Ua manaʻo paha ʻoe e like me ke paʻa ʻana o kekahi iā ʻoe a puni kou umauma a i ʻole kou ʻōpū e like me ke kāʻei paʻa? Me he mea lā e ʻapo paʻa ana kekahi iā ʻoe, akā, ʻaʻole ia he ʻapo aloha a hōʻoluʻolu, he ʻapo ʻeha a hoʻopaʻa. Kāhea mākou i kēia ʻo 'MS Hug'. ʻOiai ke kani maikaʻi nei ka inoa, he hōʻailona ʻeha a ʻoluʻolu ʻole kēia o ka Multiple Sclerosis (MS). E kamaʻilio kākou e pili ana i nā mea a pau ma ke ʻano maopopo a maʻalahi i kēia lā.
He aha maoli kēia MS Hug?
I ka ʻōlelo maʻalahi, ʻo ka MS Hug kahi ʻeha a paʻa paha āu e ʻike ai a puni kou umauma, iwi ʻaoʻao, a i ʻole ka ʻōpū. ʻAʻole ia e like me kahi ʻapo aloha, manaʻo ia e like me kekahi kanaka ikaika loa e paʻa ana iā ʻoe. Hiki ke ʻokoʻa mai kēlā kanaka a kēia kanaka. I kekahi manawa ʻike ʻia ka ʻeha ma kou umauma holoʻokoʻa, a i kekahi manawa hiki ke kaupalena ʻia i hoʻokahi ʻaoʻao o kou kino.
Ua ʻike ʻia kēia ʻano ma ke ʻano lapaʻau he hōʻailona i hāʻule ma lalo o ka māhele o "Dysesthesia." ʻO ia hoʻi, he manaʻo ʻē, ʻoluʻolu ʻole, a ʻeha hoʻi e kū mai ana no ka mea ʻaʻole hana pono kā mākou ʻōnaehana nerve.
| ʻO ke ʻano o ka manaʻo ʻana i ka ʻeha | Wehewehena |
|---|---|
| ʻEha ʻoi | Me he ʻeha lā e hou ʻia ana e ka pahi. |
| Paʻa (Paʻa) | Me he mea lā ua nakinaki ʻia kekahi kāʻei paʻa a puni kou pūhaka a hoʻopaʻa iā ʻoe i hope. |
| Luhi/Kolo | He ʻeha ʻano ʻē, maopopo ʻole, me he mea lā e kolo ana ma lalo o ka ʻili. |
| Ke kuni nei | He ʻano wela e like me ke ʻano e ʻā ana ka ʻili. |
| Ke kaomi ʻana | Me he mea lā e ʻomi ikaika ana kekahi i kou umauma. |
| E like me nā pine a me nā nila | Me he mea lā e ʻū ana, e like me ke ʻūlū ʻana o ka wāwae. |
He aha ka mea e hana nei i loko o ke kino i kēia manawa?
E noʻonoʻo i ko kākou ʻōnaehana nerve e like me kahi ʻōnaehana o nā uea uila. Hele nā leka mai ka lolo a i nā ʻāpana āpau o ke kino ma o kēia mau aʻalolo. I ka Multiple Sclerosis (MS), ua hōʻino ʻia ka uhi pale a puni kēia mau olonā nerve. Ua like ia me ka ʻōpala plastik ma ke kaula uila i hōʻino ʻia. Kāhea mākou i kēia hōʻino ʻo `(demyelination)`.
Ke hoʻopilikia kēia pōʻino i nā aʻalolo i loko o kou iwi kuamoʻo, ʻo nā ʻiʻo liʻiliʻi ma waena o kou mau iwi ʻaoʻao (kapa mākou i kēia mau "ʻiʻo intercostal") e ʻūlū koke, a i ʻole e ʻūlū. Me he mea lā e hiolo ana kou mau ʻiʻo. ʻO kēia ʻūlū koke ʻana o nā ʻiʻo i kāohi ʻole ʻia ke kumu o ka ʻeha a me ka paʻa āu e manaʻo ai me he mea lā ʻoe i loko o kahi 'ʻapo MS'.
Pehea ka lōʻihi e hiki ai i kēia ʻoluʻolu ʻole ke mau?
ʻOkoʻa kēia mai kēlā kanaka a kēia kanaka. No kekahi poʻe, he mau kekona wale nō paha a mau minuke paha . Eia nō naʻe, no kekahi poʻe, hiki i kēia ʻeha ke mau no nā hola, a hiki i nā lā . E like me nā hōʻailona ʻē aʻe o MS, hiki ke hele mai a hele aku, a hiki ke hana hou i ka wā e hiki mai ana.
Nā kumu a me nā mea hoʻoulu o MS Hug
E like me ka inoa e hōʻike nei, ʻo ke kumu nui o ka MS Hug ʻo ia ka Multiple Sclerosis (MS). He maʻi autoimmune ka MS, ʻo ia hoʻi, ua kuhihewa ka ʻōnaehana pale ponoʻī o ke kino i ka ʻōnaehana nerve.
Eia nō naʻe, ʻaʻole pono ʻoe e loaʻa iā MS e ʻike i kēia ʻano ʻūmiʻi. ʻO nā kūlana ʻē aʻe e hoʻoulu ai i ka mumū o ke kaula iwi kuamoʻo, e like me Transverse Myelitis, hiki ke hana i kēia ʻano hōʻailona.
Aia kekahi mau mea e hiki ai ke hoʻoulu i kahi MS Hug. Kāhea mākou i kēia mau mea 'Triggers'. ʻO nā mea hoʻoulu nui:
- Kaumaha nui
- Luhi kino a me ka luhi
- Nā loli koke o ka mahana (ʻoi aku ka wela nui)
- Ke komo ʻana i nā lole paʻa ma ka ʻōpū a me ka umauma
- Ke ulu nei i kahi maʻi e like me ke kuni a i ʻole kekahi maʻi ʻē aʻe
ʻAʻole like kēia mau mea hoʻonāukiuki no kēlā me kēia kanaka. ʻO ka mea e hoʻopilikia iā ʻoe, ʻaʻole paha e hoʻopilikia i kekahi. No laila he mea nui e ʻike i kāu mau mea hoʻonāukiuki kikoʻī.
Pehea e mālama ai i kēia kūlana?
ʻAʻohe hopena hoʻokahi e hoʻōki loa ai iā MS Hug. Eia nō naʻe, aia kekahi mau mea hiki iā ʻoe ke hoʻāʻo e kāohi a hōʻemi i kēia ʻoluʻolu ʻole. Pono paha ʻoe e hoʻokolohua a hiki i kou loaʻa ʻana o ke ʻano hana e kūpono iā ʻoe.
| ʻAno hana | He aha e hana ai |
|---|---|
| Ke pale nei i nā mea hoʻonāukiuki | E ʻaʻahu i nā lole palahalaha, ʻaʻole nā lole paʻa. E hōʻemi i ke kaumaha. E hiamoe maikaʻi. |
| Ke neʻe nei i ke kino | E hana i nā mea e like me ka hele mālie ʻana, ke kīkoʻo ʻana, a pēlā aku. E loaʻa paha iā ʻoe ka hōʻoluʻolu ma ka noho pololei ʻana a i ʻole ka moe ʻana. |
| Palai wela a anu paha | E hoʻopili i kahi ʻōmole wai wela a i ʻole kahi ʻeke hau i kahi o ka ʻeha. Loaʻa i kekahi poʻe ka hōʻoluʻolu mai ka wela, aʻo kekahi poʻe e hōʻoluʻolu mai ke anu. |
| Nā lāʻau lapaʻau ma ke aʻo lapaʻau | Inā koʻikoʻi kou ʻeha, e kamaʻilio me kāu kauka. Hiki iā ia ke kuhikuhi i nā lāʻau ʻeha, nā lāʻau hoʻomaha ʻiʻo, a i ʻole nā lāʻau lapaʻau kūikawā no ka ʻeha o ke aʻalolo. |
Āhea ʻoe e ʻike ai i ke kauka? (He mea nui loa kēia!)
ʻO kēia ka ʻāpana koʻikoʻi loa. Hiki ke like ka ʻeha o ka umauma āu e manaʻo ai mai ka MS Hug me nā hōʻailona o kahi maʻi koʻikoʻi, e like me ka hāʻule puʻuwai .
No laila, inā loaʻa koke iā ʻoe ka ʻeha o ka umauma a me ka paʻakikī o ka hanu ʻana me ke kumu ʻole, mai manaʻo wale he MS Hug ia. Hiki paha he hōʻeha puʻuwai, maʻi gallbladder, a i ʻole kekahi mea ʻoi aku ka koʻikoʻi. E ʻike koke i ke kauka, a i ʻole e hele i ka Emergency Department (ETU) o ka haukapila kokoke loa iā ʻoe.
Hiki i ke kauka ke nānā iā ʻoe a hoʻoholo i ke kumu pololei o kēia ʻeha. E hōʻoia kēia i kou palekana.
Leka Lawe-Home
- ʻAʻole he ʻapo aloha ka MS Hug, akā, he manaʻo ʻeha o ka ʻūmiʻi ma ka umauma a i ʻole ka ʻōpū i hoʻokumu ʻia e MS.
- Hana ʻia kēia e ka ʻūmiʻi koke ʻana o nā ʻiʻo ma waena o nā iwi ʻaoʻao ma muli o ka hōʻino ʻia ʻana o nā aʻalolo.
- ʻO nā mea e like me ke kaumaha, ka hoʻoikaika nui ʻana, nā lole paʻa, a me nā loli o ka mahana e hiki ke hoʻonui i kēia ʻano. E ʻike a pale i nā mea e hoʻopilikia iā ʻoe.
- Hiki i nā hana maʻalahi e like me ke komo ʻana i nā lole ākea, ka hoʻolōʻihi mālie ʻana i kou kino, a me ka hoʻopili ʻana i nā ʻūpā wela/anuanu ke kōkua.
- ʻO ka mea nui loa: Inā loaʻa iā ʻoe ka ʻeha umauma koke a wehewehe ʻole ʻia a me ka paʻakikī o ka hanu ʻana, mai manaʻo he MS Hug ia a hele koke i ka Emergency Department (ETU) o ka haukapila . Hiki ke lilo i maʻi koʻikoʻi, e like me ka hāʻule puʻuwai. E kamaʻilio mau me kāu kauka e pili ana i kēia.
💬 Comments (0)
ʻAʻohe manaʻo i kau ʻia. Hoʻohui i kāu manaʻo ma ʻaneʻi no ka manawa mua.
Hoʻohui i kāu manaʻo