E kamaʻilio kākou e pili ana i ka lāʻau lapaʻau ʻo Trikafta (Elexacaftor; Tezacaftor; Ivacaftor)?

Inā loaʻa iā ʻoe a i ʻole kahi mea aloha ka cystic fibrosis (CF), ʻike maopopo paha ʻoe i nā pilikia o ke ola ʻana me ia. Akā me ka holomua o ka lāʻau lapaʻau, ke hoʻohui mau ʻia nei nā lāʻau lapaʻau hou a me nā manaʻolana hou. I kēia lā, e kamaʻilio mākou e pili ana i kahi lāʻau kūikawā i lawe mai i ka manaʻolana hou. ʻO Trikafta ka inoa o kēia lāʻau. E nānā kākou i ke ʻano o kēia lāʻau, pehea e hana ai, a me nā hana palekana āu e pono ai e lawe i ka wā e hoʻohana ana, ma ke ʻano maʻalahi hiki iā ʻoe ke hoʻomaopopo.

He aha ka mea e hana maoli me kēia lāʻau lapaʻau?

I ka ʻōlelo maʻalahi, ʻo Trikafta kahi lāʻau lapaʻau i hoʻohana ʻia e mālama i ka cystic fibrosis (CF). He hui pū ʻia ia o ʻekolu mau lāʻau lapaʻau: ʻo Elexacaftor, Tezacaftor, a me Ivacaftor.

E noʻonoʻo, he mānoanoa loa a pipili ka mucus i loko o nā māmā o ke kanaka me CF. E like me ke kāpili mānoanoa. He mea paʻakikī kēia i ka hanu ʻana, a loaʻa pinepine nā maʻi. ʻO kēia no ka mea he pilikia me ka neʻe ʻana o ka paʻakai a me ka wai ma o nā hunaola o ke kino.

ʻO kēia kahi e komo mai ai ʻo Trikafta. Hana ia ma ka hoʻoponopono ʻana i ka pilikia me ka neʻe ʻana o ka paʻakai a me ka wai, e kōkua ana i ke kino e mālama i ke kaulike. Kōkua kēia i ka mucus mānoanoa i loko o nā māmā e lilo i wai, lahilahi, a maʻalahi hoʻi e wehe ʻia mai ke kino . Hiki i kēia ke kōkua i ka kaohi ʻana i nā hōʻailona CF i kahi nui.

Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau

He ʻāpana koʻikoʻi loa kēia. Ma mua o ke kau ʻana o kāu kauka i kēia lāʻau lapaʻau, pono iā ia ke loaʻa kahi kiʻi piha o kou olakino. No laila, inā pili kekahi o kēia mau mea iā ʻoe, e kamaʻilio me kāu kauka e pili ana i ia mea.

• Maʻi puʻupaʻa: Inā loaʻa iā ʻoe kekahi maʻi e pili ana i ka puʻupaʻa.
• Maʻi akepaʻa: Inā he mau pilikia akepaʻa kou.
• Nā Allergies: E haʻi mai iā mākou inā he mau allergies kou, ʻaʻole wale i nā mea hoʻohui i loko o kēia lāʻau lapaʻau, akā, i kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻoluʻu paha.
• Hāpai: Inā hāpai ʻoe a i ʻole e hoʻolālā ana e loaʻa koke kahi pēpē.
• Inā he makuahine hānai waiū ʻoe: Inā he makuahine ʻoe e hānai waiū ana i kahi keiki.

He mea nui loa ia no kou palekana e haʻi i ke kauka i kēia ʻike me ka hūnā ʻole.

Pehea pololei kaʻu e hoʻohana ai i kēia lāʻau lapaʻau?

I mea e loaʻa ai ka pono nui mai kahi lāʻau lapaʻau, pono ʻoe e hoʻohana pono. E hoʻomanaʻo i kēia mau mea.

1. E lawe pū me ka meaʻai: ʻO kēia ka mea nui loa. Pono e lawe ʻia kēia lāʻau lapaʻau me kahi meaʻai i loaʻa ka momona.Mai lawe i ka wā ʻōpū ʻole. No ka laʻana, e lawe i ka lāʻau lapaʻau me kahi mea momona, e like me ka hua manu, kahi pata pīnati, kahi tīhi, a i ʻole yogurt. ʻOi aku ka maikaʻi o ka hoʻopili ʻana o ka lāʻau lapaʻau e ke kino ke lawe ʻia me ka meaʻai.

2. E ale i ka papa: Mai uhaʻi, kuʻi, a nau paha i ka papa. E ale holoʻokoʻa i ka papa me kahi wai liʻiliʻi.

3. E lawe i ka manawa kūpono: E ho'āʻo e lawe i kāu lāʻau lapaʻau i ka manawa like i kēlā me kēia lā e like me ka hiki. E kōkua kēia i ka mālama ʻana i nā pae like o ka lāʻau lapaʻau i loko o kou kino.

4. He mea nui loa kēia: Mai lawe i kēia lāʻau lapaʻau me ka wai pomelo no kekahi kumu. Hiki i ka wai pomelo ke hana me kēia lāʻau lapaʻau a hoʻoulu i nā hopena ʻino i ke kino.

5. Mai ho'ōki: E hoʻomau i ka lawe ʻana i ka lāʻau a hiki i ka wā e ʻōlelo ai kāu kauka iā ʻoe e ho'ōki.

He aha kāu e hana ai inā e poina ʻoe i kahi mahele o ka lāʻau lapaʻau a inu nui?

Inā ʻoe e poina i kahi mahele o ka lāʻau lapaʻau

Mai hopohopo e pili ana i ka hala ʻana o kahi lāʻau. ʻO ka mea maikaʻi loa e hana ai i ka wā e hoʻomanaʻo ai ʻoe, ʻo ia ke kamaʻilio me kāu kauka. E haʻi aku ʻo ia iā ʻoe i ka mea e hana ai ma hope. Mai lawe i kahi lāʻau pālua e hoʻopiha ai i kahi lāʻau i hala ʻole .

Overdose

E noʻonoʻo ua lawe hewa ʻoe i ka nui o ka lāʻau lapaʻau. He pilikia kēia. Inā hana ʻia kēia , e kelepona koke i ke Kikowaena ʻIke Poisons National ma ka Halemai Lahui ʻo Colombo. A i ʻole e hele i ka Emergency Treatment Unit (ETU) kokoke loa i ka haukapila me ka hoʻokaʻulua ʻole.

Nā mea ʻē aʻe e launa pū me kēia lāʻau lapaʻau (Nā Hana like ʻana)

Hiki i kekahi mau lāʻau lapaʻau, nā meaʻai, a me nā mea kanu ke launa pū me Trikafta, e hōʻemi ana i kona pono a i ʻole e hana i nā hopena ʻino. No laila, he mea nui e hoʻomaopopo i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe nei.

Nā mea ʻē aʻe e hoʻomanaʻo i ka wā e lawe ai i ka lāʻau lapaʻau

• Nā nānā mau:E nānā pinepine ke kauka iā ʻoe. Mai poina i kēlā mau manawa i hoʻopaʻa ʻia. E haʻi iā ia inā ʻaʻole e nalowale kāu mau hōʻailona a i ʻole e ʻoi aku ka ʻino.
• Nā hoʻāʻo maka a me ke koko: Makemake paha kāu kauka e nānā i kou ʻike maka a me ke koko ma mua a i kou hoʻomaka ʻana e lawe i kēia lāʻau lapaʻau.
• Nā loli o ka ʻike: Inā ʻike ʻoe i kekahi mau loli i kou ʻike (ʻike maka pōwehiwehi, ʻike ʻana i nā apo a puni nā kukui), e haʻi koke aku i kāu kauka.
• ʻEha ke poʻo a me ka hoʻokele ʻana: Hiki i kēia lāʻau lapaʻau ke hoʻoulu i ka poniuniu a me ka māmā o ke poʻo. No laila, e pale i ka hoʻokele ʻana a i ʻole ka hoʻohana ʻana i nā mīkini a hiki i kou ʻike ʻana i ke ʻano o ka hopena o kēia lāʻau lapaʻau iā ʻoe. ʻO ka inu ʻana i ka waiʻona hiki ke hoʻonui i kēia kūlana.

E aʻo kākou e pili ana i nā hopena ʻaoʻao.

E like me nā lāʻau lapaʻau āpau, hiki iā Trikafta ke hana i nā hopena ʻaoʻao. ʻOiai ʻaʻole loaʻa i nā kānaka a pau, he mea nui e makaʻala iā lākou.