Loaʻa i kāu keiki ka maʻi ʻo 'Neuroblastoma'? E aʻo kākou e pili ana i ka lāʻau pale ʻo 'Dinutuximab'!

Maopopo iaʻu ke kaumaha o ka ʻike ʻana he maʻi ko kāu keiki liʻiliʻi e like me 'Neuroblastoma'. I kēlā manawa, hiki mai nā nīnau he tausani i ka noʻonoʻo, a kaumaha a makaʻu hoʻi ʻoe. Akā e hoʻomanaʻo, ua holomua loa ka ʻepekema lapaʻau i kēia mau lā. No laila, aia nā lāʻau lapaʻau e hiki ke hāʻawi ʻia no ia mau kūlana. ʻO kekahi lāʻau lapaʻau kūikawā ʻo 'Dinutuximab'. I kēia lā, e kamaʻilio wale mākou e pili ana i kēia lāʻau pale 'Dinutuximab', pehea e hāʻawi ai i ke keiki, a me nā mea e makaʻala ai.

He aha ke ʻano lāʻau lapaʻau ʻo 'Dinutuximab'?

I ka ʻōlelo maʻalahi, ʻo `Dinuximab` kahi lāʻau lapaʻau no kahi papa kūikawā o nā lāʻau lapaʻau i kapa ʻia ʻo `Monoclonal Antibody` . E noʻonoʻo e pili ana, ʻaʻole anei he ʻōnaehana pale ma ko kākou kino e hakakā nei i nā maʻi? Pēlā nō, ʻo kēia `Monoclonal Antibody` he protein i hana kūikawā ʻia ma ka hale hana. ʻO ka mea kūikawā o kēia, ʻo ia ka hana ʻia ʻana e kuhikuhi pololei a hoʻouka i nā cell kikoʻī, e like me nā cell cancer. Hoʻohana kūikawā ʻia ʻo `Dinuximab` e mālama i kahi ʻano maʻi kanesa i kapa ʻia ʻo `Neuroblastoma`, kahi e loaʻa ana i nā keiki .

Hiki paha iā ʻoe ke ʻike i kēia lāʻau lapaʻau ma lalo o ka inoa inoa ʻo 'Unituxin'. ʻAʻole kēia he lāʻau lapaʻau maʻamau, akā he lāʻau lapaʻau ikaika loa i hāʻawi ʻia ma lalo o ka nānā ʻana a nā kauka loea. No laila, he mea nui loa ka loaʻa ʻana o ka ʻike maikaʻi i kēia.

I nā kūlana hea e hāʻawi ʻia ai kēia lāʻau lapaʻau i nā keiki?

E like me kaʻu i ʻōlelo ai ma mua, hoʻohana nui ʻia ʻo `Dinuximab` no ka mālama ʻana i kahi maʻi kanesa i kapa ʻia ʻo `Neuroblastoma` e kū mai ana i nā keiki ʻōpio, ʻo ia hoʻi, nā keiki e like me ka makahiki 1. ʻO `Neuroblastoma` kahi ʻano maʻi kanesa e kū mai ana i loko o ka ʻōnaehana nerve. He maʻi kanesa ia e ʻike pinepine ʻia i nā keiki.

I kekahi manawa, hoʻoholo paha nā kauka e hoʻohana i kēia lāʻau lapaʻau no nā kūlana olakino ʻē aʻe. Akā, hiki i ke kauka ke hoʻoholo ma hope o ka nānā pono ʻana i ke kūlana o kāu keiki. No laila, e nīnau i kāu kauka a kauka lāʻau paha i nā nīnau āu e pili ana i ka hoʻohana ʻana i kēia lāʻau lapaʻau.

He aha nā mea nui e haʻi aku i ke kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau?

He mea nui loa kēia. Ma mua o ka hoʻomaka ʻana i ka lāʻau ʻo `Dinutuximab`, he mea nui e hoʻomaopopo i ka hui lapaʻau e pili ana i kekahi ʻike e pili ana i ke kūlana olakino o kāu keiki. No ka mea, ʻo ka holomua a me ka palekana o ka lāʻau lapaʻau e pili ana i kēlā ʻike.

Eia kekahi mau mea e ʻōlelo pono ai:

• Nā maʻi o kēia manawa: Inā loaʻa i ke keiki kahi maʻi i kēia manawa, e like me ke kuni a i ʻole ke anu.
• Maʻi puʻupaʻa: Inā he pilikia pili i ka puʻupaʻa ke keiki.
• Maʻi ate: Inā loaʻa iā ʻoe kekahi maʻi pili i ke akepaʻa.
• Ka helu koko haʻahaʻa: ʻO ke ʻano kēia he helu haʻahaʻa o nā hunaola koko keʻokeʻo, nā hunaola koko ʻulaʻula, a i ʻole nā ​​platelets.Inā ua ʻike mua ʻia ʻoe me kēia ʻano maʻi, ke emi iho kēia mau mea, hiki ke maʻalahi ka loaʻa ʻana o nā maʻi a me ke kahe ʻana o ke koko.
• Ka maʻi o ka māmā a i ʻole ka hanu ʻana: Nā kūlana e like me ka paʻakikī o ka hanu ʻana, ka hānō.
• Hāpai: ʻOiai inā e lawe ana kekahi keiki i kēia lāʻau lapaʻau, pono e hoʻomaopopo ʻia ka mea e lawe ana i ka lāʻau lapaʻau (e.g. ka makuahine) inā ua hāpai ʻo ia a manaʻo paha ua hāpai ʻo ia (ʻoi aku hoʻi i ka noʻonoʻo ʻana i ke kaiapuni a me ka lawelawe ʻana i ka lāʻau lapaʻau). (ʻAʻole kēia e pili ana i ka hāpai ʻana o ke keiki, akā he mea nui paha e haʻi aku i ka makuahine a i ʻole ka mea mālama. A i ʻole, inā e lawe ana kekahi kaikamahine ʻōpio i kēia lāʻau lapaʻau, pono e kūkākūkā pono ʻia kēia. Ma ka ʻatikala mua, "Mai hāpai i ka wā e lawe ana i kēia lāʻau lapaʻau" e pili ana i ka mea e lawe ana i ka lāʻau lapaʻau.) ʻOi aku hoʻi, inā e lawe ana kāu kaikamahine i kēia lāʻau lapaʻau, inā ua hāpai ʻo ia, e hoʻolālā ana e hāpai, a inā paha ʻoe e manaʻo ua hāpai ʻo ia, pono ʻoe e haʻi koke i kāu kauka .
• Ka hānai waiū: Inā ʻoe e hānai waiū ana i kāu pēpē. (Pili nō hoʻi kēia i ka hānai waiū ʻana i kāu pēpē inā he makuahine ʻoe e lawe ana i kēia lāʻau lapaʻau.)
• Ka hopena aleri: Inā he maʻi aleri kāu keiki iā Dinutuximab, kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, nā kala, a i ʻole nā ​​mea hoʻomalu, he mea nui e haʻi iā lākou .

He mea nui loa ka haʻi ʻana aku i ke kauka e pili ana i kēia mau mea me ka hūnā ʻole ʻana iā lākou no ka palekana o ke keiki.

Pehea e hāʻawi ai i kēia lāʻau lapaʻau i kahi keiki?

ʻAʻole ʻo "Dinutuximab" kahi lāʻau lapaʻau āu e lawe ai ma ka home ma ke ʻano he pila. Hāʻawi ʻia ia i ke keiki ma ke ʻano he "infusion i loko o kahi aʻa" . E like me ka hāʻawi ʻana i ka saline.

Hāʻawi ʻia kēia lāʻau lapaʻau ma kahi haukapila a i ʻole ke keʻena lapaʻau e ke kauka a kahu maʻi paha i aʻo ʻia . No laila e nānā pono lākou i kāu keiki ke hāʻawi ʻia kēia lāʻau lapaʻau iā lākou. ʻAʻole kēia he lāʻau lapaʻau hiki iā ʻoe ke lawe i ka home.

E kamaʻilio me kāu kauka pediatric e pili ana i ka hāʻawi ʻana i kēia lāʻau lapaʻau i kāu keiki. I kekahi mau hihia i koho ʻia, hiki ke hāʻawi ʻia kēia lāʻau lapaʻau i nā keiki e like me hoʻokahi makahiki . Eia nō naʻe, aia nā hana palekana a me nā hopohopo kūikawā.

He aha ka mea e hana ai inā hoʻonui ʻia ka nui o ka lāʻau lapaʻau?

I nā hihia kakaikahi, inā manaʻo ʻoe ua hāʻawi nui ʻia kāu keiki i kēia lāʻau lapaʻau, e kāhea koke i ke kikowaena hoʻomalu lāʻau make a i ʻole ke keʻena pilikia o ka haukapila . Mai hoʻonele i ka manawa.

Mea nui: Ua kuhikuhi ʻia kēia lāʻau lapaʻau no kāu keiki wale nō. Mai hāʻawi i kēia lāʻau lapaʻau i kekahi no kekahi kumu .

He aha inā e hala wau i kahi manawa hoʻonohonoho lāʻau lapaʻau?

He mea nui loa ka hāʻawi ʻana i ka lāʻau lapaʻau i ka manawa kūpono a ʻaʻole hoʻi e hōʻalo i ka manawa i hoʻonohonoho ʻia. Inā no kekahi kumu ʻaʻole hiki iā ʻoe ke hele i ka haukapila/keʻena lapaʻau e hāʻawi i kāu keiki i ka lāʻau lapaʻau i ka lā i hoʻonohonoho ʻia, e kāhea koke aku i kāu kauka a i ʻole ke kauka lapaʻau a e hoʻomaopopo iā lākou.A laila e haʻi aku lākou iā ʻoe i ka mea e hana ai ma hope.

Hiki i kēia lāʻau lapaʻau ke launa pū me nā lāʻau lapaʻau ʻē aʻe?

ʻAʻole i aʻo piha ʻia nā pilina ma waena o dinutuximab a me nā lāʻau lapaʻau ʻē aʻe a kāu keiki e lawe nei. ʻO ke ʻano kēia, aia kahi hiki ke hoʻopilikia kekahi mau lāʻau lapaʻau i ka wā e lawe pū ai me ia.

No laila, e hāʻawi i kāu kauka i kahi papa inoa piha o nā lāʻau lapaʻau a pau a kāu keiki e lawe nei, me nā huaora, nā mea kanu, nā lāʻau lapaʻau ʻole i kauoha ʻia, a me nā mea hoʻohui meaʻai. Eia kekahi, e haʻi i kāu keiki (inā he pākeke lākou) inā puhi paka lākou , inu waiʻona, a hoʻohana paha i nā lāʻau ʻē aʻe. Hiki i kekahi mau mea ke launa pū me kēia lāʻau.

He aha kāu e makaʻala nui ai i ka wā e hāʻawi ai i ka lāʻau lapaʻau?

Hiki i kāu keiki ke manaʻo iki he maʻi iki a maʻi ʻole paha i ka wā e lawe ana i kēia lāʻau. He mea maʻamau paha kēia a i ʻole he hōʻailona paha o kahi hopena ʻaoʻao. No laila, inā ʻike ʻoe i kekahi mau hōʻailona hou a i ʻole nā ​​​​loli, e haʻi i kāu kauka . Pono ʻoe e hoʻomau i ka lawe ʻana i ka lāʻau e like me ke kauoha, ʻoiai inā manaʻo ʻoe he maʻi ʻole, a hiki i ka wā e ʻōlelo ai kāu kauka iā ʻoe e hoʻōki.

E hoʻolohe pono i kēia mau mea:

• Nā loli i ka ʻike: Inā ʻike ʻia ka ʻike o kāu keiki he pōuliuli, paʻakikī ke ʻike i ka mālamalama ʻālohilohi, a ʻike paha i kekahi loli i ka ʻike , e haʻi koke aku i kāu kauka .
• Nā hopena aleri koʻikoʻi: Hiki i kēia lāʻau lapaʻau ke hana i nā hopena aleri koʻikoʻi i kekahi manawa. No ka hōʻemi ʻana i kēia pilikia, e hāʻawi nā kauka i kāu keiki i nā lāʻau lapaʻau ʻē aʻe ma mua o ka hāʻawi ʻana iā Dinutuximab. E hāʻawi i ka lāʻau lapaʻau e like me ke kauoha.
• Nā hōʻailona o ka maʻi: Inā loaʻa i kāu keiki ke kuni, ke anu, a i ʻole nā ​​hōʻailona ʻē aʻe o ke anu, e like me ka ʻeha o ka puʻu, ke kuni, a i ʻole ka ihu wai , e kāhea koke i kāu kauka . Mai hoʻōla ponoʻī iā ʻoe iho. Hiki i kēia lāʻau lapaʻau ke hōʻemi i ka hiki o kāu keiki ke hakakā i nā maʻi. No laila, e hoʻāʻo e mālama i kāu keiki mai ka poʻe maʻi i ka hiki .
• Hāpai (no nā wahine ʻōpio): Inā he wahine ʻōpio ʻoe e lawe ana i kēia lāʻau lapaʻau, pono ʻoe e pale i ka hāpai ʻana i ka wā e lawe ana i ka lāʻau lapaʻau a no 2 mau mahina ma hope o ka hoʻōki ʻana i ka lāʻau lapaʻau . Inā ʻoe e hoʻolālā ana e hāpai a manaʻo paha ua hāpai ʻoe, e haʻi koke i kāu kauka . Hiki i kēia lāʻau lapaʻau ke hana i nā hopena koʻikoʻi i kahi pēpē i hānau ʻole ʻia. E nīnau i kāu kauka a kauka lāʻau paha no ka ʻike hou aku.
• Ka hānai ʻana i ka waiū: Mai hānai i kāu pēpē i ka waiū i ka wā e lawe ana i kēia lāʻau.

He aha nā hopena ʻaoʻao e hiki ke loaʻa mai kēia lāʻau lapaʻau?

E like me nā lāʻau lapaʻau āpau, hiki i ka Dinutuximab ke hana i kekahi mau hopena ʻaoʻao. Pono e hōʻike koke ʻia kekahi o lākou i kāu kauka . ʻAʻole koʻikoʻi kekahi o lākou, akā inā hoʻomau lākou a lilo i mea hoʻopilikia, pono ʻoe e haʻi i kāu kauka .

Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i kāu kauka a i ʻole ke kauka olakino:

• Nā hopena maʻi: Nā ʻūlū ʻili, ka maneʻo, nā kūlana eczema-like, ka pehu ʻana o ka maka, nā lehelehe, a i ʻole ke alelo.
• Koko i loko o ka mimi.
• Nā loli i ka ʻike: ʻIke pōwehiwehi, ʻike i ka mālamalama (paʻakikī ke ʻike).
• Helu koko haʻahaʻa: Hiki i kēia lāʻau lapaʻau ke hoʻemi i ka helu o nā hunaola koko keʻokeʻo, nā hunaola koko ʻulaʻula, a me nā platelets. Hiki i kēia ke hoʻonui i ka pilikia o ka maʻi a me ke kahe ʻana o ke koko.
• ʻEha, ʻūlū, maeʻele i nā lima a i ʻole nā ​​wāwae.
• Nā ʻōʻili.
• ʻEha poʻo nui.
• Nā hōʻailona o ka maʻi: kuni a i ʻole ke anu, ke kuni, ʻeha ka puʻu.
• Nā hōʻailona a me nā ʻōuli o ke koko haʻahaʻa: poniuniu, māʻule, māʻule, luhi a nāwaliwali paha.
• Nā hōʻailona a me nā ʻōuli o ka potassium haʻahaʻa: ka ʻūlū ʻana a i ʻole ka ʻeha o nā ʻiʻo, ka ʻeha o ka umauma, ka poniuniu, ka nāwaliwali, ka paʻakikī o ka hanu ʻana, ka puʻuwai wikiwiki a i ʻole ka puʻuwai kūpono ʻole.
• Ka pehu ʻana o nā kuʻekuʻe wāwae, nā wāwae, nā lima.
• Luhi nui loa ('tiredness').
• Ka pilikia me ke kahe ʻana o ka mimi a i ʻole ka loli ʻana o ka nui o ka mimi.
• Piʻi ke kaumaha.

Nā hopena ʻaoʻao ʻaʻole pono ka mālama lapaʻau, akā pono e hōʻike i kāu kauka inā hoʻomau a hoʻopilikia paha lākou:

• Ka maʻi pākī.
• Ka nalowale o ka makemake.
• Ka luaʻi ʻana.

He mea nui: ʻAʻole i loko o kēia papa inoa nā hopena ʻaoʻao āpau. Inā loaʻa i kāu keiki kekahi mau hōʻailona ʻē aʻe, e ʻoluʻolu e nīnau i kāu kauka.

Pehea ʻoe e mālama ai i kēia lāʻau lapaʻau?

ʻAʻole pono ʻoe e hopohopo no kēia. ʻOiai ʻo `Dinutuximab` kahi lāʻau lapaʻau i hāʻawi ʻia ma ka haukapila a i ʻole ke keʻena lapaʻau, ʻaʻole pono ʻoe e lawe i ka home a mālama. No laila, ʻaʻole pono ʻoe e hopohopo e pili ana i ka lāʻau lapaʻau e hele hewa ana a i ʻole e hāʻawi ʻia i kāu mau keiki.

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai (Leka Lawe-Home)

He lāʻau koʻikoʻi a ikaika hoʻi ʻo `Dinutuximab` i hāʻawi ʻia no kahi maʻi kanesa koʻikoʻi e like me `Neuroblastoma`. I loko o kēia mālama ʻana, pono ʻoe e makaʻala loa i ke keiki. E like me nā kauka a me nā kahu maʻi e nānā mau nei i ke kūlana o ke keiki, he mea nui loa ia no ʻoe, ma ke ʻano he mau mākua, e makaʻala i nā loli a me nā hopena ʻaoʻao o ke keiki.

• Inā ʻike ʻoe i kekahi mau loli liʻiliʻi a hopohopo paha, e haʻi koke aku i kāu kauka . Mai hilahila a hoʻowahāwahā paha iā ia me he mea liʻiliʻi lā.
• E hahai pono i nā ʻōlelo a kāu kauka. Mai poina i nā manawa hoʻopaʻa lāʻau a i ʻole nā ​​nānā kino.
• E hoʻoikaika. ʻAʻole kēia huakaʻi āu e hele hoʻokahi ai. Aia nā kauka, nā kahu maʻi, ka ʻohana, a me nā hoaaloha me ʻoe.

Manaʻolana wau ua kōkua kēia ʻike iā ʻoe e hoʻomaopopo i kēia lāʻau lapaʻau. Makemake wau i kāu keiki e ho'ōla koke!

ʻO Dinutuximab, Neuroblastoma, Kanesa, Kanesa o nā Kamaliʻi, Monoclonal Antibody, Lāʻau Palekana, Nā Hopena ʻAoʻao