Ua ʻike anei ʻoe i ka puka koke ʻana mai o nā pehu liʻiliʻi ma kou ʻili, a laila pahū a lilo i mea ʻeha, e hoʻoulu ai i ka maneʻo a me ka ʻeha hiki ʻole ke hoʻomanawanui? I kekahi manawa, ʻaʻole hiki iā ʻoe ke noʻonoʻo i ka mea e hana nei, ʻeā? I kēia lā, e kamaʻilio mākou e pili ana i kahi maʻi ʻili e hoʻoulu ai i kēlā ʻano ʻoluʻolu ʻole, akā he mea kakaikahi iki. Ua kapa ʻia kēia ʻo `(Pemphigus Foliaceus)`. Mai makaʻu, e kamaʻilio maʻalahi kākou e pili ana i kēia.
He aha ka mea kanu ʻo Pemphigus Foliaceus?
I ka ʻōlelo maʻalahi, ʻo `(Pemphigus Foliaceus)` he maʻi ʻili i hoʻokumu ʻia e kahi hewa me ka `(ʻōnaehana pale)` o ko mākou kino ponoʻī . E noʻonoʻo, aia iā mākou kahi hui o nā koa i loko o ko mākou kino, ʻo ia hoʻi ko mākou ʻōnaehana pale. ʻO kā lākou hana ke pale aku iā mākou ma ke kaua ʻana i nā germs a me nā maʻi e puka mai ana mai waho. Akā ma kēia kūlana `(Pemphigus Foliaceus)`, kuhi hewa kēia mau koa i ko mākou mau hunaola ʻili olakino `(nā hunaola ʻili)` no nā ʻenemi a hoʻomaka e hoʻouka iā lākou. ʻO ia ka manawa e ʻike ʻia ai nā pehu ʻeha a me nā ʻeha ma ka ʻili.
ʻIke pinepine ʻia kēia mau pehu ma ke poʻo, ka maka, ka ʻāʻī, a me ke kua . ʻO ka `(Pemphigus Foliaceus)` he maʻi ʻili ia no ka hui o nā maʻi i kapa ʻia ʻo `(Pemphigus)`.
ʻO wai ka mea e loaʻa pinepine ai kēia? He mea maʻamau anei kēia?
ʻO ka maʻamau, ʻike ʻia nā hōʻailona o ka `(Pemphigus Foliaceus)` i nā kānaka ma waena o 50 a me 60 mau makahiki. Eia nō naʻe, hiki ke loaʻa i kekahi o kēlā me kēia makahiki, ʻoiai nā keiki ʻuʻuku loa.
Ma kekahi mau wahi o ka honua, ʻoi aku hoʻi ma ʻAmelika Hema, aia kahi maʻi i kapa ʻia ʻo "Fogo Selvagem", he ʻano like ia me kēia maʻi. Ua manaʻo ʻia ua hoʻokumu ʻia e kekahi mau pepeke a i ʻole nā mea pili i ke kaiapuni ʻē aʻe.
Eia nō naʻe, he maʻi ʻili laha ʻole ka `(Pemphigus Foliaceus)`. Inā ʻoe e nānā i ke ao holoʻokoʻa, ma kahi o hoʻokahi a ʻelima mau kānaka i loko o hoʻokahi miliona mau kānaka e loaʻa i nā maʻi `(Pemphigus)` i kēlā me kēia makahiki. No laila, ʻoi aku ka laha ʻole o ka `(Pemphigus Foliaceus)`.
Pehea kēia e pili ai i ke kino? He aha nā hōʻailona?
Hoʻoulu ka Pemphigus Foliaceus i nā pehu ʻeha ma kou ʻili. He liʻiliʻi loa kēia mau pehu a haki maʻalahi . Ke haki lākou, lilo lākou i mau ʻeha. Hiki i kēia mau ʻeha ke lilo i ʻōpala a unahi. Hiki iā lākou ke maneʻo nui a hiki ke ʻeha a wela paha .
Hiki ke ʻike ʻia nā hōʻailona nui e like me kēia:
- ʻIke ʻia nā pehu liʻiliʻi, wai, a ʻulaʻula a i ʻole nā puʻupuʻu ma ka papa luna o kou ʻili (epidermis). Hiki i kēia ke pālahalaha ma luna o kahi ʻāpana nui o kou kino.
- He palupalu loa nā pehu a pahū maʻalahi .
- Pohā nā pehu, e hana ana i nā ʻeha unahi a ʻōpala.
- ʻO kēia mau pehu a me nā ʻeha ke kumu o ka maneʻo, ka ʻeha, a i ʻole ka mumū .
Ma hea ma ke kino e ʻike ʻia ai nā hōʻailona?
ʻO nā ʻano maʻamau o nā pehu a me nā ʻeha:
- Poʻo poʻo
- Maka
- ʻĀʻī
- Ma waho
- Umauma
Akā, ʻo ka mea nui loa, ma ke ʻano o `(Pemphigus Foliaceus)`ʻAʻole i hoʻopilikia ʻia nā membrane palupalu i loko o ka waha a me ka ihu.
No ke aha e kū mai ai kēia ʻano `(Pemphigus Foliaceus)`? He aha nā kumu?
Ke noiʻi ʻia nei ke kumu kikoʻī o kēia. I kēia manawa, ua manaʻo ʻia he nui nā kumu hoʻoilina a me ke kaiapuni e pāʻani i kahi kuleana.
ʻAʻole kēia he maʻi hoʻoilina i hoʻoili ʻia mai nā mākua a i nā keiki. Eia nō naʻe, inā loaʻa iā ʻoe kahi gene HLA kikoʻī, ʻoi aku paha kou pilikia o ka loaʻa ʻana o ka maʻi. ʻO ke kuleana o nā gene HLA ke kōkua i ka ʻōnaehana pale e ʻike i nā mea e like me nā germs e komo i loko o ko mākou kino a luku iā lākou.
E like me kaʻu i ʻōlelo ai ma mua, he maʻi autoimmune ʻo Pemphigus Foliaceus. ʻO ia hoʻi, hoʻouka kāu ʻōnaehana pale ponoʻī i nā ʻōnaehana olakino. ʻO ke kikoʻī, ma Pemphigus Foliaceus, hoʻouka hewa nā protein i hana ʻia e ka ʻōnaehana pale (kapa mākou iā lākou he antibodies) i nā kiko hoʻopili e hoʻopaʻa pū i kā mākou mau ʻili. Ua like kēia mau kiko hoʻopili me ka lipine sticky e hoʻopaʻa pū i nā ʻili i loko o ka epidermis. No laila, ke hoʻouka ke kino i kēia mau mea, ʻike ʻia nā hōʻailona o Pemphigus Foliaceus.
He aha ke kumu e hoʻonui koke ai kēia (flare-ups)?
Hiki i nā mea aʻe ke hoʻonui koke i nā hōʻailona o ka `(Pemphigus Foliaceus)`, a i ʻole ``flare-up``:
- Kekahi mau lāʻau lapaʻau: ʻO kekahi mau lāʻau lapaʻau, e like me nā lāʻau anti-inflammatory non-steroidal (NSAIDs), penicillamine, nifedipine, captopril, a me enalapril, hiki ke hoʻonui i nā hōʻailona a i ʻole e hana i nā hōʻailona hou. Inā manaʻo kāu kauka he lāʻau lapaʻau āu e lawe nei ke kumu o ke kūlana, hiki iā ia ke hoʻōki a hoʻololi paha i ka lāʻau lapaʻau. Mai hoʻōki i ka lawe ʻana i ka lāʻau lapaʻau me ka ʻole o ka ʻōlelo aʻoaʻo a kāu kauka.
- Nā nahu pepeke: Ma kekahi mau wahi o ka honua, ʻoi aku hoʻi ma ʻAmelika Hema, hiki i kahi nahu pepeke ke hana i kahi ʻano pemphigus i kapa ʻia ʻo "Fogo Selvagem".
- Ka ʻike ʻia ʻana o ka lā: Hiki ke hoʻonui ʻia nā hōʻailona ke hōʻike ʻia ka ʻili i nā kukuna ultraviolet (UV) mai ka lā.
He maʻi laha kēia?
ʻAʻole. ʻAʻole he maʻi lele ka `(Pemphigus Foliaceus)`. ʻAʻole hiki ke laha mai kekahi kanaka a i kekahi kanaka ma o ka hoʻopā ʻana. No laila, mai hoʻomaka i ka makaʻu pono ʻole.
Pehea e ʻike ai ke kauka i kēia?
E nīnau kāu kauka e pili ana i kou mōʻaukala olakino a me nā hōʻailona. A laila, e nānā lākou i kou ʻili no kekahi mau pehu a i ʻole nā ʻeha. Hiki iā lākou ke hana i nā hoʻokolohua hou aʻe e hōʻoia i kūlike lākou me nā hōʻailona o `(Pemphigus Foliaceus)`.
He aha nā hoʻokolohua e hana ʻia nei no kēia?
Hiki ke hana i nā hoʻokolohua aʻe e hōʻoia i ka hōʻoia:
- Ke lawe ʻana i kahi ʻāpana ʻili liʻiliʻi (Skin Biopsy):Lawe ʻia kahi ʻāpana liʻiliʻi o kou ʻili a nānā ʻia ma lalo o kahi microscope. Pili kēia i kahi hoʻāʻo kūikawā i kapa ʻia he "hoʻāʻo Immunofluorescence."
- Hoʻāʻo koko: Lawe ʻia kahi hāpana o kou koko a nānā ʻia no nā antibodies e hoʻoulu ai i nā hōʻailona.
He aha nā lāʻau lapaʻau no kēia?
ʻOkoʻa paha ka lāʻau no ka `(Pemphigus Foliaceus)` mai kēlā kanaka a kēia kanaka . Na kāu kauka e hoʻoholo i ka lāʻau e pili ana i kou kūlana. Hoʻohana pinepine ʻia nā lāʻau lapaʻau penei:
- Ke hoʻōki a hoʻololi paha i nā lāʻau lapaʻau i manaʻo ʻia he mau hōʻailona.
- E hoʻohana i nā kirīmi topical a i ʻole nā lāʻau lapaʻau waha e like me corticosteroids e hōʻemi i nā pehu. A i ʻole nā mea hoʻopaʻa calcineurin topical.
- Nā lāʻau pale kino e kāohi ana i ka hana o ka ʻōnaehana pale. No ka laʻana, nā lāʻau e like me `(Rituximab)`, `(Methotrexate)`, `(Mycophenolate)` a i ʻole `(Azathioprine)`.
E hoʻomanaʻo, hiki i nā lāʻau lapaʻau āpau ke loaʻa nā hopena ʻaoʻao. No laila e kamaʻilio me kāu kauka e pili ana i kēia ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau. E nīnau e pili ana i ke ʻano o kāu lawe ʻana i ka lāʻau lapaʻau hou, pehea ka lōʻihi o kou lawe ʻana, a inā paha e hoʻopilikia ia i kāu lāʻau lapaʻau o kēia manawa.
Ma hope o kou hoʻomaka ʻana i ka lāʻau lapaʻau, e nānā hou kāu kauka iā ʻoe i loko o kekahi mau pule e ʻike ai inā e holo pono ana ka lāʻau lapaʻau. E hōʻoia e haʻi i kāu kauka inā e ʻoi aʻe ka ʻino o kāu mau hōʻailona a inā ʻaʻole ʻoe e ʻoi aku ka maikaʻi ma hope o kekahi mau pule.
Pehea ka wikiwiki o koʻu ho'ōla ʻana ma hope o ka lāʻau lapaʻau?
ʻOkoʻa ka wikiwiki o ka ho'ōla ʻana o ke kino o kēlā me kēia kanaka. ʻO ka maʻamau, ma hope o ʻelua pule, e ʻike ʻoe i nā pehu hou e pau ana a hoʻomaka nā ʻeha ʻili e ho'ōla . Eia nō naʻe, hiki ke hala kekahi mau pule no ka ho'ōla piha ʻana o nā ʻeha ʻili āpau. No ka mea, he maʻi mau ka pemphigus, hiki ke hoʻi hou a ʻoi aku paha ka ʻino o nā hōʻailona i ka wā e hiki mai ana.
Hiki ke pale ʻia ka Pemphigus Foliaceus?
ʻOiai ʻaʻole hiki ke pale aku i nā kumu āpau o Pemphigus Foliaceus, hiki iā ʻoe ke hana i kēia mau mea e hōʻemi ai i nā flare-up:
- E pale i ka lā . Inā ʻoe e hele i waho, e ʻaʻahu i nā lole pale a hoʻohana i ka sunscreen.
- E kamaʻilio me kāu kauka e pili ana i nā lāʻau lapaʻau āu e lawe nei a ʻike inā ke kumu nei lākou i kēia mau hōʻailona. Mai hoʻōki i ka lawe ʻana i kekahi lāʻau lapaʻau a hiki i ka wā e ʻōlelo aku ai kāu kauka iā ʻoe.
- Inā ʻoe ma kahi e hoʻolaha nei nā pepeke i ka maʻi, e ʻaʻahu i nā lole pale, e hoʻohana i ka lāʻau pale pepeke , a e hoʻokomo i nā pale ma nā puka makani.
- E hoʻohana i nā kopa a me nā lotion ʻala ʻole e maikaʻi no kou ʻili.
He aha kāu e manaʻo ai i ka wā e noho ai me kēia maʻi?
ʻAʻohe lāʻau lapaʻau piha no Pemphigus Foliaceus.Akā, mai hopohopo, ʻaʻole kēia e hoʻopilikia i kou ola. Hiki i ka lāʻau lapaʻau ke kōkua i ka kaohi ʻana i nā pehu a me nā ʻeha ʻeha a me ka ʻāʻī.
I ka hapanui o ka manawa, ʻaʻole pinepine kēia mau pehu e hoʻoulu i ka ʻeha . Eia nō naʻe, inā ʻoki pinepine ʻia a kahakaha pinepine ʻia paha kahi ʻeha, hiki ke ulu aʻe kahi ʻeha.
He aha ka ʻokoʻa ma waena o `(Pemphigus Foliaceus)` a me `(Pemphigus Vulgaris)`?
ʻO (Pemphigus Foliaceus) a me (Pemphigus Vulgaris) ʻelua mau maʻi pili. Ua like iki nā hōʻailona o nā mea ʻelua a hiki ke kuhihewa kekahi i kekahi.
ʻO ka ʻokoʻa nui, ʻo ia ka hoʻopilikia ʻana o Pemphigus Vulgaris ʻaʻole wale i kou ʻili akā i nā membrane mucous i loko o kou waha, puʻu, a me nā ʻōpū . No laila, pono paha ka poʻe me Pemphigus Vulgaris e ʻai i nā meaʻai palupalu a ʻaʻohe mea ʻala ma muli o nā ʻeha waha.
Eia nō naʻe, i ke ʻano o `(Pemphigus Foliaceus)`, ʻaʻole i hoʻopilikia ʻia kēia mau membrane palupalu . A ʻoi aku ka liʻiliʻi o nā hōʻailona ma mua o `(Pemphigus Vulgaris)`. No laila, ʻaʻole pono nā poʻe me `(Pemphigus Foliaceus)` i nā kapu ʻai kūikawā.
Āhea wau e ʻike ai i ke kauka?
Inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona, e ʻike pono i ke kauka:
- Inā ʻaʻole e ho'ōla nā pehu a i ʻole nā ʻeha.
- Inā he mau pehu ma luna o kahi ʻāpana nui o ke kino.
- Inā lilo ka ʻeha i mea nui (pehu), kahe mai ka wai melemele a keʻokeʻo paha, a i ʻole e hana ʻia kahi ʻili melemele a puni ka ʻeha (he mau hōʻailona paha kēia o ka maʻi).
- Inā loaʻa iā ʻoe nā hōʻailona e like me ke kuni, ka ʻūhā, a me ka ʻehaʻeha o nā ʻiʻo .
Nā nīnau koʻikoʻi e nīnau aku i kāu kauka
Ke hele ʻoe e ʻike i ke kauka, mai poina e nīnau i kēia mau nīnau:
- He aha ka lāʻau lapaʻau maikaʻi loa noʻu?
- He aha nā hopena ʻaoʻao o ka lāʻau lapaʻau?
- He aha ke kumu o koʻu mau hōʻailona?
- ʻEhia pinepine e kau ʻia ai ka poni i nā ʻeha?
ʻO ka mea hope loa, leka lawe i ka home:
He maʻi ʻili hoʻonāukiuki iki ka `(Pemphigus Foliaceus)`, akā hiki ke hoʻomalu maikaʻi ʻia me ka mālama pono ʻana a me nā ʻōlelo aʻoaʻo lapaʻau . ʻAʻole ia he maʻi lele, no laila mai hopohopo pono ʻole. Inā loaʻa iā ʻoe kēia mau hōʻailona, e ʻike koke i ke kauka a hoʻomaka i ka mālama ʻana. E mālama i kou ʻili, e hahai pololei i nā ʻōlelo a ke kauka. E pale i ke kahakaha ʻana a i ʻole ke kohi ʻana i nā ʻeha. No ka mea, inā hana ʻoe, hiki iā ʻoe ke loaʻa i ka maʻi a waiho i nā ʻeha. Makemake au iā ʻoe e ola koke!
ʻO Pemphigus Foliaceus, Pemphigus Foliaceus, Maʻi ʻIli, Nā Pehu, ʻŌnaehana Palekana, Maʻi Autoimmune, Maʻi ʻIli
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