Ke ʻike nei hoʻi ʻoe i nā manaʻo ʻūlū koke a me ka ʻūlū? He 'Myoclonic Seizure' anei kēlā? E kamaʻilio kākou e pili ana i kēia!

Ke manaʻo nei ʻoe i kekahi manawa e neʻe koke ana kou lima a wāwae paha a neʻe paha? A i ʻole e nalowale koke ana kou mana o kou lima i ka wā e paʻa ana i kahi mea? E noʻonoʻo paha ʻoe inā he mau mea wale nō kēia a i ʻole he hōʻailona ia o kekahi ʻano maʻi. I kēia lā e kamaʻilio mākou e pili ana i kēia mau neʻe koke ʻana o nā ʻiʻo, a i ʻole ka mea a nā kauka e kapa nei he `(Myoclonic Seizure)`.

He aha ka 'Myoclonic Seizure'? I ka pōkole...

I ka ʻōlelo maʻalahi, ʻo ka `Myoclonic Seizure` (i kapa ʻia ʻo "myo-clonic seizure") he wili koke a wikiwiki o kekahi a ʻoi aku paha mau ʻiʻo me kou mana ʻole. ʻO ka mea nui, ʻaʻole ʻoe i ʻike ʻole i kēia manawa, a ua ʻike ʻoe. Hiki i kēia ke hoʻopilikia i hoʻokahi ʻiʻo a i ʻole kekahi mau ʻiʻo i pili pū. Eia nō naʻe, i kekahi manawa hiki i kēia wili ke hoʻopilikia i kahi ʻāpana nui o ke kino.

E noʻonoʻo, ke paʻa nei ʻoe i ke kīʻaha tī, a haʻalulu koke kou lima a ninini ke kī. A i ʻole e kū wale ana ʻoe ma laila a haʻalulu kou poʻohiwi a wāwae paha. Pēlā ia e like ai.

Hiki ke loaʻa nā maʻi hoʻopaʻa myoclonic ma ke ʻano he maʻi ma o lākou iho, akā ʻike pinepine ʻia lākou he hōʻailona o kahi maʻi ʻē aʻe. ʻOi aku ka nui o ka poʻe me kēia mau maʻi e loaʻa i nā ʻano maʻi hoʻopaʻa ʻē aʻe.

Inā ʻoe e lawe wale i kēia `Myoclonic Seizure`, ʻaʻole ia he mea e hoʻopau nui iā ʻoe. Eia kekahi, he pōkole loa ko lākou ola, ʻaʻohe ʻeha, a hiki ke hoʻomalu ʻia me ka lāʻau lapaʻau. Eia nō naʻe, he mea nui e hoʻomanaʻo e hiki nō hoʻi iā lākou ke hana me kekahi mau kūlana `epilepsy` koʻikoʻi (epileptic/seizure).

He like anei ka "Myoclonic Seizure" a me "Myoclonus"?

ʻAe, aia kahi ʻokoʻa iki ma waena o nā mea ʻelua. ʻO `Myoclonus` (puana ʻia ʻo "myo-clonus") ka inoa maʻamau no ka ʻūlū koke ʻana o nā ʻiʻo. Manaʻo ia e like me ke kino e ʻūlū ana a ʻūlū paha. Hiki iā ia ke hoʻopilikia i hoʻokahi ʻiʻo a i ʻole kahi hui o nā ʻiʻo pili.

Eia nō naʻe, ʻo ka `Myoclonic Seizure` he `Myoclonus` i hoʻokumu ʻia e kahi kūlana `epileptic` i loko o kou lolo. ʻO ka `Epilepsy` kahi kūlana olakino kahi e hoʻopilikia ʻia ai kāu hana maʻamau e nā hōʻailona uila maʻamau ʻole i loko o kou lolo.

Akā, pono ʻoe e hoʻomanaʻo i kēia, hiki i ka 'Myoclonus' ke hiki mai iā mākou ma ke ʻano he kūlana maʻamau me ka ʻole o ka maʻi koʻikoʻi. E haʻi aku wau iā ʻoe e pili ana i ʻelua ʻano 'Myoclonus' āu i ʻike ai i kēia mau lā. He mea maʻamau loa kēia, ʻaʻole he 'Myoclonic Seizure'.

• Nā Hypnic Jerks: Ua loaʻa anei iā ʻoe kahi ʻūlū koke i loko o kou kino e hoʻāla iā ʻoe i kou wā e hiamoe ana? Ua kapa ʻia kēlā he Hypnic Jerk.
• Hiccups: He ʻano myoclonus kēia. Hoʻopilikia ia i kou diaphragm (ka ʻiʻo ma waena o kou umauma a me kou ʻōpū e kōkua iā ʻoe e hanu).

No laila, i kēia manawa ua maopopo iā ʻoe ʻaʻole nā ​​​​breg a pau he 'Myoclonic Seizure'.

Ua like anei ka `Myoclonic Seizure` me ka `Epilepsy`?

He pili loa nā "Seizures" (fits/convulsions) a me ka "Epilepsy" (epilepsy), akā ʻaʻole like lāua. Hiki i kekahi ke loaʻa i ka "seizure" no kekahi kumu. Eia nō naʻe, ʻoi aku ka nui o ka loaʻa ʻana o ka "seizure" i kekahi poʻe.

Hiki i kāu kauka ke hoʻohana i ka huaʻōlelo "seizure" inā manaʻo ʻo ia ua hoʻokumu ʻia ke kūlana e nā hōʻailona uila ʻē aʻe i loko o ka lolo. I kēlā hihia, he hōʻailona ka hopu ʻana o ka maʻi epilepsy. Akā i kekahi manawa, paʻakikī ke ʻike maopopo inā he epilepsy maoli ka hōʻailona. I ka manawa pinepine, hana nā kauka i nā hoʻokolohua e like me ka EEG e ʻike inā pili nā hopu ʻana o ke kanaka i ka epilepsy.

ʻElua ʻano nui o nā `Seizures`:

• Hoʻonāukiuki ʻia: Hoʻokumu ʻia kēia e kahi kūlana olakino kikoʻī. No ka laʻana, ke kuni kiʻekiʻe, ke kō koko haʻahaʻa (hypoglycemia), ka hoʻohana ʻana i nā lāʻau lapaʻau a waiʻona paha a me ka haʻalele ʻana.
• Hoʻonāukiuki ʻole ʻia: Hoʻokumu ʻia kēia e nā loli i kou lolo a i ʻole nā ​​​​kūlana olakino e maʻalahi ai iā ʻoe ke loaʻa i nā hopu ʻana.

I mea e ʻike ʻia ai he maʻi epilepsy, pono i kekahi ke loaʻa i ʻelua mau hopu ʻana i hoʻonāukiuki ʻole ʻia, a i ʻole hoʻokahi hopu ʻana i hoʻonāukiuki ʻole ʻia a me kahi pilikia nui o ka loaʻa ʻana o kekahi i loko o nā makahiki he 10 e hiki mai ana. Hiki i nā kauka ke hoʻoholo i kēia pilikia ma ka nānā ʻana i kekahi mau loli i ke ʻano a i ʻole ka hana o kou lolo.

ʻO wai ka mea i hoʻopilikia nui ʻia e kēia kūlana?

ʻO ka maʻamau, ʻo nā kuʻi myoclonic ka poʻe me ka epilepsy laulā (epilepsy e hoʻopilikia i ka lolo holoʻokoʻa) a i ʻole ka epilepsy genetic (epilepsy i hoʻokumu ʻia e nā kumu genetic). Hiki i nā poʻe me ka epilepsy focal (epilepsy e hoʻopilikia wale i hoʻokahi ʻāpana o ka lolo) ke loaʻa i nā kuʻi myoclonic. Eia nō naʻe, i ka epilepsy focal, ʻo ka ʻūlū ʻana o nā ʻiʻo e hoʻopilikia wale i hoʻokahi ʻaoʻao o ke kino.

Pehea ka maʻamau o nā 'Myoclonic Seizures'?

He ʻano hopu maʻamau nā hopu myoclonic. He mea maʻamau lākou i nā poʻe me ka Juvenile Myoclonic Epilepsy (JME). ʻO ka JME kahi ʻano maʻamau o ka epilepsy laulā (genetic) e kū mai ana i ka wā kamaliʻi. Hoʻopilikia ka JME ma waena o 5% a me 10% o nā poʻe āpau me ka epilepsy.

Pehea ka hopena o kēia maʻi i koʻu kino?

ʻO ka `seizure` he hana uila koke a kāohi ʻole ʻia i loko o kou lolo. I loko o `Myoclonic Seizures`, he pōkole loa kēia hana uila. No laila, he manawa pōkole kēia mau `seizures`, ma kahi o kahi hapa o kekona.

Hiki i nā maʻi kuʻi myoclonic ke hoʻopilikia i kekahi a i ʻole nā ​​ʻaoʻao ʻelua o kou lolo. Inā loaʻa kahi maʻi kuʻi ma kekahi ʻaoʻao, e ʻike ʻia nā hōʻailona ma kekahi ʻaoʻao o kou kino. Inā hoʻopilikia ia i nā ʻaoʻao ʻelua o kou lolo, ʻoi aku ka koʻikoʻi o nā hōʻailona ma nā ʻaoʻao ʻelua o kou kino.

He aha nā hōʻailona o ka "Myoclonic Seizure"?

ʻO nā kuʻi myoclonic he mau ʻūmiʻi ʻiʻo koke a makemake ʻole ʻia (jerks). Hiki ke hana ʻia kēia ma nā ʻano ʻelua:

• ʻO ka Myoclonus maikaʻi: He ʻūmiʻi koke kēia o nā ʻiʻo. Manaʻo ia e like me ka ʻūmiʻi koke ʻana a i ʻole ka ʻūlū ʻana o kahi ʻiʻo.
• ʻO ka Myoclonus maikaʻi ʻole: ʻO kēia ka wā e nalowale koke ai ke koʻikoʻi o kahi ʻiʻo āu e hoʻohana nei. No ka laʻana, ke paʻa nei ʻoe i kahi mea ma kou lima, hoʻomaha koke nā ʻiʻo o kou lima, e hāʻule ai ka mea āu e paʻa nei i ka honua.

Eia nā hōʻailona i ʻike pinepine ʻia:

• He manawa pōkole loa ia: I loko o kahi `Myoclonic seizure`, ʻūmiʻi nā ʻiʻo me he mea lā ua pā ʻia e kahi au uila liʻiliʻi (e like me ka uila static e hōʻiliʻili ana ma nā lole). He hapa iki kēia o ka kekona.
• Hoʻopilikia pinepine ia i nā hui ʻiʻo liʻiliʻi: no ka laʻana, nā ʻiʻo o nā lima, nā wāwae, a me ke alo. Inā hoʻopilikia ia i nā wahi nui aʻe, hiki ke loaʻa ma ka umauma, ke kua, a i ʻole ka ʻōpū.
• Hana ʻia ia i kahi helu palena o nā manawa: ʻO ka `Myoclonic seizure` ka mea maʻamau e hoʻoulu ai i hoʻokahi ʻūmiʻi ʻiʻo. Eia nō naʻe, i kekahi manawa, hiki ke hana i nā manawa he nui i loko o kahi manawa pōkole.
• ʻOi aku ka nui o ka hiki ke loaʻa i kekahi mau manawa: ʻOi aku ka nui o ka loaʻa ʻana o nā kuʻi myoclonic i kou ala mua ʻana i ke kakahiaka. Hiki nō hoʻi iā lākou ke loaʻa i ka wā e luhi loa ai ʻoe, ʻaʻole lawa ka hiamoe, aia ma lalo o ke kaumaha a hopohopo paha, a ma hope o ka inu ʻana i ka waiʻona .
• Ua ʻike pinepine ʻoe: ʻOiai he mea maʻamau ka nalowale o ka ʻike a me ka ʻike o kou wahi a puni i nā ʻano hopu he nui, ʻaʻole kēia ka hihia me nā hopu myoclonic. Eia nō naʻe, ke loaʻa iā ʻoe kekahi ʻano hopu ʻē aʻe, e like me ka hopu ʻole ʻana (ka nalowale koke o ka ʻike), hiki iā ʻoe ke ʻike i ka ʻūlū ʻana o nā ʻiʻo e like me ka hopu myoclonic.

He aha nā kumu o nā "Myoclonic Seizures"?

ʻO ka maʻamau, hoʻokumu ʻia nā kuʻi myoclonic e ka epilepsy. Hoʻopilikia kēia ʻano i kou mau hunaola lolo e hana hewa a hoʻomaka e puhi me ke kāohi ʻole ʻia. He nui nā ʻano epilepsy he genetic. ʻO ia hoʻi, hiki ke hoʻoilina ʻia mai kekahi a i ʻole nā ​​mākua ʻelua.

ʻO kekahi o nā ʻano epilepsy nui e pili ana me nā Myoclonic Seizures:

• ʻO ka Juvenile Myoclonic Epilepsy (JME): Hoʻomaka pinepine kēia ʻano epilepsy ma waena o nā makahiki 12 a me 18. Hele pū ʻia me nā ʻano hopu ʻē aʻe, e like me nā hopu absence a me nā hopu tonic-clonic. He maʻi hoʻoilina kēia maʻamau.
• ʻO ka maʻi Lennox-Gastaut:He ʻano maʻi ʻepilepsy koʻikoʻi kēia o ka wā kamaliʻi. Hoʻomaka pinepine ia ma mua o ka piha ʻana o 10 makahiki. Pili ia i nā ʻano hopu like ʻole, me ka myoclonic.
• ʻO ka Myoclonic-Astatic Epilepsy: ʻO kēia ʻano epilepsy ke kumu o nā kuʻi myoclonic e hoʻopilikia i nā ʻaoʻao ʻelua o ke kino. Ma hope o ka kuʻi ʻana, hoʻomaha koke nā ʻiʻo i hoʻopilikia ʻia. ʻO ke ʻano o ka huaʻōlelo "astatic" ʻo ia hoʻi "paʻa ʻole." Loaʻa kona inoa no ka mea hāʻule pinepine ka poʻe me kēia ʻano epilepsy.
• ʻO ka Myoclonic Epilepsy o ka pēpē (MEI): Hoʻomaka pinepine kēia ʻano epilepsy ma mua o 3 mau makahiki, akā hiki ke hoʻomaka i kekahi manawa a hiki i 5 mau makahiki. ʻOi aku ka nui o nā kuʻi myoclonic i ka wā e ala ana ke keiki, ʻaʻole i ka wā e hiamoe ana a luhi paha. Hoʻopau pinepine ia ma kāna iho ma waena o ʻeono mahina a me ʻelima mau makahiki.
• ʻO ka Myoclonus Epilepsy Holomua: He ʻano epilepsy koʻikoʻi loa kēia. E ʻoi aku ka ʻino o ke kūlana i ka hala ʻana o ka manawa. Hoʻopilikia pinepine ia i ka degeneration a i ʻole ka hōʻino ʻana i ka lolo. Hoʻopilikia kēia i nā mea e like me ka hoʻomanaʻo, ka kaohi ʻana i nā ʻiʻo, a me ka noʻonoʻo ʻana. Hiki i kekahi mau ʻano o kēia ke make.

Ma waho aʻe o kēia mau ʻano epilepsy, hiki ke hana ʻia nā myoclonic seizures e nā kūlana ʻē aʻe a i ʻole nā ​​kumu e hoʻopilikia ai i ka hana maʻamau o kou lolo. Eia kekahi mau laʻana:

• Nā puʻupuʻu lolo (me ke kanesa).
• ʻAʻohe oxygen i ka lolo (ʻaʻohe cerebral hypoxia).
• ʻO ka haʻalulu koʻikoʻi a me ka ʻeha o ka lolo.
• Nā maʻi lolo degenerative e like me ka maʻi Alzheimer a i ʻole ka dementia frontotemporal.
• Nā lāʻau lapaʻau a me ka waiʻona (e komo pū ana kēia me nā lāʻau lapaʻau i kauoha ʻia, nā lāʻau lapaʻau kū ʻole i ke kānāwai, a me ka caffeine).
• Ka haʻalele ʻana i ka lāʻau lapaʻau a i ʻole ka waiʻona.
• Nā maʻi (ʻoi aku ka encephalitis a i ʻole meningitis; hiki ke hana ʻia kēia mau maʻi e nā virus, bacteria, parasites, a fungi paha).
• Nā pilikia metabolic, ʻoiai ke kiʻekiʻe o ke kō koko ('Hyperglycemia') a haʻahaʻa paha ('Hypoglycemia').
• ʻO nā metala e like me ka lithium (kahi lāʻau lapaʻau i hāʻawi ʻia i nā mahele i kuhikuhi ʻia no kekahi mau maʻi noʻonoʻo) hiki i nā pae ʻawahia i loko o ke kino.

Aia kekahi mau ʻano ʻē aʻe o ka 'myoclonus' ʻaʻole ia he 'myoclonic seizures':

• ʻO ka myoclonus subcortical: Hiki ke hana ʻia kēia ʻano myoclonus e ka maʻi a i ʻole ka hōʻino ʻana i nā ʻāpana o ka ʻōnaehana nerve e moe hohonu ana ma mua o ka ʻili o ka lolo (ka cortex). ʻO kēia mau ʻāpana kekahi wahi ma lalo o ka ʻili o ka lolo, ka lolo, a me ke kaula spinal.
• ʻO ka myoclonus peripheral: ʻO ke ʻano myoclonus i hana ʻia e ka hōʻino ʻana i kāu ʻōnaehana nerve peripheral.
• ʻO ka maʻi Lance-Adams:He maʻi lolo laha ʻole kēia. Hoʻokumu ʻia ia e nā pilikia e kū mai ana ma hope o ka nele o ka oxygen. Hoʻopilikia pinepine ia i ka poʻe i loaʻa i ka hōʻeha puʻuwai a ua loaʻa iā lākou kahi 'cardiopulmonary arrest' (ua kū ka puʻuwai a me nā māmā). Hiki ke loaʻa kēia ʻano i ka poʻe i hoʻopakele ʻia e ka 'CPR' ('Cardiopulmonary Resuscitation'). ʻIke ka poʻe me ka 'Lance-Adams Syndrome' i kahi mea i kapa ʻia ʻo 'action myoclonus'. He ʻūlū ʻiʻo koʻikoʻi kēia a hiki ʻole ke kāohi ʻia e kū mai ana ke hoʻāʻo ʻoe e hana i kekahi neʻe ʻana.

He laha anei nā ʻōʻō Myoclonic?

ʻAʻole, ʻaʻole laha nā ʻōʻō Myoclonic. ʻAʻole hiki iā ʻoe ke hoʻolaha iā ia mai kekahi kanaka a i kekahi.

Pehea e ʻike ai i kahi "myoclonic seizure"?

Ma muli o nā hōʻailona āu e wehewehe ai (ʻo ʻoe a i ʻole kāu keiki), hiki i ke kauka ke kānalua i nā 'myoclonic seizures'. Ke hoʻokumu ʻia kēlā kānalua, hiki ke hana ʻia nā hoʻokolohua like ʻole e kāpae i nā kūlana olakino ʻē aʻe a hōʻoia i kēia mau 'seizures' ke kumu o lākou.

He aha nā hoʻokolohua e hana ʻia e ʻike ai i kēia maʻi?

ʻO ke ala nui e ʻike ai i nā hopu myoclonic me kahi electroencephalogram (EEG) , i ʻike ʻia hoʻi he video-EEG. Ana kēia hoʻāʻo i ka hana uila o kou lolo a nānā i nā ʻano maʻamau ʻole e hōʻike ana i kahi pilikia me kou lolo. Ma kahi video-EEG, hoʻopaʻa ʻia ka EEG i ka wā e hoʻopaʻa ʻia ai nā hopu.

Hiki ke hana ʻia nā hoʻokolohua ʻē aʻe e hōʻoia a hoʻopau paha i nā kūlana ʻē aʻe (hiki ke hana ʻia kekahi o kēia mau mea ma mua o ka EEG):

• Nā hoʻāʻo koko (e nānā kēia i nā mea e like me ka metabolic a me ke kaulike ʻole o ke kemika koko, nā maʻi, a me nā mea ʻē aʻe)
• ʻO ke kiʻi ʻana o ka Tomography Kamepiula (CT)
• ʻO ke kiʻi ʻana i ka Magnetic Resonance Imaging (MRI) scan.
• ʻO ke kī ʻana o ka iwi kuamoʻo (lumbar puncture).

Pehea e mālama ʻia ai nā ʻeha Myoclonic Seizures? Aia kekahi lāʻau lapaʻau?

He pōkole loa ke ola o nā hopu ʻana o ka myoclonic. No laila, i kekahi manawa, hiki ke kuhikuhi ʻia nā lāʻau hoʻopakele e kōkua i ka pale ʻana i nā hui o nā hopu ʻana o ka myoclonic. ʻO kēia mau lāʻau hoʻopakele maʻamau no kahi papa o nā lāʻau i kapa ʻia ʻo benzodiazepines. ʻO nā laʻana e komo pū me Ativan®, Valium®, clonazepam, a me clobazam. Hiki ke hoʻohana ʻia nā lāʻau lapaʻau i hoʻohana ʻia e mālama i nā ʻano hopu epileptic ʻē aʻe e kāohi i nā hopu myoclonic. ʻOiai hiki i kekahi poʻe ke kāohi i kā lākou hopu ʻana me hoʻokahi lāʻau lapaʻau wale nō, pono paha i nā poʻe ʻē aʻe ka hui pū ʻana o nā lāʻau lapaʻau. ʻO kāu kauka ke kanaka maikaʻi loa e wehewehe i kāu mau koho a kōkua iā ʻoe e ʻike i ka mea kūpono loa iā ʻoe.

Eia nō naʻe, ʻaʻole paha e pane kekahi mau kūlana koʻikoʻi i ka lāʻau lapaʻau a pono paha i nā lāʻau ʻē aʻe:

• ʻO ke ʻoki kino no ka maʻi ʻepilepsy.
• Nā hoʻololi ʻana i ka meaʻai, no ka laʻana, nā ʻai haʻahaʻa-kalapona a i ʻole ka ʻai ʻole-kalapona (`ketogenic`).
• Nā mea i hoʻokomo ʻia i loko o ke kino no ka `vagal nerve stimulation`, `responsive neurostimulation` a i ʻole `deep brain stimulation`.

He aha nā pilikia/nā hopena ʻaoʻao o ka lāʻau lapaʻau?

No ka mea, he nui nā lāʻau lapaʻau like ʻole (a me nā hui pū ʻana o nā lāʻau lapaʻau) i loaʻa e mālama i nā kūlana e hoʻoulu ai i nā hopu myoclonic, hiki ke ʻokoʻa nā hopena ʻaoʻao a me nā pilikia. ʻO kāu kauka ke kanaka maikaʻi loa e kamaʻilio e pili ana i nā lāʻau lapaʻau a me ko lākou mau hopena ʻaoʻao.

Pehea wau e mālama ai iaʻu iho/hoʻokele i nā hōʻailona?

ʻO nā kuʻi myoclonic he mau ʻūlū ʻiʻo i hoʻokumu ʻia e kahi kuʻi i loko o kou lolo. Hiki ke loaʻa ka myoclonus me nā maʻi ʻē aʻe he nui. Hiki i kekahi o lākou ke lilo i mea weliweli a make paha. No laila, pono ʻoe e ʻike i kahi kauka i aʻo ʻia a mākaukau e ʻike a mālama i kēia maʻi.

ʻEhia ka manawa e ʻoi aku ai koʻu maikaʻi ma hope o ka hoʻomaka ʻana o ka lāʻau lapaʻau?

Hiki ke ʻokoʻa kou manawa hoʻōla a me ka manawa e pono ai no ʻoe e ʻoluʻolu ma hope o ka hoʻomaka ʻana i ka lāʻau lapaʻau. ʻO kāu kauka ke kanaka maikaʻi loa e haʻi iā ʻoe i ka mea e manaʻo ai a me ka mea e hiki ke kōkua iā ʻoe i kou hoʻōla ʻana.

Hiki iaʻu ke pale a hōʻemi paha i ka pilikia o nā maʻi Myoclonic Seizures?

Hiki ke loaʻa nā hopu ʻana i kekahi ma lalo o nā kūlana kūpono, no laila ʻaʻole hiki ke pale loa ʻia. Eia nō naʻe, aia kekahi mau mea hiki iā ʻoe ke hana e hōʻemi i kou pilikia o ka loaʻa ʻana o nā hopu ʻana a i ʻole nā ​​​​kūlana e hoʻoulu ai iā lākou:

• Mai hoʻomāinoino i ka waiʻona, nā lāʻau lapaʻau i kuhikuhi ʻia, a i ʻole nā ​​​​lāʻau lapaʻau kū ʻole i ke kānāwai. Hiki i kēia mau mea ke hana i nā hopu inā hoʻomāinoino ʻia. Eia kekahi, inā ua hoʻopili ʻia ʻoe i kēia mau mea, hiki nō iā ʻoe ke loaʻa nā hopu ke hoʻōki ʻoe i ka hoʻohana ʻana iā lākou.
• E hoʻokele i kou mau kūlana olakino. Hiki i ka hoʻokele ʻana i nā kūlana maʻi ke kōkua i ka pale ʻana i nā hopu ʻana. He mea maʻamau nā hopu ʻana i nā poʻe me ka Type 1 Diabetes a i ʻole Type 2 Diabetes, i hoʻokumu ʻia e nā pae kō koko kiʻekiʻe. ʻO ka kaohi ʻana i ke koko kiʻekiʻe, ka kaohi ʻana i nā pae cholesterol, a me ka ʻole o ka puhipaka hiki ke kōkua i ka hōʻemi ʻana i kou pilikia o ka hahau ʻana a me ka hōʻeha puʻuwai. Hiki i kēia mau kūlana ke hōʻino i kou lolo a hana i nā ʻano myoclonus like ʻole, me nā hopu myoclonic.
• Mai hoʻowahāwahā i nā maʻi. He mea nui loa ia e mālama i nā maʻi maka a me ka pepeiao. Inā pālahalaha kēia mau maʻi i kou lolo, hiki iā lākou ke hoʻoulu i nā hopu. Hiki i nā maʻi ke hoʻoulu i ke kuni nui, hiki ke hoʻoulu i nā hopu.
• E komo i nā lako palekana. ʻO nā ʻeha poʻo kekahi kumu nui o nā hopu ʻana. ʻO ke komo ʻana i nā lako palekana (nā mahiole, nā kāʻei palekana, a me nā mea ʻē aʻe) hiki ke kōkua i ka pale ʻana i nā ʻeha e hiki ai ke alakaʻi i ka hopu ʻana.
• E pale i nā mea hoʻonāukiuki e hiki ai ke hoʻoulu i ka hopu ʻana.Pono ka poʻe me ka mōʻaukala o nā hopu ʻana mai nā kukui ʻālohilohi e makaʻala a pale i kēlā mau mea hoʻonāukiuki i ka wā hiki. Pono hoʻi lākou e makaʻala i ka wā e inu ai i ka waiʻona (a pale loa iā ia inā ʻōlelo ʻē aʻe kāu kauka).

He aha kaʻu e manaʻo ai inā loaʻa iaʻu nā 'Myoclonic Seizures'?

ʻAʻole koʻikoʻi a ʻeha paha nā hopu myoclonic. ʻAʻole lākou he mea weliweli iā lākou iho. Hiki i ka lāʻau lapaʻau ke mālama iā lākou a i ʻole nā ​​​​kūlana e hoʻokumu ai iā lākou.

Eia nō naʻe, inā loaʻa iā ʻoe kahi maʻi e hoʻoulu ai i nā ʻano hopu ʻē aʻe, hiki i nā hopu myoclonic ke lilo i hōʻailona hōʻailona . No nā poʻe he nui me kēia mau kūlana, loaʻa nā hopu myoclonic i nā hola, a i ʻole nā ​​​​lā, ma mua o kahi hopu tonic-clonic nui a koʻikoʻi. Hiki i kāu kauka ke kōkua iā ʻoe e hoʻoholo inā he hōʻailona hōʻailona o kahi hopu nui nā hopu myoclonic a inā he mea hiki iā ʻoe ke hana e hoʻohana i kēia ʻike i kou pono.

ʻEhia ka lōʻihi o kou loaʻa ʻana i nā "Myoclonic Seizures"?

He pōkole loa ke ola o nā kuʻi myoclonic. ʻO ka hapa nui o lākou he mau kekona wale nō. A i ʻole, loaʻa lākou i nā hui, kahi e loaʻa ai kekahi i loko o kahi manawa pōkole.

Hoʻomaka ka nui o nā kūlana e hoʻoulu ai i nā hopu myoclonic i ka wā kamaliʻi. Hiki i nā keiki ke ulu aʻe ma mua o lākou i ko lākou wā ʻelemakule. Hiki i kāu kauka ke hoʻoholo inā pilikia kāu keiki. Hiki iā ia ke kōkua iā ʻoe e hoʻoholo i ke ala maikaʻi loa e hōʻemi palekana ai a hoʻōki paha i ka lāʻau lapaʻau a kāu keiki.

Inā ʻaʻole e ulu ke kanaka ma mua o kēia mau kūlana i ko lākou wā ʻelemakule, a i ʻole inā loaʻa iā lākou ma hope o ke ola, hiki i nā hopu myoclonic ke lilo i pilikia no ke ola holoʻokoʻa. Me ka mālama ʻana, hiki i kekahi poʻe ke kāohi loa i kā lākou mau hopu myoclonic. No kekahi poʻe i loaʻa ka myoclonus ma muli o ka epilepsy focal, hiki i ke ʻoki ʻana i ka epilepsy ke hoʻopau i nā hopu myoclonic. Eia nō naʻe, ʻaʻohe ala e wānana ai inā e ulu ke kanaka ma mua o nā hopu myoclonic ke loaʻa iā lākou ke kūlana. No laila, manaʻo nā loea i kahi kanaka i loaʻa ʻole ka hopu no ka manawa lōʻihi e "hoʻomaha" mai kēia mau kūlana.

He aha ka manaʻo no kēia kūlana?

ʻAʻole weliweli nā hopu myoclonic iā lākou iho. ʻAʻole lākou e hoʻoulu i nā hopena koʻikoʻi e like me ka hōʻino ʻana o ka lolo a i ʻole nā ​​​​pilikia me ka noʻonoʻo ʻana, ka noʻonoʻo ʻana, a i ʻole ka hoʻomanaʻo. Eia nō naʻe, hiki ke loaʻa nā hopu myoclonic me nā kūlana ʻē aʻe e hiki ai ke hoʻoulu i nā hopu weliweli a me nā pilikia. No laila, he mea nui e ʻike koke i kāu kauka no ka ʻike a me ka mālama ʻana.

Pehea e hiki ai iaʻu ke mālama iaʻu iho?

Inā loaʻa iā ʻoe nā maʻi myoclonic a i ʻole kahi maʻi e hoʻoulu ai iā lākou, e hāʻawi kāu kauka iā ʻoe i ke alakaʻi, ka ʻike, a me nā kumuwaiwai e kōkua iā ʻoe e hoʻokele i kou kūlana. He mea nui e hahai pono i ke alakaʻi a e nīnau i nā nīnau inā ʻaʻole ʻoe maopopo. Inā ʻaʻole e holo pono ana kāu lāʻau lapaʻau e like me kou makemake, a inā paha he pilikia kou me nā hopena ʻaoʻao, e kamaʻilio me kāu kauka. Hiki iā ia ke kōkua iā ʻoe e ʻike i nā lāʻau lapaʻau ʻē aʻe e hana maikaʻi ana iā ʻoe a i ʻole e hōʻemi i nā hopena ʻaoʻao.

Nā mea nui ʻē aʻe hiki iā ʻoe ke hana:

• E lawe i kāu lāʻau lapaʻau e like me ke kauoha a mai hoʻōki i ka hoʻōki ʻana i kāu lāʻau lapaʻau me ka ʻole o ke kamaʻilio ʻana me kāu kauka.
• Mai hoʻowahāwahā a hoʻowahāwahā paha i nā hōʻailona hou a i ʻole nā ​​​​loli i nā hōʻailona e kū nei.
• E pale i nā mea hoʻoulu i ka hopu ʻana (e.g., nā kukui ʻālohilohi, ka waiʻona, ka nele i ka hiamoe).

Āhea wau e ʻike ai i kaʻu kauka? A i ʻole e ʻimi i ke aʻo lapaʻau?

Pono ʻoe e ʻike i kāu kauka e like me ka mea i ʻōlelo ʻia no nā kipa hahai. Pono hoʻi ʻoe e haʻi i kāu kauka inā ʻike ʻoe i kekahi mau loli i ke ʻano o ka hana ʻana o kāu lāʻau lapaʻau, inā he mau hōʻailona a pilikia paha kāu, a inā paha e hoʻopilikia ana nā hopena ʻaoʻao i kāu mau hana o kēlā me kēia lā.

Āhea wau e hele ai i ka lumi pilikia (ER)?

Inā nalowale koke kou ʻike no ke kumu ʻole, pono ʻoe e hele i ka lumi pilikia. He mea kākaʻikahi kēia i nā hopu myoclonic, akā hiki ke hana inā loaʻa iā ʻoe kahi maʻi e hoʻoulu ai i nā ʻano hopu ʻē aʻe.

Inā ʻike ʻoe he maʻi epilepsy kekahi, ʻaʻole pono e kāhea aku i kahi ambulance ma hope o kahi hopu ʻana. Eia nō naʻe , inā ʻoi aku ka lōʻihi o ka hopu ʻana ma mua o 2 mau minuke, ʻaʻole e ola ke kanaka, a inā ua hōʻeha ka hopu ʻana, e kāhea aku i kahi ambulance. Hiki i nā hopu myoclonic ke hāʻule a hōʻeha paha iā ʻoe iho. No laila, he mea nui e ʻimi i ke kōkua lapaʻau inā loaʻa iā ʻoe kahi ʻeha ma hope o kahi hopu e like me kēia.

ʻO nā hopu myoclonic kahi ʻano hopu maʻamau. Hoʻoulu lākou i nā ʻūlū ʻiʻo uila i kāohi ʻole ʻia. ʻOiai ʻaʻole ia he mea weliweli a hōʻino paha kēia mau hopu wale nō, hiki iā lākou ke hana i nā pilikia inā nalowale ʻoe i ka mana o nā ʻiʻo i ka wā o nā hana e like me ka hele wāwae a i ʻole ka hāpai ʻana i kahi mea. Hiki iā lākou ke lilo i hōʻailona hōʻike e hiki mai ana kahi hopu ʻoi aku ka koʻikoʻi. ʻIke pinepine ʻia lākou i nā keiki me ka maʻi epilepsy, akā hiki nō hoʻi iā lākou ke hana i nā pākeke. ʻO ka mea pōmaikaʻi, hiki ke mālama ʻia nā hopu myoclonic me ka lāʻau lapaʻau. ʻO ia hoʻi, hiki ke hoʻemi ʻia ko lākou alapine (frequency) a pale ʻia paha no ka manawa lōʻihi.

Hōʻuluʻulu Manaʻo (Leka Lawe-Home)

No laila, ke lana nei koʻu manaʻo ua ʻike maikaʻi ʻoe i ka 'Myoclonic Seizure' a mākou i kamaʻilio ai i kēia lā. E hoʻomanaʻo, ʻaʻole nā ​​​​​​mea ʻē aʻe he hōʻailona ia o kahi maʻi koʻikoʻi.Eia nō naʻe, inā ʻoe a kāu keiki paha e ʻike pinepine nei i kēia ʻano maʻi, a i ʻole inā ʻoe e ʻike nei i nā ʻano ʻeha ʻē aʻe me nā maʻi, he mea maikaʻi loa ke ʻike i ke kauka no ka ʻōlelo aʻo.

I ka hapa nui o ka manawa, hiki ke hoʻomalu maikaʻi ʻia kēia kūlana me ka lāʻau lapaʻau. No laila, mai hopohopo, a e hahai i nā ʻōlelo a kāu kauka. Na kāu kauka e koho i ka lāʻau lapaʻau kūpono loa iā ʻoe.

ka hopu ʻana o ka lolo, ka maʻi ʻōpū, ka myoclonus, ke kūpono, ka ʻōhūhū, ka maʻi lolo, ka maʻi neurological