Ua ʻike anei ʻoe he ʻulaʻula iki nā kiko o kekahi poʻe ma ko lākou helehelena, nā papālina, a i ʻole ke poʻo? I kekahi manawa, ʻaʻole e ʻānai a ʻeha paha kēia mau mea. ʻOiai he nui ka poʻe e manaʻo nei he maʻi ʻili maʻamau kēia, hiki i kēia ke lilo i maʻi e pono ai ka nānā hou aku. I kēia lā, ke kamaʻilio nei mākou e pili ana i kahi maʻi i kapa ʻia ʻo 'Discoid Lupus' e hoʻoulu ai i kēia mau hōʻailona. ʻOiai he inoa maʻamau ʻole kēia, he mea nui loa ia e ʻike e pili ana i ia mea.
I ka ʻōlelo maʻalahi, he aha ka Discoid Lupus?
ʻO Discoid Lupus, ʻoi aku ka pololei i ʻike ʻia ʻo 'Discoid Lupus Erythematosus (DLE),' he maʻi ia e hoʻopilikia pololei ana i ko mākou ʻili. No loko ia o ka papa inoa 'Cutaneous Lupus Erythematosus (CLE)' o lupus. ʻO ka huaʻōlelo 'Cutaneous' ʻo ia hoʻi 'pili i ka ʻili.' ʻO ke ʻano kēia, ʻo kēia mau ʻano lupus ka mea nui e hoʻopilikia i ko mākou ʻili.
ʻO ke kanaka me ka discoid lupus e ulu aʻe nā ʻeha poepoe, ʻulaʻula, piʻi iki, a mānoanoa ma ka ʻili, ʻoiai ma ka maka, nā papālina, ka ihu, a me ke poʻo. Hiki i kēia ke lilo i ʻōpala i ka hala ʻana o ka manawa. Ua kapa ʻia hoʻi kēia he chronic cutaneous lupus. ʻO ke ʻano o ka chronic he lōʻihi ka lōʻihi.
No laila he aha ka "Lupus"?
Ke kamaʻilio mākou e pili ana i ka 'lupus', ʻōlelo pinepine mākou i kahi maʻi i kapa ʻia ʻo 'Systemic Lupus Erythematosus (SLE).' ʻO kēia ke ʻano lupus maʻamau. Ma kahi o 70 o 100 mau maʻi lupus i loaʻa i kēia maʻi.
I kēia manawa, e nānā, ʻoiai ʻo ka discoid lupus (DLE) ka mea nui e hoʻopilikia i ka ʻili, ʻo ke ʻano i kapa ʻia ʻo SLE e hoʻopilikia i ke kino holoʻokoʻa. ʻO ia ke ʻano o ka 'systemic'. He maʻi autoimmune ia. I ka ʻōlelo maʻalahi, hele hewa ka ʻōnaehana pale o ko mākou kino, ka ʻōnaehana pale, a hoʻomaka e hoʻouka i kā mākou mau cell a me nā ʻiʻo olakino ponoʻī. Hoʻoulu kēia i ka mumū, a i ʻole ka mumū, ma ke kino holoʻokoʻa.
Hiki i kekahi kanaka me SLE ke ʻike pinepine i nā hōʻailona e like me kēia:
- ʻO ke kuni e hele mai me ke kumu ʻole
- ʻEha a me ka pehu ʻana o nā hono
- Luhi mau
- ʻEha umauma
- ʻO ke ʻano o nā kiko like ʻole a me nā kīnā ma ka ʻili
- ʻIke i ka lā (photosensitivity)
ʻO ka mea nui, ʻaʻole e loaʻa i nā kānaka a pau me ka discoid lupus ka systemic lupus erythematosus (SLE), ka mea e hoʻopilikia ai i ke kino holoʻokoʻa. E kamaʻilio mākou e pili ana i kēlā ma hope iki.
He aha nā ʻano lupus (CLE) e hoʻopilikia ai i ka ʻili?
E like me kā mākou i ʻōlelo ai ma mua, ʻo ka discoid lupus kahi ʻano lupus e hoʻopilikia ai i ka ʻili. ʻEkolu mau ʻano nui. He ʻano ʻokoʻa iki ko kēlā me kēia ʻano o nā ʻeha ʻili.
| ʻAno lupus | ʻO ke ʻano o nā ʻili poni |
|---|---|
| Lupus Discoid | He mau kiko poepoe, mānoanoa, ʻulaʻula, unahi, e like me ke kālā. ʻIke pinepine ʻia ma ka maka, nā pepeiao, a me ke poʻo. |
| ʻO ka Lupus ʻili Subacute | Nā ʻāpana apo a unahi paha. ʻIke pinepine ʻia ma ka umauma, ke kua, a me ka ʻāʻī. |
| ʻO ka Lupus ʻili koʻikoʻi | ʻO kēia kahi e kū mai ai ka "butterfly rash" kaulana. E ʻike ʻia kahi ʻulaʻula e like me ka lā ma nā papālina a me ka ihu. |
Hiki i kekahi ke loaʻa i nā ʻano lupus he nui?
ʻAe, hiki ke hana. Hoʻokahi wale nō ʻano lupus o kekahi poʻe. ʻO ia hoʻi, hiki i kekahi poʻe ke loaʻa wale nō ka SLE, a ʻo kekahi poʻe ke loaʻa wale nō ka DLE. Akā i kekahi manawa hiki i ke kanaka ke loaʻa ma mua o hoʻokahi ʻano lupus i ka manawa hoʻokahi.
Akā e hoʻomanaʻo i kēia. ʻO ka hapa nui o ka poʻe me ka discoid lupus (DLE) ʻaʻohe o lākou systemic lupus erythematosus (SLE), kahi e hoʻopilikia ai i ke kino holoʻokoʻa. Ma kahi o 5% o ka poʻe me DLE, a i ʻole ma kahi o 5 i loko o 100, e loaʻa iā lākou ka SLE ma hope. Eia kekahi, ma kahi o ka hapahā (25%) o ka poʻe me SLE e loaʻa nā ʻeha ʻili e like me nā mea i ʻike ʻia ma ka discoid lupus. No laila aia kahi pilina ma waena o nā kūlana ʻelua, akā ʻaʻole nā mea a pau i loaʻa i kekahi e loaʻa i kekahi.
He aha ke kumu o ka discoid lupus? ʻO wai ka mea i pilikia nui?
ʻO kaʻoiaʻiʻo, ʻaʻole ʻike nā kauka i ke kumu kikoʻī o ka lupus, me ka discoid lupus. Akā ua maopopo he mea hewa ia i kā mākou ʻōnaehana pale. Eia kekahi, ke holo nei kēia maʻi i loko o nā ʻohana . ʻO ia hoʻi, inā loaʻa i kekahi o kou ʻohana kahi maʻi autoimmune e like me ka lupus, hiki iā ʻoe ke pilikia.
E nānā kākou i ka mea i ʻoi aku ka nui o ka pilikia o ka hoʻomohala ʻana i ka discoid lupus.
| Kumu pilikia | Wehewehena |
|---|---|
| Kāne/Wahine | ʻOi aku ka nui o ka pilikia o nā wāhine i ka hoʻomohala ʻana i kēia maʻi ma mua o nā kāne. |
| Makahiki | ʻIke pinepine ʻia ia i nā poʻe ma waena o 15 a me 44 mau makahiki. He mea maʻamau loa ia i waena o nā wahine i ko lākou mau makahiki 30 a me 40. |
| Kala ʻili/lāhui | Ua hōʻike ʻia e ka noiʻi ʻana he ʻoi aku ka nui o ka pilikia o ka poʻe me ka ʻili ʻeleʻele (e like me ka poʻe o ʻApelika a ʻAsia paha) i ka loaʻa ʻana o kēia maʻi ma mua o ka poʻe me ka ʻili māmā . |
He aha nā hōʻailona a me nā pilikia o ka discoid lupus?
ʻO ka hōʻailona nui nā ʻeha discoid a mākou i kamaʻilio ai ma mua.
- Kahi: ʻIke pinepine ʻia ma ke poʻo a me ka maka, akā hiki ke loaʻa ma nā ʻāpana ʻē aʻe o ke kino, ʻoiai nā wahi i hōʻike ʻia i ka lā.
- Nā ʻano: ʻAʻole ʻeha kēia mau kiko, ʻaʻole hoʻi e maneʻo . He ʻulaʻula lākou, piʻi iki aʻe, a i kekahi manawa he ʻano unahi ko lākou ma luna.
- Nā kūlana ma hope: Ma hope o ka ho'ōla ʻana o kēia mau kiko, hiki ke lilo i ʻōpala a me ke kala ʻole . I kekahi manawa e lilo ka ʻili i keʻokeʻo a ʻeleʻele paha.
Nā pilikia hiki ke loaʻa
- Ka nalowale o ka lauoho: Inā ʻike ʻia kēia mau kiko ma ke poʻo, hiki i ka lauoho ma ia wahi ke hāʻule i waho. ʻO ka mea ʻino loa, inā hana ʻia kahi ʻōpala ma ia wahi, hiki ke oki mau loa ka ulu ʻana o ka lauoho .
- Ka pilikia o ka maʻi ʻili:Inā loaʻa iā ʻoe nā kiko discoid lupus no ka manawa lōʻihi, aia kahi liʻiliʻi o ka piʻi ʻana o ka pilikia o ka loaʻa ʻana o ka maʻi ʻili ma kēlā mau wahi. ʻOiai inā ulu kēia mau kiko i loko o ka waha, aia paha ka piʻi ʻana o ka pilikia o ka loaʻa ʻana o kahi ʻano maʻi ʻili i kapa ʻia ʻo squamous cell carcinoma.
- Chilblain Lupus: He maʻi laha ʻole kēia. Ma kēia ʻano, ʻike ʻia nā kiko poni a i ʻole nā ʻāpana ma ka ʻili ke hōʻike ʻia i ke anu. Hiki i kēia ke lilo i mea ʻeha loa.
Pehea e ʻike ai i kēia maʻi?
Inā loaʻa iā ʻoe kēia mau hōʻailona, ʻo ka mea maikaʻi loa e hana ai, ʻo ia ke ʻike i kahi kauka ʻili . E nānā ʻo ia iā ʻoe a hana i nā hoʻokolohua e hōʻoia i ka hōʻailona.
Ua kapa ʻia kēia he biopsy ʻili . Pili kēia i ka lawe ʻana i kahi ʻāpana ʻili liʻiliʻi loa mai kahi i kau ʻia ai ka maʻi ma lalo o ka anesthesia. A laila hoʻouna ʻia i kahi keʻena hoʻokolohua a nānā ʻia ma lalo o kahi microscope. Ma ka nānā ʻana i nā loli i loko o kēlā mau cell, hiki iā mākou ke ʻike maopopo inā he discoid lupus a i ʻole kekahi maʻi ʻili ʻē aʻe.
He aha nā lāʻau lapaʻau?
ʻAʻole hiki ke ho'ōla loa ʻia ka discoid lupus. Eia nō naʻe, hiki i ka lāʻau lapaʻau ke kōkua i ka kaohi ʻana i nā hōʻailona, kāohi i nā ʻōhū hou, a kōkua iā ʻoe e ola i kahi ola maʻamau. Na kāu kauka e kuhikuhi i ka lāʻau kūpono nou ma muli o ke koʻikoʻi o kāu mau hōʻailona.
Aia ma lalo nei kekahi o nā ʻano lapaʻau nui i hoʻohana ʻia.
| ʻAno lapaʻau | Hana a me nā laʻana |
|---|---|
| Nā ʻaila poni steroid | He mau kirīmi kēia i hoʻopili pololei ʻia i ka ʻili popopo. Hoʻēmi lākou i ka mumū a me ka pehu ʻana i ka ʻili. Eia kekahi laʻana: `fluocinolone acetonide`, `hydrocortisone butyrate`. |
| Nā lāʻau lapaʻau antimalarial | He mau pila kēia āu e lawe ai. Mai kahaha, he kūpono loa nā lāʻau lapaʻau i hoʻohana ʻia no ka malaria no ka lupus. Kōkua lākou i ka hōʻemi ʻana i nā kiko ʻili a me ka luhi. Eia kekahi laʻana: `hydroxychloroquine (Plaquenil®)`. |
| Nā lāʻau hoʻomalu i ka pale ʻana (Calcineurin Inhibitors) | He ʻano poni nō hoʻi kēia. Hoʻomalu lākou i ka hana o ka ʻōnaehana pale i kekahi ʻano a hōʻemi i ka mumū. Eia kekahi laʻana: `tacrolimus`, `pimecrolimus`. |
| Nā lāʻau lapaʻau anti-inflammatory ʻē aʻe | I nā hihia kahi i ʻoi aku ka koʻikoʻi o ka maʻi, hiki i nā kauka ke kuhikuhi i nā lāʻau lapaʻau waha e like me dapsone a me methotrexate. |
He mea nui: Pono e hoʻomaka ʻia kekahi o kēia mau lāʻau lapaʻau ma ke ʻōlelo aʻoaʻo a ke kauka . Mai hoʻohana i ka lāʻau lapaʻau ma kāu iho.
Pehea e pale aku ai i ka hoʻāla ʻana o nā maʻi?
Eia ka mea e pono ai i kekahi me ka discoid lupus ke ʻike. No kahi o 70% o nā maʻi lupus, ʻoi aku ka ʻino o nā hōʻailona ke hōʻike ʻia i ka mālamalama ultraviolet (UV) mai ka lā. ʻO ke ʻano kēia e ʻike ʻia paha nā kiko hou, e lilo paha nā kiko i ʻulaʻula, a i ʻole e hoʻonui ʻia. He mea nui loa kēia no kekahi e noho ana ma kahi ʻāina e like me ko kākou nona ka lā ikaika i ka makahiki holoʻokoʻa.
No ka pale ʻana iā ʻoe iho mai ka lā a pale i ka hoʻonui ʻia ʻana o ka maʻi, e hana i kēia mau mea:
- E hoʻopili i ka sunscreen i kēlā me kēia lā ma mua o ka hele ʻana i waho i ka lā. E koho i kahi sunscreen ākea (pale i ka UVA a me UVB) me ka liʻiliʻi o SPF 30 .
- He manaʻo maikaʻi ke hoʻohana ʻana i ka sunscreen ʻaʻole wale i ka wā e hele ai i waho, akā i ka wā e noho ai i loko o ka hale, ʻoiai inā kokoke ʻoe i ka puka makani.
- E hoʻopili hou i ka sunscreen i kēlā me kēia 4 hola. E hoʻopili hou ma mua o ka hou ʻana a i ʻole ke komo ʻana i loko o ka wai.
- E hōʻalo i nā kukuna ikaika loa o ka lā ma waena o 10 am a me 4 pm i ka hiki.
- I ke hele ʻana i waho, e hoʻohana i nā mea e like me nā lole lima lōʻihi, nā pāpale ākea, a me nā umbrellas .
- Hiki i nā kukui fluorescent i loko o ka hale ke hoʻopuka i kekahi mau kukuna UV, no laila e pale i ka noho ʻana ma lalo o ia mau kukui no ka lōʻihi loa.
- Mai hoʻohana i nā moena tanning .
Inā ʻoe e hahai pono i kēia mau ʻanuʻu, e hiki iā ʻoe ke kaohi i kāu mau hōʻailona i kahi nui.
Leka Lawe-Home
- ʻO ka discoid lupus kahi ʻano lupus lōʻihi e hoʻopilikia nui ana i ka ʻili.
- ʻO kēia ke kumu o nā kiko poepoe, ʻulaʻula, a me ke ʻano kālā e ʻike ʻia ma ka maka a me ke poʻo. ʻAʻole ʻeha a maneʻo paha kēia mau mea.
- ʻOiai ʻaʻole hiki ke ho'ōla piha ʻia, hiki ke hoʻomalu maikaʻi ʻia nā hōʻailona me ka lāʻau lapaʻau.
- He mea pono ka pale ʻana i ka lā! He mea nui loa ka hoʻohana ʻana i ka sunscreen i kēlā me kēia lā a me ka pale ʻana i ka lā ʻino e pale aku ai i ka maʻi mai ka ʻoi aku ka ʻino.
- Inā loaʻa iā ʻoe kēia mau kiko ma kou ʻili, e ʻoluʻolu e nīnau i ke kauka dermatologist no ka ʻōlelo aʻo.
- Mai ʻānai a ʻōʻō paha i nā kīnā o ka ʻili. Hiki i kēia ke alakaʻi i ka ʻeha a me ka maʻi.
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