Ua kuhikuhi ʻia anei ʻoe a i ʻole kekahi āu i ʻike ai i kahi lāʻau lapaʻau i kapa ʻia ʻo Voxelotor (i ʻike ʻia hoʻi ʻo Oxbryta) e kāu kauka no ka mea he maʻi cell sickle ʻoe a i ʻole kekahi āu i ʻike ai? Inā pēlā, he mea nui loa kēia ʻatikala iā ʻoe. I kēia lā, e kamaʻilio wale mākou e pili ana i ka ʻike hou loa e pili ana i kēia lāʻau lapaʻau, a me nā mea e makaʻala ai i ka wā e hoʻohana ai. E noʻonoʻo iā ia e like me ke kamaʻilio ʻana āu e hana nei me kahi hoaaloha.
I ka ʻōlelo maʻalahi, he aha ʻo Voxelotor?
He lāʻau lapaʻau ʻo Voxelorator i hāʻawi ʻia i nā poʻe me ka maʻi ʻeha. Hoʻololi kēia maʻi i ke ʻano o nā hunaola koko ʻulaʻula i loko o ko kākou koko a lilo i ʻano ʻeha. A laila pili pū nā hunaola a hiki ke ālai i nā kīʻaha koko. Hoʻōki kēia lāʻau lapaʻau i ke ʻano ʻeha a kōkua i nā hunaola koko ʻulaʻula e mālama i ko lākou ʻano poepoe a palupalu. Hoʻēmi pū ia i ka wikiwiki o ka haki ʻana o nā hunaola koko ʻulaʻula.
Eia nō naʻe, aia kahi mea kūikawā a koʻikoʻi loa e pono ai ʻoe e ʻike ma aneʻi.
Ua ʻike ʻia nā noiʻi hou a ka U.S. Food and Drug Administration (FDA) e ʻoi aku ka nui o nā pilikia o ka hoʻohana ʻana iā Voxelotor ma mua o nā pono. ʻO ka hopena, ʻaʻole lākou e ʻae hou i ka lāʻau lapaʻau ma ke ʻano he lāʻau lapaʻau no ka maʻi cell sickle.
No laila, inā ʻoe e lawe nei i kēia lāʻau lapaʻau, mai hopohopo . ʻO ka mea maikaʻi loa hiki iā ʻoe ke hana, ʻo ia ke ʻike koke i kāu kauka a kamaʻilio e pili ana i ia mea . Hiki iā ia ke kōkua iā ʻoe e ʻike i nā koho lapaʻau ʻē aʻe i kūpono iā ʻoe a kōkua iā ʻoe e hoʻololi iā lākou.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka lawe ʻana i kēia lāʻau lapaʻau
He mea nui loa i kāu kauka ke ʻike i kou mōʻaukala olakino piha ma mua o ke kau ʻana i kēia lāʻau lapaʻau. No laila e hōʻoia e haʻi iā lākou inā loaʻa iā ʻoe kekahi o kēia mau kūlana:
- Inā he maʻi kou akepaʻa.
- Inā ua loaʻa iā ʻoe kahi hopena maʻi ma mua iā Voxelotor a i ʻole kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻoluʻu paha.
- Inā hāpai ʻoe a i ʻole ke manaʻolana nei e hāpai.
- Inā he makuahine hānai waiū ʻoe.
Ma muli o kēia ʻike, e hoʻoholo ke kauka i ka lāʻau lapaʻau kūpono loa nāu.
Pehea e pono ai iaʻu ke hoʻohana i ka lāʻau lapaʻau?
ʻO ka ʻike pehea e hoʻohana pono ai i ka lāʻau lapaʻau he hopena nui ia i nā hopena.
- Pono ʻoe e lawe i kēia lāʻau me ka wai.
- E ho'āʻo e lawe iā ia i ka manawa like i kēlā me kēia lā, e like me ke kauoha a kāu kauka.
- Mai uhaʻi, kuʻi, a nau paha i ka papa. E ale holoʻokoʻa.
- Hiki iā ʻoe ke lawe ma mua a ma hope paha o ka ʻai ʻana, akā inā ʻeha kou ʻōpū, ʻoi aku ka maikaʻi o ka lawe ʻana me ka meaʻai.
- E hoʻomau i ka hoʻohana ʻana i kēia lāʻau lapaʻau a hiki i ka wā e ʻōlelo ai kāu kauka iā ʻoe e hoʻōki. (Akā, ma muli o ka hoʻoholo a ka FDA a mākou i ʻōlelo ai ma mua, e kamaʻilio me kāu kauka e pili ana i kēia i ka wā hikiwawe loa.)
Inā ʻoe e hāʻawi i kēia lāʻau lapaʻau i nā keiki liʻiliʻi ...
Hiki ke kuhikuhi ʻia kēia lāʻau lapaʻau i nā keiki ma luna o 4 mau makahiki i kekahi mau hihia. Eia nō naʻe, pono e hoʻoholo ʻia kēia e ke kauka pediatric. No laila, inā hāʻawi ʻia kēia lāʻau lapaʻau i kahi keiki, pono e hahai pono ʻia nā kuhikuhi a ke kauka.
He aha kāu e hana ai inā lawe nui ʻoe i ka lāʻau lapaʻau?
E noʻonoʻo ua lawe hewa ʻoe i nā pila he nui loa. Inā hana ʻia kēlā , mai hoʻokaʻulua.
E kelepona koke aku i ke Kikowaena ʻIke Lāʻau Make Lahui ma ka Halemai Lahui ʻo Colombo . A i ʻole e hele i ka Emergency Treatment Unit (ETU) o ka haukapila kokoke loa.
Eia kekahi, e hoʻomanaʻo, ua kuhikuhi ʻia kēia lāʻau lapaʻau nou wale nō. Mai hāʻawi i kāu lāʻau lapaʻau i kekahi.
He aha kāu e hana ai inā e poina ʻoe i kahi mahele o ka lāʻau lapaʻau?
I kekahi manawa poina iā mākou ke lawe i kā mākou lāʻau lapaʻau. Inā poina ʻoe i kahi lāʻau, mai hopohopo no ia mea. E hōʻalo wale iā ia a lawe i kāu lāʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe i ʻelua mau lāʻau i ka manawa hoʻokahi e hoʻopiha ai i kahi lāʻau i poina.
Nā lāʻau ʻē aʻe e launa pū me kēia lāʻau (Nā Hana Lāʻau)
Hiki i kekahi mau lāʻau lapaʻau ke launa pū kekahi me kekahi ke lawe pū ʻia. ʻAʻole pono e lawe pū ʻia nā lāʻau lapaʻau ma lalo nei me Voxelotor.
- ʻO Flibanserin
- Lomitapide
- ʻO Lonafarnib
Aia paha kekahi mau lāʻau lapaʻau ʻē aʻe, no laila e hāʻawi i kāu kauka i kahi papa inoa piha o nā lāʻau lapaʻau āpau āu e lawe ai (me nā huaora, nā lāʻau lapaʻau lāʻau, a me nā mea hoʻohui) . A laila hiki iā ia ke hoʻoholo inā pono ʻoe e hana i kekahi mau hoʻololi i kāu hoʻolālā lapaʻau e hōʻemi i nā hopena i makemake ʻole ʻia.
Nā hopena ʻaoʻao e hiki mai ana ma muli o ka lāʻau lapaʻau
E like me nā lāʻau lapaʻau āpau, aia kahi hiki ke loaʻa nā hopena ʻaoʻao. E hoʻokaʻawale maopopo kākou i ke ʻano o lākou.
| Ka hoʻokaʻawale ʻana o nā hopena ʻaoʻao | |
|---|---|
| Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i ke kauka | |
| Nā hopena alerika | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe, ke alelo a i ʻole ka puʻu. |
| Nā hōʻailona koʻikoʻi ʻē aʻe | ʻŌhūhū ʻili me ke kuni a me nā kīʻaha lymph pehu. |
| Inā hoʻomau a hoʻopilikia paha, e haʻi i kāu kauka. | |
| Nā hopena ʻaoʻao maʻamau |
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Inā loaʻa iā ʻoe kekahi mau hōʻailona ʻē aʻe i ʻōlelo ʻole ʻia ma kēia papa inoa, e kamaʻilio pū me kāu kauka e pili ana iā lākou.
Pehea ʻoe e mālama pono ai i kāu lāʻau lapaʻau?
No ka mālama ʻana i ka maikaʻi o nā lāʻau lapaʻau, pono e mālama pono ʻia.
- E mālama i kahi hiki ʻole i nā keiki a me nā holoholona ke kiʻi aku .
- ʻOi aku ka maikaʻi o ka mālama ʻana iā ia ma kahi mahana ma waena o 20 a me 30 kekelē Celsius (20-30°C). ʻO ia hoʻi, ka mahana lumi maʻamau.
- Mai hoʻohana i ka lāʻau lapaʻau i pau ka lā.
Pehea ʻoe e hoʻopau ai i nā lāʻau lapaʻau i hoʻohana ʻole ʻia?
ʻAʻole maikaʻi ka hoʻolei wale ʻana i nā lāʻau lapaʻau i pau ka lāʻau a i ʻole nā lāʻau lapaʻau i makemake ʻole ʻia i loko o ka ʻōpala. ʻO ka mea maikaʻi loa hiki iā ʻoe ke hana, ʻo ia ke nīnau i kāu kauka e pili ana i ia mea. I kekahi manawa paipai lākou i ka hoʻohuihui ʻana i nā pila me kahi mea e like me ke kope kope a i ʻole ka lepo, e waiho ana iā lākou i loko o kahi ʻeke hiki ke sila ʻia, a e hoʻolei iā lākou i loko o ka ʻōpala. Akā ma mua o kou hana ʻana i kekahi mea, ʻoi aku ka maikaʻi o ka loaʻa ʻana o ka ʻōlelo aʻoaʻo lapaʻau.
Leka Lawe-Home
- He lāʻau lapaʻau ʻo Voxelorator no ka maʻi ʻeha o ke kelepona sickle.
- ʻO ka mea nui loa: Ua hōʻike ʻia nā noiʻi hou e ʻoi aku ka nui o nā pilikia o kēia lāʻau lapaʻau ma mua o kona mau pono, ʻo ia ke kumu i ʻae ʻole ai ka FDA.
- Inā ʻoe e hoʻohana nei i kēia lāʻau lapaʻau, mai hopohopo a nīnau koke aku i kāu kauka e kūkākūkā i nā lāʻau lapaʻau ʻē aʻe.
- Ma mua o ka lawe ʻana i kēia lāʻau lapaʻau, e haʻi i kāu kauka e pili ana i kou mau kūlana olakino a me nā lāʻau lapaʻau ʻē aʻe āu e lawe nei.
- Inā ʻoe e poina i kahi lāʻau lapaʻau, e lawe i ka lāʻau lapaʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe i ʻelua mau lāʻau lapaʻau i ka manawa like.
- Mai kaʻana like i kāu lāʻau lapaʻau i kuhikuhi ʻia me nā poʻe ʻē aʻe.
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