E noʻonoʻo ʻoe e kamaʻilio ana me kekahi, a i ʻole e nānā ana i ke TV, a laila, me ka ʻike ʻole ʻoe, hoʻomaka kou mau maka e pani paʻa, a hoʻomaka paha kou ʻauwae e neʻe i kekahi ʻaoʻao ... Hana ʻia kēia mau mea me ka hiki ʻole iā ʻoe ke kāohi iā lākou. Ua loaʻa anei iā ʻoe kēia ʻike? Mai hopohopo. He hōʻailona paha kēia o kahi maʻi neurological kakaʻikahi i kapa ʻia ʻo Meige Syndrome . E kamaʻilio kākou e pili ana i kēia lā.
I ka ʻōlelo maʻalahi, he aha ka Meige Syndrome?
He maʻi laha ʻole ka Meige Syndrome e hoʻopilikia ana i ko kākou lolo a me ka ʻōnaehana nerve. Hoʻoulu ia i nā ʻūmiʻi ʻiʻo me ka makemake ʻole, e like me ka ʻūmiʻi ʻana, me ka ʻole o ko kākou kaohi. Hiki i kēia ke hana i kou ʻāwae e ʻūmiʻi a pani paʻa i kou mau maka. I kekahi manawa hiki ke ʻeha kēia mau ʻūmiʻi ʻiʻo.
ʻO ka maʻamau, hoʻopilikia kēia kūlana i kēia mau mea:
- I nā ʻiʻo o kou alo haʻahaʻa
- I ka makau
- I ke alelo
- No nā ʻiʻo a puni nā maka
He ʻano kēia i kapa ʻia ʻo dystonia . ʻO Dystonia kahi hui wale nō o nā ʻano e neʻe ai nā ʻiʻo i loko o ko mākou kino me ke kaohi ʻole. Hoʻohana pinepine nā kauka i nā inoa lapaʻau ʻē aʻe no kēia ʻano, akā e hoʻomanaʻo paha ʻoe iā Meige Syndrome.
He aha nā hōʻailona o kēia maʻi? Pehea ʻoe e ʻike ai?
Hoʻopilikia nui ka Meige Syndrome i ka neʻe ʻana o kou maka a me kou ʻauwae. Hiki iā ʻoe ke ʻike i nā neʻe ʻana o ka maka like ʻole āu e hiki ʻole ai ke kāohi, ʻoiai inā ʻaʻole ʻoe makemake iā lākou. E nānā kākou i kēia mau hōʻailona.
| ʻĀpana i hoʻopilikia ʻia | Nā hōʻailona maʻamau i ʻike ʻia |
|---|---|
| Maka a me ka ʻauwae |
|
| Nā maka |
|
| ʻAlelo a me ka puʻu |
|
He mea nui loa: I kekahi manawa, inā hoʻopilikia kēia ʻiʻo i kou puʻu a me nā alaloa a paʻakikī iā ʻoe ke hanu, he pilikia ia . Inā hana ʻia kēia, pono ʻoe e hele koke i ka ʻOihana Pilikia o ka haukapila (ETU).
I ka wā mua, hoʻokahi wale nō maka e pili ai kēia mau hōʻailona, akā i ka hala ʻana o ka manawa, hiki ke pili nā maka ʻelua. Hiki ke ʻoi aku ka ʻino o kēia mau hōʻailona i kou wā ʻelemakule.
No ke aha lā kēia e hana nei? He aha ke kumu?
ʻO kaʻoiaʻiʻo, ʻaʻole i loaʻa i nā kauka kahi kumu kūikawā hoʻokahi o ka Meige Syndrome. Eia nō naʻe, ua manaʻo ʻia ʻelua mau kumu ke kuleana:
1. Nā kumu hoʻoilina: Kekahi mau loli e kū mai ana i loko o kā mākou DNA.
2. Nā kumu kaiapuni: Kekahi mau mea hoʻonāukiuki i ke kaiapuni.
Manaʻo nā kauka ʻo ke kumu nui o kēia he hana hewa i loko o kahi ʻāpana o ko kākou lolo i kapa ʻia ʻo 'Basal Ganglia' . I ka ʻōlelo maʻalahi, ua hoʻoponopono ʻia a kāohi ʻia nā neʻe ʻana o ko kākou kino e kēia ʻāpana i kapa ʻia ʻo basal ganglia. No laila, ke hele hewa kekahi mea ma laila, hana ʻia kēia ʻano neʻe ʻana i kāohi ʻole ʻia.
He aha nā mea hoʻoulu e hoʻonui ai i nā hōʻailona?
Hiki i kekahi mau mea ke hoʻonui i kēia mau hōʻailona no kekahi manawa. Kāhea mākou i kēia mau mea hoʻoulu.
- Mālamalama ʻōlinolino: Ka ʻike ʻia ʻana e ka lā a me nā kukui uila o ke kaʻa.
- Luhi: Ke luhi loa ke kino.
- Kaumaha: Ke manaʻo ʻoe i ke kaomi a i ʻole ka hopohopo.
- Makani ikaika: Ke pā mai ka makani ikaika i kou alo.
Pehea e ʻike ʻia ai kēia maʻi? He aha nā lāʻau lapaʻau?
ʻAʻohe hoʻāʻo kikoʻī e ʻike ai i ka Meige Syndrome. Ke ʻike ʻoe i ke kauka, e hoʻolohe pono lākou i kāu mau hōʻailona a nānā iā ʻoe. Hiki iā lākou ke hana i nā hoʻokolohua koko a i ʻole nā hoʻokolohua kiʻi e hōʻoia ʻaʻole ʻoe i nā kūlana ʻē aʻe e hoʻoulu ai i nā hōʻailona like.
ʻOiai ʻaʻohe lāʻau lapaʻau no kēia, mai hopohopo. Aia nā lāʻau lapaʻau kūpono loa e hiki ke kōkua i ka kaohi ʻana i nā hōʻailona a hoʻomaʻalahi i kou ola o kēlā me kēia lā.
| ʻAno lapaʻau | He aha ka mea e hana ʻia ai? |
|---|---|
| Nā lāʻau lapaʻau | E kuhikuhi ke kauka i nā lāʻau lapaʻau like ʻole e kōkua i ka hōʻemi ʻana i nā spasms a me nā ʻūlū ʻana o nā ʻiʻo. |
| Nā inikini botulinum toxin (Botox®) | ʻO kēia ka lāʻau lapaʻau kūpono loa i hoʻohana ʻia i ka hapa nui o nā hihia. Ma kēia, ua hoʻokomo ʻia kahi liʻiliʻi loa o kēia lāʻau lapaʻau i loko o nā ʻiʻo pilikia (a puni nā maka, ma ka ʻāwae). Hoʻonāwaliwali kēia i kēlā mau ʻiʻo no kekahi manawa a hoʻōki iā lākou mai ka ʻūlū ʻana. Pono paha ʻoe e loaʻa i kēia inikini ma kahi o hoʻokahi manawa i kēlā me kēia 3 mahina. |
| Hoʻoulu ʻana i ka lolo hohonu (DBS) | He hana ʻoki kino kēia. Hoʻokomo ʻia kahi electrode maikaʻi loa i loko o ka ʻāpana i hoʻopilikia ʻia o ka lolo a hoʻouna ʻia nā hōʻailona uila liʻiliʻi ma o ia mea e kāohi i ka hana lolo maʻamau. Ua like kēia me kahi 'pacemaker' no ka lolo. |
| ʻŌlelo a me ka moni ʻana i ka lāʻau lapaʻau | Kōkua kēia lāʻau i ka hoʻoikaika ʻana i nā ʻiʻo o ka ʻā a me ka puʻu a hoʻēmi i ka ikaika o nā ʻūmiʻi ʻiʻo. |
Nā hana liʻiliʻi hiki iā ʻoe ke hoʻāʻo ma ka home
Manaʻo kekahi poʻe he kōkua nā hana hoʻopunipuni sensory i ka kaohi ʻana i nā hōʻailona. Hoʻohuli kēia i ka ʻāpana o ka lolo e hoʻoulu ai i nā hōʻailona no kekahi manawa.
- Ke nau ʻana i ka ʻuala.
- Ke paʻa nei i kahi mea e like me ka niho lāʻau i loko o kou waha.
- Ka hoʻopā ʻana i nā lehelehe a i ʻole ka ʻauwae me ka lima.
- Ke nānā nei i lalo.
Makemake ʻoe e ʻike i ke kauka?
ʻAe, ʻoiaʻiʻo nō. Inā loaʻa iā ʻoe kekahi o nā hōʻailona i ʻōlelo ʻia ma kēia ʻatikala, mai kuhi wale , e ʻike koke i ke kauka. ʻO ia ka mea hiki ke hoʻomaopopo pololei i kou kūlana a hāʻawi iā ʻoe i ka lāʻau kūpono loa.
A pēlā nō hoʻi,
- Inā loaʻa iā ʻoe nā hopena ʻaoʻao i ka wā o ka mālama ʻana.
- Inā ʻoi aʻe ka ʻino o nā hōʻailona ma muli o ka mālama ʻia ʻana.
- Inā paʻakikī loa ka ale ʻana i ka meaʻai.
I ia mau hihia, e hoʻomaopopo pono i kāu kauka.
ʻAʻole ʻo Meige Syndrome kahi maʻi hoʻoweliweli i ke ola. ʻO ke ʻano kēia, ʻaʻole ia e hoʻopilikia i kou ola. Eia naʻe, hiki iā ia ke hoʻopilikia i kou ʻano ola. Hiki iā ʻoe ke hilahila a hilahila paha e kū i ke kaiāulu a kamaʻilio me nā kānaka. He mea nui hoʻi e ʻimi i ka ʻōlelo aʻo a ke kākāʻōlelo olakino noʻonoʻo i kēlā mau manawa.
Leka Lawe-Home
- ʻAʻole ʻo Meige Syndrome kahi maʻi i hoʻokumu ʻia e kou hewa ponoʻī. He maʻi laha ʻole ia e hoʻopilikia i ka hana o ka lolo a me ka ʻōnaehana nerve.
- ʻO nā hōʻailona nui, ʻo ia ka ʻūmiʻi hiki ʻole ke kaohi ʻia o nā ʻiʻo o ka maka, nā maka, a me ka ʻāwae.
- ʻOiai ʻaʻohe lāʻau lapaʻau piha no kēia, nui nā lāʻau lapaʻau kūpono e hiki ke kōkua iā ʻoe e kaohi i nā hōʻailona a ola i kahi ola maʻamau.
- Inā loaʻa iā ʻoe nā hōʻailona e like me kēia, mai kuhi wale a e ʻimi pono i ke kōkua lapaʻau.
- Inā pilikia ʻoe i ka hanu ʻana a i ʻole ke ale ʻana, e manaʻo he pilikia ia a e hele koke i ka ʻOihana Pilikia o ka haukapila (ETU).
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