Loaʻa iā ʻoe kekahi sclerosis lehulehu? A laila e aʻo kākou e pili ana iā Ocrelizumab!

Inā ʻoe e ʻeha nei i ka Multiple Sclerosis (MS), ua lohe paha ʻoe e pili ana i kahi lāʻau i kapa ʻia ʻo Ocrelizumab. Ua haʻi aku paha kāu kauka iā ʻoe e hoʻomaka e lawe. No laila, i kēia lā e kamaʻilio mākou e pili ana i ke ʻano o kēia lāʻau, pehea e hana ai, a me nā mea āu e pono ai e ʻike. ʻOiai he lāʻau paʻakikī kēia, he mea nui loa ia iā ʻoe ke loaʻa kahi ʻike maikaʻi o ia mea.

He aha kēia lāʻau lapaʻau i kapa ʻia ʻo Ocrelizumab?

I ka ʻōlelo maʻalahi, ʻo Ocrelizumab kahi lāʻau lapaʻau kūikawā i hoʻohana ʻia e mālama i kahi maʻi i kapa ʻia ʻo Multiple Sclerosis (MS). Loaʻa pinepine ia ma lalo o ka inoa inoa ʻo OCREVUS.

I kēia manawa, ke loaʻa iā ʻoe ka sclerosis maha (MS), ʻo ka ʻōnaehana pale ponoʻī o kou kino—ka ʻōnaehana e pale aku iā ʻoe mai ka maʻi—e hana nui iki ana, e hōʻino ana i kāu ʻōnaehana nerve ponoʻī. Ua like ia me kou pūʻali koa ponoʻī e hoʻouka ana iā ʻoe. No laila, ʻo ka mea a Ocrelizumab e hana ai , ʻo ia ka hoʻolohi ʻana i kēlā ʻōnaehana pale hana nui. Ma kēlā ala, hiki iā ʻoe ke kāohi a hoʻopaneʻe paha i ka ʻino o kāu mau hōʻailona. Kōkua pū ia i ka hōʻemi ʻana i ka nui o nā flare-ups.

Akā hoʻokahi mea e hoʻomanaʻo ai. ʻAʻole kēia he lāʻau lapaʻau no ka sclerosis maha (MS). Eia naʻe, hiki iā ia ke maʻalahi ka noho ʻana me ka maʻi. No loko kēia lāʻau lapaʻau i kahi papa o nā lāʻau lapaʻau i kapa ʻia ʻo monoclonal antibodies. ʻO ia hoʻi, he ʻano protein lākou i hana ʻia i loko o kahi keʻena hoʻokolohua e hana kūikawā loa ana, e kuhikuhi ana i nā cell kikoʻī o ka ʻōnaehana pale. ʻO ke kikoʻī, ʻike wale lākou i nā cell pilikia a kāohi i kā lākou hana.

I kekahi manawa hoʻohana paha nā kauka i kēia lāʻau lapaʻau no nā kūlana ʻē aʻe, no laila inā he mau nīnau kāu, e nīnau i kāu kauka a mea kūʻai lāʻau paha.

He aha kaʻu e haʻi aku ai i kaʻu kauka/kahu ma mua o ka hoʻohana ʻana i kēia lāʻau lapaʻau?

No ka mea he lāʻau ikaika ʻo Ocrelizumab, he mea nui loa ia e haʻi i kāu kauka a i ʻole ka hui mālama ola e pili ana i kou olakino ma mua o ka hoʻomaka ʻana. He mea nui loa kēia inā loaʻa iā ʻoe kekahi o kēia mau kūlana:

• Kanesa: Inā loaʻa iā ʻoe ka maʻi kanesa i kēia manawa, a i ʻole ua mālama ʻia no ka maʻi kanesa ma mua, e ʻoluʻolu e haʻi mai iā mākou e pili ana.
• Maʻi Hepatitis B: Inā ua loaʻa iā ʻoe ka hepatitis B ma mua, a inā he mea lawe ʻoe i ka hepatitis B, pono ʻoe e haʻi i kāu kauka no ka mea e lilo paha ia i mea ʻoi aku ka koʻikoʻi ke lawe ʻoe i kēia lāʻau.
• ʻO kēlā me kēia ʻano maʻi:ʻOi loa aku inā loaʻa iā ʻoe kahi maʻi viral e like me ka chickenpox, herpes, a i ʻole kekahi maʻi bacteria ʻē aʻe. Hiki i kēia lāʻau lapaʻau ke hoʻonui i ka maʻi e kū nei.
• E haʻi i kāu kauka inā loaʻa iā ʻoe kahi hopena maʻi i ka Ocrelizumab, nā lāʻau lapaʻau ʻē aʻe, nā meaʻai, nā mea hoʻoluʻu meaʻai, a i ʻole nā ​​​​mea mālama .
• Inā hāpai ʻoe a i ʻole e hoʻāʻo ana e hāpai: He mea nui loa kēia. Hiki i kēia lāʻau lapaʻau ke hōʻeha i ka pēpē i ka wā hāpai.
• Inā he makuahine hānai ʻoe (Hānai waiū): E kamaʻilio me kāu kauka e pili ana i ka hele ʻana o kēia lāʻau lapaʻau i loko o kou waiū umauma a me nā hopena hiki.

Inā ʻōlelo pololei ʻoe i kēia mau mea, e hiki i ke kauka ke mālama iā ʻoe me ka palekana.

Pehea ʻoe e hoʻohana ai i kēia lāʻau lapaʻau?

ʻAʻole ʻo Ocrelizumab he pila a syrup paha hiki iā ʻoe ke lawe ma ka home. He inikini ia i loko o kahi aa. ʻO ia hoʻi, ua inikini ʻia i loko o ke kino, e like me ka saline.

Hāʻawi ʻia kēia lāʻau lapaʻau ma kahi haukapila a i ʻole ke keʻena lapaʻau , ma lalo o ka nānā ʻana a ke kauka a i ʻole kahi kahu maʻi i aʻo ʻia (hui mālama). Ua māhele ʻia ka mahele mua o ka lāʻau lapaʻau i ʻelua mau mahele, i hāʻawi ʻia i ʻelua pule kaawale. Ma hope o kēlā, lawe pinepine ʻia ka lāʻau lapaʻau i hoʻokahi manawa i kēlā me kēia 6 mahina. Eia nō naʻe, hiki i kāu kauka ke hoʻololi i kēia papa hana ma muli o kou kūlana.

Ma mua o kēlā me kēia lāʻau lapaʻau, e hāʻawi ʻia ʻoe i kahi pepa kuhikuhi kūikawā (MedGuide) e heluhelu ai. Aia i loko ka ʻike e pili ana i kēia lāʻau lapaʻau, nā hopena ʻaoʻao, a me nā mea e makaʻala ai. He mea nui loa e heluhelu pono i kēlā me kēia manawa.

Inā ʻoe e hāʻawi ana i kēia lāʻau lapaʻau i nā keiki, pono e mālama pono ʻia. E kamaʻilio me kāu hui lapaʻau e pili ana i ia mea.

E noʻonoʻo e like me ke kauka loea e hele mai ana a hāʻawi pono i ka lāʻau lapaʻau i ka wahi pilikia i loko o kou kino. ʻO ia ke kumu e hāʻawi ʻia ai ma ka haukapila, ma lalo o ka nānā ʻana a ke kauka.

Overdose: ʻAʻole paha e hiki kēia no ka mea ua hāʻawi ʻia kēia ma lalo o ka nānā ʻana o ke kauka. Eia nō naʻe, inā manaʻo ʻoe ua hana ʻia kēia, e kāhea koke i kahi kikowaena hoʻomalu lāʻau make a i ʻole ke keʻena pilikia.

Nou wale nō kēia lāʻau lapaʻau: He lāʻau lapaʻau kēia i hāʻawi ʻia iā ʻoe no kou kūlana a me kou kino. No laila, mai kaʻana like i kēia lāʻau lapaʻau me nā poʻe ʻē aʻe.

He aha kāu e hana ai inā e hala ʻoe i kahi manawa hoʻopaʻa lāʻau lapaʻau?

ʻOiai he lāʻau lapaʻau kēia i hāʻawi ʻia ma kahi papa manawa, he mea nui loa ia e mālama i kāu mau manawa i hoʻopaʻa ʻia. ʻAʻole ia he manaʻo maikaʻi e poina i kahi mahele lāʻau.

Inā, no kekahi kumu, ʻaʻole hiki iā ʻoe ke hele i kāu lā i hoʻonohonoho ʻia, e ʻoluʻolu e kāhea koke i kāu hui lapaʻau a e hoʻomaopopo iā lākou.A laila e hāʻawi lākou iā ʻoe i kekahi lā ʻē aʻe.

He aha nā mea ʻē aʻe e hiki ke launa pū me kēia lāʻau lapaʻau? (Nā Hana like ʻana)

Hiki iā Ocrelizumab ke launa pū me nā lāʻau lapaʻau ʻē aʻe, nā lāʻau pale, a i ʻole nā ​​​​mea ʻē aʻe āu e lawe nei. ʻO ke ʻano kēia e hoʻopilikia paha i ka hana maikaʻi o ka lāʻau lapaʻau a hoʻonui paha i ka pilikia o nā hopena ʻaoʻao.

No laila, ma mua o kou hoʻomaka ʻana e lawe i kēia lāʻau lapaʻau, pono ʻoe e haʻi i kāu kauka e pili ana i nā mea āpau āu e hoʻohana nei. ʻO ia hoʻi:

• ʻO nā lāʻau lapaʻau ʻē aʻe āu e lawe ai (nā lāʻau lapaʻau no nā maʻi ʻē aʻe, nā mea hoʻomaha ʻeha, nā huaora, nā lāʻau Ayurvedic, nā lāʻau homeopathic, a pēlā aku).
• ʻO nā mea hoʻohui meaʻai āu e lawe ai.
• E hōʻoia e haʻi iā lākou inā ʻoe e puhipaka ana, inu waiʻona, a hoʻohana paha i nā lāʻau ʻē aʻe .

ʻOi aku hoʻi, ʻo nā lāʻau lapaʻau ʻē aʻe e hoʻopilikia i ka ʻōnaehana pale (e like me Alemtuzumab, Fingolimod, Rituximab, steroids), a me kekahi mau lāʻau pale (ʻoi aku hoʻi nā lāʻau pale ola) e launa pū me kēia lāʻau. No laila, ʻoi aku ka maikaʻi o ka hāʻawi ʻana i kāu kauka i kahi papa inoa o nā lāʻau lapaʻau a me nā mea hoʻohui āu e lawe nei. ʻAʻole piha kēia papa inoa, no laila he mea nui e haʻi iā lākou i nā mea āpau.

He aha kā mākou e makaʻala nui ai i ka wā e lawe ai i kēia lāʻau?

E nānā pono ana kāu hui lapaʻau i kou olakino ʻoiai ʻoe e lawe ana iā Ocrelizumab. He mea nui hoʻi iā ʻoe e makaʻala i kēia mau mea:

• Nā hopena aleri koʻikoʻi: Loaʻa paha i kekahi poʻe kahi hopena aleri koʻikoʻi i ka wā a ma hope paha o ka lawe ʻana i kēia lāʻau. No ka hōʻemi ʻana i kēia pilikia, hiki ke hāʻawi ʻia iā ʻoe nā lāʻau ʻē aʻe (e like me nā antihistamines a i ʻole nā ​​steroids) ma mua o ka lawe ʻana i kēia lāʻau. E hahai pono i nā ʻōlelo a kāu kauka.
• Hāpai a me ka pale ʻana i ka hāpai ʻana: Inā ʻoe e hoʻolālā ana e hāpai a manaʻo paha ʻoe e hāpai ana, e haʻi koke i kāu kauka . Hiki i kēia lāʻau lapaʻau ke hana i nā kīnā hānau koʻikoʻi. No laila, he mea nui e hoʻohana i ka pale ʻana i ka hāpai ʻana i ka wā e lawe ana i kēia lāʻau lapaʻau a no 6 mau mahina ma hope o ka hoʻōki ʻana i ka lāʻau lapaʻau.
• Hoʻonui ʻia ka pilikia o ka maʻi: Hiki i kēia lāʻau lapaʻau ke hōʻemi i ka hana o ka ʻōnaehana pale, kahi e hoʻonui ai i kou pilikia o ka loaʻa ʻana o nā maʻi like ʻole. Inā ʻike ʻoe i nā hōʻailona e like me ke kuni, ke anu, ka ʻeha o ka puʻu, ke kuni, a i ʻole ke anu, mai hoʻōla ponoʻī a kāhea koke i kāu kauka no ka ʻōlelo aʻo. E hoʻāʻo e noho mamao aku mai ka poʻe maʻi i ka hiki.
• Ke kūlana o ka maʻi Hepatitis B:Inā ua loaʻa iā ʻoe ka maʻi hepatitis B ma mua a ke noʻonoʻo nei ʻoe e hoʻōki i kēia lāʻau lapaʻau, e kamaʻilio me kāu kauka e pili ana i ia mea, no ka mea, e ʻoi aku ka ʻino o nā hōʻailona o ka maʻi hepatitis B ma hope o ka hoʻōki ʻana i ka lāʻau.
• ʻO ka maʻi lolo koʻikoʻi: I kekahi mau maʻi, ʻoiai he mea kakaikahi loa, hiki i kēia lāʻau lapaʻau ke hana i kahi maʻi lolo koʻikoʻi (Progressive Multifocal Leukoencephalopathy - PML). Hiki i kēia ke make. Inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona, ​​​​e like me nā pilikia ʻike, ka paʻakikī i ka noʻonoʻo ʻana, ka paʻakikī i ka ʻōlelo ʻana, ka paʻakikī i ka hele ʻana a kū paha, a i ʻole ka nalowale o ke kaulike, e haʻi koke i kāu hui mālama ola. Inā ʻaʻole hiki iā ʻoe ke hōʻea iā lākou, e kiʻi koke i ke kōkua lapaʻau ʻē aʻe. He pilikia kēia.
• Ka emi ʻana o ka pane ʻana i nā lāʻau pale: ʻOiai e lawe ana i kēia lāʻau lapaʻau, ʻaʻole paha e pane maikaʻi kou kino i nā lāʻau pale. Inā pono ʻoe e loaʻa i kekahi mau lāʻau pale, e haʻi i kāu kauka e lawe ana ʻoe i kēia lāʻau. Pono paha ʻoe i nā lāʻau hoʻoikaika hou a i ʻole kahi papa hana lāʻau pale ʻokoʻa.
• Ka pilikia o ke kanesa: Manaʻo kekahi mau noiʻi e hiki i ka lawe ʻana i kēia lāʻau lapaʻau ke hoʻonui iki i kou pilikia o ka loaʻa ʻana o kekahi mau ʻano kanesa (e.g., ka maʻi umauma). No laila e kamaʻilio me kāu kauka e pili ana i kou pilikia o ke kanesa. E hōʻoia e loaʻa i nā hoʻokolokolo umauma ponoʻī a me nā mammograms maʻamau.

He aha nā hopena ʻaoʻao e hiki ke loaʻa mai kēia lāʻau lapaʻau? (Nā hopena ʻaoʻao)

E like me nā lāʻau lapaʻau āpau, hiki iā Ocrelizumab ke hana i kekahi mau hopena ʻaoʻao. ʻAʻole loaʻa i nā kānaka a pau, akā he mea maikaʻi ke makaʻala iā lākou.

Nā hopena ʻaoʻao e pono ʻoe e haʻi koke aku i kāu kauka :

Inā ʻike ʻoe i kekahi o kēia mau hōʻailona, ​​mai hoʻokaʻulua a e hoʻomaopopo koke i kāu hui lapaʻau:

• Nā hopena maʻi ʻaleka: ʻulaʻula o ka ʻili, ka maneʻo, ka hives, ka pehu ʻana o ka maka, nā lehelehe, ke alelo, a i ʻole ka puʻu - hiki i kēia ke pilikia i ka hanu ʻana.
• Nā loli o nā ʻiʻo umauma: Nā puʻupuʻu hou i loko o nā umauma, ʻulaʻula, ʻeha, kahe ʻana mai ka nipple. Hiki i kēia ke hoʻopilikia i nā kāne.
• Pōniuniu, nalowale ke kaulike a i ʻole ka hoʻonohonoho ʻana, huikau a pilikia paha i ka ʻōlelo ʻana.
• Nā Hōʻailona o ka Maʻi: kuni, anu, ʻū, ʻeha puʻu, nā ʻeha e ho'ōla ʻole ai, ʻeha a pilikia paha i ka wā e mimi ai, manaʻo ʻoluʻolu ʻole a maʻi paha.
• Nā hopena hoʻokomo:ʻEha ka umauma, ka pōkole o ka hanu a i ʻole ka pilikia o ka hanu ʻana, ka manaʻo palupalu a i ʻole ke poʻo māmā. Hiki ke hana ʻia kēia i loko o a i ʻole i loko o 24 mau hola o ka lawe ʻana i ka lāʻau lapaʻau.
• Nā hōʻailona o ka hōʻeha ʻana o ke akepaʻa: ʻeha ka ʻōpū ʻākau o luna, nalowale ka makemake, ka nausea, ka ʻōpala māmā, ka mimi melemele a ʻeleʻele paha, ka melemele o ka ʻili a i ʻole nā ​​maka, nāwaliwali a luhi paha.
• ʻEha koke a ʻeha nui paha ka ʻōpū, ka maʻi kahe koko, ke kuni, ka nausea, ka luaʻi.

Nā hopena ʻaoʻao ʻaʻole pono ʻoe e haʻi i kāu kauka , akā pono e hōʻike ʻia inā hoʻomau a hoʻopilikia paha lākou:

ʻOiai ʻaʻole koʻikoʻi kēia mau mea, e haʻi i kāu kauka inā hoʻomau a hoʻopilikia paha lākou iā ʻoe:

• ʻEha hope
• Ka maʻi pākī
• Ka pehu ʻana o nā kuʻekuʻe wāwae, nā lima, a i ʻole nā ​​​​wāwae
• Ka hoʻonui ʻana i ka manaʻo, nā manaʻo kaumaha

E hoʻomanaʻo, ʻaʻole i hoʻokomo ʻia nā hopena ʻaoʻao āpau i loko o kēia papa inoa. Inā loaʻa iā ʻoe kekahi mau hōʻailona ʻē aʻe, e kamaʻilio pū me kāu kauka e pili ana iā lākou.

Ma hea e mālama ʻia ai kēia lāʻau lapaʻau? (Ka mālama ʻana)

He nīnau kēia a ka poʻe he nui e nīnau ai. Akā, ʻaʻole ʻo Ocrelizumab he lāʻau lapaʻau hiki iā ʻoe ke lawe i ka home. He lāʻau lapaʻau ia i hāʻawi ʻia iā ʻoe ma kahi haukapila a i ʻole ke keʻena lapaʻau, mālama ʻia ma lalo o ka mana mahana e pono ai, a hāʻawi ʻia iā ʻoe i ka manawa kūpono. No laila, ʻaʻole pono ʻoe e hopohopo e pili ana i ke ʻano o ka mālama ʻana ma ka home.

Kekahi mau mea aʻu e manaʻo nei he mea nui iā ʻoe (Leka Lawe-Home)

ʻAe, ua kamaʻilio nui kākou e pili ana iā Ocrelizumab, ʻeā? I ka hopena, eia kaʻu e haʻi aku ai iā ʻoe:

• He lāʻau lapaʻau kūikawā a ikaika hoʻi ʻo Ocrelizumab no ka sclerosis maha (MS).
• Ma mua o ka hoʻomaka ʻana i kēia lāʻau lapaʻau, he mea nui e haʻi aku i kāu kauka i nā kikoʻī āpau e pili ana i kou kūlana olakino a me nā lāʻau lapaʻau āpau āu e lawe nei. Mai hūnā i kekahi mea.
• E mālama i kāu mau manawa i ka manawa i ka wā e lawe ana i ka lāʻau lapaʻau.
• Inā ʻike ʻoe i kekahi mau hōʻailona ʻē, ʻoiai nā hōʻailona o ka maʻi, nā hōʻailona allergy, a i ʻole nā ​​​​hōʻailona e pili ana i nā maʻi lolo, e hoʻomaopopo koke i kāu kauka .
• Inā ʻoe e noʻonoʻo ana e hāpai, hāpai, a hānai waiū paha, e kamaʻilio me kāu kauka e pili ana i kēia lāʻau lapaʻau. E hoʻohana i ka kaohi hānau kūpono i ka wā e lawe ana i ka lāʻau lapaʻau a no 6 mau mahina ma hope o ka hoʻōki ʻana.
• He mau nīnau kāu e pili ana i kēia lāʻau lapaʻau?Inā he nīnau a kānalua paha kāu, mai hilahila e nīnau i kāu kauka, kahu maʻi, a kauka lāʻau paha.

Hiki ke paʻakikī ke noho me ka sclerosis maha (MS). Akā, me nā lāʻau lapaʻau hou e like me Ocrelizumab, hiki iā ʻoe ke kōkua i ka kaohi ʻana i ka maʻi a ola i kahi ola maikaʻi aʻe. ʻAʻole ʻoe hoʻokahi, a he hui lapaʻau kāu e kōkua iā ʻoe. No laila, e hoʻoikaika!

ʻocrelizumab , sclerosis lehulehu, MS, ocrevus, monoclonal antibody, ʻōnaehana pale, nā hopena ʻaoʻao, injection, nā maʻi neurological, ʻōnaehana pale, mālama ʻana i ka sclerosis lehulehu