Ke mānoanoa nei kou ʻili a paʻakikī hoʻi? E aʻo kākou e pili ana iā Scleroderma!

Ke manaʻo nei ʻoe i kekahi manawa ua mānoanoa iki a paʻa kou ʻili ma mua o ka maʻamau? A i ʻole he ʻeha a hui paha kou a i ʻole ka ʻoʻoleʻa o ke kakahiaka? ʻO kēia nā mea a mākou e nānā ʻole ai. Eia nō naʻe, hiki iā lākou ke lilo i mau hōʻailona o kahi maʻi laha ʻole i kapa ʻia ʻo Scleroderma . E kamaʻilio kākou e pili ana i kēia me nā kikoʻī hou aku i kēia lā, ʻeā?

He aha ka Scleroderma?

I ka ʻōlelo maʻalahi, he ʻano laha ʻole ʻo Scleroderma kahi e mānoanoa a paʻakikī ai nā ʻiʻo o kou kino ma mua o ka maʻamau. ʻO ka hapa pinepine, hoʻopilikia ia i ka ʻili. Akā i kekahi manawa, hiki i ke ʻano ke hoʻopilikia i kekahi ʻiʻo ʻē aʻe o ke kino.

He maʻi autoimmune maoli kēia. I kēia manawa ke noʻonoʻo nei paha ʻoe i ke ʻano o ka 'maʻi autoimmune'. Loaʻa i ko mākou kino kahi ʻōnaehana e like me ka pūʻali koa e pale aku iā mākou mai nā maʻi, i kapa ʻia ʻo ka ʻōnaehana pale. Akā i kēia kūlana, hele hewa kēlā ʻōnaehana, a ma kahi o ke kaua ʻana i nā germs haole, hoʻomaka ia e hoʻouka i kā mākou mau cell maikaʻi ponoʻī. Me he mea lā ʻaʻole hiki iā mākou ke ʻike i ko mākou iho a ʻo wai ka ʻenemi. ʻAʻole hiki i nā kauka ke hoʻomaopopo pono i ke kumu o kēia.

Inā loaʻa iā ʻoe ka scleroderma, hōʻike kāu ʻōnaehana pale i nā cell o kou kino e hana nui i kahi protein i kapa ʻia ʻo collagen . Pono maoli ko mākou kino i ka collagen. ʻO ia ka mea e hana ai i nā ʻiʻo hoʻohui ikaika a olakino e kākoʻo ana i kā mākou mau kino. Akā i ka wā e hōʻiliʻili nui ai, e lilo ka ʻili a me nā ʻiʻo ʻē aʻe i mānoanoa a ʻoi aku ka fibrous ma mua o ka maʻamau.

He maʻi mau loa ʻo Scleroderma. ʻO ia hoʻi, pono paha ʻoe e noho me kēia mau hōʻailona no ka manawa lōʻihi, malia paha no ke koena o kou ola. Eia kekahi, inā hoʻopilikia ia i nā ʻiʻo o kou mau kino i loko, hiki iā ia ke hana i nā pilikia e hoʻoweliweli ai i ke ola. Inā manaʻo ʻoe e loaʻa ana iā ʻoe kahi hōʻeha puʻuwai, paʻakikī ka hanu ʻana, a paʻakikī paha ke ale, e kelepona koke i ka 911 (a i ʻole kāu helu pilikia kūloko), a i ʻole e hele i kahi lumi pilikia o ka haukapila.

Inā he ʻeha a ʻoʻoleʻa paha kou mau hono, ʻoiai a puni kou mau manamana lima a me kou mau manamana wāwae, pono ʻoe e ʻike i ke kauka.

He aha nā ʻano nui o Scleroderma?

Ua hoʻokaʻawale nā ​​kauka i ka scleroderma i ʻelua mau ʻano nui:

1. Scleroderma kūloko: ʻO ke ʻano o ka 'Localized' ʻo ia hoʻi ka palena ʻia i hoʻokahi wahi. Hoʻopilikia kēia ʻano i hoʻokahi wale nō ʻāpana o ke kino (ʻo ka ʻili maʻamau). Hoʻoulu ia i nā ʻāpana a i ʻole nā ​​kaha o ka ʻili mānoanoa a waxy. ʻO ka mea maikaʻi loa, hiki i ka scleroderma kūloko ke hoʻopau iā ia iho i kekahi manawa . ʻAʻole hoʻi ia e laha pinepine i nā ʻāpana ʻē aʻe o ke kino.

2.ʻO ka Sclerosis Systemic: Hiki i kēia ʻano ke hoʻopilikia i nā kino ʻē aʻe ma waho aʻe o ka ʻili. Hiki iā ia ke hoʻopilikia i kāu ʻōnaehana hanu (ke kino e kōkua iā ʻoe e hanu a honi) a me kāu ʻōnaehana hoʻoheheʻe (ke kino e hoʻololi i ka meaʻai a mākou e ʻai ai i ka ikehu). Inā hoʻopilikia ka scleroderma i kou hiki ke hanu a omo paha i nā meaʻai, ʻoi aku ka nui o kou loaʻa ʻana o nā pilikia koʻikoʻi. Hiki iā ia ke make. Loaʻa iā Systemic Sclerosis ʻekolu mau ʻano - diffuse, limited, a me sine sclerosis.

Sclerosis Hoʻolaha

ʻO ke ʻano o "Diffuse" ʻo ia hoʻi "laulaha". Ma kēia kūlana, hiki koke mai ka diffuse sclerosis ma nā wahi nui o ke kino. Eia kekahi laʻana:

• Umauma
• ʻōpū
• nā ʻūhā
• Nā mea kaua
• Nā wāwae
• Maka

Eia kekahi, hiki iā ia ke hoʻopilikia i kekahi mau ʻōpū i ka manawa hoʻokahi. ʻO ia hoʻi:

• ʻŌnaehana hoʻoheheʻe (ʻŌnaehana hoʻoheheʻe - ala GI)
• nā puʻupaʻa
• Puʻuwai
• Nā māmā

Sclerosis Palena (maʻi CREST)

Hoʻohana pinepine nā kauka i ka Limited Scleroderma ʻo CREST syndrome . ʻO kēlā me kēia leka ma CREST ke kū nei no kahi hōʻailona i hoʻokumu ʻia e ia:

• C - Calcinosis: Nā waihona calcium keu i loko o ka ʻili. Hiki ke ʻike ʻia he mau puʻupuʻu keʻokeʻo liʻiliʻi ma ka ʻili.
• R - Raynaud's syndrome: Ka loli ʻana o ke kala a me ka mae ʻana o nā manamana lima a me nā manamana wāwae. Hiki iā lākou ke lilo i keʻokeʻo, uliuli, a ʻulaʻula paha ke hōʻike ʻia i ke anu.
• E - Hana ʻole o ka esophagus: Paʻakikī i ka moni ʻana a me ka reflux acid.
• S - Sclerodactyly: Paʻa o ka ʻili ma nā manamana lima, e paʻakikī ai ke kūlou a hoʻopololei i nā manamana lima.
• T - Telangiectasias: Nā kiko liʻiliʻi, ʻulaʻula a i ʻole nā ​​kiko ʻeleʻele ma ka ʻili. Hiki ke like kēia me nā ʻupena nananana.

ʻO ka Sclerosis Sine

I ke ʻano o ka Sine Sclerosis, ʻike ʻia nā hōʻailona o Limited Sclerosis i ʻōlelo ʻia ma mua, akā ʻaʻole i hoʻopilikia ʻia ka ʻili . ʻO ia hoʻi, loaʻa paha iā ʻoe kekahi o nā hōʻailona i ʻōlelo ʻia ma ka CREST syndrome, akā ʻaʻohe mānoanoa ʻike ʻia o ka ʻili.

Pehea ka maʻamau o Scleroderma?

He maʻi laha ʻole ʻo Scleroderma.Ua manaʻo nā loea he 250 no ka miliona o nā kānaka ma ʻAmelika Hui Pū ʻIa i loaʻa nā ʻano scleroderma ʻekolu. Ma waena o kēia mau mea, he 100,000 mau kānaka i loaʻa i ka systemic sclerosis.

He aha nā hōʻailona o ka Scleroderma?

ʻAʻole paha e loaʻa i kekahi poʻe me ka scleroderma kekahi mau hōʻailona i nā pae mua. Eia nō naʻe, no ka poʻe he nui, ʻo ka hōʻailona nui ka ʻike ʻia ʻana o nā ʻāpana mānoanoa, waxy a i ʻole nā ​​kaha ma ka ʻili. Eia kekahi, aia kekahi mau hōʻailona maʻamau ʻē aʻe:

• ʻEha hui
• ʻOʻoleʻa , ʻoiai ke ala ʻana i ke kakahiaka
• Luhi (manaʻo luhi loa i nā manawa a pau)
• Ka pohō kaumaha i wehewehe ʻole ʻia

ʻO nā hōʻailona ʻē aʻe āu e ʻike ai (a me kahi e pili ai iā ʻoe) e hilinaʻi ʻia i ke ʻano o ka scleroderma āu.

Nā Hōʻailona o ka Scleroderma Kūloko

ʻO ka poʻe me ka scleroderma kūloko e ʻike wale i ka mānoanoa o ka ʻili . Hiki ke mānoanoa kēia ma kahi hoʻokahi a i ʻole hiki ke hana ma nā ʻāpana. Hiki iā ia ke hoʻopilikia i nā wahi aʻe o ka ʻili:

• Umauma
• ʻŌpū (ka ʻāpana a puni ka ʻōpū)
• Nā lima a me nā wāwae (Kou mau lima a me nā wāwae)
• Nā lima a me nā manamana lima
• Nā wāwae a me nā manamana wāwae

Eia nō naʻe, he mea kakaikahi loa ka scleroderma kūloko, ka mea e hoʻopilikia ai i nā ʻōpū o loko.

Nā Hōʻailona o ka Sclerosis Systemic

Hiki i ka sclerosis systemic ke hana i nā ʻano hōʻailona like ʻole. Hoʻoulu kēia i ka ʻili e mānoanoa, akā ma nā wahi nui a me nā ʻāpana. ʻOi loa ma ka maka a me nā lima. Hiki i ka ʻili mānoanoa ke hoʻomaka ma nā manamana lima a me nā manamana wāwae a laila pālahalaha a puni ke kino. Inā loaʻa iā ʻoe ka maʻi Raynaud , hiki i nā manamana lima a me nā manamana wāwae i loko o ka lālā i hoʻopilikia ʻia ke loli ke kala i ka wā e hōʻike ʻia ai i ke anu (ʻo ka maʻamau keʻokeʻo, ʻulaʻula, a i ʻole ke kala polū-ʻulaʻula).

Hiki i ka sclerosis systemic ke hana i nā hōʻailona i kāu mau ʻōpū a me nā ʻiʻo ʻē aʻe. Eia kekahi laʻana:

• Nā ʻiʻo: Ka ʻeha a me ka pehu ʻana, ʻoiai ma nā lima a me nā wāwae (nā wēlau o kou mau lālā).
• Nā hono: ʻOʻoleʻa, pehu, a me ka nalowale o ka neʻe ʻana.
• Nā māmā: ʻŪhū a me ka paʻakikī o ka hanu ʻana (dyspnea).
• ʻŌnaehana hoʻoheheʻe: Dysphagia, heartburn, bloating, constipation, a me ka maʻi pā.
• Puʻuwai:Nā puʻuwai puʻuwai kūpono ʻole (arrhythmia), hōʻiliʻili wai a puni ka puʻuwai (pericardial effusion), a me ka mānoanoa o ka ʻiʻo puʻuwai (fibrosis).
• Nā puʻupaʻa: Ka hāʻule ʻana o ka puʻupaʻa (hiki i kēia ke hoʻoweliweli i ke ola).
• Nā ʻōpū: Erectile Dysfunction (ED) i nā kāne a me ka maloʻo o ka ʻōpū i nā wahine.

He aha ke kumu o ka Scleroderma?

ʻO kaʻoiaʻiʻo, ʻaʻole maopopo nā kauka i ke kumu kikoʻī o ka scleroderma.

Ua ʻike ʻia kekahi mau noiʻi hiki ke holo i loko o nā ʻohana i kekahi ʻano (ʻo ia hoʻi, hiki ke hoʻoili ʻia mai nā mākua a i nā keiki), akā he mea kakaikahi loa ia ʻaʻole lawa nā hōʻike e hōʻoia pono ai he maʻi hoʻoilina ia.

Nā Kumu Pōpilikia o ka Scleroderma

Hiki i kekahi ke loaʻa ka scleroderma, akā ʻoi aku ka nui o ka pilikia o kekahi mau hui:

• ʻOi aku ka nui o nā wāhine i kēia maʻi ma mua o nā kāne i ʻehā manawa.
• ʻIke pinepine ʻia ia i nā kānaka ma waena o 30 a me 50 mau makahiki. He mea kākaʻikahi loa ʻo Scleroderma i nā kānaka ma lalo o 30 mau makahiki.
• ʻOi aku ka nui o ka poʻe ʻeleʻele i ka loaʻa ʻana o ka scleroderma. Loaʻa iā lākou ka maʻi ma mua, ʻoi aku ka nui o ka loaʻa ʻana o nā hōʻailona e hoʻopilikia ai i nā māmā, a ʻoi aku ka koʻikoʻi o nā hōʻailona ʻili.

He aha nā pilikia e hiki ke loaʻa mai ka Scleroderma?

ʻOi aku ka nui o ka pilikia o ka poʻe me ka scleroderma i ka loaʻa ʻana o ʻelua mau maʻi ʻē aʻe: ʻo Raynaud's syndrome a me Sjögren's syndrome .

Hoʻopilikia ka maʻi Raynaud i nā kīʻaha koko liʻiliʻi i loko o kou mau manamana lima a me kou mau manamana wāwae (kou mau huahelu). Loaʻa i ka poʻe me kēia maʻi nā hanana o nā hōʻailona (i kekahi manawa i kapa ʻia ʻo 'hoʻouka'). ʻO kēia ka wā e ʻūlū koke ai nā kīʻaha koko i loko o kou mau manamana lima me ka paʻa loa. Hiki i kēia ke hoʻolilo i ka ʻili o nā manamana lima i hoʻopilikia ʻia e lilo i keʻokeʻo, a i ʻole ka māmā ma mua o kou kala ʻili maoli. I kekahi manawa, hiki ke ʻike ʻia he uliuli.

ʻO ka maʻi Sjögren ke kumu o kekahi o nā glands o kou kino e hana i ka makū liʻiliʻi - ʻo ka hapa nui o nā glands salivary i loko o kou waha a me nā glands waimaka i loko o kou mau maka. Loaʻa pū kekahi poʻe me ka maʻi Sjögren i ka ʻeha o nā ʻiʻo a me nā hono.

Hiki i kekahi ʻano scleroderma ke hoʻoulu i nā pilikia koʻikoʻi . ʻO kekahi o lākou:

• Ka hāʻule ʻana o ka puʻupaʻa
• ʻO ke koko kiʻekiʻe o ka puʻuwai (ke koko kiʻekiʻe i loko o nā aʻa e lawe i ke koko mai ka puʻuwai i nā māmā)
• ʻO ka fibrosis pulmonary (ka ʻeha o ka ʻiʻo o ka māmā)
• Maʻi cardiovascular (nā pilikia e pili ana i kou puʻuwai a me nā kīʻaha koko)
• ʻO ka hāʻule ʻana o ka puʻuwai congestive, kahi maʻi puʻuwai
• Ka nele o ka pale ʻana
• Nā maʻi ʻōpū (nā kūlana e hoʻopilikia ai i ke ʻano o ke kino e hana ai i ka meaʻai a me ka omo ʻana i nā meaola)
• Ka maʻi ʻaʻai

Hiki i kekahi o kēia mau pilikia ke make . Inā ʻike ʻoe i kekahi mau hōʻailona hou a loli paha, e ʻike koke i ke kauka. Inā manaʻo ʻoe he mau hōʻailona o ka hōʻeha puʻuwai, e like me ka paʻakikī o ka hanu ʻana a i ʻole ka moni ʻana, e kelepona koke i ka 911 (a i ʻole kāu helu pilikia kūloko), a i ʻole e hele i kahi lumi pilikia o ka haukapila.

Pehea e ʻike ʻia ai ka Scleroderma?

Hoʻoponopono ke kauka i ka scleroderma ma o ka hoʻokolokolo kino a me kekahi mau hoʻokolohua ʻē aʻe.

Pono paha ʻoe e ʻike i kahi rheumatologist , he kauka loea i ka mālama ʻana i nā maʻi o ka ʻōnaehana pale. E nānā ʻo ia iā ʻoe a nīnau e pili ana i kāu mau hōʻailona. Pono ʻoe e haʻi i kāu kauka i kāu mau hōʻailona, ​​​​i ka wā i hoʻomaka mua ai, a inā paha he mea e hoʻonui ai iā lākou.

Pono nō hoʻi ʻoe e hana i kekahi mau hoʻokolohua e hōʻoia ʻaʻohe ou mau kūlana ʻē aʻe e hoʻoulu nei i nā hōʻailona like.

He aha nā hoʻokolohua a nā kauka e hoʻohana ai e ʻike ai iā Scleroderma?

ʻO ka ʻike ʻana i ka scleroderma he ʻāpana maʻamau ia o kahi hana i kapa ʻia ʻo 'differential diagnosis.' ʻO ke ʻano kēia e kāpae paha kāu kauka i nā kūlana ʻē aʻe a hana i kekahi mau hoʻokolohua e ʻike ai i ke kumu o kāu mau hōʻailona ma mua o ka ʻike ʻana iā ʻoe me ka scleroderma. Eia kekahi o nā hoʻokolohua āu e loaʻa ai:

• Nā hoʻāʻo koko e ʻike ai pehea e hana ai kāu ʻōnaehana pale.
• Nā hoʻāʻo hana pulmonary e ʻike ai inā ua hoʻopilikia ʻia kou mau māmā a i ʻole ka ʻōnaehana hanu.
• ʻO kahi biopsy kahi hana e lawe ʻia ai kahi ʻāpana liʻiliʻi o ka ʻili i hoʻopilikia ʻia a i ʻole nā ​​​​ʻiʻo ʻē aʻe a hoʻāʻo ʻia ma kahi hale hana.
• Inā loaʻa iā ʻoe nā hōʻailona digestive (GI), ʻo ka endoscopy kahi hoʻāʻo e nānā i lalo i kou puʻu a ʻōpū paha me kahi kāmela liʻiliʻi i hoʻopili ʻia i kahi ʻōmole lōʻihi a lahilahi.

Eia kekahi, pono ʻoe e hana i kekahi mau hoʻokolohua kiʻi e kiʻi i nā kiʻi o loko o kou kino. ʻO kēia mau mea:

• ʻElectrocardiogram (ECG)
• Echocardiogram (Echocardiogram - Echo)
• He kiʻi X-ray o ka umauma
• ʻO kahi scan CT (Computed Tomography - CT scan)

Pehea e mālama ʻia ai ʻo Scleroderma?

ʻAʻohe lāʻau lapaʻau no ka scleroderma , akā hiki i kāu kauka ke kōkua iā ʻoe e ʻike i kahi hui pū ʻana o nā lāʻau lapaʻau e hiki ke kōkua i ka kaohi ʻana i kāu mau hōʻailona a hoʻemi i ko lākou hopena i kou ola o kēlā me kēia lā.

ʻO ke ʻano o ka lāʻau lapaʻau āu e pono ai ma muli o kahi o kou mau hōʻailona a me ke koʻikoʻi o lākou. Eia kekahi mau lāʻau lapaʻau maʻamau no ka scleroderma:

• Nā lāʻau lapaʻau ʻili: Pono ʻoe e hoʻohana i nā kirīmi a me nā moisturizers e pale ai i ka maloʻo ʻana o kou ʻili.
• Nā Immunosuppressants: Hoʻōki kēia mau lāʻau i kāu ʻōnaehana pale mai ka hōʻino ʻana i nā ʻāpana olakino a me nā ʻiʻo.
• Nā lāʻau lapaʻau e kāohi i nā hōʻailona kikoʻī: No ka laʻana, pono paha ʻoe e lawe i nā lāʻau lapaʻau e kāohi i kou koko, e maʻalahi ka hanu ʻana, e mālama i ka hāʻule ʻana o ka puʻupaʻa, a i ʻole e hōʻoluʻolu i nā hōʻailona o ka ʻōpū.
• Hoʻōla kino: Hiki i ke kauka hoʻōla kino ke kōkua iā ʻoe e hoʻomaikaʻi i kāu mau neʻe kino.
• Phototherapy: Pili kēia i ka hoʻohana ʻana i ka mālamalama ultraviolet (UV) mālamalama a kālele ʻia e mālama i nā maʻi ʻili. Hiki i kēia ke kōkua i ka mālama ʻana i ka ʻili mānoanoa.
• Nā hoʻoili ʻana o nā pūnaewele kumu: Pono paha kekahi poʻe me nā hōʻailona koʻikoʻi i kahi hoʻoili ʻana o nā pūnaewele kumu. Pili kēia i ka hoʻololi ʻana i nā pūnaewele koko i hōʻino ʻia me nā pūnaewele hāʻawi olakino.

Inā loaʻa iaʻu ʻo Scleroderma, he aha kaʻu e manaʻo ai?

Pono ʻoe e manaʻo e mālama i ka scleroderma a me kāna mau hōʻailona no ke koena o kou ola . ʻOiai ʻaʻohe lāʻau lapaʻau mau loa, nui ka poʻe e ʻike i nā lāʻau lapaʻau a me nā hoʻololi ʻana i ke ʻano o ka nohona e hiki ai ke hōʻemi i ka hopena o kā lākou mau hōʻailona i ko lākou ola o kēlā me kēia lā.

Hiki i ka noho ʻana me kahi maʻi lōʻihi ke lilo i mea hoʻonāukiuki loa i kekahi manawa. E nīnau i kāu kauka e pili ana i nā hui kākoʻo a i ʻole nā ​​​​manawa hoʻonaʻauao e kōkua iā ʻoe e hoʻokele i kou kaumaha a me ke olakino noʻonoʻo.

Hiki ke pale ʻia ʻo Scleroderma?

Ma muli o ka ʻike ʻole ʻia o ke kumu kikoʻī, ʻaʻohe ala e pale aku ai i ka scleroderma .

Pehea e mālama ai iaʻu iho? (Mālama ponoʻī)

Ma waho aʻe o kāu mau lāʻau lapaʻau maʻamau, hiki paha iā ʻoe ke hoʻokele i kekahi mau hōʻailona ma ka hana ʻana i kekahi mau hoʻololi i kou nohona o kēlā me kēia lā. ʻO kekahi o kēia mau mea:

• Ma hope o kahi papaʻai olakino a me ka hoʻolālā hoʻoikaika kino e kūpono iā ʻoe.
• Ke pale nei i ka hana kino nui ke maikaʻi ʻole ʻoe.
• E pale i kou ʻili ma ke komo ʻana i nā lole kūpono no kou wahi a me ka hoʻopili ʻana i kahi pale lā maikaʻi ke hele ʻoe i waho.
• E kipa aku i ke kauka niho (mea mālama niho) no ka hoʻomaʻemaʻe mau ʻana i nā niho a me nā nānā ʻana.

Āhea wau e ʻike ai i kaʻu kauka?

Hiki i ka Scleroderma ke hana i nā ʻano hōʻailona like ʻole, no laila hiki ke paʻakikī ke ʻike i kekahi manawa i ka wā mua. Inā loaʻa iā ʻoe ka ʻeha hou a i ʻole nā ​​hōʻailona ʻē aʻe, ʻoiai inā e ʻoi aku ka ʻino, e ʻike i ke kauka. ʻOiai inā ua hoʻokumu ʻia kāu mau hōʻailona e kekahi mea ʻē aʻe, hiki i kāu kauka ke ʻike i ke kumu a ʻōlelo i nā lāʻau lapaʻau e kāohi iā lākou.

Inā ʻaʻole like ka holo pono ʻana o kāu lāʻau scleroderma, a inā loli a ʻoi aku paha ka ʻino o kāu mau hōʻailona - ʻoiai inā pili lākou i kou hiki ke hanu a ale paha - e kamaʻilio me kāu kauka.

Āhea wau e hele ai i ka Emergency Treatment Unit (ETU) ?

Inā loaʻa iā ʻoe nā hōʻailona o ka hāʻule puʻuwai , e like me ka ʻeha o ka umauma, ka paʻakikī o ka hanu ʻana, a inā manaʻo ʻoe ʻaʻole hiki iā ʻoe ke ale, e kāhea koke i ka 911 (a i ʻole kāu helu ulia pōpilikia kūloko), a i ʻole e hele i kahi keʻena ulia pōpilikia o ka haukapila.

He aha nā nīnau e pono iaʻu e nīnau aku i kaʻu kauka?

Mai poina e nīnau i kēia mau nīnau ke ʻike ʻoe i ke kauka:

• Loaʻa iaʻu ʻo Scleroderma a i ʻole kekahi maʻi ʻē aʻe?
• He aha ke ʻano o ka Scleroderma iaʻu?
• He aha ke ʻano o ka lāʻau lapaʻau e pono ai iaʻu?
• He aha nā pilikia e pono iaʻu e makaʻala nui?

He aha ke kūlana o ke ola o kekahi kanaka me Scleroderma?

ʻAʻole loaʻa i ka hapa nui o ka poʻe me ka scleroderma nā pilikia e hoʻoweliweli ana i ke ola .

Eia nō naʻe, inā loaʻa iā ʻoe ka sclerosis systemic, kahi e hoʻopilikia ai i nā ʻōpū o loko, ʻoi aku kou pilikia o nā pilikia koʻikoʻi. E haʻi aku kāu kauka iā ʻoe i ka mea e manaʻo ai a inā paha ʻoe i ʻoi aku ka nui o ka pilikia o nā pilikia make.

He maʻi koʻikoʻi anei ʻo Scleroderma?

E like me kekahi maʻi maʻi mau loa, he maʻi koʻikoʻi ka scleroderma.ʻO kēia no ka mea e pono paha ʻoe e kū i nā hōʻailona no ke koena o kou ola. Eia naʻe, ʻaʻole ia he manaʻo e noho aliʻi ʻo Scleroderma i kou ola. He ʻokoʻa ka ʻike o kēlā me kēia kanaka. E kamaʻilio me kāu kauka e pili ana i kou mau makaʻu, kānalua, a me nā hopohopo.

Hiki i ka Scleroderma ke lilo i maʻi hoʻonāukiuki loa e noho pū me. No ka mea, ʻaʻole maopopo i nā kauka ke kumu o ia mea a ʻaʻohe lāʻau lapaʻau hoʻokahi e kūpono i nā mea āpau, hiki ke lōʻihi ka manawa e loaʻa ai kahi lāʻau e hoʻomalu pono i kāu mau hōʻailona. E kōkua kāu kauka iā ʻoe i kēlā me kēia ʻanuʻu o ke ala.

E hilinaʻi i kou manaʻo naʻau, a e hilinaʻi i ka mea i manaʻo ʻia he 'kūpono ʻole'. ʻOiai kahi loli liʻiliʻi i nā hōʻailona he hōʻailona paha ia o kahi pilikia e pono ai ke nānā ʻia e kāu kauka. Mai makaʻu e nīnau a kaʻana like i kou mau manaʻo e pili ana i kāu mau hōʻailona a i ʻole ka lāʻau lapaʻau.

Hiki ke luhi loa ka noho ʻana me kahi maʻi mau. E hoʻokaʻawale i ka manawa e hāʻawi iā ʻoe iho i ka mahalo a me ka ʻike no ka hana nui āu i hoʻokomo ai i ka mālama ʻana i kāu mau hōʻailona.

Kekahi mau mea nui e hoʻomanaʻo ai (Leka Lawe-Home)

ʻAe, ua kamaʻilio nui mākou e pili ana iā Scleroderma i kēia manawa. I ka hopena, eia kekahi o nā mea nui e pono ai ʻoe e hoʻomanaʻo:

• He maʻi kakaikahi ʻo Scleroderma, he maʻi autoimmune kahi e hana ai ke kino i ka nui o ka collagen, e hoʻomānoanoa ai ka ʻili a i kekahi manawa nā ʻōpū o loko.
• ʻElua ʻano nui o kēia: kūloko a me ke ʻano holoʻokoʻa. ʻOi aku ka weliweli o ke ʻano holoʻokoʻa no ka mea hiki iā ia ke hoʻopilikia i nā ʻōpū o loko.
• ʻOkoʻa nā hōʻailona. ʻO nā mea nui e komo pū ana me ka mānoanoa o ka ʻili, ka ʻeha o nā hono, ka luhi, a me ka maʻi Raynaud.
• ʻOiai ʻaʻohe lāʻau lapaʻau mau loa, aia nā lāʻau lapaʻau kūpono e kāohi i nā hōʻailona. E kamaʻilio me kāu kauka a hoʻomohala i kahi hoʻolālā lapaʻau e kūpono iā ʻoe.
• He mea nui ka ʻike mua ʻana a me ka mālama ʻana, no laila inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona, ​​​​e ʻimi pono i ke kōkua lapaʻau.
• ʻOiai he kūlana lōʻihi kēia, he mea nui e noho ikaika ka noʻonoʻo. Inā pono, e ʻimi i ke kōkua mai nā hui kākoʻo.

Mai hopohopo, ʻaʻole ʻoe hoʻokahi. Me ka ʻike kūpono a me ke aʻo lapaʻau, hiki iā ʻoe ke ola me ka holomua me kēia maʻi.

ʻO Scleroderma, Scleroderma, Mānoanoa o ka ʻili, Nā maʻi pale ʻana, Collagen, Raynaud's syndrome, Systemic sclerosis, Nā maʻi ʻili