʻuwai a nānā iā ia.

Pehea e mālama ʻia ai ka Dilated Cardiomyopathy?

Pono paha ʻoe i nā ʻano lāʻau like ʻole. ʻOiai ʻaʻole hiki i kēia mau lāʻau ke ho'ōla loa i ka maʻi, hiki iā lākou ke kōkua i ka kaohi ʻana i nā hōʻailona a kōkua iā ʻoe e ola i kahi ola olakino a lōʻihi. ʻO ka hoʻomaka koke ʻana o ka lāʻau lapaʻau, ʻoi aku ka maikaʻi o ka hopena. E kamaʻilio kāu kauka puʻuwai a loea paha i ka hāʻule ʻana o ka puʻuwai me ʻoe a hoʻoholo i ka hoʻolālā lapaʻau maikaʻi loa nāu.

Hiki ke hoʻokaʻawale ʻia nā ʻano lapaʻau i ʻekolu mau māhele nui: nā lāʻau lapaʻau, nā loli o ke ʻano o ka nohona, a me ke ʻoki kino a i ʻole nā ​​​​kaʻina hana lapaʻau ʻē aʻe.

Nā lāʻau lapaʻau

Aia kekahi mau ʻano lāʻau lapaʻau e hiki ke hoʻomaikaʻi i ka hana o kou puʻuwai i nā hihia o Dilated Cardiomyopathy. Eia kekahi mau laʻana:

• Nā mea hoʻopaʻa ACE
• Nā mea kū'ē i ka Aldosterone
• Nā mea hoʻopaʻa i ka mea loaʻa Angiotensin/neprilysin (ARNI)
• Nā lāʻau lapaʻau no ka puʻuwai naʻau ʻole ( nā antiarrhythmics )
• Nā mea pale beta
• Nā lāʻau hoʻokahe koko/anticoagulants - ʻoi aku hoʻi no ka poʻe me nā kūlana e like me ka atrial fibrillation
• Nā lāʻau lapaʻau e hōʻemi i ka nui o ka wai pono ʻole i loko o ke kino ( Diuretics )

He mea nui loa e lawe i kēia mau lāʻau lapaʻau a pau e like me ke kauoha a ke kauka, ma ke ʻano kūpono, a ma ka manawa kūpono.

Nā loli i nā hana maʻamau o kēlā me kēia lā

Ma ka hana ʻana i nā hoʻololi liʻiliʻi i kāu hana maʻamau i kēlā me kēia lā, ka ʻai, a me nā mea ʻē aʻe, hiki iā ʻoe ke hoʻomaikaʻi i kāu mau lāʻau lapaʻau, a malia paha e hoʻopaneʻe a pale aku paha i ka pono no ke ʻoki kino.

ʻO kēia mau hoʻololi:

• E pale i kou kino: E kaupalena i ka nui o ka waiʻona āu e inu ai. E pale loa i nā lāʻau lapaʻau kū ʻole i ke kānāwai. E pale iā ʻoe iho mai nā maʻi e like me ka maʻi hepatitis viral a me ka HIV.
• E ʻai i ka meaʻai olakino no ka puʻuwai: E ʻai i ka nui o nā ʻiʻo momona (e like me ka moa a me ka iʻa), nā huaʻai, a me nā mea kanu. ʻO ka ʻai ʻana i ka meaʻai haʻahaʻa i ka paʻakai hiki ke kōkua i ka hōʻemi ʻana i ka paʻa ʻana o ka wai i loko o ke kino, kahi e hiki ai ke kau i kahi kaumaha ma ka puʻuwai.
• Hoʻonui i ka hana kino: ʻO nā hoʻoikaika kino mālie ʻaʻole paʻakikī loa i ka puʻuwai hiki ke kōkua i ka hoʻomaikaʻi ʻana i ka hana o ka puʻuwai. E kamaʻilio me kāu kauka e pili ana i nā hoʻoikaika kino kūpono iā ʻoe. Hiki paha iā ʻoe ke noʻonoʻo e komo i kahi papahana hoʻoponopono puʻuwai . He wahi maikaʻi kēia e hoʻomaka ai e hoʻoikaika kino me ka palekana.

ʻO ke ʻoki kino a me nā kaʻina hana minimally invasive

Inā ʻoi aku ka holomua o ka maʻi a ua emi nui ka hana o ka puʻuwai, pono paha ʻoe i ke ʻoki kino a i ʻole nā ​​​​​​hana lapaʻau kūikawā ʻē aʻe. ʻO kekahi o nā kaʻina hana no ka Dilated Cardiomyopathy:

• ʻO ka pacemaker biventricular: He mea hana kēia e kōkua ai i nā keʻena o ka puʻuwai e hana i kahi mele kūlike.
• ʻO ka defibrillator cardioverter implantable (ICD): Inā lilo kou puʻuwai i mea kūpono ʻole, hāʻawi kēia hāmeʻa i kahi haʻalulu uila liʻiliʻi e hoʻihoʻi i ka helu o kou puʻuwai.
• ʻO ka hāʻule ʻana o ka puʻuwai a i ʻole nā ​​​​ʻoki valve puʻuwai: Hoʻomaikaʻi kēia i ka hana o ka puʻuwai.
• Mea kōkua ventricular hema (LVAD): He mea hana mechanical kēia e kōkua ai i ka pamu koko i kahi ʻiʻo puʻuwai nāwaliwali loa.
• Hoʻoili puʻuwai: He koho kakaikahi loa kēia, e noʻonoʻo ʻia ana i ka wā i holomua ʻole ai nā lāʻau lapaʻau ʻē aʻe a pau.

Hiki ke pale ʻia kēia maʻi?

ʻO kaʻoiaʻiʻo, ʻaʻole hiki ke pale ʻia kēia maʻi i nā manawa a pau. He mea paha ia e holo ana i loko o kou ʻohana (genetics). A i ʻole, ma muli paha o ka chemotherapy no kahi maʻi e like me ke kanesa.Hiki iā ia ke hana ma ke ʻano he hopena ʻaoʻao o ka lāʻau lapaʻau.

Eia nō naʻe, aia kekahi mau mea hiki iā ʻoe ke hana e hōʻemi i kou pilikia o ka hoʻomohala ʻana i ka Dilated Cardiomyopathy:

• E hōʻalo loa i nā lāʻau lapaʻau e like me ka cocaine.
• Inā ʻoe e inu i ka waiʻona, e hōʻemi i ka nui i kaupalena loa ʻia.
• Inā loaʻa iā ʻoe nā maʻi e like me ka maʻi diabetes a i ʻole ke koko kiʻekiʻe, e kaohi pono iā lākou.
• E mālama pono i kou puʻuwai e pale aku i ka hāʻule ʻana o ka puʻuwai (ʻai maikaʻi, hoʻoikaika kino, a me ka pale ʻana i ka puhipaka).

He aha kāu e manaʻo ai i ka wā e noho ana me kahi maʻi i kapa ʻia ʻo Dilated Cardiomyopathy?

Aia kou wānana i ke kumu a me ke koʻikoʻi o kou kūlana. Me ka mālama olakino maʻamau, hiki paha iā ʻoe ke hoʻi i ka hana a hoʻomau i kāu mau hana maʻamau o kēlā me kēia lā. Eia nō naʻe, i kekahi manawa e ʻoi aku ka ʻino o kou mau hōʻailona i ka hala ʻana o ka manawa. Inā ʻoi aku ka ʻino o kou kūlana a i ʻole e ulu aʻe nā pilikia, paʻakikī paha iā ʻoe ke hoʻomanawanui. Pono paha ʻoe e noho i ka haukapila a hiki i ka hoʻomaikaʻi ʻana o kou mau hōʻailona.

No nā kānaka he nui, hiki i ka dilated cardiomyopathy ke ʻoi aku ka ʻino i ka hala ʻana o ka manawa a alakaʻi i ka hāʻule ʻana o ka puʻuwai no ka manawa lōʻihi. ʻO ke ʻano kēia, ua nāwaliwali loa ka puʻuwai a hiki ʻole ke hoʻokō i nā koi o ke kino. ʻO ka hāʻule ʻana o nā puʻupaʻa a me ka hāʻule nui o ka puʻuwai he mau hōʻailona ia ʻaʻole e holo pono ka maʻi. ʻO ka poʻe i loaʻa nā hōʻailona ʻoiai i ka wā e hoʻomaha ai, a i ʻole hiki ʻole ke hana i kekahi hana kino, pinepine lākou i nā hopena ʻino loa.

Akā, mai hopohopo! Ua hoʻomaikaʻi nui ʻia ke olakino a me ke ola o ka poʻe me Dilated Cardiomyopathy i nā makahiki i hala iho nei. Ma muli kēia o ka hoʻomaikaʻi ʻia ʻana o nā lāʻau lapaʻau a me ka ʻike mua ʻana. I kēia lā, ʻoi aku ma mua o 80% o ka poʻe me kēia maʻi e ola maikaʻi ana no ʻewalu mau makahiki, me ka ʻole o ka pono o ka hoʻoili puʻuwai.

Pehea wau e mālama ai iaʻu iho?

ʻO ka mea nui loa hiki iā ʻoe ke hana i kou wā e noho nei me kēia maʻi, ʻo ia ka mālama ʻana iā ʻoe iho. E hahai pono i nā ʻōlelo a kāu kauka.

• E makaʻala i nā hōʻailona o nā pilikia, e like me ka piʻi ʻana o ke kaumaha koke, i kēlā me kēia lā.
• E hana pololei i nā hoʻololi a kāu kauka i ʻōlelo ai (e like me ka ʻai ʻana i ka meaʻai haʻahaʻa paʻakai).
• E ʻike i kāu kauka no nā kipa hoʻomau i nā manawa he nui i ka makahiki.
• E lawe i ka lāʻau lapaʻau i kuhikuhi ʻia me ka pololei a me ka manawa kūpono.

Āhea wau e ʻike ai i kaʻu kauka?

No ka mea hiki ke loli kou kūlana i ka hala ʻana o ka manawa, ʻoi aku ka maikaʻi o ka launa pū ʻana me kāu kauka a loaʻa nā nānā maʻamau. He mea kēia āu e hana ai i kou ola a pau. Inā manaʻo ʻoe e ʻoi aku ka ʻino o kāu mau hōʻailona, ​​e kamaʻilio koke me kāu kauka . Hiki iā ia ke kōkua iā ʻoe e hoʻokele i kāu mau hōʻailona.

He aha nā nīnau e pono iaʻu e nīnau aku i kaʻu kauka?

Ke ʻike hou ʻia ʻoe me kahi maʻi, he mea maʻamau ka loaʻa ʻana o nā nīnau he nui. Mai kānalua e nīnau i kāu kauka i nā nīnau e like me:

• He manaʻo maikaʻi anei ka loaʻa ʻana o ka hoʻāʻo genetic no ke koena o koʻu ʻohana?
• Pono anei au e pale aku i ka hana luhi?
• Aia kekahi hui kākoʻo e hiki iaʻu ke hui pū, ma Sri Lanka a i ʻole ma ka pūnaewele?
• He aha ka papaʻai kūpono iaʻu?
• He aha ke ʻano o ka hoʻoikaika kino e pono ai iaʻu e hana a pehea ka lōʻihi e pono ai iaʻu e hana?

ʻAʻohe mea makemake e ʻike ʻaʻole hana pono ko lākou puʻuwai. Eia nō naʻe, hiki i nā kauka o kēia wā ke hāʻawi i nā ʻano lapaʻau like ʻole e kōkua i kou puʻuwai e hana pono i nā kūlana e like me Dilated Cardiomyopathy. Aia kekahi mau hoʻololi maʻalahi hiki iā ʻoe ke hana e hoʻomaikaʻi i kou kūlana. Mai makaʻu e nīnau a hoʻomaopopo i kāu mau koho. Hiki iā ʻoe ke hana pū me kāu kauka e ʻike i ke ala maikaʻi loa e holomua ai me kēia kūlana.

Nā mea nui e hoʻomanaʻo (Leka Lawe-Home)

Ke lana nei koʻu manaʻo ua ʻoi aku kou maopopo i ka maʻi ʻiʻo puʻuwai a mākou i kamaʻilio ai i kēia lā (Dilated Cardiomyopathy) . ʻOiai he maʻi koʻikoʻi kēia, inā ʻike ʻoe a mālama pono iā ia, hiki iā ʻoe ke ola i kahi ola maikaʻi.

ʻO ka mea nui loa, ʻo ia ka makaʻala i nā hōʻailona, ​​e ʻimi koke i ke kōkua lapaʻau, a e hahai pono i ka lāʻau a me nā kuhikuhi i hāʻawi ʻia e kāu kauka. ʻAʻole ʻoe hoʻokahi, aia nā kauka a me nā limahana olakino e kōkua a alakaʻi iā ʻoe ma kēia huakaʻi. No laila e noho ikaika a e kū i kēia kūlana.

ʻO ka maʻi puʻuwai, ka puʻuwai i hoʻonui ʻia, ka cardiomyopathy dilated, ka nāwaliwali o ka ʻiʻo puʻuwai, ka pōkole o ka hanu, ka hāʻule ʻana o ka puʻuwai, ka mālama ʻana i ka puʻuwai