Ua ʻike anei ʻoe i ka PANDAS Syndrome? E kamaʻilio kākou e pili ana!

Ua ʻike anei ʻoe ua hoʻomaka koke kāu keiki liʻiliʻi e hana i kahi ʻano ʻē a ʻaʻole like me ka wā ma mua? Malia paha ua ʻike ʻoe i kēia mau loli ma hope o kou hoʻōla ʻana mai ke kuni, ke anu, a i ʻole ka ʻeha ʻāʻī. I kēia lā e kamaʻilio mākou e pili ana i kahi kūlana e hiki ke kū mai i ia mau manawa, he mea paʻakikī iki ia, akā he mea nui loa e makaʻala.

He aha ka PANDAS Syndrome?

I ka ʻōlelo maʻalahi, ʻo PANDAS ke kū nei no Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. He inoa lōʻihi kēlā, ʻeā? He pōkole ia no Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. He kūlana kēia kahi e ulu koke ai kahi hui koho o nā keiki i nā loli ʻano, noʻonoʻo, a i kekahi manawa neurological ma hope o ko lākou loaʻa ʻana i ka maʻi strep throat, e like me ka strep throat a i ʻole ka scarlet fever. Ua loaʻa nā hōʻike e pili ana i nā tics e pili ana iā PANDAS, ka hana obsessive-compulsive , a me nā hōʻailona noʻonoʻo a me neurological ʻē aʻe. Eia nō naʻe, ke noiʻi ʻia nei ka pilina pololei ma waena o kēia mau mea ʻelua.

ʻO wai ka mea hiki ke hoʻomohala i ka PANDAS syndrome?

ʻIke pinepine ʻia nā hōʻailona PANDAS i nā keiki ma waena o 3 a me 12 mau makahiki. Manaʻo kekahi poʻe mālama ola kino he ʻoi aku ka maʻamau o ke ʻano i nā keikikāne . Aia kekahi mau kumu ʻē aʻe i manaʻo ʻia e hoʻonui i ka pilikia o kahi keiki i ka loaʻa ʻana o PANDAS:

• Inā loaʻa pinepine iā ʻoe nā maʻi e like me "nā maʻi streptococcal Group A", ʻo ia hoʻi, "strep throat" a i ʻole "ulaʻula kuni".
• Inā loaʻa i kekahi o ka ʻohana nā maʻi autoimmune a i ʻole ua loaʻa iā ia nā kūlana e like me ka rheumatic fever .

Hiki i nā ʻōpio a i ʻole nā ​​​​mākua ke hoʻomohala i nā PANDAS?

Manaʻo kekahi poʻe noiʻi he mea kakaikahi loa i nā keiki ʻōpio a i ʻole nā ​​​​mākua ke loaʻa nā hōʻailona noʻonoʻo a neurological paha mai nā maʻi strep. Eia nō naʻe, ke noiʻi nei kekahi poʻe noiʻi i nā hopena lōʻihi o ia mau kūlana.

Pehea ka maʻamau o ka PANDAS syndrome?

Ua hōʻike kekahi mau noiʻi he maʻi laha ʻole ka PANDAS. No laila, ʻaʻohe pono e hopohopo, akā he mea nui e makaʻala.

He aha nā hōʻailona o ka maʻi PANDAS?

Hiki ke ʻokoʻa loa nā hōʻailona o PANDAS mai kekahi keiki a i kekahi.Ua hōʻike ʻia he hui pū ʻana kēia o nā kūlana noʻonoʻo a me nā kūlana neurological. ʻO ka mea kūikawā, ʻo ia ka hoʻomaka koke ʻana o kēia mau hōʻailona a loaʻa iā lākou kahi ʻano o ka hele ʻana mai a me ka hele ʻana, ka hele ʻana a me ka hoʻi ʻana mai . ʻO ka maʻamau, hiki i kēia mau hōʻailona ke mau no kekahi mau lā a i ʻole nā ​​pule, a laila e emi iho a hoʻi mai.

E noʻonoʻo, ua pāʻani maikaʻi kāu keiki, a ua loli koke kāna ʻano. Hoʻomaka ʻo ia e hana i nā mea āna i hana ʻole ai ma mua, a nalowale koke paha kāna mau hana ma mua. ʻO kēia kekahi o nā hōʻailona nui i ʻike ʻia ma `(PANDAS)`.

Nā hōʻailona noʻonoʻo i hōʻike ʻia:

Eia kekahi o nā hōʻailona olakino noʻonoʻo i hōʻike ʻia e kū pū me PANDAS:

• Hopohopo a kaumaha paha . Ua lilo koke ke keiki i mea makaʻu a kaumaha paha.
• Ka pulu ʻana i ka moena , ʻoiai inā hoʻomaka koke ia me ka ʻole o kahi maʻa maʻamau mua.
• Nā loli i ke ʻano a i ʻole ke ʻano pilikino , ʻoiai ka huhū koke ʻana a i ʻole ka hoʻonāukiuki . ʻO ke keiki i huhū ʻole ma mua, huhū ʻo ia ma luna o nā mea liʻiliʻi.
• Paʻakikī ke hiamoe . ʻAʻole hiki ke hiamoe i ka pō, a i ʻole ke ala pinepine ʻana.
• Ka hoihoi ʻole i ka meaʻai . ʻO ke keiki i ʻai maikaʻi ma mua e hōʻole i ka ʻai.
• ʻO ka hoʻoluliluli a me nā hōʻailona like me nā hōʻailona o ka maʻi hemahema/hyperactivity (ADHD) .
• ʻO ke ʻano o ka maʻi hoʻokaumaha . Eia kekahi laʻana, e hana hou ana i nā mea like, mai kū ʻole e holoi i kou mau lima, a i ʻole ka noʻonoʻo nui ʻana i ka pono e hoʻoponopono i nā mea.
• Hopohopo kaʻawale. He makaʻu i ka haʻalele ʻana i nā mākua, ʻoiai inā ʻaʻole i hoʻokaʻawale ʻia kekahi mai iā lāua ma mua.
• Hoʻohālikelike ʻia ka Tourette syndrome e nā neʻe ʻana i makemake ʻole ʻia a hiki ʻole ke kāohi ʻia (tics) . Hiki i kēia ke komo pū me ka ʻimo ʻana o nā maka, ka ʻāʻī ʻana, a me ka hāpai ʻana i nā poʻohiwi.

Nā hōʻailona neurological i hōʻike ʻia:

Aia kekahi mau hōʻailona neurological i ʻōlelo ʻia e pili ana me PANDAS:

• Nā loli i nā mākau neʻe . ʻO ia hoʻi, nā pilikia me ka neʻe ʻana o nā ʻiʻo. No ka laʻana, hiki ke loaʻa nā pilikia me ke kākau lima . ʻO ke keiki i kākau nani ma mua, hiki ke loaʻa ka kākau lima slurred.
• Ka paʻakikī i ka noʻonoʻo ʻana a i ʻole ke aʻo ʻana .
• Nāwaliwali i ka hana kula (hana maikaʻi ʻole ma ke kula) . Hāʻule koke ke keiki i aʻo maikaʻi ma mua ma hope.
• Hoʻemi ʻia ka hoʻonohonoho ʻana . Kūpilikiʻi i ka wā e hele ana a holo paha.
• ʻO ka maʻi nui i ka mālamalama a me ke kani. Lilo ke keiki i mea ʻoluʻolu ʻole me ke kani a i ʻole ke kukui liʻiliʻi loa.

He aha ke kumu o ka maʻi PANDAS?

I kēia manawa, ke noʻonoʻo nei paha ʻoe, 'No ke aha lā kēia e hana nei?' Manaʻo kekahi poʻe e hana ʻia ka PANDAS i ka wā e hana ai ka ʻōnaehana pale o kāu keiki i nā antibodies e hakakā i ka bacteria i hoʻoulu ai i ka maʻi strep. E noʻonoʻo i kēia mau antibodies e like me nā koa i loko o ko mākou kino. Ke kaua nei lākou i nā maʻi.

Eia nō naʻe, i kekahi manawa, hoʻouka hewa kēia mau antibodies i nā cell olakino i loko o ke kino e like me nā cell maʻi strep. Ua like ia me ka hoʻouka ʻana i kekahi o kāu iho, ka mea e like me ka ʻenemi. Manaʻo kekahi poʻe he hoʻopilikia kēia mau antibodies i ka ʻiʻo lolo o ke keiki . ʻO ia ke kumu i manaʻoʻiʻo ʻia ai ua ʻike koke ʻia nā hōʻailona noʻonoʻo a me nā neurological i ʻōlelo ʻia ma luna.

He like anei nā maʻi PANS a me PANDAS?

Ua lohe paha ʻoe i ka huaʻōlelo `(PANS)`. ʻO `(PANS)` ke kū nei no `(Pediatric Acute-Onset Neuropsychiatric Syndrome)`. Manaʻo kekahi mau kauka he ʻano `(PANS)` ʻo `(PANDAS)`. Hoʻokumu lāua i nā hōʻailona like e hiki koke mai ana, wahi a lākou. Akā, ʻo ka ʻokoʻa nui, ua manaʻo ʻia ʻo `(PANDAS)` e pili ana i ka maʻi strep, ʻoiai ʻo `(PANS)` ua manaʻo ʻia ua hoʻokumu ʻia e nā maʻi ʻē aʻe, e like me `(Lyme disease)` a i ʻole `(influenza)` (kapa mākou iā ia he flu).

Pehea e ʻike ʻia ai ka maʻi PANDAS?

He nīnau kēia a nā mākua he nui. ʻAʻohe hoʻāʻo kikoʻī i kēia manawa e ʻike ai i ka PANDAS. E hana ke kauka i kahi hoʻokolokolo kino a e aʻo pono i nā hōʻailona o ke keiki. ʻO ia hoʻi, pono ke kauka e ʻike i nā loli āu e ʻike ai i ke ʻano o kāu keiki, i ka wā i hoʻomaka ai, a pehea i hoʻomau ʻia ai. No laila, i kou hele ʻana e ʻike i ke kauka, e makaʻala i kēia mau mea.

Pehea e mālama ʻia ai ka maʻi PANDAS?

Aia kekahi mau mea nui e noʻonoʻo ai i ka wā e mālama ai i nā PANDAS:

• Nā lāʻau antibiotic: Inā loaʻa i kāu keiki kahi maʻi strep ikaika , ʻo ia hoʻi, he mau hōʻailona ko lākou o ka maʻi e like me ke kuni, ka ʻeha o ka puʻu, a me ka ʻeha i ka moni ʻana, pono e hāʻawi ʻia iā lākou nā lāʻau antibiotic . ʻO kēia ke kāohi i ka maʻi.
• ʻO ka Lapaʻau Hana Noʻonoʻo (CBT): ʻO ka `(CBT)` he ʻano psychotherapy. Kōkua ia i kahi keiki e hoʻoponopono a hoʻokele i ko lākou mau pilikia noʻonoʻo a me ka naʻau. He mea pono loa ia no nā hōʻailona e like me `(OCD)` a me ka hopohopo.
• I kekahi manawa, aia nā ʻano hoʻomaʻamaʻa kaʻawale (habit reversal training) no kēlā mau tics.

ʻO ka mea nui loa, ʻo ka hoʻomaka a hoʻomau i ka lāʻau lapaʻau wale nō ma ke ʻōlelo aʻoaʻo a ke kauka.

Hiki ke pale ʻia ka maʻi PANDAS?

ʻO ke ala maikaʻi loa e pale aku ai i kekahi maʻi i manaʻo ʻia e pili ana i kahi maʻi, ʻo ia ke pale ʻana i ka ulu ʻana o ka maʻi ma kahi mua . No laila, he mea nui loa ke aʻo ʻana i kāu keiki i nā ʻano olakino maikaʻi.

• E aʻo iā lākou e uhi i ko lākou waha a me ko lākou ihu me kahi pepa kiko a i ʻole ko lākou kuʻekuʻe lima i ka wā e ʻū ana a i ʻole e kihe ana.
• E aʻo aku iā lākou ʻaʻole e kaʻana like i nā mea pilikino e like me ka meaʻai, nā mea inu, a me nā pulupulu niho me nā poʻe ʻē aʻe.
• E paipai i kāu keiki e holoi pinepine i ko lākou mau lima a e hoʻohana i ka mea hoʻomaʻemaʻe lima i nā manawa hiki.

Hiki i kēia mau mea maʻalahi ke hōʻemi nui i ka laha ʻana o nā maʻi e like me ka strep.

He aha ka wā e hiki mai ana o kahi keiki me ka maʻi PANDAS?

I ka manawa pinepine, ʻo ka nānā ʻana i ka cognitive behavioral therapy (CBT) no nā pilikia behavioral a me ke aʻo ʻana i ka hoʻohuli ʻana i ka maʻamau no nā tics hiki ke hōʻemi i ke alapine o nā hōʻailona a hāʻawi i nā keiki i nā mākau hoʻoponopono e pono ai lākou e holomua.

ʻO ia hoʻi, ʻaʻohe mea e hopohopo ai. Me ka mālama kūpono a me ke kākoʻo, hiki i nā keiki ke ola maikaʻi me kēia maʻi. ʻO ka mea nui loa, ʻo ia ke ʻimi i ke aʻo lapaʻau i ka wā e ʻike ai ʻoe i kahi pilikia a e hāʻawi i kāu keiki i ke aloha, ka hoʻomaopopo ʻana, a me ke kākoʻo.

ʻO ka mea nui loa a kākou e lawe ai mai kēia moʻolelo mai (Leka Lawe-Home)

ʻAe, no laila ke lana nei koʻu manaʻo ua loaʻa iā ʻoe kahi manaʻo maikaʻi aʻe e pili ana i ka maʻi `(PANDAS)` a mākou i kamaʻilio ai.

• ʻO PANDAS kahi hui o nā pilikia noʻonoʻo a me ka neurological i manaʻo ʻia e ulu aʻe kekahi mau keiki ma hope o nā maʻi strep.
• ʻO nā hōʻailona nui ka hoʻomaka koke ʻana o nā tics a me ke ʻano e like me ka maʻi obsessive-compulsive .
• Inā he maʻi strep ikaika, hāʻawi ʻia nā lāʻau antibiotic, a mālama ʻia nā pilikia o ke ʻano a me ka noʻonoʻo me nā lāʻau lapaʻau e like me CBT.
• ʻO ka mea nui loa, inā ʻike ʻoe i kahi loli nui a koke i ke ʻano o kāu keiki, ʻoiai ma hope o kahi mea e like me ke anu a i ʻole ka maʻi flu, e ʻike koke i ke kauka. Mai hopohopo, ʻaʻole nā ​​​​loli āpau he PANDAS. Eia nō naʻe, ʻoi aku ka maikaʻi o ke kamaʻilio ʻana me ke kauka e kāpae i nā hopohopo.

E hoʻomanaʻo, ʻo ka ʻike mua ʻana a me ka mālama kūpono e hiki ke hāʻawi i ka hōʻoluʻolu nui i ke keiki.

ʻO ka maʻi PANDAS, nā maʻi streptococcal, nā maʻi neuropsychiatric pediatric, tics, OCD, autoimmunity, olakino keiki