Ua nāwaliwali a ʻeha kou mau iwi? E aʻo kākou e pili ana i kēia (Osteitis Fibrosa Cystica - OFC)!

Ke manaʻo nei ʻoe i kekahi manawa i nā ʻeha a me nā ʻehaʻeha i loko o kou kino, ʻoi aku hoʻi i loko o kou mau iwi? A i ʻole ke manaʻo nei ʻoe e haki ana kou mau iwi me kahi mea liʻiliʻi loa? Malia paha aia kekahi kūlana ma hope o kēia mau mea a mākou e kamaʻilio nui ʻole ai, akā he mea nui e ʻike. ʻO kekahi o ia ʻano kūlana ʻo `(Osteitis Fibrosa Cystica - OFC)`. ʻOiai paha he mea paʻakikī iki kēia inoa, e wehewehe maʻalahi kākou.

He aha ka Osteitis Fibrosa Cystica (OFC)?

I ka ʻōlelo maʻalahi, ʻo `(Osteitis Fibrosa Cystica - OFC)` he maʻi laha ʻole e hoʻopilikia ana i ko kākou mau iwi. Pili pono ia i nā kelepa parathyroid i loko o ko kākou kino. Ua lohe ʻoe i ka kelepa thyroid. Ma hope ona ʻo kēia mau kelepa parathyroid ʻehā. Hoʻopuka kēia mau kelepa i ka hormone parathyroid (`Parathyroid Hormone - PTH`) .

He mea nui kēia hormone `(PTH)` no ka mālama ʻana i ko kākou mau iwi i ikaika a olakino. Kōkua nō hoʻi ia i ka hoʻomalu ʻana i ka pae o ka calcium i loko o ke koko. Akā, e noʻonoʻo, he aha ka mea e hana ʻia inā nui loa ka hana ʻana o kēia hormone `(PTH)`, ʻo ia hoʻi, nui loa? ʻO ia ka manawa e hoʻomaka ai ka pilikia. Ma muli o kēlā keu `(PTH)`, ma kahi o ka hoʻoikaika ʻana i nā iwi, hoʻomaka mālie lākou e nāwaliwali . I ka hala ʻana o ka manawa, hiki ke loli ke ʻano o nā iwi, a hiki ke hana ʻia nā mea e like me nā lua (e like me nā cysts i piha i ka wai) i loko.

Hiki i kēia PTH keu ke hoʻonui i ka nui o ka calcium i loko o ke koko, e alakaʻi ana i ke kūkulu ʻia ʻana o nā pōhaku puʻupaʻa, ke koko kiʻekiʻe (hypertension), a me ka hāʻule ʻana o ka puʻuwai.

Ua kapa ʻia ke kūlana ʻo `(OFC)` e kekahi mau inoa ʻē aʻe. Ua lohe paha ʻoe i kēia mau inoa:

• ``Mai iwi o Von Recklinghausen''
• ʻO ka maʻi ʻōpū fibrosa
• ʻO Cystica laulā
• ʻO ka Osteodystrophia fibrosa
• ʻO ka puʻupuʻu ʻeleʻele o ka iwi . Mai hopohopo i kēia inoa. ʻOiai ke ʻōlelo nei ʻo `(Tumor)`, ʻaʻole ia he ``Cancerous``. Hoʻohana ʻia kēia inoa no ka mea he mau kiko ʻeleʻele ko ka poʻe me `(OFC)` e ʻike ʻia ma muli o ke kahe ʻana o ke koko a me nā ʻiʻo fibrous i loko o ko lākou mau iwi. Akā, ʻaʻole ia he `(Tumor)` maʻi kanesa.

ʻO ke ʻano o nā huaʻōlelo "(Osteitis Fibrosa Cystica)" he mea like ia me ka 'hoʻoheheʻe ʻana o ka iwi a me ka hoʻokumu ʻana o ka cyst'. No laila, i ka piʻi ʻana o ka pae `(PTH)`, hiki ke hōʻino ʻia nā iwi i kēlā me kēia manawa. Eia nō naʻe, inā ʻike ʻia a mālama ʻia kēia ʻano i kapa ʻia ʻo `(Hyperparathyroidism)` (ʻo ia hoʻi ka hana nui ʻana o `(PTH)`) i ka wā mua, hiki ke ho'ōla ʻia a pale ʻia paha ke ʻano `(OFC)` mai ka ulu ʻana.

Pehea ka maʻamau o kēia kūlana (OFC)?

I kēia manawa, ke noʻonoʻo nei paha ʻoe i ka maʻamau o kēia maʻi. ʻO ka ʻoiaʻiʻo, he mea kakaikahi loa ia ma nā ʻāina me ka mālama ola kino maikaʻi . No ka laʻana, ʻoiai ma ʻAmelika Hui Pū ʻIa, ʻaʻole i hiki i ka 5% o ka poʻe me ka hyperparathyroidism ke loaʻa i ka OFC. ʻIke pinepine ʻia ia i ka poʻe me ka hyperparathyroidism koʻikoʻi i mālama ʻole ʻia no ka manawa lōʻihi.

Akā i ka wā ma mua, ʻoi aku ka maʻamau o kēia. Ma kahi o kanalima mau makahiki i hala aku nei, ma kahi o 69% o ka poʻe me ka "Hyperparathyroidism" i loaʻa i kēia maʻi iwi. Akā me ka holomua o ka ʻepekema lapaʻau, ʻoiai me ka hiki ʻana mai o nā "Hoʻāʻo Koko Maʻamau", ua hiki ke ʻike ʻia a mālama ʻia kēia mau kūlana me ka wikiwiki. ʻAʻole anei he mea maikaʻi loa ia?

He aha nā hōʻailona o kēia maʻi (OFC)?

ʻAe, e nānā kākou i nā hōʻailona e hiki ke kū mai i ke ʻano `(Osteitis Fibrosa Cystica)`.

ʻO nā hōʻailona nui:

• ʻEha iwi . ʻO kēia ka mea mua a ka hapa nui o ka poʻe e ʻike ai. I kekahi manawa, hiki ke ʻeha ke hoʻopā i ka iwi.
• Nā haki . Hiki i nā iwi, ʻoiai nā mea ma nā lima, nā wāwae, a i ʻole ka iwi kuamoʻo, ke haki maʻalahi. ʻOiai ka hāʻule iki ʻana hiki ke haki i ka iwi.

I ka hoʻomaka ʻana o kēia kūlana, hiki ke ʻike ʻia nā hōʻailona aʻe (hiki ke lilo kēia i mau hōʻailona o ka "Hyperparathyroidism"):

• Luhi mau ka manaʻo ('Fatigue').
• Ka nāwaliwali.
• Ka luaʻi a me ka luaʻi.
• Ka paʻa ʻana o ka ʻōpū.
• Ke kahe ʻana o ka mimi ma mua o ka maʻamau ('Polyuria'). ʻO ke ʻano kēia o ka hele pinepine ʻana i ka lua.

Inā loaʻa iā ʻoe kēia mau hōʻailona, ​​mai hoʻoholo iā ʻoe iho, "ʻĀ, ʻo kēia ʻo `(OFC)'." No ka mea, hiki ke loaʻa kēia mau hōʻailona i nā maʻi ʻē aʻe. Akā, he mea nui loa ia e makaʻala i kēia mau mea a haʻi aku i ke kauka.

He aha nā kumu o (OFC)?

He aha ke kumu o ka Osteitis Fibrosa Cystica? E like me kaʻu i ʻōlelo ai ma mua, ʻo ke kumu nui o kēia, ʻo ia ka Hyperparathyroidism i mālama ʻole ʻia . ʻO ia hoʻi, hana nui kā mākou mau kelepa Parathyroid i ka PTH. Hiki ke hana ʻia kēia ma nā ʻano ʻelua:

1. Hyperparathyroidism Mua: Hoʻokumu ʻia kēia e kahi pilikia me kāu mau kelepa parathyroid. Hiki i kēia mau kelepa ke maʻi kanesa (cancerous) a i ʻole he ulu ʻole cancerous (e like me ka adenoma) e hoʻoulu ai iā lākou e hana i ka nui o ka PTH. A i ʻole e hoʻonui ʻia nā kelepa ʻehā (hyperplasia) a hana i ka nui o ka hormone.

2. Hyperparathyroidism Lua: Hana ʻia kēia ma muli o kekahi kūlana olakino ʻē aʻe. No ka laʻana, inā loaʻa i ke kanaka ka maʻi puʻupaʻa mau, ua hoʻopilikia ʻia ke kaulike o ka calcium a me ka huaora D i loko o ko lākou kino. A laila, ma ka pane ʻana, hoʻomaka nā kelepa parathyroid e hana i ka PTH hou aʻe. Eia kekahi, i ka wā e nele nui ai ka huaora D, emi iho ka pae calcium i ke koko, no laila e hana ikaika nā kelepa parathyroid e hoʻonui i ka pae calcium. I kēlā manawa, piʻi ka hormone PTH, a i ka hala ʻana o ka manawa, hiki ke ulu ka Osteitis Fibrosa Cystica.

E noʻonoʻo, ua loaʻa i ko mākou ʻanakē ʻo Kamala nā pilikia puʻupaʻa no ka manawa lōʻihi. ʻAʻole ʻo ia i lawe i ka lāʻau lapaʻau kūpono no ia mea. Ma hope o kekahi manawa, ua hoʻomaka kāna mau kelepa `(Parathyroid)`, e hakakā ana e kaohi i ka calcium i loko o kona kino, e hana i nā `(PTH)` ma mua o ka mea e pono ai. I ka hopena, ua loaʻa iā ʻanakē ʻo Kamala `(OFC)` me ka ʻeha o ka iwi. Maopopo iā ʻoe ka pilina?

He aha nā pilikia e hiki mai ana o (OFC)?

ʻO nā pilikia nui o ka hyperparathyroidism i mālama ʻole ʻia a me OFC e pili ana i ka iwi. ʻO ia hoʻi ka ʻeha, nā deformities o ka iwi (nā loli i ke ʻano), a me nā haki maʻalahi . ʻO kēia nā mea e ʻike koke ʻia. Hiki i ke kanaka ke emi ke kiʻekiʻe.

Eia nō naʻe, ma waho aʻe o kēia, hiki ke loaʻa nā pilikia ʻē aʻe. ʻO lākou kēia:

• Ka hoʻokumu ʻia ʻana o nā pōhaku puʻupaʻa.
• Ka hāʻule ʻana o nā puʻupaʻa.
• Ikaika haʻahaʻa, luhi mau.
• ʻEha ʻōpū.
• Nā pilikia noʻonoʻo e like me ke kaumaha.
• Nā pilikia hoʻomanaʻo a me ka nānā ʻana.

E nānā i ka mamao o kahi pilikia e hoʻomaka ana ma kahi hoʻokahi. Hiki i kahi pilikia ma kekahi ʻōnaehana o ko mākou kino ke hoʻopilikia i nā ʻōnaehana ʻē aʻe. ʻO ia ke kumu he mea nui ka ʻike mua a me ka mālama ʻana.

Pehea e ʻike ʻia ai ka OFC?

ʻAe, pehea lā e ʻike ai ke kauka i kēia maʻi `(Osteitis Fibrosa Cystica)`?

ʻO ka mea mua, e lawe kāu kauka i kahi mōʻaukala piha o kou olakino . E nīnau ʻo ia iā ʻoe i ka lōʻihi o kou loaʻa ʻana o kēia mau hōʻailona, ​​​​inā he mau maʻi ʻē aʻe kou (e like me ka maʻi puʻupaʻa) e hiki ke hoʻopilikia i kāu mau pae PTH, a me nā lāʻau lapaʻau āu e lawe nei. A laila, e hana lākou i kahi hoʻokolokolo kino e nānā i ka ʻeha o ka iwi, ka palupalu, a i ʻole nā ​​​​​​deformities.

No ka hōʻoia ʻana i ka maʻi, hiki i nā kauka ke hoʻohana i nā hoʻokolohua e like me:

• Nā hoʻāʻo koko: Nānā kēia mau mea no nā kūlike ʻole o ka hormone a me nā mineral. ʻO ke kikoʻī, nānā lākou i nā pae hormone parathyroid (PTH), nā pae calcium, nā pae phosphorus, nā pae vitamin D, a me ka alkaline phosphatase (kahi enzyme i hoʻokuʻu ʻia mai nā iwi). I OFC, hiki ke kiʻekiʻe loa nā pae PTH a me alkaline phosphatase.
• Nā hoʻāʻo mimi: Hiki iā ʻoe ke nānā i ka nui o ka calcium i loko o kāu mimi.
• Nā hoʻāʻo kiʻi:
• Nā kukuna X: Hiki i kēia ke hōʻike i ka lahilahi o nā iwi, nā mea e like me nā cysts, a inā he mau haki liʻiliʻi loa (microfractures) a i ʻole nā ​​​​loli hiʻohiʻona i nā iwi (e like me ka subperiosteal resorption).
• Nā CT Scans (`CT - Computed Tomography scans`) a i ʻole MRI Scans (`MRI - Magnetic Resonance Imaging scans`): Hōʻike kēia i ke kūlana o nā iwi me nā kikoʻī ma mua o nā kukuna X.

He aha nā lāʻau lapaʻau no (OFC)?

ʻAe, i kēia manawa e kamaʻilio kākou e pili ana i ka lāʻau no ka `(Osteitis Fibrosa Cystica)`. Aia ka lāʻau i ke ʻano a me ke koʻikoʻi o ka `(Hyperparathyroidism)` i hoʻokumu i ka `(OFC)`.

• Inā ʻo ka hyperparathyroidism mua ke kumu o kēia mau mea:
• I ka hapanui o nā hihia, inā ʻo ke kumu o kēia kūlana `(OFC)` he hana maʻamau ʻole o ka ʻōpū `(Parathyroid)` (e like me ka puʻupuʻu), ʻo ka lāʻau maʻamau ka wehe ʻana i ke ʻōpū a i ʻole kekahi hapa o ke ʻōpū (`Parathyroidectomy`) . Hiki i kēia ʻoki kino ke hoʻōki i ka lahilahi o nā iwi a hoʻihoʻi i kekahi o nā pōʻino iwi i hana mua ʻia (`remineralization`). ʻO ka maʻamau, loaʻa iā mākou ʻehā mau ʻōpū `(Parathyroid)`. No laila, ke wehe ʻia ka ʻōpū pilikia, hiki i nā ʻōpū i koe ke hana i ka hormone `(PTH)` e pono ai ke kino.

• No ka poʻe hiki ʻole ke hana ʻoki kino a i ʻole ka poʻe i loaʻa ka hyperparathyroidism lua:
• Ke mālama ʻana i ke kumu kumu: No ka laʻana, inā ʻo ke kumu ka nele o ka wikamina D, hāʻawi ʻia nā mea hoʻohui wikamina D. Inā he maʻi puʻupaʻa, mālama kūpono ʻia.
• Calcimimetics: Hoʻohālike kēia mau lāʻau i ka calcium i loko o kou koko. "Hoʻopunipuni" lākou i kāu kelepa parathyroid i ka hana ʻana i ka PTH liʻiliʻi. ʻO Cinacalcet kekahi o ia mau lāʻau.
• Nā Bisphosphonates: Hana kēia mau lāʻau lapaʻau ma ka hoʻolohi ʻana i ka wikiwiki o ka nalowale o ka iwi. Kuhi pinepine ʻia lākou no ka poʻe me ka osteoporosis. Eia nō naʻe, hiki iā lākou ke kōkua i ka wā pōkole no ka poʻe me OFC, ʻoi aku hoʻi e hoʻoikaika i nā iwi ma mua o ke ʻoki ʻana.
• Nā mea hoʻohui Vitamin D a me ka calcium: Hāʻawi ʻia kēia mau mea e like me ka mea e pono ai. Eia nō naʻe, inā kiʻekiʻe ka pae calcium i ke koko, ʻaʻole hāʻawi ʻia nā mea hoʻohui calcium.

He aha ka nānā ʻana no ke kūlana (OFC)?

He aha ka manaʻolana no kēia kūlana `(OFC)`? ʻOiaʻiʻo, me ka mālama pono ʻana a me ka mālama ʻana, hiki ke hoʻokō ʻia nā hopena maikaʻi . Hiki i ka mālama ʻana ke hoʻōki i ka lahilahi o nā iwi a hoʻoikaika i nā iwi (`remineralize`). Hiki i nā iwi haʻihaʻi ke ho'ōla a hōʻemi i ka ʻeha. Eia nō naʻe, inā ua hewa nui nā iwi, ʻaʻole paha lākou e hoʻōla piha.

Hiki ke pale ʻia (OFC)?

Hiki ke pale aku i ka hanana ʻana o kēia maʻi `(Osteitis Fibrosa Cystica)`? ʻAe, i kekahi ʻano hiki nō. ʻO ka mea nui, ʻo ia ka ʻike a me ka mālama ʻana i ke ʻano `(Hyperparathyroidism)` i ka wā mua.

• He mea nui loa ka loaʻa ʻana o nā hoʻokolohua koko maʻamau , ʻoiai inā he mau mea pilikia kou e like me ka maʻi puʻupaʻa. E kōkua kēia i ka ʻike ʻana i nā loli i kou mau pae calcium a me PTH koko ma mua o ko lākou hōʻino nui ʻana.
• Eia kekahi, e kamaʻilio me kāu kauka a mālama i nā pae calcium a me ka wikamina D maikaʻi.E hana i kāu mea e pono ai ke hana. No ka laʻana, inā ʻoe e noho ana ma kahi ʻāina kahi i emi iki ai ka lā i ka hoʻoilo, pono paha ʻoe e lawe i nā mea hoʻohui huaora D. E haʻi pū kāu kauka iā ʻoe pehea e loaʻa ai nā meaola e pono ai ʻoe mai nā meaʻai āu e ʻai ai.

E hoʻomanaʻo, ʻo ka wikiwiki o ka ʻike ʻia ʻana a me ka mālama ʻia ʻana o ke ʻano `(Hyperparathyroidism)`, ʻo ka liʻiliʻi o ka hiki ke hoʻomohala ʻia ʻo `(Osteitis Fibrosa Cystica)`.

Āhea wau e ʻike ai i ke kauka?

Inā loaʻa iā ʻoe ka ʻeha o ka iwi, ka palupalu, a i ʻole ka iwi e like me ka haki ʻana , e ʻike koke i ke kauka. Eia kekahi, inā loaʻa iā ʻoe kekahi o nā hōʻailona mua o ka hyperparathyroidism (e like me ka luhi, ka nausea, a me ka mimi pinepine) aʻu i ʻōlelo ai ma mua, e haʻi i kāu kauka e pili ana iā lākou. Inā loaʻa iā ʻoe ka hyperparathyroidism, he manaʻo maikaʻi e hoʻāʻo pinepine ʻia kou koko e nānā i kāu mau pae calcium a me PTH, e like me ka ʻōlelo a kāu kauka.

He aha nā nīnau e pono iaʻu e nīnau aku i kaʻu kauka?

Inā ua ʻike ʻia ʻoe me ka `(Osteitis Fibrosa Cystica)`, he mea kōkua paha ke nīnau aku i kāu kauka i kēia mau nīnau:

• Pehea ka ʻino o koʻu kūlana?
• He aha nā koho lapaʻau aʻu e loaʻa ai? He aha nā pōmaikaʻi a me nā pōʻino o kēlā me kēia?
• He mea maikaʻi anei iaʻu ke lawe i nā mea hoʻohui? He aha ke ʻano?
• E pono anei iaʻu ke ʻoki kino? Inā pēlā, he aha kaʻu e manaʻo ai ma hope?
• He aha nā hoʻololi i ka meaʻai e hiki iaʻu ke hana e kōkua iaʻu?
• Pehea e pili ai kēia kūlana i koʻu ola o kēlā me kēia lā?

ʻO ka mea hope loa, kekahi mau mea nui

No laila, pono wau e haʻi aku iā ʻoe i kēia. Hiki i nā iwi nāwaliwali a me ka ʻeha ke loaʻa ka hopena nui i ko kākou ola o kēlā me kēia lā. Inā haki maʻalahi kou mau iwi, hiki paha iā ʻoe ke manaʻo e haʻalele i kekahi mau hana. Inā loaʻa iā ʻoe nā hōʻailona e like me ka luhi, ka nāwaliwali, ka nausea, a me ka mimi pinepine, hiki ke "Hyperparathyroidism" a i ʻole kona pilikia "OFC".

Inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona, ​​e ʻoluʻolu e ʻike koke i ke kauka. ʻO ka wikiwiki o kou ʻike ʻana a me ka mālama ʻana i ka maʻi, ʻo ka emi ʻana o ka pōʻino hiki iā ʻoe ke hana i kou mau iwi. He mea nui loa kou olakino iā ʻoe. No laila e mālama pono iā ia.

ʻOsteitis Fibrosa Cystica, OFC, Maʻi Iwi, Parathyroid, PTH Hormone, Hyperparathyroidism, ʻEha Iwi