ʻAʻole hiki ke wehewehe ʻia ka hauʻoli āu e manaʻo ai ma ke ʻano he makua ke nānā ʻoe i kahi pēpē hānau hou. Akā i kekahi manawa, ke nānā ke kauka i ka pēpē a haʻi iā ʻoe he hewa kekahi mea me kona kino, e makaʻu iki paha ʻoe a hopohopo. I kēia lā, ke kamaʻilio nei mākou e pili ana i kahi kīnā hānau kakaʻikahi loa, akā he mea nui. Ua kapa ʻia kēia ʻo Urogenital Sinus.
He aha kēia Sinus Urogenital?
I ka ʻōlelo maʻalahi, he kīnā hānau kēia e pili wale ana i nā kaikamahine . E noʻonoʻo, he ʻekolu mau puka o ke kaikamahine ma kona kino haʻahaʻa.
1. Ka wehe ʻana o ke ala mimi (urethra) kahi e puka aku ai ka mimi.
2. Ka wehe ʻana o ka vagina (vagina).
3. ʻO ka puka ma ka rectum (anus) kahi e puka ai ka feces.
Eia nō naʻe, ʻelua mau puka o ke keiki me ka Urogenital Sinus. ʻO kekahi no ka puka ʻana o nā feces. ʻO kekahi puka he puka maʻamau i hana ʻia e ka hui ʻana o ka urethra a me ka vagina. ʻO ke ʻano kēia ua pili ka urethra a me ka vagina i kēia puka like.
No ke aha lā kēia e hana nei?
I mea e maopopo ai i kēia, pono kākou e hoʻi i nā pae mua o ka ulu ʻana o ka pēpē i loko o ka ʻōpū. Ke ulu nei ka pēpē ma ke ʻano he fetus, ʻo nā ʻōnaehana ʻekolu a mākou i ʻōlelo ai (ʻo ka ʻōnaehana ʻōpū, ka ʻōnaehana mimi, a me ka ʻōnaehana hānau hou) e hui pū mua a wehe i loko o kahi keʻena like. Ua kapa ʻia kēia ʻo "cloaca". I ka ulu ʻana o ka pēpē i loko o ka ʻōpū, e hoʻokaʻawale mālie kēia mau ʻōnaehana ʻekolu a hana i ʻekolu mau puka kaʻawale. Akā i kekahi manawa, no kekahi kumu, ʻaʻole e hoʻokaʻawale pono ka ʻōnaehana mimi a me ka vagina. ʻO ia ka manawa e hui pū ai lākou a hana i kahi kūlana i kapa ʻia ʻo "Urogenital Sinus."
Aia kekahi mau ʻano nui o nā sinus urogenital?
ʻAe, hiki ke hoʻokaʻawale ʻia kēia ʻano i ʻelua ʻano nui, ma muli o ka lōʻihi o ke ala maʻamau a me kahi o ke kino e pili ai.
| ʻAno | He wehewehe maʻalahi |
|---|---|
| Hoʻohui haʻahaʻa / hui haʻahaʻa | Ma kēia ʻano, pili loa ka urethra a me ka vagina i ka puka o waho o ke kino. No laila, pōkole loa ke alahele maʻamau. Hiki i ka urethra a me ka vagina ke nui a me ke kūlana maʻamau. He ʻano maʻamau iki kēia. |
| Hui kiʻekiʻe / hui kiʻekiʻe | Maanei, hui nā ala ʻelua i loko o ke kino, ma kahi mamao aku o ka puka o waho. No laila, ʻoi aku ka lōʻihi o ke ala maʻamau. Ua manaʻo ʻia kēia he kūlana koʻikoʻi . No ka mea, pili ia me kahi pilikia kiʻekiʻe o nā pilikia ʻē aʻe. |
He maʻi laha ʻole kēia. ʻIke pinepine ʻia ia ma lalo o hoʻokahi i loko o 10,000 mau hānau ʻana. No laila, mai hopohopo i kēia nūhou.
He aha nā hōʻailona o kēia?
Hiki ke ʻokoʻa nā hōʻailona ma muli o ke koʻikoʻi o ke kūlana. ʻIke pinepine ʻia kēia mau mea ke nānā ke kauka i ka pēpē ma hope o ka hānau ʻana.
- ʻO ka hiʻohiʻona nui, e like me kā mākou i ʻōlelo ai ma mua , ʻelua wale nō puka : hoʻokahi no ka feces a ʻo kekahi ma ke ʻano he puka maʻamau no ka urethra a me ka vagina.
- Hōʻiliʻili ka mimi i loko o ka vagina, e hoʻoulu ai i ka vagina e pehu. Ua kapa ʻia kēia ma ke ʻano lapaʻau he "hydrocolpos".
- I kekahi manawa, ʻaʻole paha i hoʻomohala piha ʻia ka vagina.
- Hiki paha iā ʻoe ke ʻike i nā ʻōpū o loko e like me ka uterus, ovaries, a me nā fallopian tubes i hoʻomohala piha ʻole ʻia.
No ke aha lā kēia e hana nei? He aha nā kumu?
He mea paʻakikī ke kuhikuhi i kahi kumu kikoʻī, akā aia kekahi mau kumu nui i ʻike ʻia e nā kauka.
- ʻO Congenital Adrenal Hyperplasia (CAH): He kūlana genetic kēia. Ma kēia kūlana, ʻaʻole hana nā kelepa adrenal o ke pēpē i kahi enzyme e pono ai e hana i nā hormones. Hiki i kēia ke hana i nā hormonal imbalances a me ka ulu ʻana o nā ʻōpū, ʻoi aku hoʻi i nā kaikamahine.
- Virilization: I ka ʻōlelo maʻalahi, ʻo ia ka nui o nā hormones kāne (androgens) i loko o kahi fetus wahine. Hiki i kēia ke hoʻopilikia i ka ulu ʻana o nā genitals.
Pehea e ʻike ai nā kauka i kēia maʻi?
He mea nui loa ka ʻike pololei ʻana i kēia kūlana no ka hoʻolālā ʻana i ka mālama ʻana. I kekahi manawa hiki ke ʻike ʻia i ka wā o nā scan ultrasound prenatal. Akā i ka hapa nui o ka manawa, ʻike ke kauka i kēia loli i ka wā o ka hoʻokolokolo kino mua ma hope o ka hānau ʻana o ka pēpē . A laila, ua kauoha ʻia kekahi mau hoʻokolohua hou aʻe e hōʻoia i ke kūlana a hoʻoholo i ke koʻikoʻi.
| Hoʻāʻo | I ka ʻōlelo maʻalahi, he aha kāu e hana ai me ia? |
|---|---|
| ʻO ke kiʻi ʻana o ka ultrasound | Kōkua kēia i ka ʻike ʻana i ke kūlana o nā ʻōpū o loko o ka pēpē, e like me nā puʻupaʻa, ka ʻōpū mimi, ka vagina, a me ka rectum. Hiki iā ia ke nānā no ka hydrocolpos (ka pehu ʻana o ka vagina). |
| ʻO ke Genitogram Retrograde | He hoʻāʻo X-ray kūikawā kēia. Hoʻokomo ke kauka i kahi waihoʻoluʻu kūikawā ma o ka puka maʻamau a lawe i nā kiʻi X-ray. ʻAe kēia i ke ʻano, ka nui, a me ke kūlana o nā ʻōpū i loko e ʻike maopopo ʻia. |
| MRI Scan | ʻAe kēia i nā kiʻi maopopo loa a kikoʻī hoʻi o loko o ke kino. Hiki iā ia ke hōʻike i kahi kikoʻī o ka Urogenital Sinus a me nā pilikia ʻē aʻe e kū nei, e like me ke kuamoʻo a puni. |
| Endoscopy | Hoʻohana kēia ʻano hana i kahi ʻōmole lahilahi (endoscope) i lako me kahi kāmela a me ke kukui e hoʻokomo ʻia ma o ka puka maʻamau a e nānā pololei i loko ma kahi pale. |
Pehea e mālama ʻia ai?
ʻO ke ala wale nō e mālama ai i kēia kūlana, ʻo ia ke hoʻokaʻawale ʻoki i ka vagina a me ka urethra .
He hoʻoholo paʻakikī loa kēia. Ma mua o ke ʻoki ʻana, e kūkākūkā lōʻihi ʻoe me ka hui lapaʻau o kāu keiki. ʻO ka maʻamau, aia i loko o kēia hui kahi kauka loea i nā ʻōnaehana mimi a me ka hānau keiki (he `Urologist`) a me ke kauka loea i nā hormones (he `Endocrinologist`).
Hana pinepine ʻia kēia ʻoki kino i loko o ka makahiki mua o ke ola o ke keiki . ʻO ke ʻano o ke ʻoki kino i hana ʻia ma muli o ke ʻano he 'low-joined' a i ʻole 'high-joined', a mākou i kūkākūkā ai ma mua.
- No ke kūlana hui haʻahaʻa:Hoʻohana pinepine ʻia ke kaʻina hana ʻoki kino i kapa ʻia ʻo `flap vaginoplasty`. Ma kēia kaʻina hana, hoʻohana ke kauka ʻoki kino i kahi ʻāpana o ka puka maʻamau e hana i ʻelua mau puka kaʻawale no ka vagina a me ka urethra.
- No nā kūlana i hui pū ʻia me ke kiʻekiʻe: Pono kahi ʻoki kino paʻakikī, e like me ka `pull-through vaginoplasty`. Maanei, ua hoʻokaʻawale ʻia ka vagina mai ke alahele maʻamau a ua hana ʻia kahi puka kaʻawale no ia.
Pono paha kekahi mau keiki e hana ʻia ke ʻoki kino, e like me ka `clitoroplasty` a i ʻole `labiaplasty`, e hoʻihoʻi i ke ʻano o ka clitoris a i ʻole labia i ka maʻamau.
E hoʻopilikia anei kēia i ka wā e hiki mai ana o kaʻu keiki?
He nīnau nui kēia no kēlā me kēia mākua. ʻO ka pahuhopu nui o ke ʻoki kino, ʻo ia ka ʻae ʻana i ke keiki e hana i nā hana kino maʻamau a hoʻihoʻi i ke ʻano o nā ʻāpana kino i ka maʻamau.
- Mimi: Ma hope o ke ʻoki ʻana, hiki i ka hapa nui o nā keiki ke mimi maʻamau me ka ʻole o nā pilikia .
- Ka pōʻaiapuni menstrual: ʻAʻole kēia e hoʻopilikia i ka pōʻaiapuni menstrual maʻamau ma hope o ka ulu ʻana o ke keiki.
- Ke ola moekolohe: I kekahi manawa, i ka ulu ʻana o ke pēpē, hiki i ka vagina ke lilo i mea haiki a pōkole paha (vaginal stenosis). Hiki i kēia ke hana i kekahi mau pilikia i ka wā o ka moekolohe i ka wā e hiki mai ana. Hiki iā ʻoe ke kamaʻilio me kāu kauka e pili ana i kēia a ʻimi i ka lāʻau lapaʻau e pono ai.
- Hāpai keiki: ʻO ka loaʻa ʻana o kēia maʻi, ʻaʻole ia he manaʻo ʻaʻole hiki i ke keiki ke hāpai i ka wā e hiki mai ana. Eia nō naʻe, inā paʻakikī loa ke ʻoki ʻana, hiki i nā kauka ke ʻōlelo aku i kahi ʻoki cesarean (C-section) ke hānau ʻia ke pēpē.
Hiki ke ʻokoʻa kēia mau mea ma muli o ke kūlana o kāu keiki, no laila ʻoi aku ka maikaʻi o ke kūkākūkā ākea ʻana i nā mea āpau me kāu kauka.
Nā nīnau e nīnau aku ai i ke kauka
E nīnau i kāu kauka e pili ana i kāu mau nīnau a me nā makaʻu a pau. Eia kekahi laʻana, hiki iā ʻoe ke nīnau i nā nīnau e like me kēia:
- He aha ke ʻano o ka Sinus Urogenital a kaʻu keiki?
- He aha ke ʻano o ke ʻoki kino āu e ʻōlelo nei? I ka makahiki hea ka mea maikaʻi loa e hana ʻia ai?
- Ke ʻeha nei kaʻu keiki i kēia manawa?
- E pono anei nā ʻoki kino hou aku i ka wā e ulu ana ke keiki?
- E hoʻopilikia anei kēia i ke kaʻina hana menstrual o ke keiki?
- E pili anei kēia i ka hānai ʻana i kahi keiki i ka wā e hiki mai ana?
Leka Lawe-Home
- He kīnā hānau kaʻawale ka sinus urogenital i nā kaikamahine, kahi e pili ai ka urethra a me ka vagina i hoʻokahi puka maʻamau.
- Hoʻomaopopo pinepine ʻia kēia maʻi i ka wā o ka hoʻokolokolo ʻana e ke kauka ma hope koke iho o ka hānau ʻana o ka pēpē.
- ʻO ke ʻano lapaʻau wale nō no kēia, ʻo ia ke hoʻokaʻawale ʻana i nā ala ʻelua ma ke ʻoki kino. He hoʻoholo koʻikoʻi kēia a nā mākua a me ka hui lapaʻau e hana pū ai.
- Ma hope o ke ʻoki kūpono, hiki i ka hapa nui o nā keiki ke ola maʻamau. Hiki iā lākou ke mimi maʻamau.
- E kamaʻilio ākea me ke kauka o kāu keiki e pili ana i nā kānalua a makaʻu paha āu e loaʻa ai. E hāʻawi lākou iā ʻoe i ke alakaʻi maikaʻi loa.
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