Ke hoʻopiʻi pinepine nei kāu keiki i ka ʻeha ma ka wāwae, ka lima, a i ʻole kekahi iwi ʻē aʻe? Ua ʻike paha ʻoe i kahi mea e like me ka pehu liʻiliʻi ma ia wahi. Manaʻo pinepine mākou he ʻeha ia i loaʻa i nā keiki i ka wā e pāʻani ana, hāʻule ana, a paʻi paha i kahi mea. ʻO ka hapa nui o ka manawa, ʻo ia paha ke ʻano. Eia naʻe, i kekahi manawa he hōʻailona e like me kēia hiki ke lilo i mea ʻoi aku ka koʻikoʻi ma mua o kā mākou e manaʻo ai. I kēia lā, ke kamaʻilio nei mākou e pili ana i kekahi ʻano maʻi e pono ai ka nānā ʻana, ʻo ia hoʻi, kahi ʻano maʻi ʻaʻai iwi i kapa ʻia ʻo Osteosarcoma. Mai makaʻu ke lohe ʻoe i kēia inoa. ʻO ka mea nui loa, ʻo ia ka makaʻala iā ia.
I ka ʻōlelo maʻalahi, he aha ka Osteosarcoma?
He ʻano maʻi ʻaʻai ka Osteosarcoma e ulu ana i loko o nā iwi o ko kākou kino, a i ʻole, i loko o ko kākou mau iwi. Hoʻomaka ia ma ke ʻano he mau hunaola iwi maʻamau. Akā i ka hala ʻana o ka manawa, lilo kēia mau hunaola i mau hunaola maʻi ʻaʻai a hana i nā ʻōpū. ʻAʻole hana kēia mau ʻōpū i nā iwi olakino, akā, he mau iwi nāwaliwali a maʻi.
I kekahi manawa, kapa nā kauka i kēia ʻo `(Osteogenic Sarcoma)`. Maanei, ʻo `Sarcoma` kahi huaʻōlelo laulā no nā maʻi ʻaʻai e ulu ana i loko o nā ʻiʻo pili e like me ka iwi, ke cartilage, a me nā ʻiʻo. ʻO ka huaʻōlelo `Osteo` ʻo ia hoʻi ka iwi. No laila, mai ka inoa ponoʻī, maopopo iā mākou he maʻi ʻaʻai kēia e pili ana i nā iwi.
ʻO kēia ʻano maʻi kanesa ka mea maʻamau i nā keiki a me nā ʻōpio . E kūkākūkā mākou i ke kumu no kēia ma hope.
ʻO wai nā iwi i kūpono loa e loaʻa ai kēia maʻi kanesa?
ʻO ka hapa nui o ka maʻi ʻaʻai Osteosarcoma e ulu pinepine i loko o nā iwi lōʻihi o ko kākou kino. ʻO ia hoʻi, i loko o nā iwi lōʻihi o nā lima a me nā wāwae. He mea maʻamau ia ma nā wēlau o kēia mau iwi kokoke i nā hono. Hiki ke loaʻa kēia mau mea ma kahi kokoke i nā wahi e like me ke kuli, ka ʻūhā, a me ka poʻohiwi.
ʻO nā iwi i hoʻopilikia nui ʻia:
- ʻO ka wāwae luna (femur)
- Iwi ʻūhā (ka ʻāpana o ka wāwae ma lalo o ke kuli) `(Tibia)`
- ʻO ka iwi lima luna `(Humerus)`
Nā wahi i emi iki ka pilikia:
- Makau
- Pelvis (iwi ʻūhā)
- Iwi poʻo
- I kekahi manawa, he mea kākaʻikahi loa, hiki iā lākou ke ulu i loko o nā ʻiʻo palupalu o ka ʻōpū a i ʻole ka umauma.
He aha nā hōʻailona o ka osteosarcoma?
Hiki ke ʻokoʻa nā hōʻailona o kēia maʻi mai kēlā kanaka a kēia kanaka, akā aia kekahi mau hōʻailona maʻamau. Inā loaʻa iā ʻoe a i ʻole kāu keiki kekahi a ʻoi aku paha o kēia mau mea, ʻoi aku ka maikaʻi o ke kamaʻilio ʻana me ke kauka e pili ana i ia mea.
| Hōʻailona | He mea hou aʻe e pili ana i kēia |
|---|---|
| ʻEha i loko o ka iwi a i ʻole ke ami | ʻO kēia ka hōʻailona maʻamau. I ka wā mua, hiki ke hele mai ka ʻeha a hele aku, akā i ka hala ʻana o ka manawa, lilo ia i mea mau. Hiki ke ʻoi aku ka ʻino o ka ʻeha i ka pō a i ʻole ma hope o ka hoʻoikaika kino. |
| He pehu a he puʻupuʻu paha | I kekahi mau pule ma hope o ka hoʻomaka ʻana o ka ʻeha, e pehu a puʻupuʻu paha ka wahi. I kekahi manawa, e mehana paha ka wahi ke pā aku. |
| Ka paʻakikī e hoʻoneʻe i kahi hui | Inā kokoke ke kanesa i kahi hono, he mea paʻakikī paha ke kulou a hoʻopololei paha i kēlā hono. Eia kekahi laʻana, inā kokoke i ke kuli, hiki iā ʻoe ke ʻeha i ke kulou ʻana i kou wāwae. |
| Nā haki iwi me ke kumu ʻole | Hoʻonāwaliwali ke kanesa i ka iwi. No laila, ʻoiai he hāʻule liʻiliʻi a i ʻole kahi ulia pōpilikia i ʻole e haki ai ka iwi maʻamau hiki ke haki iā ia. Ua kapa nā kauka i kēia he haki pathologic . |
| Nā hiʻohiʻona ʻē aʻe | He mea kākaʻikahi ka wela i wehewehe ʻole ʻia a me ka loli ʻana o ka ʻili (ʻoi aku hoʻi ma kahi o ka pehu ʻana). |
No ke aha e ulu ai kēia ʻano maʻi kanesa? He aha nā kumu pilikia?
ʻAʻole i ʻike ʻia ke kumu kikoʻī o kēia maʻi kanesa. Eia nō naʻe, manaʻoʻiʻo nā kauka e hiki i kekahi mau mea ke hoʻonui i ka pilikia o ka loaʻa ʻana.
- Ka ulu wikiwiki ʻana o ka iwi:He kumu nui kēia i ʻike ʻia. I ka wā o ka ulu wikiwiki ʻana (growth spurts) i nā keiki a me nā ʻōpio, ulu koke ko lākou mau iwi. Ke hana ʻia kēia mahele wikiwiki o nā cell, aia kahi pilikia e hewa paha kekahi mea a hiki ke hoʻokumu ʻia nā cell cancerous. ʻO ia ke kumu i ʻike pinepine ʻia ai ka osteosarcoma i nā ʻōpio.
- Ka ʻike ʻia ʻana i ka radiation: Inā ua loaʻa iā ʻoe ka radiation therapy ma ke ʻano he lāʻau lapaʻau no kekahi ʻano maʻi kanesa, aia kahi pilikia liʻiliʻi o ka hoʻomohala ʻana i ka osteosarcoma i nā iwi i hōʻike ʻia i kēlā radiation i ka wā e hiki mai ana.
- Nā kumu hoʻoilina: Hiki ke pili kekahi mau hoʻololi hoʻoilina. No ka laʻana, ʻo ka poʻe me kekahi mau hoʻololi i loko o ka gene p53 (kahi gene e kāohi ana i ka maʻi kanesa) a i ʻole ka gene Rb (Retinoblastoma) (e pili ana i ka maʻi kanesa maka i nā keiki ʻōpio) ua piʻi aʻe ka pilikia.
- ʻO kekahi mau maʻi olakino kakaʻikahi: ʻO ka poʻe me nā maʻi olakino kakaʻikahi e like me ka 'Li-Fraumeni syndrome' a me ka 'maʻi o ka iwi ʻo Paget' aia i ka nui o ka pilikia o ka hoʻomohala ʻana i ka Osteosarcoma ma mua o ka heluna kanaka maʻamau.
ʻO ka mea nui, ʻoiai kekahi me ka ʻole o kekahi o kēia mau kumu pilikia hiki ke loaʻa i ka osteosarcoma. Eia kekahi, ʻaʻole nā kānaka āpau me kēia mau kumu pilikia e loaʻa iā ia.
Pehea e ʻike ai ke kauka i kēia?
Ke hele ʻoe e ʻike i ke kauka me nā hōʻailona i ʻōlelo ʻia ma luna, e hahai ʻo ia i kekahi mau ʻanuʻu.
1. Ke nīnau ʻana e pili ana i nā hōʻailona: ʻO ka mea mua, e nīnau ke kauka iā ʻoe a me kāu keiki e pili ana i ka wā i hoʻomaka ai ka ʻeha, pehea i hoʻomaka ai, a inā he pehu. Hiki iā lākou ke nīnau inā he moʻolelo maʻi kanesa kekahi o kou ʻohana.
2. Hoʻokolokolo kino: A laila, nānā pono ʻia ka wahi ʻeha. Nānā lākou no ka pehu ʻana, ka palupalu, ka mehana ma ia wahi, a me ka neʻe ʻana o nā hono.
3. Hoʻokolokolo X-ray: Inā he kānalua iki paha no ka osteosarcoma, ʻo ka mea mua e hana ai, ʻo ia ke lawe i kahi X-ray o ka iwi i hoʻopilikia ʻia. Hiki i kēia ke hoʻoholo nui inā he ʻano ʻē ko ka iwi.
4. Nā scan ʻē aʻe: Inā he mea kānalua ma ka X-ray, hiki ke kauoha ʻia kahi scan CT a i ʻole MRI scan e noiʻi hou aku. Hiki i kahi scan MRI ke hāʻawi i kahi kiʻi maopopo loa o ka nui o ka puʻupuʻu a pehea i laha ai i loko o ka iwi a me nā ʻiʻo palupalu a puni.
5. Biopsy: ʻO ka hoʻāʻo koʻikoʻi loa e hōʻoia i ka 100% inā he maʻi kanesa a ʻaʻole paha, ʻo ia ka biopsy. Maanei, lawe ke kauka lapaʻau i kahi ʻāpana liʻiliʻi loa o ka ʻiʻo mai ka puʻupuʻu a nānā iā ia ma lalo o kahi microscope e hōʻoia inā he mau hunaola kanesa.
Ke hōʻoia ʻia ke kanesa, ʻo ka hana aʻe e ʻike ai inā ua laha (metastasized) i nā ʻāpana ʻē aʻe o ke kino, ʻoi aku hoʻi nā māmā. Hiki i kēia ke pili i kahi scan CT umauma a me kahi scan iwi piha o ke kino. Ua kapa ʻia kēia ʻo 'staging'.
He aha nā lāʻau lapaʻau no kēia?
Ua holomua maikaʻi nā koho lapaʻau no ka osteosarcoma. Hāʻawi pinepine ʻia ka lāʻau lapaʻau e kahi hui o nā oncologists, nā kauka ʻokiʻoki, a me nā loea olakino ʻē aʻe. ʻO nā lāʻau lapaʻau nui:
1. Kemoterapi
ʻO kēia ka hāʻawi ʻana i ke kino i nā lāʻau ikaika e hiki ke pepehi i nā hunaola kanesa. Hāʻawi pinepine ʻia ka chemotherapy ma mua a ma hope o ke ʻoki ʻana.
- Ma mua o ke ʻoki kino: ʻO ka pahuhopu ka hoʻēmi ʻana i ka puʻupuʻu a luku i nā hunaola kanesa e peʻe ana paha i loko o ke kino.
- Ma hope o ke ʻoki kino: ʻO ka pahuhopu ka hoʻopau loa ʻana i nā hunaola kanesa e koe ana ma hope o ke ʻoki kino a pale i ke kanesa mai ka hoʻi hou ʻana mai.
2. ʻOki kino
Ma hope o ka hoʻēmi ʻana o ka chemotherapy i ka puʻupuʻu, hana ʻia ke ʻoki kino e wehe loa i ka puʻupuʻu kanesa a me kahi liʻiliʻi o nā ʻiʻo olakino a puni ia. Nui nā ʻano ʻoki kino.
- ʻO ke ʻoki hoʻopakele lālā: ʻO kēia ke ʻoki maʻamau i hana ʻia i kēia lā. Ma kēia ʻoki, ʻo ka ʻāpana wale nō o ka iwi me ke kanesa e wehe ʻia a hoʻololi ʻia me kahi prosthesis metala a i ʻole kahi graft iwi. Hiki i kēia ke mālama i ka hana o ka lima a i ʻole ka wāwae i kahi nui.
- ʻOki ʻia: Inā ua pālahalaha ke kanesa i nā ʻāpana koʻikoʻi e like me nā aʻalolo a i ʻole nā kīʻaha koko, a inā loaʻa nā pilikia e like me ka maʻi, pono i kekahi manawa e wehe i ka lima a i ʻole ka wāwae i hoʻopilikia ʻia. A laila hiki ke hoʻohana ʻia kahi lālā prosthetic.
3. Hoʻōla Lapaʻau
ʻAʻole hoʻohana pinepine ʻia ka radiation therapy no ka osteosarcoma no ka mea ʻaʻole i maʻalahi loa kēia mau hunaola kanesa i ka radiation. Eia nō naʻe, hiki ke hoʻohana ʻia kēia lāʻau lapaʻau inā aia ke kanesa ma nā wahi i hiki ʻole ke wehe loa ʻia e ke ʻoki kino (e laʻa, ke poʻo, ka iwi kuamoʻo), a inā paha he kānalua e noho ana nā hunaola kanesa ma hope o ke ʻoki kino.
He aha nā kūlana e ola ai mai ka lāʻau lapaʻau?
He nīnau kēia a ka poʻe he nui. Hiki ke hopohopo ke lohe, akā he mea nui e ʻike i ka ʻoiaʻiʻo. Aia ka manawa e ola ai ma muli o ka laha ʻana o ke kanesa i nā ʻāpana ʻē aʻe o ke kino ke ʻike ʻia.
Inā ʻaʻole i laha ka maʻi ʻaʻai i nā wahi ʻē aʻe (localized), ʻo ka nui o ka ho'ōla ʻia me ka lāʻau lapaʻau ma kahi o 70%. ʻO ia hoʻi, ʻehiku mai loko mai o ka ʻumi mau kānaka e ho'ōla piha ʻia.
Inā ua pālahalaha mua ke kanesa (metastasized) i nā wahi ʻē aʻe, e like me nā māmā, i ka manawa e ʻike ʻia ai, ʻoi aku ka haʻahaʻa o ka nui o ke ola. Akā i kēlā mau hihia, aia nā lāʻau lapaʻau. ʻO ka mea nui, he mau helu wale nō kēia. He ʻokoʻa kēlā me kēia maʻi. No laila, ʻoi aku ka maikaʻi o ke kamaʻilio ʻana me kāu kauka a aʻo i nā kikoʻī e pili ana i kou kūlana.
Leka Lawe-Home
- Inā loaʻa i kahi keiki ka ʻeha mau a i ʻole ka pehu ʻana ma ka lima, ka wāwae, a i ʻole kekahi iwi ʻē aʻe, mai hoʻolei wale iā ia me he "mea a lākou i hana ai i ka wā e pāʻani ana." E ʻike pono i ke kauka.
- He maʻi ʻaʻai iwi ka Osteosarcoma i loaʻa pinepine i nā keiki ʻōpio. Eia nō naʻe, inā ʻike mua ʻia, aia nā lāʻau lapaʻau kūpono loa i loaʻa i kēia lā.
- Hiki i ke kaʻina hana lapaʻau ke paʻakikī i ka noʻonoʻo a me ke kino no ke keiki a me ʻoe ma ke ʻano he makua. No laila , he mea nui loa ke kākoʻo naʻau a me ka ikaika no ke keiki a me ʻoe.
- E wehe i nā mea āpau me kāu kauka a me ka hui lapaʻau. E nīnau i nā nīnau, nā makaʻu, a i ʻole nā hopohopo āu e loaʻa ai. ʻO ka ʻike ʻana kou ikaika nui loa ma kēia huakaʻi.
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