Aia kekahi pilikia me ka ʻōnaehana uila o kou puʻuwai? E kamaʻilio kākou e pili ana i ka Long QT Syndrome (LQTS).

Ua lohe paha ʻoe i ka ʻōnaehana uila o ka puʻuwai? Hana ko kākou puʻuwai e like me ka mīkini liʻiliʻi. Loaʻa iā ia kahi ʻōnaehana uila, nāna e hoʻomalu i ka puʻuwai. I kekahi manawa, hiki ke loaʻa nā loli liʻiliʻi i loko o kēia ʻōnaehana uila. ʻO kekahi o ia ʻano loli ua kapa ʻia ʻo Long QT Syndrome, a i ʻole `(Long QT Syndrome - LQTS)`. Mai hopohopo, e kamaʻilio maʻalahi kākou e pili ana i kēia.

He aha ka Long QT Syndrome? I ka pōkole...

E noʻonoʻo ʻoe ma hope o ka paʻi ʻana o kou puʻuwai i hoʻokahi manawa, pono ia i kahi "hoʻomaha" iki ma mua o ka hiki ke paʻi hou, e like me ka hoʻouka hou ʻana o ka pila. ʻO ka manawa e "hoʻomaha" ai a hoʻouka hou paha he lōʻihi iki aʻe ma mua o ka maʻamau, ʻo ia ka mea a mākou e kapa nei he long QT syndrome.

Inā ua loaʻa iā ʻoe kahi ECG, ʻo ia hoʻi kahi hoʻāʻo e nānā ana i ka hana uila o ka puʻuwai, aia kekahi ʻāpana o ia mea i kapa ʻia ʻo ka wā QT. Hōʻike kēia i ka lōʻihi o ka manawa e pono ai no nā keʻena haʻahaʻa o kou puʻuwai, i kapa ʻia ʻo ventricles, e ʻaelike a laila hoʻomaha, a i ʻole "hoʻouka hou" e like me kaʻu i ʻōlelo ai.

Kōkua ʻia ka hana uila o ko kākou puʻuwai e nā ʻāpana liʻiliʻi i hoʻopiʻi ʻia i ka uila i kapa ʻia ʻo `ions`. ʻO nā ions e like me ka sodium, calcium, potassium, a me ka chloride e kōkua i kēia. Neʻe kēia mau ions i loko a i waho o nā hunaola puʻuwai ma o nā ala kūikawā i kapa ʻia ʻo `ion channels`. I kēia manawa, ma kēia `(Long QT Syndrome)`, aia kekahi pilikia me kēia mau kahawai ion, a i ʻole ka nele o lākou. A laila ua lohi ka puʻuwai i ka "recharging". Ke hoʻolōʻihi ʻia ka manawa QT, aia kahi pilikia nui o kahi maʻi puʻuwai wikiwiki loa i kapa ʻia ʻo `Torsades de Pointes`, hiki ke hoʻoweliweli i ke ola.

Aia kekahi mau ʻano o ka Long QT Syndrome?

ʻAe, ʻelua ʻano nui. Hoʻoilina kekahi, ʻo ia hoʻi, ua hoʻoili ʻia ma o nā genes. Loaʻa kekahi, ʻo ia hoʻi, ua hoʻokumu ʻia e nā kumu ʻē aʻe, e like me kekahi mau lāʻau lapaʻau.

Nā ʻano hānau ʻia:

ʻO ke kumu nui o kēia mau mea he mau kīnā genetic i loko o nā 'ion channels' aʻu i ʻōlelo ai.

• Nā ʻano ʻē o ke kahawai ion: ʻO kēia ke ʻano maʻamau. Aia kekahi mau ʻano e like me `LQT1, LQT2, LQT3, LQT4, LQT5`. Ua hoʻokaʻawale ʻia kēia mau mea e like me ke ʻano o ke kahawai ion i pili. Hiki ke ʻokoʻa ka pilikia o ka maʻi puʻuwai i ka wā e hiki mai ana ma muli o ke ʻano.
• ʻO Jervell lāua ʻo Lange-Nielsen Syndrome: Ma kēia kūlana, hiki i nā mākua ʻelua ke lawe i ka gene ʻano ʻē, akā ʻaʻole paha lākou e loaʻa nā hōʻailona. He kūlana kakaikahi loa kēia. No ka mea, he mea paʻakikī ke lawe i ka gene nā mākua ʻelua, loaʻa i kēlā me kēia keiki he 25% ka manawa e hoʻoilina ai. Hiki i ka poʻe me kēia syndrome ke hānau kuli.
• ʻO ka maʻi Romano-Ward:I kēia hihia, loaʻa i kekahi makua ka "Long QT Syndrome" a ʻaʻole kekahi. Loaʻa i kēlā me kēia keiki he 50% ka manawa e hoʻoilina ai i kēia gene ʻano ʻē. I kēia hihia, he mea maʻamau ka lohe ʻana.
• ʻO Timothy Syndrome: He ʻano kakaikahi loa kēia. Hiki iā ia ke hoʻopilikia ʻaʻole wale i ka puʻuwai, akā i nā ʻāpana ʻē aʻe o ke kino.

Pehea ka maʻamau o kēia ʻano?

He maʻi laha ʻole ka Long QT Syndrome. No ka laʻana, ma ʻAmelika Hui Pū ʻIa, ua manaʻo ʻia aia ma kahi o hoʻokahi i loko o 2,000 mau kānaka i loaʻa i kēia maʻi.

He aha nā hōʻailona o ka Long QT Syndrome?

Eia nā hōʻailona i ʻike pinepine ʻia:

• Syncope: Poho koke ka ʻike.
• Nā hopu ʻana: Hiki i kekahi poʻe ke loaʻa nā hopu ʻana.
• Hopu ka puʻuwai: He mea weliweli loa kēia.
• Make koke:

Hōʻike ʻia kēia mau hōʻailona ke kū mai ka maʻi puʻuwai weliweli i kapa ʻia ʻo 'Torsades de Pointes' aʻu i ʻōlelo ai ma mua. I kēia manawa, ʻaʻole hiki i ka puʻuwai ke pamu pono i ke koko. Inā ʻaʻole lawa ka lako koko i ka lolo, hiki mai nā mea e like me ka palupalu a me nā hopu ʻana. Inā hoʻomau kēia maʻi, hiki ke make koke. Eia naʻe, inā hoʻi ka helu o ka puʻuwai i ka maʻamau, pau nā hōʻailona.

ʻO ka hapa nui o nā hōʻailona e ʻike ʻia i ka wā:

• ʻOiai e hoʻoikaika kino ana (a i ʻole kekahi mau minuke ma hope o ka hoʻoikaika kino ʻana).
• I ka wā e hoʻoulu ikaika ai ka naʻau , ʻoiai ke makaʻu koke a pūʻiwa paha.
• I ka wā hiamoe a i ʻole i ka wā e ala koke ai .

ʻO ka mea nui, a hiki i ka 50% o ka poʻe me ka Long QT Syndrome ʻaʻole paha e loaʻa nā hōʻailona . A, no kahi o hoʻokahi i loko o ka ʻumi o ka poʻe, ʻo ka hopu ʻana o ka puʻuwai ka hōʻailona mua o ke ʻano. Hiki i kēia ke make inā ʻaʻole mālama koke ʻia.

Hoʻomaka pinepine nā hōʻailona i ka wā makua mua . Inā loaʻa iā ʻoe nā hōʻailona, ​​​​hiki iā lākou ke hoʻi hou. ʻOi aku ka nui o nā hōʻailona e ʻike ʻia ma mua o 30 mau makahiki. Eia nō naʻe, hiki i kekahi poʻe ke loaʻa nā hōʻailona i ko lākou mau makahiki 50 a ʻoi aku.

He aha ke kumu o ka Long QT Syndrome?

E like me kaʻu i ʻōlelo ai ma mua, hiki ke hoʻoilina ʻia kēia mai kou mau mākua (congenital) a i loaʻa paha ma muli o kekahi mau lāʻau lapaʻau . I ka Long QT Syndrome, aia kahi ʻano ʻē i loko o ke code gene no kāu mau kahawai ion. ʻO kēia mau kahawai ion ʻē ke kumu o ka lohi i ka wā hoʻōla o kou puʻuwai. Hiki i kēia ke alakaʻi i kahi arrhythmia hoʻoweliweli ola.

Hiki i kekahi mau lāʻau lapaʻau ke hana i ka "Long QT Syndrome" i nā poʻe i loaʻa kahi predisposition i kā lākou mau kahawai ion. ʻAʻole paha lākou e ʻike, akā i ka wā e lawe ai lākou i kēlā mau lāʻau lapaʻau e loaʻa ai ka "Long QT".

Nā lāʻau lapaʻau e hiki ai ke hoʻoulu i ka maʻi QT lōʻihi i loaʻa:

• Kekahi mau 'Antiarrhythmics' (nā lāʻau lapaʻau no nā maʻi o ka puʻuwai)
• ʻO kekahi mau antidepressants
• ʻO kekahi mau diuretics (nā lāʻau lapaʻau e hoʻonui ai i kou mimi)
• Kekahi mau lāʻau antibiotic
• Nā mea hoʻopaʻa a i ʻole nā ​​​​mea kū'ē i ka serotonin receptor
• Nā mea kū'ē i ka mea loaʻa histamine

ʻO nā kumu ʻē aʻe o ka maʻi QT lōʻihi i loaʻa:

• ʻO kekahi mau ʻano mea ʻawahia
• ʻAnorexia nervosa (maʻi noʻonoʻo e pili ana i ka anorexia)
• ʻO kekahi mau 'bradyarrhythmias' (ka wikiwiki o ka puʻuwai)
• Nā haʻahaʻa haʻahaʻa o ka calcium, magnesium, a i ʻole potassium i loko o ke kino
• Ka hōʻeha ʻana i kāu ʻōnaehana nerve

ʻO wai ka mea i ʻoi aku ka pilikia o ka loaʻa ʻana o kēia maʻi?

ʻOi aku ka nui o ka pilikia o ka loaʻa ʻana o ka "Long QT Syndrome" i kēia mau kānaka:

• No nā keiki kuli mai ka hānau ʻana mai.
• ʻO nā keiki a me nā ʻōpio me ka mōʻaukala ʻohana o ka make koke a i ʻole ka hiolo ʻana (syncope) i wehewehe ʻole ʻia.
• No nā hoahānau koko me ka "Long QT Syndrome".
• No ka poʻe me ka `Cardiomyopathy` (maʻi ʻiʻo puʻuwai) a i ʻole ka maʻi puʻuwai hānau.
• No ka poʻe i loaʻa nā pae haʻahaʻa o kekahi mau electrolytes i loko o ke kino ma muli o kekahi maʻi ʻē aʻe.
• No ka poʻe e lawe ana i nā lāʻau lapaʻau e hoʻopilikia ana i nā kahawai ion i loko o ka puʻuwai.

Pono anei au e hoʻāʻo ʻia no ka Long QT Syndrome?

ʻO ka Long QT Syndrome kahi maʻi genetic i hiki ke hoʻoili ʻia mai kēlā hanauna a i kēia hanauna. Inā loaʻa kekahi o kou mau hoahānau mua (nā mākua, nā kaikaina, nā keiki) i ka Long QT Syndrome, he manaʻo maikaʻi ia no ʻoe e hana i ka nānā ʻana i nā genetics .

Pono nā hoahānau mua a pau (nā kaikaina, nā mākua, a me nā keiki) e hana i kahi ECG. He mea nui nō hoʻi i kekahi mea me ka mōʻaukala ʻohana o nā hopu ʻana a i ʻole ka hiolo ʻana e hana i kēia hoʻokolohua.

ʻO ka hana mua, ʻo ia ke hoʻomaopopo i kāu kauka ua loaʻa i kou ʻohana kēia maʻi. E hana paha ʻo ia i nā hoʻokolohua e pono ai e nānā i kou puʻuwai. Inā hōʻoia kēlā mau hoʻokolohua ua loaʻa iā ʻoe kēia maʻi, pono ʻoe e ʻike i kahi kauka cardiologist i ʻike maikaʻi i ka Long QT Syndrome.

He aha nā pilikia o ka Long QT Syndrome?

Hiki i ka "Long QT Syndrome" ke hana i ka arrhythmia hoʻoweliweli ola "Torsades de Pointes" aʻu i ʻōlelo ai. Hiki i kēia ke alakaʻi i ka make koke.

Pehea e ʻike ʻia ai ka Long QT Syndrome?

Hiki i nā kauka ke ʻike i ka Long QT Syndrome me kahi hoʻāʻo ECG maʻalahi. No ka ʻike ʻana i ke kūlana, ana lākou i ka wā QT ma ka ECG. Inā ʻoi aku ka lōʻihi o kāu wā QT ma mua o 450 milliseconds, loaʻa paha iā ʻoe ka Long QT Syndrome.

E nīnau aku kāu kauka iā ʻoe e pili ana i kēia mau mea:

• Aia kekahi moʻolelo ʻohana o ka "Long QT Syndrome"?
• Aia kekahi moʻolelo ʻohana o ka maʻi hiolo i wehewehe ʻole ʻia, nā hopu ʻana, a i ʻole ka hopu ʻana o ka puʻuwai?
• Ua loaʻa anei iā ʻoe ka maʻi ʻūlū, ka hopu ʻana, a i ʻole ka hopu ʻana o ka puʻuwai, ʻoiai i ka wā hoʻoikaika kino?

He aha nā hoʻokolohua e hoʻohana ʻia e hoʻoholo ai i ka Long QT Syndrome?

Ma waho aʻe o ka ECG, hiki ke hana ʻia kēia mau hoʻokolohua:

• Nā hoʻāʻo koko.
• Ka hoʻāʻo ʻana i ka hoʻoilina.
• Hoʻāʻo hoʻoluhi kino.
• Nānā Ambulatory: Nānā kēia i ka hana o kou puʻuwai no kekahi mau lā.

Pehea e mālama ʻia ai ka Long QT Syndrome?

Aia nā lāʻau lapaʻau, nā mea hana, a i ʻole nā ​​ʻoki kino e hiki ke kōkua i ka kaohi ʻana i nā hōʻailona a pale i ka make koke no ka Long QT Syndrome. ʻOiai ʻaʻole hiki i kēia mau lāʻau lapaʻau ke ho'ōla piha i ke kūlana, hiki iā lākou ke pale iā ʻoe mai nā ʻano puʻuwai maʻamau ʻole.

Nā lāʻau lapaʻau

He nui ka poʻe me ka Long QT Syndrome (ʻoiai ka poʻe me ka ʻole o nā hōʻailona) e lawe i kahi beta-blocker, e like me nadolol. Hiki i nā lāʻau lapaʻau ʻē aʻe ke hoʻopōkole i kāu wā QT a hoʻomaikaʻi paha i kāu mau pae electrolyte. E haʻi aku kāu kauka iā ʻoe i nā lāʻau lapaʻau maikaʻi loa iā ʻoe.

Nā Hāmeʻa

Pono paha kekahi mau maʻi me ka "Long QT Syndrome" i nā mea hana e like me kēia:

• ʻO ka Implantable Cardioverter Defibrillator (ICD): Hiki ke hoʻokomo ʻia kahi implantable cardioverter defibrillator (ICD) i loko o ka poʻe i loaʻa ka mōʻaukala o ka hopu ʻana o ka puʻuwai a i ʻole e mau ana nā hōʻailona ʻoiai ke mālama ʻia ʻana me ka beta-blocker. ʻIke kēia mea hana i nā arrhythmias e hoʻoweliweli ana i ke ola a hāʻawi koke i kahi haʻalulu i ka puʻuwai e pale aku i ka make koke.
• Pacemaker: Kōkua kēia hāmeʻa i nā poʻe me nā helu puʻuwai lohi loa.

ʻoki kino

Pono paha kekahi mau maʻi me ka Long QT Syndrome e hana i ka Left Cardiac Sympathetic Denervation (LCSD) a i ʻole sympathectomy. He hana minimally invasive kēia kahi e wehe ʻia ai kekahi mau aʻalolo i loko o kāu ʻōnaehana aʻalolo sympathetic.

He aha nā pilikia/nā hopena ʻaoʻao o ka lāʻau lapaʻau?

ʻO nā hopena ʻaoʻao a i ʻole nā ​​​​pilikia e pili ana i ke ʻano o ka lāʻau āu e loaʻa ai.

• Mea pale beta:
• Ke koko haʻahaʻa.
• Pōʻaiʻī.
• ʻEha poʻo .
• Luhi.
• ICD (Implantable Cardioverter Defibrillator):
• Nā hewa o ka hāmeʻa.
• Pūmāmā i hiolo.
• Ke kahe ʻana o ke koko.
• Nā maʻi.
• Mea hoʻokele wikiwiki:
• Pūmāmā i hiolo.
• Ke kahe ʻana o ke koko.
• Nā maʻi.
• Nā hewa o ka hāmeʻa.
• LCSD (ʻoki kino hoʻohemo ʻana i ke aʻalolo lokomaikaʻi o ka puʻuwai hema):
• ʻO ka maʻi Horner.
• Pūmāmā i hiolo.
• ʻUlaʻula ka helehelena a i ʻole ka hou ʻana.

Hiki ke pale ʻia ka Long QT Syndrome?

ʻAʻole hiki iā ʻoe ke pale aku inā loaʻa iā ʻoe mai kou mau mākua mai. Eia nō naʻe, no ka poʻe i loaʻa ʻole iā ia, hiki iā ʻoe ke pale aku i nā kūlana e hoʻoulu ai i ka maʻi i loaʻa (long QT syndrome) ma hope. No ka laʻana, e makaʻala me kekahi mau lāʻau lapaʻau.

He aha ka mea e hana ai inā loaʻa iaʻu ka Long QT Syndrome?

Me ka mālama pono ʻana , ʻo ka nui o ka make no ka poʻe me ka "Long QT Syndrome" ma kahi o 1%. Me ka ʻole o ka mālama ʻana, he weliweli ke kūlana. Ma kahi o 21% o ka poʻe me nā hōʻailona i loaʻa ʻole ka mālama ʻana e make i loko o hoʻokahi makahiki o ka hoʻomaka ʻana o ka syncope.

Akā e hoʻomanaʻo, hiki i ka poʻe me ka "Long QT Syndrome" ke ola piha . Hiki iā lākou ke hāpai a hānau i nā keiki.

Pehea ka lōʻihi o ka lōʻihi o ka Long QT Syndrome?

He maʻi ola ka Inherited Long QT Syndrome. Eia nō naʻe, hiki ke emi iho nā hōʻailona a me ka pilikia o nā pilikia i ka hala ʻana o ka manawa.

Pehea wau e mālama ai iaʻu iho?

Hiki i ka Long QT Syndrome ke hoʻopilikia i nā ʻano he nui o kou ola o kēlā me kēia lā. Pono ʻoe e kūkākūkā me kāu kauka ma mua o ka hana ʻana i kekahi mau mea.

Walaʻau a me ke kaumaha

Hiki i kekahi poʻe me ka Long QT Syndrome ke hoʻopilikia ʻia e nā leo nui koke a i ʻole ke kaumaha o ka naʻau. ʻOiai ʻaʻole hiki iā ʻoe ke kāohi i ka walaʻau a me ke kaumaha a puni ʻoe, hiki iā ʻoe ke hoʻāʻo e kaupalena iā lākou.

• E haʻi aku i kou ʻohana a me kou mau hoaaloha ʻaʻole palekana ke hoʻāla koke iā ʻoe.
• Ma kahi o ka leo nui e kani koke ana i ka manawa hoʻokahi, e hoʻohana i kahi leo ʻoluʻolu.
• E hoʻēmi i ka leo o nā mea leo nui e hoʻopūʻiwa paha iā ʻoe.

Hoʻoikaika kino

ʻOi aku ka nui o ka pilikia o kekahi mau ʻano o ka Long QT Syndrome me ka hoʻoikaika kino. E haʻi aku kāu kauka iā ʻoe i nā hana kūpono iā ʻoe, ma muli o ke ʻano o ka gene ʻē aʻe āu. No ka mea hiki i ka hoʻoikaika kino ke hoʻoulu i nā arrhythmias make, pono ʻoe e kamaʻilio me kāu kauka ma mua o kou hoʻoholo ʻana e pāʻani i nā haʻuki hoʻokūkū. Inā hoʻoholo ʻoe e pāʻani i nā haʻuki, pono paha ʻoe e lawe i kekahi mau hana palekana.

Hiki i ka ʻauʻau ʻana ke lilo i mea weliweli no kekahi poʻe me ka "Long QT Syndrome". Inā ʻoe e hiolo i ka wā e ʻauʻau ana, hiki iā ʻoe ke piholo.

Nā lāʻau lapaʻau

Hiki i nā lāʻau lapaʻau he nui ke hoʻolōʻihi i ka wā QT. Hiki i kēia mau lāʻau lapaʻau ke hoʻopilikia i ka poʻe me ka "Long QT Syndrome" ma mua o ka poʻe me ka ʻole. Inā loaʻa iā ʻoe ka "Long QT Syndrome", pono ʻoe e hana i kēia mau mea:

• E haʻi i kāu mau kauka a pau he "Long QT Syndrome" kou.
• E kamaʻilio me kāu kauka ma mua o ka lawe ʻana i kekahi lāʻau lapaʻau i kuhikuhi ʻia no nā maʻi ʻē aʻe.
• E pale i ka lawe ʻana i nā lāʻau lapaʻau ma luna o ke kauka (OTC) (koe wale nō ka aspirin maʻamau a i ʻole paracetamol) me ka ʻole o ke kamaʻilio ʻana me kāu kauka.

Inā loaʻa iā ʻoe ka "Long QT Syndrome", hiki i kēia mau ʻano lāʻau ke hoʻopilikia iā ʻoe:

• Nā antihistamines (nā lāʻau lapaʻau no nā maʻi allergies)
• Nā lāʻau lapaʻau no ke kaumaha (nā lāʻau antidepressants)
• Lāʻau lapaʻau no nā pilikia olakino noʻonoʻo
• Nā lāʻau lapaʻau no ka maʻi puʻuwai
• Nā lāʻau antibiotic
• Nā lāʻau antifungal
• Nā lāʻau pale viral
• Nā lāʻau lapaʻau no nā maʻi ʻōpū
• Nā lāʻau hoʻōla ʻōʻili
• Diuretics (nā lāʻau lapaʻau e hoʻonui ai i ka mimi)
• Nā lāʻau lapaʻau no ke koko kiʻekiʻe
• Nā lāʻau lapaʻau no ka migraines
• Nā lāʻau hoʻohaʻahaʻa kolesterol

Āhea wau e ʻike ai i kaʻu kauka?

Pono ʻoe e ʻike i ke kauka ke hoʻomaka ʻoe e loaʻa nā hōʻailona a ma ka liʻiliʻi hoʻokahi manawa i ka makahiki ma hope. ʻO kahi electrophysiologist ke koho maikaʻi loa.

Inā loaʻa i kāu keiki ka "Long QT Syndrome", pono ʻoe e ʻike i kāu kauka ma mua o hoʻokahi manawa i ka makahiki e hōʻoia i ka loaʻa ʻana o ka lāʻau lapaʻau kūpono no ko lākou kaumaha o kēia manawa.

Inā he mea i hoʻokomo ʻia iā ʻoe, pono ʻoe e ʻike i kāu kauka i hoʻokahi manawa i ka makahiki e hōʻoia i ka hana pono ʻana.

Āhea wau e hele ai i ka ʻOihana Pōpilikia (ETU) ?

Pono ke kanaka i loko o ka hopu ʻana o ka puʻuwai i ka mālama koke ʻia e ke kauka . Pono kekahi e hoʻomaka i ka CPR (cardiac resuscitation) a kāhea i ka 911 (a i ʻole kāu helu ulia pōpilikia kūloko).

He aha nā nīnau e pono iaʻu e nīnau aku i kaʻu kauka?

ʻO kekahi mau nīnau hiki iā ʻoe ke nīnau i kāu kauka:

• He aha ke ʻano o ka "Long QT Syndrome" i loaʻa iaʻu?
• He aha ka lāʻau lapaʻau kikoʻī āu e paipai mai ai noʻu?
• ʻEhia pinepine e pono ai iaʻu e ʻike iā ʻoe?
• He aha nā lāʻau lapaʻau a me nā hana e pono iaʻu e pale aku me koʻu ʻano kikoʻī o ka "Long QT Syndrome"?

ʻO ka hope loa, he leka lawe-i-ka-home

He mea maʻamau ka hopohopo ke ʻike ʻoe he maʻi puʻuwai kou. Akā, ʻo ka nīnau ʻana i kāu kauka a, inā pono, ke kamaʻilio ʻana me ke kākāʻōlelo hiki ke kōkua iā ʻoe e ʻoluʻolu. He mea nui e hahai i nā ʻōlelo a kāu kauka, e lawe i kāu mau lāʻau lapaʻau i ka manawa kūpono, a mālama i kāu mau manawa i hoʻopaʻa ʻia.

Hiki nō hoʻi ke hōʻoluʻolu i ka hoʻomaopopo ʻana i kou ʻohana a me kou mau hoaaloha he Long QT Syndrome kou. Inā loaʻa iā ʻoe nā hōʻailona i ko lākou noho pū ʻana me ʻoe, hiki iā lākou ke kāhea no ke kōkua ulia pōpilikia. ʻOi aku ka maikaʻi, inā ʻike lākou pehea e hana ai i ka CPR, hiki iā ia ke hoʻopakele i kou ola. Mai hopohopo, me ka mālama pono ʻana, hiki iā ʻoe ke ola i kahi ola olakino.

ʻO ka Long QT Syndrome, LQTS, maʻi puʻuwai, ka wā QT, ka helu o ka puʻuwai, arrhythmia, nā maʻi genetic