Loaʻa iā ʻoe i kekahi manawa kahi ʻū mau a maloʻo ʻaʻole e hana i ka mucus? Manaʻo ʻoe he pōkole ka hanu ke luhi iki ʻoe, a i ʻole ke piʻi ʻoe i nā alapiʻi? Manaʻo ka poʻe he mea maʻamau kēia, malia paha i hana ʻia e ka lepo, akā i kekahi manawa he hōʻailona ia o kahi maʻi māmā e pono ai ka nānā ʻana. I kēia lā ke kamaʻilio nei mākou e pili ana i kekahi ʻano maʻi, ʻo NSIP.
He aha ka NSIP (Nonspecific Interstitial Pneumonia)?
I ka ʻōlelo maʻalahi, ʻo NSIP ka mumū o nā ʻiʻo ma waena o nā ʻeke ea liʻiliʻi (alveoli) i loko o kou mau māmā a me nā kīʻaha koko a puni lākou. E noʻonoʻo i kou mau māmā e like me ka puʻu hua waina me ka nui o nā hua waina liʻiliʻi (alveoli). ʻO ka niumonia a mākou i ʻike pinepine ai e hana ʻia i loko o kēia mau hua waina. Akā i loko o NSIP, hana ʻia ka mumū ma nā hakahaka ma waena o kēia mau hua waina a me nā ʻiʻo a puni lākou.
He kūlana kēia no kahi hui o nā maʻi māmā i kapa ʻia ʻo "interstitial lung disease". ʻIke pinepine ʻia ʻo NSIP i nā poʻe me ka maʻi pili o nā ʻiʻo (CTD). Eia kekahi, hiki ke lilo i kūlana lōʻihi, ʻaʻole e hoʻomaikaʻi i loko o kekahi mau lā e like me ka pneumonia maʻamau. I kekahi mau hihia, hiki iā ia ke hana i ka ʻeha mau loa o nā māmā.
ʻElua ʻano nui o nā NSIP.
Hoʻokaʻawale nā kauka i ka NSIP i ʻelua ʻano nui. He mea nui e hoʻomaopopo i ka ʻokoʻa ma waena o nā mea ʻelua, no ka mea, hiki ke ʻokoʻa ka mālama ʻana a me ka holomua o ka maʻi i ka wā e hiki mai ana.
| ʻAno NSIP | I ka ʻōlelo maʻalahi, he aha ka mea e hana ʻia? | Koʻikoʻi |
|---|---|---|
| NSIP Kelepona Paʻalima | I kēia ʻano, pehu nā ʻeke ma waena o nā ʻeke ea. ʻAʻohe ʻeha. | ʻAʻole ia he koʻikoʻi nui. Pane maikaʻi loa ia i ka lāʻau lapaʻau. Hiki ke ho'ōla loa ʻia. |
| NSIP Fibrotic | ʻO kēia ke kumu e mānoanoa ai ka ʻiʻo o ka māmā a lilo i ʻōpala. I ka lāʻau lapaʻau, ua kapa ʻia kēia ʻōpala he fibrosis . | ʻO kēia ke ʻano koʻikoʻi a weliweli loa. He paʻakikī ke hoʻihoʻi i ka hōʻino ʻana i nā māmā. |
He aha nā hōʻailona o NSIP?
ʻAʻole paha e ʻike mua ʻia nā hōʻailona o NSIP. Eia nō naʻe, hiki iā lākou ke piʻi mālie i ka hala ʻana o ka manawa, i nā mahina a i ʻole nā makahiki. ʻO nā hōʻailona nui:
- He ʻū maloʻo mau: ʻAʻole kēia e hana i ka mucus. He leo wale nō ia e like me ka ʻū e hoʻomaʻemaʻe ana i ka puʻu.
- Pōkole o ka hanu (dyspnea): Paʻakikī ka hanu ʻana, ʻoiai ke hana nei i kahi mea paʻakikī, e like me ka hele wāwae a i ʻole ke piʻi ʻana i nā alapiʻi. I ka holomua ʻana o ka maʻi, hiki ke loaʻa ka pōkole o ka hanu ʻoiai ke kū mālie wale nō.
- Hana paʻakikī: Manaʻo e like me ʻoe e hoʻoikaika nui e hanu.
- Luhi loa: Manaʻo nui i ka luhi ʻoiai me ka hana ʻole ʻana i kekahi mea.
- Manamana lima i hui ʻia: ʻAʻole maʻamau kēia. Eia nō naʻe, i kekahi poʻe, pehu paha nā wēlau o nā manamana lima e like me nā lāʻau pahu a poepoe paha nā kui. Hōʻike kēia ʻaʻole lawa ka oxygen i ke kino.
ʻO ka mea nui, ʻaʻole e hoʻomaka koke kēia mau hōʻailona, akā e piʻi mālie i ka hala ʻana o ka manawa. No laila, ʻaʻole paha e nānā nui ka poʻe he nui i kēia.
He aha nā kumu o NSIP? ʻO wai ka mea i ʻoi aku ka pilikia?
ʻO kaʻoiaʻiʻo, ʻaʻole ʻike nā kauka i ke kumu pololei o NSIP. Eia nō naʻe, ke nānā ʻia ka poʻe me kēia maʻi, loaʻa iā lākou nā maʻi ʻē aʻe. No laila, ua manaʻoʻiʻo ʻia aia kahi pilina ma waena o kēia mau maʻi a me NSIP.
Nā kūlana koʻikoʻi e pili ana me NSIP:
- Nā maʻi pili o nā ʻiʻo: ʻO kēia nā maʻi autoimmune kahi e hoʻouka ai ka ʻōnaehana pale o ke kino i kona mau ʻiʻo ponoʻī. Eia kekahi laʻana:
- ʻO ka Rheumatoid arthritis - kahi maʻi e hoʻoulu ai i ka pehu a me ka ʻeha i nā hono
- Lupus
- ʻO ka ʻeha koko
- Nā maʻi viral: ʻO kekahi mau maʻi viral, e like me ka HIV a me ka hepatitis, hiki ke pili pū me NSIP.
- Nā hopena i kekahi mau lāʻau lapaʻau: Hiki ke hana ʻia kēia ʻano e ka chemotherapy no ka maʻi kanesa, ka radiation therapy, a me kekahi mau lāʻau lapaʻau no ka maʻi puʻuwai.
ʻO ka maʻi NSIP maʻamauʻO ka mea maʻamau i waena o nā wahine ma waena o 40 a me 50 mau makahiki.
Pehea e ʻike pololei ai ke kauka i kēia maʻi?
Inā loaʻa iā ʻoe kekahi o nā hōʻailona i ʻōlelo ʻia ma luna, ʻo ka mea mua a kāu kauka e hana ai, ʻo ia ke nīnau iā ʻoe e pili ana i kāu mōʻaukala olakino. He mea nui e haʻi i kāu kauka i nā mea āpau āu e loaʻa nei e pili ana i nā kūlana olakino ʻē aʻe a i ʻole nā lāʻau lapaʻau āu e lawe nei.
Ma hope o kēlā, e kauoha ʻia kekahi mau hoʻokolohua e hōʻoia i ka hōʻailona.
- Nā hoʻāʻo hana puʻuwai: Pili kēia iā ʻoe e hanu i loko a i waho ma o kahi ʻōmole i hoʻopili ʻia i kahi mīkini. Kōkua kēia i ka loaʻa ʻana o kahi manaʻo o ka hana maikaʻi o kou mau māmā ma ke ana ʻana i ka nui o ka ea hiki iā ʻoe ke lawe i loko a me ka wikiwiki o kou hanu ʻana i waho.
- ʻO ke kiʻi X-ray o ka umauma a me ka CT scan: ʻOiai hiki i kahi kiʻi X ke hāʻawi i kahi manaʻo laulā, hiki i kahi CT scan (Computed Tomography scan) ke ʻike maopopo i nā loli liʻiliʻi loa a me nā ʻōpala i loko o nā māmā. He mea nui loa ka CT scan i ka ʻike ʻana iā NSIP.
- Bronchoscopy: Ma kēia, ua hoʻopili ʻia kahi kāmela ma ka hopena o kahi ʻōmole lahilahi a maʻalahi a hoʻokomo ʻia ma kou ihu a waha paha i loko o kou mau māmā.
- Biopsy: ʻO kēia ke ala maikaʻi loa e hōʻoia i ka maʻi 100%. Lawe ʻia kahi ʻāpana liʻiliʻi loa o ka ʻiʻo mai ka māmā ma o ke ʻoki ʻana a nānā ʻia ma lalo o kahi microscope. A laila hiki i kēia ke hoʻoholo pololei inā he cellular a fibrotic paha.
He aha nā lāʻau lapaʻau no NSIP?
ʻO nā pahuhopu nui o ka mālama ʻana i ka NSIP, ʻo ia ka hoʻēmi ʻana i ka mumū i loko o nā māmā, kaohi ʻana i ka maʻi mai ka lilo ʻana i mea ʻino, a kōkua i ka mālama ʻana i kou ola maikaʻi.
ʻOkoʻa nā ʻano lapaʻau mai kēlā mea kēia mea maʻi a ma muli hoʻi o ke ʻano o ka maʻi.
| ʻAno lapaʻau | Wehewehena |
|---|---|
| Nā lāʻau corticosteroid `(Corticosteroids)` | Eia kekahi laʻana, nā lāʻau lapaʻau e like me `(Prednisone)`. Hana kēia mau mea ma ka hōʻemi ʻana i ka mumū i loko o ke kino a me nā māmā. |
| Nā lāʻau lapaʻau immunosuppressive | ʻO nā lāʻau lapaʻau e like me ka 'azathioprine', 'cyclophosphamide', 'mycophenolate'. Hana kēia mau mea ma ka kaohi ʻana i ka hana makemake ʻole ʻia o ka ʻōnaehana pale o ke kino. He mea nui loa kēia no ka poʻe me nā maʻi '(autoimmune)'. |
| Nā lāʻau anti-fibrotic | Nā lāʻau lapaʻau e like me ka `pirfenidone` a me ka `nintedanib`. Hāʻawi ʻia kēia mau mea i nā poʻe me Fibrotic NSIP. Kōkua lākou i ka hoʻolohi ʻana i ka wikiwiki o ka ʻeha ma nā māmā. |
| Hoʻoponopono hou ʻana i ka puʻuwai | He mea nui kēia e like me ka hāʻawi ʻana i ka lāʻau lapaʻau. Hoʻokomo pū ʻia me nā hoʻomaʻamaʻa kūikawā e kōkua i ka hoʻoikaika ʻana i nā māmā, nā ʻano hana hanu, a me ka hoʻonaʻauao e pili ana i ka maʻi. |
| Hoʻōla oxygen | ʻO ka hāʻawi ʻana i ka oxygen i ka poʻe me nā pae oxygen koko haʻahaʻa, ʻoiai ke luhi lākou. |
| Hoʻoili ʻana o ka māmā | ʻO ke koho hope loa inā ʻaʻole holo pono nā lāʻau lapaʻau ʻē aʻe a lilo ka maʻi i mea koʻikoʻi. |
Pehea lā ke ʻano o ke ola me NSIP? (Wānana)
He nīnau kēia a nā poʻe he nui. ʻO ka pane i kēia ma muli o ke ʻano o ka NSIP āu.
- No Cellular NSIP: Maikaʻi loa ka nānā ʻana no kēia poʻe. Me ka mālama kūpono, kokoke i ka 100% ka manawa e ola ai i 5 mau makahiki ma hope o ka ʻike ʻia ʻana o ka maʻi. I ka hapanui o nā hihia, hiki ke ho'ōla piha ʻia.
- No ka Fibrotic NSIP: ʻAʻole hiki ke hoʻihoʻi ʻia ka pōʻino o nā māmā ma ʻaneʻi. No laila, ʻoi aku ka koʻikoʻi o ke kūlana. Eia nō naʻe, hiki i nā lāʻau lapaʻau i ʻōlelo ʻia ma mua ke kāohi a hoʻolohi i ka holomua o ka maʻi. Hōʻike nā hōʻike lapaʻau e hiki i nā kānaka ke ola ma waena o 6 a me 14 mau makahiki ma hope o ka hōʻoia ʻana.
No laila, ʻo ka ʻike mua ʻana i ka maʻi a me ka hoʻomaka ʻana i ka lāʻau kūpono he mea nui ia no ka hoʻolōʻihi ʻana i ke ola.
He aha kāu e hana ai?
Inā haʻi aku kāu kauka iā ʻoe he NSIP kou, mai hopohopo. Aia kekahi mau mea hiki iā ʻoe ke hana.
- E hahai pono i nā kuhikuhi a kāu kauka a me ka hoʻolālā lapaʻau. E lawe i kāu lāʻau lapaʻau i ka manawa kūpono a me ka nui kūpono.
- Inā loaʻa iā ʻoe kekahi maʻi ʻē aʻe, e like me ka rumatika, e kaohi pono i kēlā maʻi.
- Inā ʻike ʻoe i kekahi loli i kāu mau hōʻailona, e like me ka luhi nui, e hoʻomaopopo koke i kāu kauka.
- Inā ʻoe e puhipaka, e hoʻōki koke. ʻOi aku ka hōʻino ʻana o ka puhipaka i kou mau māmā.
Inā loaʻa iā ʻoe kahi ʻū maloʻo a paʻakikī paha ka hanu ʻana i hala no nā pule, e ʻoluʻolu e ʻike i ke kauka a e nānā iā ia iho, ma mua o ka manaʻo he mea maʻamau. Hiki i ka NSIP ke lilo i mea ʻino aʻe inā ʻaʻole mālama ʻia.
Leka Lawe-Home
- ʻAʻole ʻo NSIP ka maʻi niumonia a mākou i ʻike mau ai. Ma kēia, puka mai ka mumū i loko o nā ʻiʻo ma waena o nā ʻeke ea o nā māmā.
- ʻO ka ʻū maloʻo lōʻihi a me ka hanu ʻana i ka wā e luhi ai ʻoe nā hōʻailona nui o kēia maʻi. Mai hoʻowahāwahā i kēia mau mea.
- ʻElua ʻano nui o NSIP. Hiki ke ho'ōla loa ʻia ke ʻano 'Cellular' me ka lāʻau lapaʻau. ʻOiai he koʻikoʻi ke ʻano 'Fibrotic', hiki ke kāohi ʻia me ka lāʻau lapaʻau.
- He mea nui loa ka ʻike mua ʻana a me ka hahai ʻana i nā ʻōlelo a kāu kauka e pale aku ai i ka hōʻino mau ʻana o ka māmā.
- Inā loaʻa iā ʻoe kahi maʻi pili i nā ʻiʻo e like me ka rheumatoid arthritis, e makaʻala pono i kēia mau hōʻailona pili i ka māmā.
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